Tag: Biohacking

Categories
Chronic Disease Startups

Day 508 and Deficit

I woke up feeling reasonably ok today. I slept well but checking my trackers I learned my recovery scores were pretty low. My HRV was dipping into 30% recovery territory and I had a low blood oxygen count. I’ve been recovering from Influenza A so it’s not a surprise my lungs are struggling. But I tried not to let some bad data psyche me out. Maybe I was ok. I told myself I just needed to stick to my routine as I can’t let myself get into a physical deficit.

So I went about my morning routine with some optimism. I got some coffee and made breakfast. I took several rounds of supplements. I did some basic grooming. I felt basically human. I was all excited to dive into work from the second I woke up. I was so excited I’ve been dreaming about the presentation I’m giving at Consensus. I literally woke up with talking points.

And then at around 10am I realized I’d used up all my functional hours taking care of myself. Fucking figures. I am already in a physical deficit from this flu. It’s scary for me to be in a deficit as my favorite coping mechanism is to engage in workaholism. I over prepare and over work and I make demands of myself that only sabotage the end result. It’s entirely counter productive. It just looks socially acceptable because of the Protestant Work ethic.

So I need to calm the fuck down and accept where I am and that it will still be good enough. I know my shit. It’s worth it. And I’ll deliver on better than the average midwit. Honestly even acting like this is kind of midwit. The real galaxy brains would just be vibing it anyway. But it really is amazing how easy it is to fall into midwit fear based patterns. Believing in the bigger broader math of your own life is really hard because so much of our own ego is rooting for us to indulge in our worst impulses. So I’m going to calm down, not worry about my energy deficit and continue to do the work. It’s not glamorous work. It’s mostly making good decisions day in and day out. But then compounding kicks in.

Categories
Emotional Work

Day 504 and Write Down

I woke up coughing so hard I couldn’t catch a breath. I’ve forgotten how exhausting being sick feels. I legitimately completely forgot how it felt to be tired and in pain. And what a fucking luxury that is to realize.

I was in a miserable mood this morning. Why was I losing an entire week when I’ve been functional and dare I say normal since the new year? I haven’t had any issues since I got Covid over Christmas break with the exception of a couple nasty migraines and a few modestly shitty days. But today was Thursday and I haven’t felt even modestly human since Monday. It looks like I just have to accept in having a bad streak.

My husband very sensibly pointed out that I didn’t need to act like this was a catastrophe. I’m always looking over my shoulder in fear that I’ll have a relapse and be reminded of he limits of chronic disease. And truth be told I will have them. But I’ve been making the choices that shorten those bad days. I’ll be living a life in the country in support of keeping a strong body. It’s almost comical to type that as it feels a bit like tuberculosis and moving to the west. But then again I’ve always been a mountain woman at heart. It was only a matter of time till I returned to the terrain of my family. Maybe I’m a bit of a traditionalist after all.

Nevertheless this week is a write down. It won’t matter in the grand scheme of things. I’ve made the good long term choices. I’ve accepted that the fight is long and the odds aren’t great but this is America so you’ve got to fight like you might be one of the lucky few that win. I can only hope I am treading a path that gives me the chance to make a better life. And that I’m being reasonable clever and reasonably hard working and that’s often enough.

It’s actually quite hard to trust the math. You want to give in to all sorts of silly biases. Like that every second counts. When no it’s mostly just how your habits add up over time. The mind really strains against basic math like compounding. But I’ll try not to get my fear get in the way and trust that the figures probably add up and I’ve generally done the homework to trust my inputs.

Categories
Emotional Work Medical

Day 496 and Pardon the Interruption

I’ve been on quite a streak of processing as I’ve written through the emotional rollercoaster of a potential move to Montana. We found a house that seemed absolutely perfect but had to work through our feelings on the matter. We put an offer on the house and as of tonight we are the leading offer and negotiating the legal deal points.

I am however really sick. Alex tested positive for Influenza A last week and while I briefly felt under the weather, I thought my hyperactive immune system had beaten it. Alas the data suggests I very much have the flu and I’ve done my famous “double dip.” This happens to me fairly regularly where it looks like I’ve beaten something abnormally quickly but if I am stressed or not well rested the latent infection doesn’t quite clear and a week later it roars back full force.

Welltory reading showing high stress, los energy and my health at risk
Whoop reading showing a dangerously low blood oxygen count and an elevated respiratory rate this morning

Given my current status I am going to take a bunch of NyQuil and stay in bed and send my apologies to anyone who might need me tonight as I’m clearly a bit addled in the head.

Categories
Biohacking Medical

Day 483 and Medical Logistics

As you probably know, everything about the American medical system is a pain in the ass. I was expecting a delivery last night of a medicine that needs to be refrigerated. I went to bed assuming it never came. I woke up this morning to find it has been left out outside all night.

A $5000 dollar dose biologics injection (that’s only $150 in Europe) got left at door I don’t use without a knock. Thank god it didn’t get porch pirated as I cannot afford to replace it. I discovered the medicine this morning when going out for an espresso as it was left in dry ice by the basement door. Just a little chaos for the start of a day filled with other medical logistics.

Today is the day I pick up my prescription refills for the month. I have to do it once a month instead of a convenient quarterly by post situation as I take several controlled substances of which I’m not allowed to have more than a 30 day supply. It’s a real pain in the ass to travel for this reason as it has to be organized around when my insurance and the government will allow me to do so. If I want to be on the road for six weeks or go to Europe for more than a month I’m shit out of luck.

I take a lot of prescriptions to manage my chronic illness. I wish I didn’t need any of them. If I’m honest I put a lot of effort into wellness and lifestyle as part of a long term effort to ween off the pharmaceuticals like my biologic anti-inflammatory injections. I don’t want to be left for dead in a crisis as I’ve got no illusions that we will protect the sick and vulnerable. I protect myself.

I have to do the pharmacy dance now whether I like it or not. I have to take half a day to make sure everything comes in on the same day and in time for any mitigating factors like travel. I maintain a spreadsheet to keep it all organized. I have to use up valuable energy and focus on something that your average Canadian or German would find comically foreign. And that’s just the way it is and probably will be for sometime.

Categories
Chronic Disease Startups

476 and Temptation

When I am feeling healthy I love to over do it. Most days I feel basically fine. Which is a significant improvement over even two years ago. I was living a little low. But maybe once or twice a week now I will just feel terrific.

Today is one of those days. I woke up early after a restorative night of sleep. I didn’t miss anything on my extensive wellness regimen. I was just nailing the day.

The sad part about doing wellness because you have to for a chronic disease is that you aren’t even ever hotter for it. Healthy women be doing yoga & taking supplements and practicing wellness and it’s a fucking Instagram campaign. I do all that shit and at the end I’m “ok.” It’s actually pretty demoralizing. I engage in flawless yuppie next generation wellness because it’s actually keeping me alive.

With this context it’s clear that I resent having to take good care of myself. It feels like a burden. So when I have a really good day. When I’m just energetic and focused and, yes moisturized and thriving, I’m also plotting how to undermine myself.

Because I felt terrific I just hand to indulge in it I took a bunch of calls and did a bunch of portfolio work. I went for an hour long creekside walk to discuss some communication strategy with Alex. I was vibing. Until I wasn’t. I crossed some little threshold and realized I needed to pull back the energy expenditure. I recognized I have given into temptation this time.

Categories
Medical Politics

Day 475 and 4/20

Last year on April 20th aka 4/20 aka the day America celebrates weed culture, I wrote an post on using medical marijuana for my ankylosing spondylitis. It’s a thorough look at how I incorporated THC & CBD into a pain control regimen for an inflammatory autoimmune disease. I’ll recap some of it here as my views haven’t changed at all in the intervening year.

As a libertarian I’m pro-legalization but I likely wouldn’t have chosen to use THC recreationally except that it happens to be a drug that has demonstrated benefits for my condition and is comparatively less dangerous than other pharmaceuticals I am also proscribed (namely opioids and high dose NSAIDS). For some context, despite being a native Coloradan I had never smoked weed till this year. As a kid it just didn’t seem appealing (that’s what hippie boomers do), and to be candid as I got older I didn’t love the idea of tying a health need to something that wasn’t legal everywhere.

I spent months testing everything from bud and regular joints to elaborate butter and shatter concoctions in an expensive Pax vape. None of it achieved the desired effect which was pain mitigation and minimal head highs. It was expensive and demoralizing. It was hard to manage dosing and consistency and I was unsure if it would remain a part of my medical regimen. I wasn’t sure weed was ready for prime time but I did feel it was important to document it all both for my own biohacking purposes but in case it could help others.

After all of that experimenting, I settled into regularly using patches. It’s one of the least celebrated formats and, because that’s how it works, the last format I tried before settled into a routine. I use a brand called Mary’s Medicinals that makes an excellent 50-50 THC to CBD blend. It is completely reliable on dosing and effect. It has little to no head high. And it lasts for eight to nine hours. Basically as close as I can get to a pharmaceutical. Turns out I wasn’t kidding when I said I really was in it for the pain relief.

I genuinely hope that THC continues to cement its place in American culture and medicine. It’s a cheap easy and effective drug that replaces a lot of expensive and potentially dangerous pharmaceuticals. Of course we’d have powerful interests working to ban that. It’s a a national shame and I’m glad Americans have fought back. I’d rather weed replace alcohol and tobacco. Why get drunk and wake up feeling shitty when you can get calmly high and feel better in the morning. But it’s a long path and sadly it’s still viewed negatively by some. I hope to do my part on 4/20 to encourage folks to see it’s benefits.

Categories
Biohacking Chronic Disease

Day 463 and Caretaking

My husband has a a weak immune system. He used to get colds once a month or whenever he would travel. I, on the other hand, have a wildly overactive immune system. I never get colds.

His immune system doesn’t fight shit off well, whereas mine seemingly never ever stops reacting. I have an auto-immune disorder which is marginally worse than getting colds so on balance Alex does more caretaking of me than I do of him. But it wasn’t always that way.

I used to take care of his regular colds when we first got together. When he married me and we lived together, he slowly absorbed my overly active immune system, eventually cutting down on his colds to a couple times a year. And yes this is weirdly a thing that happens. Your partner affects your gut biome. My health sadly got kinda worse over the course of our relationship. I doubt Alex’s shitty immune response made my life any worse (if anything I would be thrilled for mine to chill out and I take drugs to subdue it) but arguably him getting my overly active immune system has done wonders for him.

I stopped being a caretaker for him. He became a caretaker for me. It was an interesting transition I didn’t really clock at the time. Alex was used to constantly being sick for years but through exposure to me he kinda forgot how much it sucks. This was further exacerbated when the pandemic hit and we stopped being exposed basically any infections.

Alex went two years without a cold. It was miraculous! Alex really enjoys his identity as a health person. Hell he thrived as an active Colorado outdoorsman in a way he never did as an indoor New Yorker. But travel and life is rebooting and it would seem Alex’s old weak immune system is so out of practice it doesn’t do well with crowds and travel and public appearances. We’ve been in Miami less than a week and he’s sick as a dog. Thankfully it’s not Covid. But guess who got to remember what it was like to be a caretaker again? Yeah, I’m responsible for Theraflu and nose spray. I didn’t do any of the conference I’d planned for the day and had to cancel on a bunch of plans but honestly it’s not so bad. Caretaking is an act of love after all.

Categories
Biohacking Travel

Day 455 and Jet Lag

I rolled into Denver around 420pm yesterday and I felt excellent about my timing. My ten hour flight from Frankfurt was quite pleasurable. There is something about long haul flights that are existentially quite satisfying, especially if the onboard wifi isn’t working, as one feels free from the outside world for the duration.

It was midnight in Germany when I landed so I made sure to have a coffee an hour or so before touchdown to keep me up for my time zone adjustment. My goal was to make it to 9pm Mountain Time so I could immediately adjust to my new time zone.

A slightly silly goal as I’ll be moving back two time zones in just a couple days as I’m headed to Miami. But I’m a day bird not a lark or an owl so I need my days to be productive. So staying up “all night” was on the agenda.

I managed to stay awake till about 845pm by keeping busy with unpacking and dinner and catching up on all the “couples shows” that I can only watch with Alex. Ironically about half of what I unpacked is going to get repacked shortly but I needed to do some sorting and replenishment. So I did my best to keep the adrenaline pushing me to activity. And it seems to have worked.

I was up this morning at 5:30am feeling rested and basically functional. The only issue I noticed was hunger. I was starving. I immediately got in the car and went to the good bagel place. I got a second bagel with plans to eat it tomorrow and then ended up having a second breakfast around 10am. And yes I still ate lunch at 1pm. And I’m starving now. Just absolutely ravenous all day.

My tracking apps seem to think my body is experiencing jet lag. Gyroscope said it was contributing to a lower health score and “shortening my lifespan” so that was anxiety inducing. I went for an hour long walk and my Whoop buzzed twenty minutes in. Apparently to indicate I’d hit my target strain. A leisurely stroll netted new a 8.8 score when I typically barely break a 4. Their system maxes out at 20 I think but I rarely get higher than a 10-12. And then Welltory gave me reds across stress, health and energy.

I suspect some of this is due to being back at altitude as a month is long enough to lose your acclimation. But in general I seem to be perfectly fine on my time zone and I felt mostly functional all day. I kept it light. Tomorrow when I plan to work longer hours will be the rest test.

Categories
Travel

Day 442 and Salt

I’ve got low blood pressure. It’s not so bad that I notice it on a daily basis but enough that my doctors encourage me to include a bit more salt in my diet to raise it.

It was initially tricky to diagnose as I tend towards tachycardia because of the chronic pain from my ankylosing spondylitis. Pain, and the stress that it can cause my system, can often raise my blood pressure to “normal” levels so it got missed for a few years. But nevertheless a smart doctor noticed the trend and encouraged me to keep salty snacks on hand.

I say this because Germans appear to dislike salt in their cuisine. My first clue was that my Airbnb didn’t have any salt in the kitchen. There was a tiny shaker of it but it appeared to have about one meal’s worth of it in the shaker. It was so small I suspect it was from a travel set.

Meanwhile there was a full size battery operated pepper grinder next to it. The grocery store nearby has one of the most impressive spice selections I’ve ever seen but offered only one box of salt. There was no kosher salt or sea salt or flakes. Just a box with a little spout of salt that honestly tastes a bit artificial. It might be but I can’t totally tell.

Virtually all of the takeout and delivery I’ve had has been under-salted to my admittedly very America palette. I get it. We eat too much salt. But for me the American standard keeps my blood pressure up so not only am I used to it but it’s crucial to my health.

But everything from the schnitzel to the Thai and Ethiopian takeaway feels like it would benefit from salt. And all I’ve got is some crappy boxes maybe synthetic salt to sprinkle on it.

Tonight I went to the pedestrian mall that seems to be the main gathering spot for nightlife here. I happened upon a pomme frites stand. I thought hell yes it’s Friday night let’s get some French fries and people watch. I forked over a few euros for an order. It was absolutely perfectly fried. But god damn it if it wasn’t kind of mediocre because it didn’t have enough salt.

Categories
Biohacking

Day 441 and Circadian Nightmare

I am all for remote work and distributed teams. My husband has been working with distributed teams long before the pandemic hit as Stack Overflow was an early adopter of the “hire the best talent no matter where” trend.

But it does come with challenges. He contends that it’s helpful to have no more than six hours of time zones between core teams. And I’m really starting to see why. I’m really struggling to keep a decent sleep pattern and collaborate with Californians. So I’ve tried to stay up later so I’d have more working hours on American time zones. Plus I have a regular time with my therapist and for group therapy on Mondays that is 10pm and midnight in GMT+1. So I’ve got to stay up a bit later for that too.

I figured if I could wake up at 10am and go to sleep at 1am that would work great. I got myself a nice eye mask. I close the blinds. But hot damn if my body cannot tell that this is not when I should be sleeping. I can manage to stay up later but I’m still waking up with the sun. I cannot seem to sleep in past 8am.

So I think I’m going to give up this Circadian nightmare as I’m going to rack up a huge deficit. I’m just not a night owl. I’m a day person.