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Community

Day 577 and Whirlwind

The last few days have been a whirlwind. I probably owe at least a dozen “thank yous” to friends and family and neighbors. I hope my brain catches up to my body soon so I can appropriately express my gratitude to everyone that has come together to get Alex and I moved to Montana.

I woke up in my own bed in my own home today. We did laundry at 10pm last night so we could put sheets on a mattress and sleep at home instead of the Airbnb we had rented. Alex and I both had a moment where we just wanted to be home. And kindly my mother and her husband as well as our friend Austin took the Airbnb so we could enjoy our first night in our new forever home. Even if we hadn’t unpacked much more than a mattress and sheets after the long drive it was worth it.

At around 7am today folks showed up to help unload and unpack. Friends from Twitter arrived. I may have jumped onto a few folks in my enthusiasm to deliver hugs in gratitude. People’s teenagers came over (including the son of the previous owners). I am still somewhat astonished so many folks pitched in.

Everyone was good sports (somewhat less so me) about the heat wave hitting Montana and simply hauled ass to get everything out of the moving truck before noon. My mother and I were on errand duty as we ran across town to acquire food and sundries. And now as the temperature rises we are slowly coming down.

It is siesta time for the afternoon. It will be too hot to do much more and the single air conditioner we brought imploded on us. On its first use. You wouldn’t think you’d need air conditioning up in Montana but such is global warming. The stores here are all out of air conditioners as it’s such an intense heatwave. But that is a problem for another day.

Categories
Emotional Work Travel

Day 576 and A New Chapter

I don’t live in Colorado anymore. I’m not really sure I felt like I lived there at all right now. I feel as if the last two years were just a Covid blip attempting to do the impossible; to go home.

By home I mean I left Manhattan for Colorado. Back to the city where I was raised. Boulder was a city where most of my childhood and firsts happened. My first dog. My first period. Where I met my first love. And where then I had my first heartbreak. Where I had so many silly little personal accomplishments that make up a childhood. All of those life milestones happened in Colorado.

When the world turned inside out during Covid, I wanted some sense of safety and certainty and recognition. You can’t really go home though. Being back felt like an interlude. Like a break where I was vacationing from real life. Convalescent after one too many curveballs. Which is a surreal way to feel about a town that raised you. But it just never quite stuck.

I’m driving through Montana as I write this. My mother and her husband are helping Alex and I move up to Bozeman. I’ve got about a hundred miles till we hit town. We are driving alongside the Yellowstone River on I-90. And I suddenly feel like I am home.

Categories
Travel

Day 573 and Great American Road Trip

I am about to set off on one of the great American pastimes. The drive from Boulder to Bozeman is not very long, only about 9 and a half hours, but it is a majestic drive that covers badlands and soaring mountains all along the Eisenhower interstate system.

The I-25 to I-80 route is one of the gems of the mountain west. It has corporate industrial hellholes, the haunting poverty of our reservations, and the entrance to Yellowstone Park. It’s as good a route as any to explore where we are as a country. Even when gas prices are high. Actually scratch that. Especially when gas prices are high.

We’ve done this drive a few times in both directions. We’ve got a routine for it. Heck we even have a specific McDonalds we stop at on the route. But we’ve never done it with friends and family. It’s generally been a simple married couple drive. There is less drama when it’s a duo and much more time for introspection. It’s either you driving or you recovering from the drive.

When we embark on this road trip this weekend, it’s going to involve a truck, several internet friends and my mother. It’s going to be a bit of a larger cast. In my fantasy version of events, it has all of the makings of a modern day Chevy Chase vehicle.

The kind of comedy that all Americans appreciate as a part of their birthright is the indignity and joy of the open road. When you add in vacations it’s a hoot. But a move? It’s a bit more pioneering in your mind. You see yourself in the fabric of life, narrative manifesting itself as intimate drama. Right before you step in piss at a gas station bathroom.

I frankly cannot wait for this glorious adventure. I am confident we will have pratfalls. I hope we do not have any actual calamity. At least not one that cannot be solved with a bit of wit, a truck and one’s parents. But expectations are just premeditated disappointment, so who knows where the road will take us. That is the magic of the great American road trip.

Categories
Community Preparedness

Day 572 and Internet Barn Raising

About twenty four hours ago the first “crisis” of the move to Montana appeared on the horizon. The very expensive, and corporate, moving company we’d hired called to cancel on our move to Montana. Three days before the move date. Which we cannot change as new tenants are moving into our soon to be former townhouse.

At first they claimed it was a lack of trucks and then it was a lack of labor. It was some series of issues you hear more and more of during these crumbling times. It was messy and chaotic. I’m not entirely sure on the full timeline or set of excuses as my husband Alex is “king” of the move as he’s the operational talent in the family. I’m just here to follow his edicts. The details are not completely crucial to the wider lesson.

We put out the bat signal that we were in trouble. We tweeted and put questions out in Discord. What do we do? What our options? Our extended community sprang into action. People called with truck rentals suggestions. People sent over recommendations for labor and talent. People called in favors to locate what we needed on both ends. And the truly incredible part is that people physically showed up. Like get on an airplane level. And more than one of them offered to physically come out.

I don’t want to put any identities on blast as not everyone is quite as social on social media as I am. But our internet community is all very much active and close in our lives. And it just showed. In ways that I don’t know I fully appreciated until we were in the lurch.

A dear fellow traveler friend who has been an “internet friend” for sometime, but because of the pandemic hasn’t been able to IRL with us, offered to get on an airplane and help us drive up the truck. We bought them a ticket. Locked it in. Let’s finally do the bonding. The perfect synchronicity of social capital and actual capital solving a problem money alone couldn’t fix. Because there are some things money can’t buy and you almost always learn what in a crisis.

Members of our preparedness community (some of whom will soon be our actual physical neighbors in Montana) stepped in as well. They also offered to fly down and help on our Colorado front end. A truly astonishing gesture of friendship and community. Alex coordinated on our end to meet them on arrival. A veritable barnstorming of new neighbors is set to welcome us. And we aren’t even their actual physical neighbors yet. The trust and humility one must have to welcome people in like this.

My heart must have grown a size in one day. It was a balm for any kind of civilization cynicism I might have harbored. Our people showed up. I’ve got tears in my eyes just thinking about it. I will say that our special interest in resilience and connection has been key in this whole beautiful experience.

Our people are those who feel the concerns of modernity and atomization, but who rather than blame our technical tools like social medics for decay simply leverage them to bring us all back to our humanity. If America is in for harder times, I’ve never been more optimistic about the people that will survive them together with me.

Categories
Aesthetics Emotional Work

Day 563 and Packing Puttering

I spent the day puttering on and off through all my worldly possessions. I was deciding on what needs to be packed and when. We have a tiered system of immediate, first week and first month use. And then leaving to the last minute all of the stuff you are fairly certain you use daily.

When it isn’t for an immediate trip it turns out I really enjoy putting together an edited list of daily necessities. I had fun putting together a cosmetics kit for a two week “vacation” where I might not be able to access my full vanity.

I had an enjoyable afternoon going through everything in my bathroom. Just seeing what you have held onto for no good reason and what you accidentally prioritized but didn’t desire pride of place on your shelf. I feel like few things show a woman’s own ambivalence about her priorities quite like her makeup bag.

I’ve ruthlessly culled my routine down to the bare bones. I’ve packed my entire life down to one shitty Heathrow quart baggie. And I’ve enjoyed preposterous largess with two full cabinets of cosmetics crap from a stint in the industry. I’ll never throw away some of it but I doubt I’ll use it either. It’s a strange thing to hang on to as I know shit expires.

I’m grateful my husband hasn’t said anything about me lugging several hundreds pounds of going out makeup to Montana. As if even in Bozeman I’ll find a way to integrate a smoky eye or a bright red lip. Or maybe I’m crazy and of course I’ll find a reason to get done up. Sometimes it’s hard to know now much you are puttering around with things that need to go.

Categories
Chronic Disease Emotional Work

Day 560 and Unstuck

Yesterday was a particularly challenging day for me physically. I described how I was becoming stuck simply because the pain to change positions, even if I was uncomfortable sitting up, was such an obstacle.

I’m just stuck in the pain until an even worse pain develops. That’s probably a good metaphor for life. We will stay in an uncomfortable position until it’s so intolerable we simply must change.

Waxing philosophic about pain is clearly an ongoing theme of this daily writing exercise. I’ve got 108 mentions of the topic so yeah that’s chill. Considering it’s a daily accompaniment I’m relieved it’s not a larger number. Most days I am clearly able to become unstuck from the pain enough that other topics occupy my mind.

I am however not feeling great about how unstuck I feel in life this week. Perhaps it’s the combination of a symptom flare with the final countdown to the big move to Montana. It’s all waiting and anticipation and frantic preparations combined with physical struggle and fatigue. It does not make make for an environment where I feel I am best moving my life forward.

I am someone who very much relies on and feels embolden by willpower. The feeling that I can simply apply my intention to something and through that focus bring it into fruition is a super power. The American dream has been littered with manifesting energy. The Secret literally is our religion.

So I hope that, as I sit in this last waiting period before I confront massive change, I am able to let myself be. To not be obsessed with being stuck or unstuck. But just be in the moment I am in without judgement.

Categories
Emotional Work

Day 557 and Fixation

I’ve got a gift for generating momentum. If I can summon the energy and the willpower, I’ll put my total focus on unlocking whatever blocking issues hinder my goal.

The trouble is that this process doesn’t allow for multitasking. Once I turn my eye on a blocker, I’ll fixate on it until it is solved. I’m incredibly prone to tunnel vision.

I’m usually quite competent at prioritizing and ordering priorities correctly to take advantage of the is tendency toward focus. But sometimes I’ll get fixated on the wrong thing and I’ll stay stuck on a problem that shouldn’t be my first priority.

And it’s really hard for me to pull away from a problem if it’s an emotionally charged issue. Those typically involve my personal life. Problems with my friends, my family and my husband can easily hold my energy hostage. Even if it’s not a top priority, if it feels emotionally like it should be a top priority I’ll struggle to let it go.

Over the spring, one of my fixations was finding a stable living situation. In May when Alex and I went scouting for our second time in Montana I poured all my willpower and focus into removing blockers to purchasing a home. It was a grinding emotional process as where to live and when to make a major investment are hard questions.

Now that I’m less than a month out from the move, I can feel my focus shifting. The creative generative driving energy that secured us a homestead is now searching for its next home. It makes me shiver a little bit. Like I’ve got my own personal Eye of Sauron probing my reality for it’s next target. I know what it should be. But sometimes my focus isn’t well behaved.

Categories
Chronic Disease Emotional Work

Day 550 and Boundaries

I don’t maintain boundaries well. I am embarrassed by my needs. Ashamed even. I’m afraid if I maintain the boundaries I actually need I’ll doom myself to a life of loneliness. No one is going to go out of their way to hang out with someone who can’t do fun shit right?

And so I let my own needs slip. I agree to do things. I tell people sure I’ll meet up. I’ll agree to go to a meal together. I pretend to be excited about going somewhere. I yield to the expectations of a normal life. And then I hold myself together as long as I can. I’ll get some enjoyment out of my time with loved once. But after a few days if I don’t get rest and recovery I will be in a rough spot.

It always ends in a crash. When I know I could simply draw firmer boundaries and take time before it becomes a crisis. My loved ones are confused by how I continue this cycle. Why didn’t you say something? Why did I agree. And I honestly don’t know sometimes. Because I’d never agree to do anything ever if I had my way.

And I’ll admit I’m afraid that if I never do anything eventually I’ll be forgotten. That no one will go out of their way to be with me. I can tell myself that this isn’t logical. That this is just the scared inner child who experienced being left alone when she was small. That reality doesn’t reflect reality any more. But I’m not so sure. Maybe my nearest and dearest will still come out for me. But I do think we live in a harsh world where we mostly don’t care if others disappear into their homes forever.

Categories
Travel

Day 549 and Rekt Travel

One more institutional bit of trust has frayed and snapped for me. I don’t trust travel any longer. Maybe I trust the big airlines and well traveled routes but off the beaten path travel isn’t for me any longer.

Someone didn’t fully understand my limits and I found myself struggling in a situation well beyond my physical means. The trust was so broken I don’t know how to even begin putting back the pieces from it. I’m exhausted yes, but the worst part is the fear I feel from being put in a bad situation and seeing just how incapable I was of fixing it myself. I’m not independent anymore. And I’m scared and angry about it.

I envy people who can have a situation change and have it’s impacts be immaterial on their day. Oh it’s inconvenient if the travel estimates were three times longer than planned. Oh it’s annoying that there is no air conditioning. Oh it’s frustrating that all these minor details are annoyances for you and intense health risks for me.

I fear I’ll come out of this experience paranoid and much much sadder. I feel stupid I couldn’t protect myself. I feel gullible that I let someone else handle the details. People tease me that I prepare for travel so aggressively. That it’s eccentric and odd and a sign of being a crazy woman.

But when the consequences are so expensive; a thousand dollars gone in a hotel scam, a fortune in gas, an extra thousand to weekend hour doctors to stabilize. I think it’s sensible to be extremely prepared. Nothing black pills you faster than being sick. I tried to act like I could be a normal person and just got rekt.

Categories
Aesthetics Travel

Day 548 and Shame

I’ve got a pit in my stomach. My throat has the constricted feeling of embarrassment that gets trapped in your gullet. I failed and lost money on something stupid. I tried to do a pleasant vacation sort of choice over a long weekend. A “nearby” Riviera town was supposedly within driving distance. I thought what could go wrong. Let’s go to the Ionian Sea! I briefly thought I could enjoy something like a regular person.

I said yes as everyone was so excited by the fresh air and the beaches. It will be healthy and fun! I was worried it would be without the basics I need to keep standing upright but I wanted to try anyway. Consistent air conditioning is really important to keeping the rest of my bodily system’s functioning. It’s a very Marie Antoinette need, but once my spine swells it can go very wrong very fast. Summers are hard for me.

My system begins to cascade within a pretty short window. About half a day. Eight hours without being able to lay flat for a break ended up fucking me up badly in this case. The “oh it’s close, just a three hour drive” ended up being a ten hour ordeal over badly maintained roads. I was sick to my stomach and in pain as we took hairpin turns and popped over potholes. I was in so much pain it was over a 10. It was “lose consciousness” levels of pain as my body knew I shouldn’t be awake for it. I was afraid it would get so bad I’d need a hospital. Instead I settled for opioids. Keeping out of the hospital was probably wise.

I hate needing those kind of drugs. The “your pain is a 10” drugs push me off the plane of reality by a few ecliptic degrees, and suddenly I can tolerate the pain and discomfort again. I understand how addicts get made now. It’s not real comfort. It’s synthetic but most people can’t tell just by watching. The fake relief looks real.

I’ve never felt tempted to take pain medicine recreationally. It’s usually only when a pain is too big for my reality that I tap out in defeat and take an opioid. It’s when reality crushes my soul as one variable starts to degrade the whole machine. I only use it to stave off collapse. And I was very close to collapse.

What is fucked up is that people like me off the axis of reality. The hazy hyper vibe’d unreal “reality” of encroaching nihilism is bop. Dystopia seems cool and consumable.

But it’s not an adventure for me. Living when sick is a daily dance with the devil who could use any chance encounter to end it all for you. The kind thing might be to stop fighting. But I rarely give up so I must enjoy the sticky Sisyphean crawl towards towards reality and the search for my own dignity.

I’m ashamed because I couldn’t make good decisions in that kind of pain. When the first hotel turned out to be a scam I happily laid down a card to stay till Monday at another hotel. Anything to get me relief. I just needed a safe cold place to heal.

It was a bad decision. The air conditioner didn’t work. I couldn’t get comfortable. I was sleeping in a dark sort of cold room as I couldn’t work up energy to go to the beach or even see the rest of the hotel. Not that it mattered as none of it was air conditioned anyway. I decided to go home after I had built up energy reserves back from sleeping for hours. I couldn’t tell you how long I passed out for but it might have been close to a whole day.

Alas I was again scammed for my efforts. The hotel clerk says no you paid for four days so you cannot get a refund even if you leave early. No refunds ever. No early checkout. No one cares if you are sick. Fuck her but I said hotel California for me. I was sick and needed safety.

I made some efforts to get receipts and documentation. I asked a receipt attesting that they wouldn’t let you cancel for any circumstance and that I was sick but it made no difference. Maybe I can take to the credit card or even the health insurance to show that I crashed. I’ll work it out on the backend.

I often wonder why I need special care. Surely I can try to do regular things like drive to the beach. But I couldn’t. I lost 48 hours to driving and bad air conditioning and pain. I didn’t have the health to stay at the beach. I needed to go back to the city with air conditioning.

I felt so stupid. I tried to fight to hold space that maybe I was a person that could do a vacation. That I was normal. And it was firmly corrected by reality. And then you think this is why I don’t go on vacation. The additional friction makes it a hell. It’s not a joy it’s a visit to hell.

I cut bait quickly this time.I’m ashamed at now much I must firmly maintain the no. No I don’t want to go to the beach. No I don’t have the energy got a full day road-trip. And definitely no on an empty stomach.

I feel like I’m not fun. That being friends with me is joyless because I can’t agree to fun things like a weekend at a beach. I find myself in tears having failed again at trying to do a nice normal fun thing. I ruined the weekend for myself and everyone around me.

Fun with me is being in a dark room. We watch television. Or maybe a movie. We make fun of a plot hole or bad casting. We sleep a lot. If we are at my home we do the chores. We keep up with the farm. There is no reason to turn consumption of recreation into a thing. It just hurts me. No cheap facsimile of an American vacation in a resort in a cheaper country.

That hideous example of colonial expectations of western domestic standards turn out to be required for a disabled woman. Air conditioning and short trips keep me alive. And at quite a cost. Since no one will refund me any of these damned scam hotels. I should have known better. It will probably take me a week or so to recover. And I’m so ashamed.