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Biohacking Chronic Disease Medical Preparedness

Day 1726 and Grief is for the Living

My husband and I are both sick. It’s the kind of “not quite respiratory, not quite sinus, not quite right” viral infection that always seems to take twice as long to clear as you expect.

Aging and stress is part of it but so is the damage we both have from covid-19 infections that turned into pneumonia. We’ve never been the same.

The good/bad news is that everyone we know seems to have the same basic set of physical degradations that we do. Varying levels of impact are met with varying levels of healthcare and wellness routines. From peptides to hyperbaric oxygen chamber therapy, no one is taking this shit sitting down.

I was already chronically ill before the world changed forever. It’s now common to have a flavor of autoimmune inflammatory chaos. I feel both less alone but much more frustrated at the crisis in American healthcare.

My medical billing codes as ankylosing spondylitis (arthritis in my spine) and psoriatic arthritis (psoriasis but it’s inside your body and it hurts!) but the tldr is constant pain, occasionally losing the capacity to walk, and the persistent exhaustion of chronic inflammation.

As we both cancel travel plans (for a charity event we’ve supported for years) and struggle to manage food and medication, I am reminded of the grief we are all carrying around.

As the world goes on with the “before times” as l memory for older generations, and the idea of any kind of positive “before” is unimaginable to the young, the grief comes and goes. The elders we stopped civilization to keep alive are dead or dying and our youth are distraught.

My own father passed just two weeks ago. I am grieving his loss, as well as how the loss is being handled by others. But my grief is mine and he is gone.

I am not the one who gets to choose how to memorialize him. Life goes on and we make precious few decisions about how and when it ends.

I remember being so angry and afraid for him when he left for cruise as lockdowns went into effect. I begged him to cancel the trip. I was afraid he would get sick or die.

He didn’t share those fears. He got stuck on the boat for an extra week or two, as no port would let them dock. He had the time of his life. I was locked in an apartment in Manhattan.

I don’t think he ever got Covid. For which I am grateful. I know far too many who did. I know many angry Zoomers grieving lost high school and college years.

Housing went up by 50% as we printed to survive the crisis. Strange times for us all and now we face the Great Ravine where the choices we made catch up to us.

My investment thesis of an increasingly chaotic world was novel when I first began and now it’s the same pitch every Tom, Dick and Harry espouses. What was once unclear is now the consensus. I am I am alive to see it and find no satisfaction in being right. The grief is all around us. Grief is for the living.

Categories
Biohacking

Day 1725 and Red Zone

My immediate family is in poor shape. Health troubles across almost everyone along with varying degrees of emotional stress.

One tries to responsibly pursue “restorative” activities that give you back energy like meditation, light exercise or movement, and if you happen to be lucky like we are some supplemental oxygen.

My vagal tone (a component of the parasympathetic branch of the autonomic nervous system) alas not much improved. My heart rate is high. My HRV is high.

The various efforts of relaxation techniques like non-sleep deep relaxation. Box breathing to interoception still has the baseline stress metrics you’d expect of a serious illness or a loss.

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Emotional Work

Day 1724 and Being A Villain For Someone That Needs It

Being a victim in your own life is a choice. We get dealt a hand of cards and we have a say in how we play it even if it’s a crappy hand. The odds being what they are you probably got dealt some bad cards.

I’ve learned the most about empathy from the men in my life. It’s not always true for women but being raised to accommodate is part of being the weaker sex. One need not always accommodate in life though. Sometimes their problems just not about you at all. And that is ultimately alright. Everyone hurts including you.

I thought this captured the spirit of trying to give people the space to be hurt.

Of course it’s unwise to reinforce a victim mindset in people, but sometimes people actually just have been victimized, sometimes repeatedly and brutally, and lasering in on their small slice of responsibility just reinforces their pervasive sense of being totally alone. At some point you hope they look at their patterns and see if change is possible. But if they’re going to get there, it’s going to be because someone was kind enough to sit with them, believe them and hold space for them until they were ready. VividVoid

Letting someone see you in the way that they need to see you has its purpose. It’s a beautiful thing to sit quietly and let someone really blame you. Be disliked. Letting someone who has genuinely got shit going on just be furious at you is a form of empathy. Be their villain.

I’m learning to sit comfortably while being someone’s villain. If that’s what they need in their hardest hour I can be that. It’s not something you should give too freely but this is where boundaries are a blessing.

I’ve seen more men than women be capable of handling this kind of rejection. The empathy of not engaging. Let them be hurt. You can suck if they need it. I believe it’s a strength to cultivate comfort being the bad guy

Every parent learns to do it, anyone with responsibility for making a goal or a bottom line or a budget work knows that sometimes you just have to be the bad guy to make it work.

The parameters of all of that is hard and we are reworking our way through helping people overcome their hurt. We’ve let cultural expectations dictate so much.

Everyone is fighting their own hardest battle and if you let them be mad at you and don’t take it personally you just might help.

Categories
Aesthetics Reading

Day 1718 and The Abyss Stares Back

The glory of the first few weeks of fall in Montana, indeed most of the mountain west, is under appreciated.

We advertise the powdery snow & bright sunshine of our winters and the long temperate days of our summer for tourism, but I love the precious few middle days of transition as we approach Michaelmas season.

The harvest wraps, the fall begins in earnest with frost ever ready, and we prepare ourselves for darker days ahead.

I personally try to be outside as much as possible in this transitional period. Throwing on sneakers and a vest is much easier than snow boots and a parka.

Rambling across county pastures, over makeshift bridges across streams and across neighboring fields in the morning sets the tone for a positive day.

Someone acquired a new piebald

Once I’d returned home, the abyss of the open internet was there to stare back at me as I looked too hard upon it.

The prayers I had uttered in thanks for the glory of our mountains, the brightness of the sun, and the mercy granted to the living was pushed back by the darkness of greyzone algorithmic memetic warfare.

I am still recovering from travel so weak enough that I have little desire to self censor. The ebbs and flows of conflicting constructed realities are fighting for purchase on the American mind and it’s not pretty. God given inalienable rights are not on anyone’s mind when there are others to blame.

I hardly knew if I should pick up Heidegger, Nietzsche or (shuddering at the thought) Schmitt to make sense of apoplectic displays of poorly harnessed power being thrown about by competing and angry egregores.

What could I possibly do or say or read to make sense of anything? I suppose that’s how the abyss gets you. The Nothing only needs you to stand idly by as you are absorbed into the abyss. Michael Ende and Madeleine L’Engle may be better places to go to understand the abyss than Nietzsche. Lest we lose our sense of wonder in the horror.

Die unendliche Geschichte – 1979 Michael Ende

Categories
Travel

Day 1715 and My No Good Horrible Very Bad Transit Day

As I often do on transcontinental travel days, I wrote my post for the day first thing in the morning. I wasn’t sure how the journey would go so I thought “let’s post this early” in case things get hairy. And boy did it.

I was leaving Europe just as Poland closed its airspace after a Russian drone attack. Tensions were already high as Israel had attacked Hamas inside Qatar’s capital of Doha. Greyzone war that blur attacks on national sovereignty through target or weapon choices make everyone twitchy.

It’s a weird thing to complain about air travel on 9/11, but I don’t think much of the security theater we’ve accepted over the years did much to keep my transit safe yesterday. Twenty four years later we go through the motions of keeping air travel safe from terror because what else are we going to do?

In fact, it didn’t seem as if security was particularly tight yesterday so much as particularly incompetent. It was chaotic confusion everywhere from passport checks to boarding flights.

I had a Frankfurt to Chicago polar day flight, along with a positioning flight on each side. I went through a lot of security screenings and passport checks yesterday and stood in more lines than I can count.

In Frankfurt the lines were so long that even with planned two hour airport transit time, I was among the last to board my flight.

The “special purposes” line I begged my way into as my inbound was delayed by fog was glacial in its pace. It seems the new transit grift is wheelchairs. So perfectly abled people are now pretending at disability to board early and use special security screening lines.

It left wishing I’d registered my real disability as I attempted to run the two miles of the international terminal with suitcase and backpack torquing my spine so I wouldn’t miss my flight to Chicago.

Deplaning at Chicago I couldn’t even count the full set of wheelchairs waiting.

Add in enormous confused families using the special purpose line, who spoke neither German nor English, with 3-4 bags a piece and every sort of banned item from pocket knives to 1.5l bottles of liquids and I am shocked anyone made it through security to their flights on time.

I watched a foursome of black Arabic speaking grandmothers in hijabs and wheelchairs shouting at German security guards and their extended families as I waited for my turn. Their fierce attitudes did not speed anything up that I could tell.

I saw them 9 hours later gathering somehow even more checked luggage upon arrival in O’Hare. I’m glad my Global Entry let me pass them by at passport control as I did not want to be behind them again.

Not that I got through Chicago’s security lines unscathed. The TSA pre-check lines were four times as long as the regular line. Figuring I was well packed I could handle the normal line. Naturally I got randomly selected and unpacked basically everything

As I stood in my socks waiting for the agents to stop gossiping and listen to the only working agent explain to them that “yes that the ice pack was for medications so they can move this along” I got an alert on my phone that the conservative political organizer Charlie Kirk had been shot.

I wandered in a daze to the United club where I was denied entry. This despite booking a business class ticket for the entire transit through their own hub via their Star Alliance partnership with Lufthansa, I couldn’t use the club as “the last leg of my flight didn’t qualify.”

I knew this was possible as this last leg issue happened to me on my last transit through O’Hare so I’d bought a day pass ahead of time. But they weren’t honoring those as it was too busy. I schlepped to another club in the terminal where they were still letting in day passes. There I listened to scared speculation from two blonde women about Mr Kirk’s status.

Another hour later I made my way onto my flight to Montana. I decided to just jump to the front of the line as I was in first with seat 2B. If everyone is ignoring lines then it was irrational to keep trying to politely queue.

As the plane boarded it was all talk of Mr Kirk. A news alert crossed my phone saying he had been killed.

A gentleman was playing a video of stitched together angles of footage on his phone with full audio on. You could hear the bullet hit again and again.

The cabin attendant told him to turn it off, saying sir please have some respect for the dead. A few hours later, still living, I made it home to Montana.

Categories
Politics

Day 1712 and Rome Didn’t Collapse In A Day

This is one of the strangest weeks of the year for Americans. Labor Day marks the end of summer but it takes a bit to shake off the remains of the dog days.

Every day can jarring these days as whole world can narrow to a pinpoint with personal pain. Death will be stalking millenials as their parents age and die even as the money seems tilted in their favor with healthcare spending.

But as debts go up, investors price in risk and the state grapples with the turn and spend. It’s jarring to live as usual as change plays out in the personal and geopolitical.

I say Rome didn’t collapse in a day because anyone rushing for the exits doesn’t realize that change has surprising ways of reorganizing attention and power.

The week of 9/11 reminds Americans in particular. But the US Open closes and fashion week opens in New York and life finds a way.

It’s already playing out and we are all rearranging our lives and interests and families as we see whose time is sunsetting and who might be clever enough to ascend. I myself hope to thrive in the churn

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Chronic Disease Emotional Work

Day 1706 and Leaving It In The Past

I’ve got my over the ear noise canceling headphones on playing a Solfeggio frequencies of 396 Hz which is labled as “liberating guilt and fear” on my Endel mobile application (which I recommend though I’m not involved with it).

I am doing breathing exercises with these tunes playing in the background. I have a routine of hyper stimulation autonomic exercises I do when I am in times of physical and emotional stress.

My father died this weekend. While I had been preparing for the possibility for sometime the reality of the moment is never what you expect.

Grief is a strange emotion. You forgive your parents but they don’t always forgive themselves. And then it’s over and everyone is free. The pain is over and the past arrived and your present is without them.

The past becomes a foreign country and you don’t speak the language and as you become middle aged you see your life reworked through success and failure and the hard costs which your ego previously obscured like too much greasepaint.

It is maudlin to stay in grief but if we do not let go of the past we will project past pains and old understandings of reality onto others that do nothing but harm.

It’s a beautiful thing to watch these huge emotions play out in your life. Death offers grand dramas when all you can offer is having built a future on the foundation they gave you.

Categories
Emotional Work

Day 908 and Joyful Grief

I’ve had enough emotional and mental work to know that grief is a complex and personal process. I knew as the death of a close family loved one came on the summer solstice that I needed to grieve.

I revisited the frameworks. There are the three Cs (chose, connect, communicate) for a simple framework to prioritize your needs. There are the 4 Rs Recognize Reality, Remember, Reaffirm, and Release for memorials and funerals.

And of course, the most famous remains the 5 stages of grief from Kübler-Ross’s “On Death and Dying,” the 1969 book in which she proposed the patient centered stages of denial, anger, bargaining, depression and acceptance.

I was prepared to go through all of it. And I did. The shock was immediate as soon as I learned she had passed. I was angry she was gone. I asked why someone else couldn’t have been taken instead of her. I was sad to carry on with out her. Acceptance seemed distant.

But as I started to communicate my own feelings I recognized an emotion I wasn’t prepared to encounter so soon. I felt immense joy. Losing her overwhelming made me feel grateful for the joy she’d given me in my own life.

What incredible luck I had to be a part of her life and receive so many emotional gifts as a result. The freedom she encouraged in me gave me the capacity for boundaries and needs and wants I’d never accepted fully.

And then, even though I was prepared for the possibility, she was gone and I realized she had been right. I could accept things that I’d distrusted for so many painful decades.

And here I am. And here I remain. And what she has given me is permission to thrive. Even in the immediate wake of her loss I felt lightness and ease permeate my work. I wrote my investor updates. I gave an interview to Axios Pro Rata. That interview lead to a substantial feature on my preseed venture fund chaotic.capital. I worked on my immigration policy advocacy.

I felt the joy of living a life I had chosen because someone had loved me enough to share that I could chose to be free. And that fills me with joy.

Categories
Biohacking Emotional Work

Day 885 and Grieving Your Many Deaths

The most soothing statistic I’ve ever hoped was true is that your body turns over all of its cells every seven years. It seems to be functionally close to true. Every cell, except those in our brain, our heart and our eyes, does indeed participate in some form of cellular renewal.

Our bodies replace many of their nearly 30 trillion human cells regularly. About 330 billion of those cells are replaced every day — that’s about 1 percent of all our body’s cells. Other cells, like the tiny ones in our gut, renew within a week.

How Stuff Works

I’m not much for dreams of eternal life. Chronic disease tends to give you a bit of appreciation for Sisyphus and the torture of daily physical embodied indignities. But give me the hope for constant change and you’ve got my attention. And yes I moved a lot as a kid who do you ask?

Doesn’t 1% renewal day seem both manageable and swift at the same time? It’s one of the recommendations I give to folks who are interested in biohacking. Change one variable by a small percentage every single day. Big changes come from compounding over time.

It does make me wonder if I’ve taken adequate time to grieve the many versions of myself that have died. The ghosts of old versions of Julie haunt me. Every time Scotty beamed you up, imagine the last version of you that was killed on the transporter pad. Ghost stories right?

I’m not the same person I was yesterday. I’m not the same person I was a month ago. If I look at how much change I’ve undergone in just the last year it feels dizzying. If I consider how different June of 2023 Julie is from June 2022, I’m barely the same person.

I take solace in the 1% renewal. That even if this version of myself is suffering, I am building a future version of myself that compounds into better versions. Seems like we should be grieving a little every day doesn’t it?

Categories
Emotional Work

Day 235 and Grief

One of my Twitter mutuals suggested I explore the work of psychiatrist Francis Weller and his work on grief. I spent two hours with his lecture and another hour on the writing and exercises explored in this talk available on YouTube. I found his five gates of grief particularly helpful.

1.Everything that you love, you will lose. 2. Places inside of you that have not known love. 3. Sorrows of the works. 4. What we expected and did not receive. 5 Ancestral grief

I have been exploring my childhood emotions and the unconscious way those experiences still affect me. Using Weller’s gates of grief I see I need to grieve but also understand these patterns and what I gave up as a child so I can see what to let go now as an adult but also understand what gifts it has left me with.

In the framing of the second gate, I felt abandoned and unloved as a child. There were parts of me that were never loved. It was a challenge to get attention. This has left my inner childhood fearful that love is unreliable, attention is fleeting and abandonment is always to be feared.

Francis Weller asked what are these lessons or emotional complexes protecting? Why do I feel this way and what did I gain? At the heart of every experience is a jewel of great price. I was protecting and nurturing the capacity to get my father’s attention.

As a small child I didn’t understand why he didn’t pay attention to me for the things I wanted and I liked. So I found ways to get his attention through the things he liked. I developed the expectation I would be ignored. I wouldn’t be paid attention to unless I made myself appealing. So I learned to cut deals to be paid attention. I learned useful skills this way. A pearl of great price indeed. But I was also giving up the idea I’ll be loved just for being his child.

That all the things I did to change myself to be paid attention to and to be loved never ultimately got me what I needed when I was a small child is a loss I must grieve. I’ll never be able to go back and feel like I was wanted. No change I made fixed it either. I must mourn the second gate.

To leave behind these coping mechanisms or emotional complexes, to grieve them, is to admit that they did not work. I cannot change that I felt I was not wanted or loved. They have nothing to offer me now. I have to grieve the lack of a loved childhood to love myself in adulthood.

But it is not a bad thing. Francis Well shares that the other hand of grief is gratitude. In one hand we hold grief and on the other gratitude is in our other palm. So I recognize I have gratitude that my childhood gave me the skills to see what others want. I see what they are looking to find. I know what others are manifesting. I see what others are building and making and wanting. I learned to see the power and magic of others so I can hold space for them. And I learned how to golf. Useful skills indeed.

I grieve that this was my tool for attention and love as a child. I deserved love and attention just for existing as a child. But I am grateful for what it has given me as well.