Tag: Wellness

Categories
Biohacking Chronic Disease

Day 2020 and Summertime Sadness Sick Season

I am feeling better today after a what felt like a long week of crashing out from a busy quarter of work, travel and side quests. As I was looking at my archives, it seems like mid July has traditionally been a time for medical crisis.

Last year it went from surgeries in foreign countries to two years ago hacking a long covid Nicotine experiment, but even further back I have struggled with energy and vitality and viral infections in these months. It shows up in my data year after years and the tags like up.

Maybe these heat death statistic needs to include the general quality of life dip that comes with a hotter climate. If we once went inward in to our psyche in winters and enjoyed summers of slightly crazy hot joy that life is passed.

Maybe the long now of the perma-weird has cast a shadow of stuck culture which that I see more clearly when life becomes unlivable outside. If you keep living out in the world things do move forward. It’s less pleasant to touch grass when it’s dead and a fire hazard. And so the summer slows us down enough to see inside ourselves

I spend more time inside in the summer than I do in the winter. And given that my home is in Montana, you’d probably expect it to be reversed. Thankfully we only have two months where the weather gets into the “indoors between 9am to 9pm” heat risk. Other lower latitudes have more troubles than we do and blessedly our power comes from our own solar grid so I never worry about running air conditioning.

Categories
Biohacking Chronic Disease

Day 2018 and Getting in Writing Reps In My Pressure Tube

I am a wreck. But now that everyone is discovering the value of daily writing (get in the repetition before the AI harms your skill), I have to gut it out as usual when I’ve got little in the way of cogent thought.

In an attempt to recover, I’m in a hyperbaric chamber sucking back oxygen under two atmospheres of pressure and I still can’t get my heart to stop pounding. Damned drugs.

It’s 100 degrees outside which probably doesn’t, help but even with oxygen, an eye mask, a soothing Endel NSDR session delivered by Bose noise canceling headphones, I could not get my heart rate under 100 consistently.

I wish I had a better theory than having over extended myself by traveling from mountain to swamp and desert to sea and then back again. Work and family call me, and they are not ever in the same place. It’s been a season of enormous wins but the price is being paid now.

It would seem that I’ve found my way to my first full system cascade failure since I went off my IL-17 inhibitor and onto a peptide regime with hormonal support.

I’ve had four glorious months of being able to act like I’m a reasonably healthy woman. Then I returned from a Fourth of July celebration in Utah to Montana and immediately fell apart.

My physician suggested the dreaded prednisone as well as a cycle of doxycycline. Goody goody gum drops. Both notably raise resting heart rates.

Want to see how bad? Get a look at this chart of horror and pharmaceutical malice. I woke up around my usual time and my heart has been pounding all night (no wonder prednisone makes people go nuts), my HRV registered as an 8 (average at my age should be 40-50) and this only registered as kinda in the green because I’ve had a week of it being in the mid teens. So yeah what the actual fuck. What do I even have?

The worst Whoop recording I’ve ever had

Maybe I just need to quietly let the steroids tamp down any inflammation and let the antibiotics kill off any bacteria that have decided to colonize me but I won’t lie I am terrified that those good months were a fleeting moment and this is my new normal.

Thankfully I know in my rational mind I’m in my luteal phase of hormonal horrors and I’ll get bloodwork as soon as my menstrual cycle lets me bleed.

It’s likely I’ll be in need of some new hormonal pellets sliced into my ass and any infection or inflammation is just a function of having gone a bit too hard and too fast in my glee that I can feel good again.

Categories
Aesthetics Biohacking

Day 2015 and Please Stop Me Now

I am an enormous fan of Freddie Mercury thanks to my mother’s excellent collection of classic rock. You’d be surprised at how much I’ve committed to memory from the core cannon and deep cuts that span the Beatles to Cream & Edgar Winter to Led Zeppelin.

I’m not much for karaoke, though I once tweaked my neck doing a full head bang hair whipping, Wayne’s World style, for a friend’s birthday party.

Knowing all the lyrics to Bohemian Rhapsody is clutch in these circumstances. As can go in, do a full rock opera and ease yourself out of any further obligation to participate saying “oh I had easily three times the stage time as everyone else I’ll just cheer you on!” Pro-tip for group activities amirite?

Fun fact from Reddit.
During the Bohemian Rhapsody scene in ‘Wayne’s World’ (1992) Mike Myers and Dana Carvey are both grimacing in pain while headbanging. The director, Penelope Spheeris, shot the scene for approximately five hours. Basically how I felt after my friends birthday karaoke.

Now I don’t always have the common sense to stop myself. I am a real mess at the moment as I have finally come home and I can let the whirlwind dissipate for a moment

Strained sleep with upsettingly high strain but at least it’s restorative. Now if only I could get my resting heart rate down and my HRV back up I’d be right as rain.

My Whoop is sending up red recoveries with a week of barely better yellows, as I spent a bit too much of the last few months going full Freddie Mercury “Don’t Stop Me Now” as not only was I having a real good time but I had a lot to get done.

Tonight, I’m gonna have myself a real good time
I feel alive
And the world, I’ll turn it inside out, yeah
I’m floatin’ around in ecstasy
So don’t stop me now
Don’t stop me
‘Cause I’m havin’ a good time
Havin’ a good time

It’s nice when you work and your life are aligned such that every step feels like you can only accelerate. But if we are sticking to thermodynamics, l may have allowed a little more entropy into the equation.

So give me some time to sleep it off. I’ll be in bed trying to keep my heat rate down. But being in the red won’t stop me forever. It’ll just stop me for a little bit.

Categories
Aesthetics Travel

Day 2013 and Glands, Tans & Buying Glam

My head hurts, I’ve lost my voice and I’m achy everywhere but I’ve got something resembling a tan and my lymph glands are only a little swollen.

Is this is the halfway point of the summer season I feel like I’m doing it rather well. That is rare for me as summer is traditionally my most challenging season but I seem to be doing rather well despite the workload and constant travel.

In a fun coincidence of scheduling, I shared a blue moon at the end of May in Greece and the waning of the full strawberry moon in Utah with same person.

A blue full moon and a sailboat light

What a joy to be half a world away and still find a way to come together. From the Ionian Sea to the high alpine skiing mountains of Utah you are never too far away from a friend.

I’m back in Montana and hoping I’ll enjoy a reasonable chunk of time here as I do feel the strain on my body. I don’t think I am sick but I am struggling to with fatigue and the annoyance of a throat so sore from talking that I should probably commit to a silent retreat for a few days.

So I’ll sip my slippery elm tea and browse the cosmetic sales for skincare (and a little makeup splurge to celebrate the big wins) and get myself back on a routine. I’d like to put on more muscle mass and improve my cardiovascular fitness now that I have more capacity.

If I can manage conference after conference, gala and launch demonstrations along with my workload and time with friends then surely I can add in some overhead presses and a plyometrics right? I did a short but brisk mile and half circuit around the neighboring pastures. And then I got back into bed.

Categories
Startups Travel

Day 2001 and My Odyssey Continues

A vast somewhat intimidating vista is stretching ahead of me between two thousand days of writing every day and the possibility of reaching three thousand days of writing every day. One day and one post at a time right?

So like any sane woman setting out on a long journey, I ate a salad, had some protein and checked myself into a spa for a massage. No reason to start a long journey exhausted right? I need to pace myself.

I got a pedicure to immediately turn restoration to grooming necessities, but one can’t keep pool blue toenails all summer. Not every day is spent on the Ionian. Some days are spent at nuclear facilities in steel toed boots. Other days are spent in kitten heels inside conference rooms.

Just in case anyone does need to see my toes after those scenarios, I try to maintain a tidy nude set of nails. Isn’t it strange what expectations we have for women?

I may work remotely, at odd hours and in odd locations that allow the occasional eccentricity, but at any moment I might need to be on an airplane headed to parts unknown. You only get to be so weird when you have big goals.

In this case, next week I’m headed to a desert town and then a state capital. That’s state is becoming a more regular occurrence in my life. That’s a pretty big privilege for me.

Being a supporting player in a number of larger endeavors gives me the chance to add additional gravity if and when I might be useful. Even if it is just showing up as a cheerleader. I love trying to convince smarter, better capitalized and better connected players than me that indeed it is my startups are the winners in the grand game of macro-cycles.

I wrote that the world was getting to be a lot more chaotic when I first started this writing journey. Now that’s common knowledge. Then and now, I care about adaptability to this increasing complexity. This has turned out to mean compute, energy and decentralization.

The strength of your network is in the flexibility and foresight of its nodes. And I hope I remain a trusted node at the forefront of our long journey as a species for as long as I serve us well. I’ll carry on this Odyssey till then.

Categories
Biohacking Politics

Day 1990 and Exhausting Exertions in Life and The AI Wars

I am so very tired. I haven’t felt the sort of down trodden fatigue that hit me today in a little over two months. That’s a long stretch of functionality for me. I am grateful for it and pray I am better once I’m rested. Or once my period hits I’m likely to feel better as my luteal phase is a real bitch. PMS needs a cure.

I am crediting my long stretch of functionality and energy (which I immediately put to use working longer hours and traveling) to the introduction of a peptide stack that replaced my IL-17 inhibitor. I’ve run the gamut through the IL inhibitors along with a myriad of other biologics.

Ironically the peptide I’m crediting with my improvements doesn’t even work on the IL-17 pathway. How’s that for kicks? My bloodwork has never looked so good and I’ve never had so few side effects.

I was suppressing a pathway that was very specific when there were cheaper short chain options I could have worked with further up the anti-inflammatory pathways and potentially closer to the source. I am my own science experiment.

I admit to being a bit vague here for fear that the days of open discourse on biohacking may be over and insurance, pharmaceutical companies and the government regulatory bodies will all look askance at efforts to heal oneself under the auspices of consumer safety. What they mean is they won’t profit so handsomely even if we achieve better results.

I had been running a piece of deep research on the latest and greatest large language model to collect what precious little data we have on my peptide stack when I hit my daily usage limits. The free tokens were hooking addicts.

Oh well I thought, it will run when my daily allotment resets. Then the model was slammed by restrictions in Europe. And then the model was shutdown for users entirely. There goes my query!?!

The model wars are here, and it’s ugly for anyone who might want to research biomedical science. Or anything the owners of the models deem to be sufficiently unsafe for you the idiot user. And you wonder why I was so keen on Montana’s right to compute law.

Anyone who has worked in technology long enough to see Uncle Sam have a fight with a corporate “Trust and Safety” team can tell you how this fight goes. Bitter, protracted and it can cost a small fortune to survive if you are a startup.

It’s not entirely clear how this fight will end. But I can’t say I’m very happy about how it’s going. And I’m so very tired of the fight. It’s been ongoing my entire life and I see no signs of it stopping. This is just an other chapter in the future and its enemies.

Categories
Biohacking Travel

Day 1984 and Whimsy Exhaustion Efforts

My sleep has been really poor as I’ve been jaunting about pretending to be a Eurotrash island hopper for a week or so. It’s both glorious but a little concerning as restorative sleep is crucial.

I’ve not gone as long and as hard as I have this late spring into summer since I was diagnosed with an autoimmune condition. A condition that seems to have potentially gone into remission.

And I’m trying not to worry. Something about late evening sunsets extending daylight, last week’s brilliant full moon lighting up the bay over Corfu all through the night, and the intense physical combination of swimming, talking, and eating communally has made it feel like I’ll can’t come down at night.

A late sunset over Greece turns to moonrise all too quickly leaving bright light at all turns

Last night I fell asleep as the sun was rising around 4am despite doing everything I could to be asleep earlier. I got in bed at 10pm with a boom, did vagal nerve exercises and breathing, took an OTC sleeping pill and a Benadryl, used only red lights past sunset, and wore earplugs and eye mask. I was doing it all right and my body’s response was all wrong.

So today I am aggressively injecting whimsy and exertion into my day with the hope that the risk of a flare in my conditions will be mitigated by the efficacy of my peptide protocol. My sleep was most disturbed up on my pulse off days so perhaps as I pulse back on into the week it will be better?

My logic is simple. Surely a messed up circadian rhythm is more dangerous than running around getting my steps, buying little treats at Flying Tiger (a forever travel notebook?!) and doing mat Pilates with travel bands. I couldn’t possibly flare myself with that kind of gentle whimsy exhaustion as my nervous system isn’t being pounded by training but extended gently with enjoyment.

Categories
Aesthetics Biohacking Travel

Day 1979 and A Bathing Suit I Can Now Wear

My health must really be on the mend. Not so long ago (a thousand days or so) I could not tolerate wearing a bathing suit as the compression of the material hurt so badly.

Heat and sun only added insult to injury as my body struggled to manage inflammation. I had purchased a bathing suit I loved that became known as “the bathing suit I never wore” as I was simply packing it as an aspirational garment.

It was packed carefully in my suitcase trip after trip, in the hopes that I might have a good day without pain. Years went by and I never wore it. It was a sad joke. Not for aesthetics or vanity, but for the cruel pain that poor health puts you through.

If you go through the tags on the blog for ankylosing spondylitis you will see a journey of some length. The blog chronicles it from its starting years and, one day I hope, to its finish. I’ll may never be cured but I am finally living again.

The pale blue Ionian coastal waters protected from development and over traffic contain a beautiful array of fishes

I know it sounds silly that being able to wear a bathing suit without pain is a huge milestone, but I was unable to participate in the most basic outdoor activities with my own family.

A bathing suit was an aspirational garment not because I too afraid to be seen in it, but because the compression along my rib cage and spine hurt so badly.

And today I was on a boat for four straight hours including jumping off into the warm aquamarine waters of protected coastal Ionian water.

Nothing hurt at all. And I am not on any immune suppressant drugs at all at the moment. I am not on antibiotics. I am on a simple peptide regime. And now my swimsuit is being worn so often I need a second one so it can dry.

A halter top from Norma Kamali and a hat from a tourist shop.

Categories
Aesthetics Biohacking

Day 1975 and Pool Blues

Having decided to take a proper break I am going all in on making sure my body and mind get the proper signs and signifiers to just let go.

My first activity after a long mess of travel was to sleep for an impossibly long term. Whoop approvingly noted that my 11 hours and fifteen minutes was the longest I’d slept all month.

Low stress, a green recovery and plenty of hours of deep and REM sleep

I know they say you should stick to a regular sleep schedule. I generally have a firm bedtime just past 9:30pm and will sleep nine hours if I can.

But between conferences with evening events, long drives late into the night and an eight hour time difference I was carrying a sleep deficit that needed to be remedied.

My next order of business was equally taxing. I booked a spa appointment for a pedicure and a waxing. Fresh toes and a clean bikini line seemed like just the trick before laying out on a pool lounger or on a beach.

Not that anyone will be taking too close a look at me but I like feeling as if I’ve cared for the little details. Cosmetics and beauty are more of a way of appreciating my own body than adhere to someone else’s preferences.

I usually wear a very basic nude shade on my toes. I almost never do my hands but I appreciate a but I felt like I needed something more Ionian in quality or perhaps one of David Hockney’s pools.

A bit of pool blue lacquer

Normally I wouldn’t go quite so exotic on a pedicure as I’m much more basic in my preferences but if I have a chance to stare out at wine dark sea over an aquamarine pool I may as well make the most of the experience.

Blue on blue on blue as an example
Categories
Biohacking Chronic Disease Emotional Work

Day 1964 and We Are Who We Tell Ourselves To Be

No one likes a gloomy Gus. The downside of chronicling a chronic disease is the risk of seeing yourself as only the illness. Then other people will see you that way too. And so your identity becomes tied with only one of the many aspects of your life, and often the worst one at that.

Thankfully most humans are centered enough on themselves to forget the occasional gloomy reality from someone outside of their daily lives.

But repetition becomes reality, and eventually we are who we believe ourselves to be because others believe we are who we say we are too.

I came across a startup who is working on one of those classic swamp problems that seems like a great idea until you are well and truly stuck in the muck with bad incentives and no good solutions.

They want to use artificial intelligence to help patients with chronic diseases or complex medical cases to codify the many little details that might add up to the clues that crack the case.

By tracking subject inputs (unstructured data) and overlaying it with the other biometrics gathered by wearables and bloodwork they can help patients. I’ve seen hundreds of variants of this over the years.

Alas this new startup seems to have discovered a flywheel for marketing that relies on the problem I began today’s post with. We believe what we tell ourselves we are and eventually other people will believe what we believe.

They have chosen to market the app with illness influencers. Yes, that’s an actual category of influencer on TikTok and Instagram. Hot girls all have vague chronic illnesses these days haven’t you noticed?

And so a community forms and reinforces the identity that they all share. They are sick. And that makes them special. This gives life meaning. And did I mention lots of pretty girls have the most esoteric and exiting problems? Click to join now!

I find this to be a troubling, even borderline dangerous, approach to anchoring a community meant to help patients advocate better for care with their own personal health records. The incentive to remain with the privileged identity that makes them special only increases over time. Women reinforce themselves into intensely held identities all the time.

I thought about reaching out to them but I don’t want to get tangled with this problem. It is one for professionals which neither myself nor these founders are aside from everyone being a patient with chronic illness.

I do not wish for my identity to be the sick woman. The woman whose life was upended by a fertility protocol gone wrong in the early years of her marriage and in the prime of her life.

It’s one aspect of my reality. I do want others to be saved from my fate so I share it. But it is not who I am. Julie is not a sick woman. Julie is a complicated individual with a beautiful life and family and portfolio.

I had my own glimmer of hope today. Though I have repeated my troubles with my medical history I have never felt it was my identity. I’d happily give it up if I find a path to wellness. And I spend so much of my life trying to walk out of my troubles.

I have walked many side roads and pursued quixotic quests to find health. And some days I even find it. Today I got very good news on a fresh round of bloodwork. I’ve felt recently felt well thanks to some changes and an aggressive pursuit of new modalities.

I never want to get my hopes up too high as this effort has been a rollercoaster of ups and downs. But I won’t let go of the hope. The mere idea that this chapter could close and I might be a healthy woman is an identity I’d gladly welcome. And I’d wish that for anyone who takes on illness as a part of their identity.