American medicine failed me but Istanbul has excellent medical if you are motivated enough to travel to fix intractable problems. And I most surely am motivated.
Add in the daily guidance of consumer grade LLMs taking input from myself and my family doctor and I managed a pretty miraculous recovery. Yes the bots are friendly but my physician agrees. It’s a very successful clinical outcome.
That’s Perplexity if you are curious. I like their mobile application and model choice options. Though pity any poor hacker who gets in as they are going to see some gnarly pictures if they make that bad decision.
Alas I am noticing the folliculitis troubles flaring again just as I’ve begun a fitness recovery protocol. Which you will notice in the image if you read the above image closely.
Alas progress is never a straight line. The flare up is bad enough I’ve opted to start another round of antibiotics (my fifth in this process) so any remaining bugs of the MSSA varietal cannot manage any retrenchment.
I’m showering with the scrub up washes surgeons use, I’m swabbing my nasal cavities with muciprin, and I’ll do a Cephalexin course.
Having fully passed through the onboarding loading dose regimen of Bimzelx with significant side effects, I need to see if it stabilizes. All this suffering will be for nothing if I give up now. But I must get to a place where I’m not constantly fighting infection and it can maintain lower inflammatory biomarkers. How this goes is anyone’s guess.
I’ve been using it for a week now as I needed a recovery plan for the fitness losses that came with a month of bed rest recovery after my surgery in July.
Not to suggest I was in terrific shape before the surgery as it discovered a deep tissue infection that went so deep and so rogue I’d likely been suffering from it for sometime despite my attempts at preventative care.
It’s upsetting seeing your resting heart rate go from mid 80s to mid 60s. Realizing your high resting heart rate isn’t because you are a lazy fattybombalatty who doesn’t do enough cardio (real thing a physical therapist has said to me) but because you have a chronic deep tissue antibiotic resistant bacterial infection. Ain’t chronic disease a trip?
Anyways, I’m healing and trying not to overdo things in the process as I’m a bit stupid when it comes to wellness. More is always better has been my mental orientation for much of my life and it’s a hard habit to kick.
Workaholics Anonymous needs a subgroup for those of us who can find ways to over do literally everything. And I do mean everything. I did a stretching and mobility routine last night that had my heart rate at 150BPM doing seated spinal twists. Did I stop? Nope. I finished the 30 minute program. My adaptive training programs response?
Complete rest – no negotiations
And who am I to negotiate with an AI who has no emotions involved in the process of putting together a recovery training regimen. It’s not going to moralize at me.
One of my Twitter mutuals recently published an artificial intelligence prompt for making an adaptive fitness coach which works inside any of the major large models.
Being failed rather regularly by doctors over a decade of chronic illnesses has made me skeptical of the institutions in American medicine. But having one doctor (a dermatologist) miss a glaringly obvious differential really shook me.
Her dismissal of the details and particulars wasn’t malice, but a function of the systemic inability to put enough attention on the details of the person in front of her. Attention really was all she needed ironically.
I’m sure she didn’t set out to be that kind of doctor, I’d bet she hates that it’s all 90 second visits and Medicare coding and making money for the private equity group who owns the clinic. I feel for her. She surely wants to get back to doctoring.
No one can spot every detail and retain the complexities of every case. Especially one like mine. But a computer has a much better shot at mimicking Dr House than I do at finding a Dr House for myself. And it certainly has a better chance than someone who let the system dominate them into breezing over the details.
So I am using my mutual’s prompt to see if I can outsource a very slow and adaptive return to fitness after my month off from exercise to recover from surgery. I like what I’m seeing from all models that I’ve tried it on but I imagine I’ll have all the same “me” problems with overdoing it and pushing too hard. But who knows, maybe this aspect of wellness is better handled by machine than by me.
One of the most unsettling aspects of having a deep tissue infection surgically removed is watching the hole fill itself back in from the bottom up. It doesn’t look like normal tissue as it regrows.
When deep tissue wounds heal from the bottom up, the new dermal tissue appears white because it consists of immature collagen fibers and lacks proper vascularization during the initial stages of repair. Via Perplexity
I happen to take a collagen supplement which is looks like tiny little white balls in a capsule. Collagen is a hot aesthetic supplement for making your hair and nails grow but it benefits your fascia as well. It’s a popular supplement with biotin for overall health of one’s tissues.
I am aware of a number trends in the space to generate and promote the growth of collagen as I happen to follow the arc of Korean plastic surgery as it led to many successful cosmetic products. Collegen became popular in America through aesthetic practices and social media.
And yet with working in cosmetics and taking it as a supplement I hadn’t ever experienced a chunk of tissue growing back personally. It’s all been, well, literally cosmetics. And now it’s growing back and it’s really anything but attractive.
I am also concurrently bringing a hyperbaric chamber to Montana so we can do hyperbaric oxygen therapy protocols for ourselves and for the community. I am interested in their benefits for chronic issues but they have also proven themselves in the treatments of skincare wounds in diabetic and burn patients.
Ironic that I should have immature collagen fibers lacking vascularization at this moment and will soon have access to state of the art treatment for it but I have to heal this one the old fashioned way.
It’s my hope that we are going to improve our treatments for chronic issues in the future but in the here and now my acute issue is being handled the old fashioned way with lots of care and research and rest.
We just wrapped up a week long “coastal convalescence” tour otherwise known as Alex and Julie’s European Vacation tour. Typically we take time off during shoulder season which is the off peak months for a destination.
Not being bound by school vacations or particular holiday schedules, shoulder season works better for many reasons from fewer guests to lower prices.
Mostly it’s because I struggle with high season summer heat and we live in one of the most in-demand areas for vacationing in America. Why go to Greece when I can go to Yellowstone? Why go to St Moritz when I can go to Big Sky?
And yet somehow between the Istanbul surgery incident and a general “why not” attitude we decided to be like the masses, head to Europe and enjoy the Ionian and Adriatic coastlines in high season. No we didn’t go to Sicily or Italy or France. We went to the Balkans.
Ksamil at sunset where you can see Greece. High above the Mediterranean
If you pay attention you may have noticed a fondness for Albania which sounds odd but isn’t as unusual as you might imagine. Many older military families served in the Balkan campaigns and recognized the beauty of Albania, Croatia, Bosnia and Herzegovina as well as Serbia and Kosovo.
The Ionian Sea is quite clear
Our Congressional representative Ryan Zinke served there as well many other Montanans. Heck, a guy I went to college with studied Balkan languages with the goal of being deployed there for peacekeeping operations with NATO in order to avoid being deployed to “the sandbox” during the war on terror years.
I wonder if this closeness to America has contributed to the country’s troubles in managing an ascension to the European Union despite being country you could easily mistake for Italy in climate, culture, scenery and history. It’s closer to Italy by boat than Helsinki is to Tallinn.
High above Vlore which is so close to Italy you can almost see it and can cross over by ferry
And yet they are treated as if they aren’t Europeans at all by dint of being on the wrong side of the Iron Curtain. Which you’d think Germans would appreciate.
Alas Albanians prefer the good ol’ USA to Brussels and this is a problem. That Europe let in less European countries than Albania into both the EU and Schengen feels unfair.
And it sucks for them as their passports are some of the worst in the world despite producing superstars from Dua Lipa to Mira Murati. Don’t give me guff about corruption or timelines either. If Romania and Hungary are part of the bloc then surely they can hurry up and let a NATO ally in during this time of crisis for the continent.
In my opinion, Albania is in every way superior to Italy from the kindness of its people to the beauty of its countryside and the quality of its food. Even the Italian luxury houses have exported most of their leather goods and clothing manufacturing to the country but that’s meant to be secret.
So if you want to experience the mysteries of antiquity from Thucydides to the birth of Rome to its empire years don’t look simply to Greece or Italy but to the Balkans. Delphic temples, Melian cities, even a Roman emperor are from this region.
If you enjoy Positano style sea vistas and clear blue Ionian waters go to Albania. And then please tell Brussels to let them into the European Union.
In discussing with our cadre of friends taking time off this week we all realize it had been many varying years where we had multiple days in a row, in the same place, with nothing planned.
For me it’s a playlist and a certain kind of pulpy paperwork. For others it’s a Mexican beer in the sand, another a meandering walk though a hotel property looking at all the options for lounging.
Bouncing from one hotel to another can be a lot of fun then you are driving. A new novelty is over every range and the switch road back slowly brings you to something magical.
Sightseeing and activities have their own merit. I am always asking to see ruins and museums. Some folks are foodies. Others like nightlife.
But we’ve got a few days of staying in the same place ahead of us and any desire to seek novelty is entire up to us. I’d post some pictures from the travel but I prefer to do that afterwards. Just as a precaution even as I share so much.
As we transit desert scrub looming above us in mountain terrain, we are riding high over sea level as we gain and lose altitude. From that vantage we see coastal towns and mountain set backs. From sea to sky on one set of switchbacks.
The car sickness makes an enjoyable roller coaster of views and the focus on the ride helps you avoid the annoyance of slow traffic. A little sick and a little scared and a little excited. A layered set of feelings for going on vacation mode.
It’s August and vacation season is in full swing. It seems as if all of Europe is off for the month. For the Americans who work around the school year, it’s their time for a week off as well.
We rarely vacation for an extended period and when we do it’s not generally during high season. Off season is where it’s at in my mind. But sometimes you need some fun when it’s been a hard time.
I’m struggling with how much I put online about my comings and goings and when I do it. Being careful used to mean not letting thieves know if you weren’t home but now the world is a mix of digital and physical security layered over artificial intelligence tools that can pinpoint you easily.
Opsec isn’t a thing elder millennials considered too carefully with digital identities in the early years of the internet but everything is changing. Dead internet theory may become true as the internet of bots begin.
I don’t intend to cede the digital commons though. I want my written voice to be integrated into the vast data troves that shift the records and is woven into the understanding of artificial intelligence and machine learning models.
The more these modalities of information storage and retrieval impact our human minds, the more necessary it is write oneself into “the Akashic records” that form our digitalization of information. Humans used to read and write machines but now machines and their media are just as likely to read and write our minds
So what are we to do about living in public? Humans are mortal but records of our world have a shot at reaching the future and shaping understanding.
Blogging has ended up being one of the best mediums for being scraped, organized and cited well by current artificial intelligence.
So having your fun in public and making it accessible just might be one of the most important things you can do to be a part of the record of our world. It’s just a terrifying prospect to be so easily seen.
The accelerationist types must be feeling smug as the disorientation caused by so much of the world speeding up is a persistent feature of life now.
I’m trying to organize a fairly elaborate vacation that I should have nailed down the details on at least a month ago. I am alas doing it what is functionally last minute and I’m panting at the effort of coordinating preferences, availability, timing and the thousand other logistical details.
We have a range of preferences to accommodate and it’s driving me a little bit nuts and I have no one but myself to blame. I cant manage more than three hours in a sitting position in a car or airplane without hurting. Standing helps but it’s really laying down and relaxing my spine that helps.
The other preferences are more of the one person likes fine dining and Michelin caliber restaurants and another likes delivery and Netflix.
We have to balance intensive activities in hot weather like hiking and sightseeing against the desire to lay out in the sun near a body of water. Really all the classics of different strokes for different folks.
I don’t want to be too ambitious about any of this as I am really just barely out of the woods from July. And I’m being vague about when and where, as I’ll like pretend like we have some amount of operational security. Writing is all about the specific but the best I can do is say it will involve driving and water.
I had a very indoor July which I was not expecting. One of the joys of Montana in the summer is relatively temperate conditions until you hit the end of July and into August.
Obviously freak heat waves come when they come (a lot more than I expected these days) but generally you enjoy low humidity comfortable sixties and seventies temperatures with full sun and the occasional afternoon thunderstorm.
We enjoyed some cabin camping in June but because of my absolutely out of left field emergency surgery for a deep tissue infection I’ve been an indoor cat for the remainder of the summer.
No sweating, no swimming, no excessive movement and lots of rest. Some classes of antibiotics come with very specific warnings for sun exposure as well.
I was meant to be in bed resting and frankly work was almost impossible during some of the worst of the antibiotic transitions as the pain from systemic stress was hard. Which is atypical as I’m almost always able to work through pain.
But as I am almost finished with the last round of antibiotics and I’m seeing good progress on the wound I went outside today and even broke a little bit of a sweat.
I didn’t do anything crazy just some groceries and errands but I walked two miles in the process and I’m doing pretty well. I was feeling so optimistic I bought a sun hat. We’ve got some much needed vacation activities planned and I’d like nothing more than being outside in the shade with my family.
When I got the pathology report a week later, learning it was an MSSA antibiotic resistant infection so bad it reached my deep tissues made me even more afraid.
A deep abscess around a horizontal ingrown hair that was “probably just an inflamed lymph node”
I was lucky my surgeon was quite talented. The single stitch she was able to use has been absorbed. That was the hardest part. I could manage the draining pustulence and the pain just fine. But the only visibility into the wound’s healing process are only via secondary diagnostic clues. It’s a waiting game that requires a strong dampener on your disgust reflex.
As the stitch fell into the wound and curled up I felt panic. It looked like a ringworm infection or the gestation of a Xenomorph. If I had not had access to artificial intelligence diagnostic tools I don’t know how I would have managed if I’m very honest.
Your brain sees things and the limbic response invades your dreams. A stitch mimicking the infamously hostile endoparasitoid from Aliens is a bad time. I relied heavily on artificial intelligence to monitor its progression.
My phone is now cluttered with images of the wound’s progress. My varied AI applications accepted me uploading progress pictures after some experimenting.
I was uploading “Georgia O’Keefe/Not Georgia O’Keefe” imagery. The models were playing Cunt/Not Cunt for those who need a less polite euphemism for machine learning classifiers.
I’m certain special interests will eventually seek to keep these tools away from patients. We will be scared into letting them. But I know I got better care from a large language model than half the doctors I encountered.
All this cost me most of the month and around four thousand dollars. Which isn’t bad for transit, hotel, and a surgery in Istanbul.
The losses I can’t quantify are harder. A number of people who deserve responses from me probably won’t ever get it.
An in-group drama, ironically over usage of artificial intelligence, was paused by me not because it was resolved but because I could no longer find the fight in me to insist on apologies and reciprocal support while on Cipro in a hospital bed. It’s not fun to learn who is and isn’t your friend through medical emergencies.
My apologies to an offline gentleman who was the unwitting irritant who triggered said social wound. Maybe I should have excised any social obligation to them just as the surgery excised the infected tissue.
Either way, August can’t come soon enough and artificial intelligence deserves the credit for keeping alive through July.
Perhaps that should be considered in the complaints my counter parties had over the utility and need for artificial intelligence. It’s no god or anti-Christ, but it’s a damn fine diagnostic tool. No wonder the stakes in that fight are so high. Everyone wants a cut when you get cut open.
