Tag: Health

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Culture Emotional Work

Day 1819 and So You’re Safe Enough To Celebrate With Rest

I prefer Christmas Eve to Christmas Day. What traditions my family had were mostly oriented around the night before Christmas and not Christmas Day itself.

We’d have a Christmas Eve dinner, our one item per person gift exchange, and most excitingly staying up for midnight mass with my mother

Christmas Day meant Christmas stockings and a jumble of different half heartedly attempted Christmas wishes and lots of long distance calls. Much less fun from a child’s perspective than gifts and late night ceremony.

So here I am on Christmas Eve all prepared for tomorrow’s day of stillness and rest. And I am exhausted. My body has sensed it’s safe to collapse into the kind of sickness that only comes after cortisol washes away on the tides of adrenaline going out to sea.

I’ve got not plans. My worship has never required a church. My prayers are between myself and my maker. I’ll be sick and happily collapsed into my own quiet reflection. May peace be with you.

Categories
Aesthetics

Day 1817 and Magnesium

Not everyone has decent bathtubs. For a good chunk of my life and also in current chunk, I lacks for a decent bathtub. We’ve got an astonishing array of other marvelous ways to heal but not a good soaking tub.

I almost never get to enjoy a warm leisurely bath. I am not a hot tub person. I’ve got sensitive skin and the chemicals involved are not an environment for my skin.

I am alas a great fan of bathing in epsom salts. It is a cure for almost every ailment.

So it was this attitude with which I tried to run myself a bath in a remote location and I failed to consider the tank I was dealing with compared to the size of the soaking tub. Which was generously deep. A terrible and obvious mistake.

A lukewarm tub was my reward. And don’t I look silly for not obey a basic detail. Otherwise a very relaxing day which I would have enjoyed topping off with a soak.

Categories
Aesthetics Chronic Disease Travel

Day 1816 and Bedding Down

Having put no small amount of effort into preparing to be quietly away from the world for Christmas, I have made myself a very cozy in the chosen retreat.

Preparing for a closed world means I’ll have the freedom to close down myself. My body has been a bit up and down as it usually goes s these days so I’d like to log as many hours in restful response as I can.

Other activities I’d enjoy would be bathing in a warm tub, going for peaceful walks with no one around and reading for hours on end. Which seems manageable. It’s a time for prayer and contemplation.

My only wrinkle is the lack of available prepared food. I mentioned I’d be rather remote. And I did pack as much as was feasible

But if I can’t manage a few days of cooking simple meals like pasta and chicken that would be pretty sad. I’m lucky to have relied on that part of my life being handled by others as I do find the idea of cooking to be almost as tiring as the reality.

All of that moving around on hard kitchen floors as you juggle timers and fire is not a favored activity for someone with spinal issues. Still I’m optimistic if I stick to a quiet routine of reflection, rest and prayer maybe I’ll manage. Or perhaps a miracle will occur and I’ll be fed literally and spiritually.

Categories
Chronic Disease Medical

Day 1814 and Spicy Boi Shots

I’ve been trying to coax myself into taking my final biological injection of the year for most of the day. It’s a very painful shot. The feeling of it is somewhere between stinging and hot sauce being pushed into your subcutaneous fat. It’s spicy

I switched my IL-17 inhibitor for my inflammatory conditions as one of my first actions of 2025.

I was filled with optimism that this new variant called Bimzelx might be the one that finally brought down my biomarkers. And it did indeed show promising results. My CRP and SED rates have never been better.

Alas, the cost is quite high. I’ve got no immune system response to speak of when it comes to my skin and soft tissues. I’ve had four major skin infections requiring surgical intervention and many minor skin infections.

I don’t think I can live with the side effects of the drug even if my inflammatory numbers are better. There is no doubt it’s effectively treating some aspects of my psoriatic arthritis, axial spondyloarthritis, ankylosing spondylitis.

My pain is better so long as I can avoid picking up an infection. I’ve been on antibiotics most of the year. Alas I’ve only had maybe 2-3 weeks without an infection brewing or being beaten into a retreat.

So today may be my last spicy shot. I’ve gone it a full year of adjustment. I don’t relish the prospect of adjusting back to my previous medication as it takes a full year to fully dose on and off these things. But maybe I’ll be lucky and on my final shot in the year I’ll see a change for the better

Categories
Biohacking Chronic Disease

Day 1810 and Bodywork and Open Sourced Tactile Physical Data

I had a really excellent massage recently. The body worker really got under some of the tension points in my body and the compensatory patterns I was hoping for them to work through. I felt like the flow of my energy was reset.

This type of relational work between two people, one with body issues and another one who knows an efficient path for soothing them, need each other. I need relief and they need a payment that reflects their expertise.

Typically this has been labor paid in some increment of time. I paid for an hour long massage but I’d be willing to pay for more hours and the knowledge and capacity to execute that work on myself or through another body worker or tool.

I’ve got a Theragun, a Tiger Tail, lacrosse balls and foam rollers and I try to work through knots and pains. But I know way less than your average massage therapist or Alexander Technique practitioner so these tools are in the hands of a poor craftsman.

I would love for there to exist some type of Open Source Bodywork Database. I’m thinking work flows, anatomy training from video to textbook and routines input by every type of knowledge tradition and patient.

There are humorously already types of open source startups that work on body based API calls. One is called buttplug.io so you get the idea.

I’d love to see workers get paid to contribute their video, audio, and tactile experiences to an open world and ideally be paid a percentage each time it’s used.

Imagine being about to boot up this massage with an automated massage options. Or open share the repo with a therapist with less experience looking to learn. You pay the therapist trainee and for the routine and everyone benefits.

It’s a bit of a fantasy now but I’m sure we are closer than anyone realizes to being able to train these movements into automated systems. Imagine celebrity osteopaths with programs built into something you can use.

I would prefer this be an open source program for human body knowledge so that we learn mechanically the many physical routines and options that exist to make our bodies function better thanks to aligned incentives for everyone to participate. Dare to dream right?

Categories
Aesthetics Politics Travel

Day 1808 and The Secret Sauce is Strongmen

Without getting into too much detail about my travel schedule I will say I’ve visited a few places with a lot of construction this year.

I’m talking about cranes on every corner level construction. If I did a full rotation as if I were Michael Bay getting an action shot, I’d see a half dozen cranes putting up major construction projects.

In some European cities (not the western ones) I saw entire neighborhoods being rebuilt from old multi-family buildings to massive mixed used developments. Cute streets and courtyards be damned, the millenial families want Instagram housing from Tallinn to Tirana.

Their elders are confused but new families need new condominiums. Let’s just hope they remembered to plan for water, power, and other infrastructure needs like new roadways. I’ll admit I’m skeptical in many cases. Maybe it’s good that they are just building willy nilly as it’s not like we get infrastructure investment without the pressure of new families demanding it.

Americans don’t see this amount of construction regularly and it is both inspiring and also a mess of pollution from debris to noise. It’s pretty miserable if you happen to enjoy walking. It is also miserable to live with.

It almost makes me sympathetic to the whines of older residents who want their homes to be worth more and use the chaos of new developments as a cudgel to stop new housing from being built.

There was a time in New York City when I first arrived there when it felt like new buildings went up all the time. You’d complain about jackhammers, trucks, and the ugly protective sidewalk sheds that are meant for safety.

I even knew a venture capitalist who left his job to make a classier sidewalk shed as the damn things almost never come down in a city under constant improvement.

I went through ULURP or Uniform Land Use Review Process hundreds of times in just a few years as an appointee in the community board system.

All anyone can do is complain about the lack of new building and construction. And who can manage to overcome the slog to build let alone turn a profit. American processes for building are more “cranky man tells at clouds” local meeting hell than Robert Moses.

Maybe the YIMBYs (I myself am a yes in my backyard sort) are barking up the wrong true with red tape reform efforts. The strongmen cut the Gordian knot of land reform by simply not giving a shit about process.

The Zoomers are ready to rage for radicalism with their reactionary political entertainment industry. It’s unclear to me if those types would remember to incorporate waste water treatment in their plans. It’s not hard to go from bullshitting to being covered in shit. So that’s worth considering too before we get too excited about a new round of futurism.

Categories
Chronic Disease Emotional Work

Day 1806 and Trying Not To Upset My Proverbial Applecart

I have had way too many minor (and major) health problems emerge over the course of 2025. Adding in personal life tragedies (the death of my father) and I had a challenging year.

So I trying to keep the last few weeks of the year crisis free. I have already pulled myself out of the day to day to try for a slow wind down of the year. No holiday parties or appearances for me. I am gone.

As I slow down and put distance between myself and the world, I maybe stupidly see it as an opportunity to nudge myself on little health promoting efforts.

After the year I’ve had, I so desperately want to see improvements. Even if simply not collapsing into another infection cycle is a win.

I’ve been trying to consistently work on body basics like muscular compensation patterns and getting more steps each day, but I’m so terrified that even a minor miscalculation in exertion will upset my proverbial apple cart.

I went for a walk on a high mold count day and reached for prednisone. I’ve been teetering on the wrong side of recovery for so long I don’t think I can recall a genuinely good day. My sleep is similarly impacted. I want to have a long night of deep sleep and dream cycles but the best I can manage is just a long night.

Categories
Biohacking

Day 1804 and 5 Years of Whoop

Tis the season of “unwrapped” data round ups as technology companies owe remind us that they have very capable data teams without unnecessarily freaking out users.

The marketers get all the glory, as everyone figures it’s a few MySQL queries gussied up with a creative hook but I always wonder what happened to the great data and behavioral science fad of the early teens. We’ve moved beyond IFTT and Zapier into natural language vibe coding. It’s a time of incredible change in understanding the data we’ve lived inside for years.

I got my fifth year of Whoop end of year marketing when I woke up today. Which was a little annoying as I wanted to see my sleep from last night but who wants to rush through the end of year review right? Finding it again can be tricky.

I keep wondering what more can we get from the hardware that knows us best. I’ve given half a decade to Whoop and mostly what I’ve learned is Covid really took 20 points of my heart rate variability.

I’ve been frustrated of Whoop’s progress in the integration of a chat AI as it seemed like any commercial LLM could analyze screen shots of the Whoop as well as their own chat did with the data it already. But tenure counts for a lot and it’s still the tool we have all relied on for half a decade now. Or at least 2% of us have worn it everyday for that long.

Clearly the data l could be used in many more way more than the management team ever seems to enable their data teams to do regularly. And I’d like to get more out of my Whoop. So being reminded of the length of use makes me wish they would deliver on that future before another year goes by.

Categories
Biohacking Chronic Disease Travel

Day 1800 and On Steroids

I’ve been on the move, and in wet, rainy, and polluted weather (in other words coastal cities) where I tend to do the worst.

It is frustrating to see nearly five years of work in my journals and tracking amount to very little in the face of wet moldy environments.

It’s not a terribly pleasant topic for day 1800 and makes me feel as if I’ve made little to no progress on moderating my immune system.

I’m particularly upset as it’s bad enough I chose a steroid course. I am too afraid of getting an infection. I loathe prednisone. It works so well. It is like a hammer on inflammation.

Prednisone crushes every inflammatory condition instantly. Red itching oozing welts in a matter of hours. But I can speak from hard experience that even though it stops a cytokine storm in its tracks, it leaves you crazy and fat in quite short order.

I am simply terrified of picking up a skin infection as I’ve had a doozy of a year dealing with them in areas delicate and unusual. It’s been horrifying to have issues with eyes, an incision site and abscesses in even more personal areas.

It seems safer to use the hammer before an area of open skin can be found by an invasive species just looking for somewhere wet and broken. I pray it was the correct choice.

Categories
Culture Travel

Day 1791 and Hack, Hack, Cough Cough

One of the oddest post pandemic norms we’ve come to accept are the hacking coughing fits we pretend are normal parts of public transit.

By public transit I don’t just mean just subways or busses. I’m sure they suffer from this issue as well.

But rather our most expensive version of public transportation, air travel, is riddled with passengers clearly infected with one variant or another of a respiratory illness.

Now I get it. It’s not cheap to fly. A cold coming on won’t stop you from going as you paid a lot to travel. Everyone is on the road trying to make their way to family, friends and community. It is hundreds, if not thousands, of dollars to get from here to there.

So as you stand in long boarding lines where people queue seemingly at random in groups 1 through infinity, you see various flavors of sneaks, cheats and idiots bottlenecking the mess.

And then you hear the coughing, hacking, sniffing, sneezing and other variants of ignoring the body’s strain.

I am prone to skin infections rather than respiratory ones or this trend would worry me more. I generally don’t mask unless I’m stuck in tight quarters. Sometimes I wish I had. Dealing with Chicago and the sweating, panting, running, struggling human masses, I feel I should have.

You still see depending( on the city, its demographics and its politics, a range of mask wearing. The elderly are often masked. I see frequent flyers wrapped up tight in the good N95. There is quite a lot of masking and I think it’s a good thing.

Maybe these maskers know something. They must be used to persistent cold and flu season and understand some folks who don’t care about their impact on others. Masking must work well enough to be worth the hassle for some.

I hate to bring up the old awful politics of the COVID era, but we should have learned a thing or two from Asian nations who politely mask themselves when ill to benefit their fellow citizens.

Wouldn’t that be an impressive thing to see? Americans caring about each other’s welfare. If I have a cold, it will be because I was too stupid to mask up. But if I get a cold I promise I’ll mask up to avoid passing it on.