Categories
Chronic Disease Medical

Day 1094 and Small Progress

I am clinging to the small progress in my physical condition. I feel numb and exhausted which is an improvement over being so much pain I can’t think while also breaking the variance ranges on my Whoop.

It would appear as if I missed Christmas and much of the week off even though I did enough doing some work when I had a few good hours.

I figure if I aggressively pursue a program of medication, rest and positive inputs I can make the small progress that should have been back if I just don’t rush it.

No one is looking for 2024 to get here and faster than necessary. Cling to the last moments of the year and cling to small progress. Who knows what happens next.

Categories
Chronicle

Day 1090 and Winter Breaks

I would very much like to take an extended break to restore my mind and my body. I feel as if I could use a week or two offline.

The holy nights have held a place in my heart and mind as the season for introspection. I like doing fasts during this time, but it’s not been physically wise to take an extended fast recently.

I expect 2024 to be a big year. I had lots of little things to wrap in 2023 which is impacting my capacity to fully check out for the remainder of the year. Duty calls I suppose. I am keeping my obligations to others but I may need to find a way to keep obligations to myself.

On that note, I’ll keep this short. It’s better to get back to reading and resting when my capacity is diminished.

Categories
Chronic Disease Medical

Day 1089 and Silencing Inputs

I am doing very poorly today. All inputs into my system are being read by my senses as pain.

I’ve spent the last two or three hours in a dark room without any systems inputs but background. I’d hoped to become unconscious but was unable to sleep. It was an extended period of consciousness doing battle with pain. I didn’t set a timer or I’d be able to tell you for sure how much time I spent in this state.

I couldn’t read text on paper or watch visuals on a screen, I couldn’t listen to audio or intake spoken word without difficulty and intense focusing, nor could I tolerate novel or new smells. You’d think this would be very boring except that the intensity of the nerve outputs clouded all thought.

My body seems to be reading all changes in systems inputs as painful. I am unsure where the proximate source of my pain might be as it’s both too intense to get outside of and too diffuse to respond to mindfulness.

Typical locations like my thoracic spine hurt but I feel it in every joint as I take inventory. My intercostal muscles across my rib cage and chest are so tight I’d swear I have several broken ribs if I didn’t know better.

I’ve taken several pain medications of varying strengths (anti inflammatory and analgesic) to little effect. I had to stop watching Christmas movies with my husband sometime in the afternoon as I simply couldn’t handle the noise and sound coming from the tablet.

I don’t know how coherent my writing is at the moment and I feared I wouldn’t be able to muster any focus. I am finding it hard to look at my mobile phone screen even at the minimum brightness setting. This usually indicates a migraine but that seems like a secondary issue.

I hope this passes as I do not have time to manage this kind of symptomatic intensity. Perhaps my body knows this and is simply allowing a breakdown on a day where it’s safest to do so. In which case I may need another holiday or two to actually find a break restorative instead of as emergency maintenance.

Categories
Aesthetics Culture

Day 1088 and Christmas Eve

I enjoyed a very American style Christmas Eve today. My husband and I have been so busy with professional obligations that we had not done anything to prepare for this Christmas week.

We piled into the car today, braved some unplowed snowy roads (more slippery than deep) and got ourselves to Costco. I am a big fan of the buyer’s club and its merchandising. You can find a lot of odd cheer at Costco over the years And it did not disappoint. While more traditional centerpieces like filet and lobster were available it was the Junior’s New York Cheesecake that was the surprise this year.

New York Style Junior’s Cheesecake from Costco

After we a did a run to the proper grocery for other necessities like satsuma tangerines (the rare Christmas citrus has a short season in December) we headed home laden with marvelous delicacies and at least ten meals for the week ahead. I was then very grateful to get an afternoon nap. So rare to be relaxed enough for REM sleep in the middle of the day.

We have done a feast of the seven fishes as our Christmas Eve meal over the years but it’s a challenge to eat that much when it’s not a crowd. So this year we’ve narrowed it down to three fishes. Technically they are crustaceans.

My hope is tomorrow will be a peaceful one of rest, prayer, relaxation and probably some movies. It will be Die Hard tonight as is tradition and hopefully A Christmas Story tomorrow.

Categories
Chronicle Culture

Day 1087 and Christmas Weekend

I plan to work most of next week so I am particularly intent on resting throughout this weekend and Monday.

I was thrilled to wake up to a snowfall this morning as it’s been an unseasonably dry winter in Montana. My husband was up before me and started a fire in our wood stove.

I wandered into out into the living room sleepy and tired to find the coziest scene. Mountain living is wonderful if you’ve got the temperament for long cold nights.

I am tired which makes me more reactive. A soothing winter calm is a tonic for my nerves. I do not feel as if I am particularly reflective at the moment as that would require more control than I have the energy to muster.

I will watch some movies, enjoy a few meals, and otherwise let the season sooth me. I hope it’s enough as I am expecting 2024 to start with a bang.

Categories
Biohacking Emotional Work

Day 1068 and Routine Versus Speed

I always find myself disappointed by how much time I put into health. Perhaps it’s a sign of how high expectations are for performance in the tools we use daily that it seems preposterous that it should require a third of your time in maintenance.

Perhaps this is an unfair intuition on my part. For every hour of flight the F-16 needs around 17 man-hours of maintenance. I’d prefer to not be quite so resource intensive as a fight jet but maybe fighting entropy does require 8-10 of my day.

As I try to do more with my days and push myself to do more in less time I still have to put in the effort to stay at my old baseline. I put my faith in the miracles of compounding. What was once a huge effort is now a habit.

I try to fight my tendency to optimize even as tracking my own data has its benefits. Most of my inputs are just a refinement on existing heuristics. Occasionally I’ll find someone who has a fix so might better than what I’ve been doing it fundamentally resets my understanding of my works model. It happens more than you’d think.

In accelerating I must apply more energy to my existing systems. Or course the old systems seem to call out depending more. As I push for performance my body demands its sleep, its fuel and any other number of needs. Sometimes it’s a want. It’s not always clear so I test.

Categories
Community Culture

Day 1059 and Socializing

The hardest part of any holiday for me is the socializing. I enjoy spending time with our friends, neighbors and family. It’s just such a high cost activity.

The twinge of jealousy that I feel towards the extroverted and able body is real. I don’t necessarily want to change who I am. I’ve come to terms with my body’s limits and my own preferences. But I sure wish I could turn myself into a high energy extrovert without any health issues when I need it.

I feel drained from the short round of social interactions I had over the past few days even though I enjoyed every minute of it. I just see it in my biometrics.

My heart rate variability dipped into the teens. I got blinking reds on on stress, energy and health on my Welltory monitor. Whoop is recording high strain scores despite me doing little but sitting and talking. I have been sleeping 9 to 10 hours a night for over a week.

I suppose acceleration is tiring. But oh how I long to not have the normal pleasures of life be so damaging. Because I am going to chose my passions over socializing. It’s much easier to justify my work and spending my energy on my portfolio of startups. Advocating for causes close to my heart. If I have a limited budget I rarely chose to spend on the pleasures of company or socializing.

Categories
Medical

Day 1043 and Differential Diagnosis Failure

I’m throwing something up here as I am fairly certain I’ll be out for the rest of the day. I have thrown back an entire pharmacy in an attempt to remedy a barrage of symptoms that are so intense I can barely process.

I thought I had a cold or potentially some kind of flu based on my initial symptoms like heightened respiratory rates, congestion and pain in my muscles. But as the day progresses I’m not so sure. The mucus is clear and was easily improved by a Mucinex and cortisone nasal spray. The remaining symptoms of lowered body temperature (which feels feverish) a migraine, and tight muscles are now much more acute. I guess the cold medicine I took was a waste of liver stress.

It’s messy and conflicting and neither myself, my husband, my doctor nor the artificial intelligence chats have managed a differential diagnosis.

My hope is that with the sheer variety of drugs that we have thrown at this that I’ll be passed out for the foreseeable future. Maybe a full twenty four hours of sleep can fix this. Hopefully you will see me cheerful tomorrow.

Categories
Biohacking Travel

Day 1042 and Oh Dip

For the last three days I’ve been experiencing a significant dip in energy and function in the later afternoon around 4pm.

Not only am I fatigued, but I seem to have some sort of either allergic response or potentially common cold symptoms. It’s a little unclear as I don’t have consistent symptoms nor do I have a fever.

Some of it is probably jet lag as I returned home to Montana after a month in Europe over the weekend. I haven’t quite recovered my sleep deficit as I am pushing very hard on my workload as well.

I tried doing a bit of polyphasic sleeping today to see if it might help abate the intensity of the dip. The idea behind polyphasic sleep is to get your required 7-8 hours not in one monophasic chunk at night but across your own natural energetic ebbs and flows.

I did a packed morning of work and meetings and then slept between the hours of 3-5pm. I do feel better having been asleep during the dip but I could feel the symptoms rising while in the light sleep mode. I wasn’t able to fall into deep or REM sleep.

Whatever is happening I clearly need more rest. My attempts at diagnosis of any other symptoms and their proximal causes are unlikely to matter if I’m not getting adequate rest. In which case, I’ll try to sleep more at night and add in some naps till it passes.

Categories
Biohacking Chronic Disease

Day 1041 and Short Notice

I’m extremely frustrated right now. I didn’t get much sleep last night. I won’t get into the details, but it’s mostly because I was overstimulated by a very long workday after what was a very productive week.

I didn’t think it would matter if I was a little fucked up today from overexertion yesterday as I didn’t have any major obligations.

Except I got invited to mid-morning to something tonight. I wasn’t obligated to go but really wanted to do so as the guest of honor may end up having a significant impact on my life. And I’ve had an interest in it which I’d expressed months ago.

Now I had strong interest in attending as it won’t be a repeatable opportunity. So I wanted to push myself to go. I did my best through the afternoon to rest and prepare myself. But ultimately my body just couldn’t do it.

I cascaded into a migraine from the smell of my husband’s cologne. All my efforts to try to be restorative with the few hours of my afternoon were gone through a single small instance of environmental stressor. An obvious sign that I shouldn’t be going anywhere if something small could set off symptoms.

Now I’d like to say that I could have made it if I’d slept more. Maybe if I’d not worked so many hours yesterday. But I feel good about the things I prioritized yesterday.

But I am so fucking angry that I couldn’t have been given a little bit more notice as I would have found a way to make it. Literally even one day would have been enough so I could prioritize sleep.

It’s obviously no one’s fault. I’m simply furious that in an effort to budget my energy and physical capacity for what was my priority yesterday, I couldn’t find any remaining capacity today.

I guess the lesson is that if you want me to show up please let me know at least twenty four hours in advance. Or even just the night before.