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Chronic Disease Emotional Work

Day 931 and Open Calendar

I am about to sunset a long-standing weekly appointment that has been on my calendar for literally years. And I was surprised to discover how much getting back that time made me happy.

The block on my calendar was for something I very much loved doing and valued highly, so the sheer joy was unexpected. But as it turns out I loathe having a consistent obligation on my time.

This isn’t to say that I don’t like being responsible, reliable, or on time. But rather I like knowing if something comes up that I have some flexibility. And I don’t like to disappoint people by needing flexibility.

My suspicion is that this represents some lingering guilt I have about having a chronic disease. While I rationally know that I did nothing to deserve being sick, I do carry a self limiting belief that being sick is a weakness.

I’ve always prided myself on being a “mind over matter” person. I’ve shown up to countless events, meetings, pitches, and other obligations while in pain. I’ve been known to repeat “Michael Jordan, Game 5” as a mantra to remind myself that I can perform in even the worst physical circumstance.

Michael Jordan famously played and won with the flu. And the logic in my mind was surely I can do the same when something is on the line. So I always have. If someone expects me to show up and perform I do it even if I am struggling.

But as my season of no has begun I think it’s time I stop romanticizing my capacity to work when sick. I love having my time back on my calendar and I love the flexibility that I have to work whenever and wherever I want.

Maybe some people would chose to work less under these conditions. For me though, having more flexibility in when I show up means I’ll find even more time to put into my work. Because I love showing up for me. And sometimes it’s easier for me to show up when it’s not a damn calendar block.

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Media

Day 929 and Right Speak

My day has been a little off as I’m nursing my husband through some surgery. Through frankly he’s recovering so well it’s mostly just keeping him company while I do my regular workday. But I have consumed some good content in the process of keeping him company and making sure ice packs are rotated & medicine is taken.

I watched John Mulaney standup special Baby J which was surprisingly good. My main takeaway was “being liked is a cage” but also you’ve got to watch out for how selfish everyone is in the process of managing their own traumas and addictions.

Mulaney is a fascinating example of someone going from beloved to fuck up as soon as it was clear he was a human and capable of sinning and hurting himself and others.

He got a good dose of being condemned while being shitheel as an addict. Who he really hurt other than himself I can’t say. But he was problematic says many inches of gossip writing and critical reviews. Wrong speak and shame and condemnation is so interesting as a social engagement issue for culture. It’s never really about them. We can all be assholes and unlikable in the process of being hurt and healing our hurts.

I suppose this is why I believe it’s better to never take anything personally and be sure you take care of yourself if you find yourself reacting strongly to a person’s frailty. The ones who love you will forgive you if you need to reorient yourself into doing what’s right for you so long as you don’t hurt anyone in the process. And oftentimes even if you do.

The follow up movie we watched was also about wrong think. But instead of it being about the addiction and selfishness of a celebrity it was about the selfishness of trying to decide what’s right for an entire nation. We watched the Tetris movie.

Which is quite a dramatization of how totalizing even the most glorious of ambitions can be in the hands of hands of normal frail humans. Yes I think wrong think comedians and communists are related and I swear I still think Bari Weiss is kind of an asshole. Most of the comedians asking for forgiveness for wrong think aren’t actually that funny to begin with. Back to Tetris

I found myself inspired by the frustrations that come from human nature & self dealing while glorifying ambitious end goals for social good. The collective good can often be patently false if someone ambitious enough gets perverted. Maybe I’m just being that asshole capitalist but I think nepotism and corruption come in many forms. And it’s easier to spot it in British billionaires and communists bureaucracies. But we’ve got plenty of right speak and “for your own good” pleas right here in America.

It’s inspired me to look harder into how we are perversely seeking control and benefits for large corporations and political parties in our current race to regulate new technologies like crypto and artificial intelligence. If you want a hint as to where I’m worried look no further than Gary Gensler and reinforcement learning for artificial intelligence alignment. And yes I’m making bets to that effect.

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Medical

Day 928 and Season of No

I feel like I’ve been caught in a loop of shitty things that has me in a “fight or flight” pattern that I can’t find a way to release myself from.

I’m having a very “if it’s not one thing it’s a other” summer. And it has to stop here. If I don’t let it all go I’ll be miserable and it will have been my own choice. I’ve got a choice to prioritize the well being of myself and my family.

I’m writing this at the oral surgeon’s office as my husband’s wisdom teeth removal is today. I’ve been given several lectures on how challenging his recovery will be as he’s so much older than the ideal extraction age.

Teenagers have a lot better bounce back rates than even late thirty something apparently. Fingers crossed being fit and healthy counts for something.

I’m stressed by the prospect of prioritizing myself and family. I like being open and available to the universe.

So I’m just going to start saying no to more and more things until I feel like I’ve got myself out of this misery loop. My priorities will remain my family, my fund, my founders and myself. Probably not exactly in that order but pretty close.

Categories
Biohacking Medical

Day 927 and Standard Operating Procedure

I’m going to be nursing my husband through oral surgery recovery this week. He’s run out the clock on wisdom teeth and they all need to be removed.

We will miss a few obligations this week but such is the nature of medical need. Necessity doesn’t always come when you want it. If we don’t do it this week we’d be waiting till November for the next appointment. Such is getting medical care in this day and age.

I’ve been in a bit of a frenzy preparing as I myself have some medical issues that are chronic so if we are both fucked up physically it gets a little tricky to manage routines. Particularly because we live a little bit country these days in Montana.

I’ve gone down a deep rabbit hole of procedures for surgical recovery. I looked up standard operating procedures for inflammation and surgical recovery from every source I could find. I consulted with our doctors. I looked at risk factors.

You’d be surprised at how optimal procedures differ from the standard median recommended ones. The fear of overprescribing pharmaceuticals runs pretty rampant even when it’s clear that some protocols would be beneficial like say post surgery prophylactic antibiotics. The NIH, Mayo and Cleveland Clinics agree it’s a effective way of preventing complications related dry socket. The condition can turn into a painful infection that is relatively dangerous if it gets out of hand given it’s proximity to your brain.

But we can’t make an antibiotic standard operating procedure as it’s not technically necessary. Especially since we have prioritized using less antibiotics overall as a public health policy for the wider social good of preventing antibiotic resistant strains of bacteria. Good of the many versus good of the one. I’ll admit I’d be inclined to say that my husband deserves the Spock treatment even if it is illogical.

I’ve written out an hourly schedule for the recovery procedure I intend to follow. I won’t post it all here as it’s obviously not in my best interest to disclose it. It’s involved and intended to reduce inflammation and have the maximum pain management that is responsible so that my husband’s body can recover quickly with no unnecessary stress.

Proteins powder, bone broth and soft foods

It seems as if a lot of recovery comes down to simply retaining adequate electrolytes balance with enough liquid calories. You have to meet a macronutrient balance that gives enough protein to knit the tissues and not make the body think it’s resource constrained. Which is harder than it sounds when you can’t chew or even suck on a straw.

I’ve got a number of techniques to leverage from lymphatic drainage massage to the woo woo options to reduce stress and promote recovery and I intend to use all of them. And yes I’m available for nursing.

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Emotional Work

Day 926 and Hang Over

I don’t drink alcohol so this title is a little silly but I feel like I’m hungover. Maybe it’s having felt like I lived through several containment breaches in an unclear semiotics war.

Maybe it’s some of the grief and loss from a death on midsummer. Maybe it’s worry about my husband’s upcoming oral surgery. Maybe it’s the general sense of uncertainty and fear of future shock.

I am tired and achy and my cognitive processing is absolutely shot. I’ve been battling a migraine all day and even two doses of Imitrax don’t seem to dampen the intensity.

I want to put some of the intensity of the last month behind me but I often feel as if I write that exact sentence and nothing ever gets less intense. It’s always some new piece of human crisis. I went as many of those out of my life as possible so I come out the other side feeling more human.

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Emotional Work

Day 924 and Backlog

It’s such a challenge to keep up with reality. Modern conditions have well overmatched human biology.

I’ve tried to keep my own physical biology from being overruled by competing inputs and attention competitions but it’s a losing battle. Sometimes the best you can do is ride the wave and be sure you know when to get up on your board.

I have a little bit of a backlog of inputs to work through. I should probably use the next few summer weeks to pull back and push through it. I’ve got a lot of sense making to do. A lot of inputs to be distilled.

I’ll do what I can to put things up as I see them and have a thought but I’m feeling the need to be a little more guarded. Can’t be out in world and accessible all the time.

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Emotional Work

Day 923 and Spicy

Lots of reasons to be optimistic in America that our wheezing economy has been goaded into forgetting that money shouldn’t be free. Again. We imploded the banks and a number of international allied economies but we achieved a soft landing for some Americans. I don’t even know how I feel about that sentence.

It just really feels like shit is going off the rails all over the place but you can’t quite make sense of all the things coming at you because it’s coming at you so damn fast. And everyone is being dramatic about it. As if we didn’t have all kinds of fair warning that the ride was going to be bumpy.

I recently had someone not handle a professional (but somewhat personal) transaction as anything the way I’d hoped. It wasn’t s big deal. I recalibrated something in my life in the face of grief and some personal realignments. Everyone is fine. Everyone has their own shit going on and it’s never about you.

But it does seem like a lot is going on for everyone and whatever the fuck else is exploding that hurts your life and your people. A lot of people are very reactive and it’s all being shown in real time on Twitter.

And yes it’s making me feel like yup however this next world war 3 thing it is going to go is overlaying on your personal life. It’s reminded me that I need to protect myself as I’ve got a job to do no matter how spicy the market gets.

Categories
Politics

Day 922 and Inconveniencing Americans

I’m enjoying a tiny moment of schadenfreude as I hear more stories of Americans being inconvenienced by our systemically fucked federal bureaucracies.

Every time a reasonable person encounters a petty injustice in the renewal of their passport I see hope. Because our immigration, visa, State department sundry consular services are so fucked. Like if you haven’t experienced the cruelty with which Uncle Sam treats it’s least favored citizens consider your luck. Well you must have a lot going for you.

And I’m grateful for your faith in American systems. We need to aspire to treat everyone as well as we have treated our most favored citizens. Our most privileged are an aspiration for us all. The American dream is working towards allowing a fragile peace of mutual freedom.

But you’ve got to remember that in big enough groups everyone is fighting to preserve their status. And that always comes at a cost. And until that cost occurs to more people with power we tend to let it slide. So I hope we inconvenience more Americans soon so we can get back to the business if welcoming the world to our aspirational ideals.

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Emotional Work

Day 921 and Unseen

I don’t really have the stomach for writing today. I realized recently that I’ve been accommodating several people I love so far past the boundaries of what I consider physically and emotionally tolerable, that I had some medical issues over the weekend as my body broke down by literally having thin skin. Ironic.

I am often afraid to tell people when I’m not feeling seen. I discuss, and reiterate, and point out, and I try to expand my bounds of tolerance to be more open, but I didn’t feel seen as a child by my own father and I see how it repeats as an adult.

I guess it’s not a shock that I snapped after letting my boundaries go. I’ve felt invaded for sometime (months even) and tried to reassure everyone I’d do my best.

But I realized in the process of minimizing over and over again how exhausting it was to be with everyone as much as they wanted, that because I’d never put my foot down they just didn’t see how much damage it was doing to me.

I am so hurt right now. I feel betrayed. I worked so hard at making a situation work that I missed that no one noticed it wasn’t working for me. And now that I’ve brought it up too late, it seems like I’ve doomed myself to being entirely unseen in the situation for good.

Having let all this out I do feel better. That I’ve done what I needed to make myself feel seen and safe before it was too late for me to recover. I’ll draw firmer boundaries and I’ll be more gentle with myself. I don’t have to live by anyone else’s schedules and demands except the ones I choose.

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Community Internet Culture

Day 920 and Faster Pussy Cat, Kill Kill!

A regular theme of my writing here is the pace of accelerating change. There is rarely a break from “life happens” for any of us because that is the human condition. But I must say it’s really taking a lot to manage for some Americans who have had enormous systemic advantages for several decades now and are reacting poorly to even the potential of loss.

I believe the best way to overcome the loss of these advantages is by banding together in teams and collaborating to solve bigger problems together. Everyone brings a unique viewpoint.

If you are like me, teams are necessary for survival. I can survive on my own but it’s a much smaller more circumscribed life.

I have accepted that whatever character sheet got built before my arrival (genetics & chance) requires some min-maxing as on my own I’m not particularly independent or self sufficient. Yes, libertarians recognize our interdependency. It’s called division of labor.

Min-maxing is the character-building strategy of maximizing a specific desirable ability, skill, or other power of a character and minimizing everything else, seen as undesirable. The result is a character who is excessively powerful in one particular way, but exceedingly weak in others.

Min-Max Gaming Strategy

And so whatever I am left with in this character sheet feels a bit like I got stuck with a lot of weaknesses. But why not simply lean into it. Faster pussycat, kill kill.

A classic exploitation film poster