Categories
Chronic Disease Medical Travel

Day 1654 and Post-Operative Exhaustion

As I slowly walked myself out of surgery yesterday, I thought to myself “I actually feel much better!” And I genuinely did.

If you have a gentle stomach, maybe stop reading here. I’m fine. I’m on my way to well. And this will be graphic.

I do feel dramatically better having had the “slouching towards septic” abscess drained of infection as well as removal of the initial pearl style irritant (a 3mm deep entirely horizontal hair growing not up but sideways like an underground fracking tube).

I appreciated having the walls of the abscess pulled out bit by bit in a delicate curettage by my silk sundress clad physician. It was all a success.

But post operative care is hard? I’m a mess. I’m exhausted, loopy, and the hotel’s guest services are concerned enough that they are doing me such kindnesses like sending up tea and maxipads. Turkish hospitality comes from a place of genuine kindness and I need that right now.

It’s been a long journey of stupid to end up in Istanbul to get a smart fix. Going from a squishy movable almond sized lump without any pain six weeks ago to a hard plum sized lump was disconcerting enough. Especially having done my damned preventive care visits with the useless Dr Oetkin in Montana.

Have had two days of prodding, poking, squeezing, moving and ultrasounding done in the Mediterranean, I was swollen, feverish, and all hurt to the touch. I was afraid.

How did I get here? How had my next generation IL-17 managed to cause me so many negative side effects even as I was doing better across all biometrics and across quality of life metrics?

No wonder the doctor in Istanbul was so concerned. All the previous doctors had done was make my situation worse though inaction and delay m, and then the action they took made it worse.

Now I have recovery ahead of me. Last night as I went to pee, I realized why they had padded the upper areas of my underwear with maxi pads. I’ve got no discharge downstairs but on the upper bikini area there was no such luck.

I only needed one stitch to close up thanks to the careful work of the doctor, but a lot of goo came out during the surgery drainage and I was warned there was still more to come, though it would taper off.

I gently washed the area with a cloth and antiseptic soap before application of antibiotic cream (my third type of antibiotic). I gasped as I saw the first lightly red sticky watery fluid gush out rapidly around the stitch. It was so fast and there was so damn much. Bodies are disgusting what else can be said?

I mopped up with a clean moist towel and applied a thick layer of antibiotic cream, but I had learned the deflation of the abscess wasn’t quite done. The swelling, I was told, would take a week or more to full abate.

I’ll be sleeping this off for the day but if you are in Montana with an autoimmune disease and need a dermatologist I’d recommend you stay away from Dr. Tara Oetken at SkincareMT. Without her hasty heuristics and lack of conviction I wouldn’t be in this mess.

Categories
Medical Travel

Day 1653 and Slicing Then Cipro

Well it’s been exciting day for me and I may be a little bit high (alas not the fun or good kind) as I just had an abscess surgery in Istanbul.

I’m waiting on the lab work for the culture and pathology but from what I saw come out of the abscess it can’t be anything good as the doctor prescribed multiple antibiotics including Cipro while we wait for results.

Bimzelx has some gnarly side effects and I don’t know how much more slicing up infections I can manage for an immune suppressant biologic. My biometrics are better but 2 eye infections and one abscess surgery that almost went septic isn’t making me feel great about the balance of value on the drug.

I can’t say enough nice things about the Turkish medical system and their treatment of foreign “tourist” patients. It’s my second time this year having my Bimzelx side effects treated here.

A lovely interpreter and patient advocate was with me the entire time. The physician was so empathic. She was astonishingly effective in technique and her whole being moved with an efficient alacrity that was admirable given she was in a floral print silk sundress, high heels and pearls.

Imagine being so good at your job you can squeeze infected goo out of another human that you do it in white silk? I was impressed.

She on the other hand was not impressed by the care I received in America.

“They knew you were immunocompromised and did not insist on an ultrasound and immediate treatment?

What do you mean they said wait and see?”

“I don’t believe the other doctor thought it was a swollen lymph node given the clear folliculitis literature warnings for your biological drug.”

I was headed straight to sepsis and in her mind having multiple doctors leave a high risk patient to “put a compress on it and wait and see” when it was easily 3mm below the skin was malpractice to her.

Quite the big abscess eh? And look at that irritating side ways hair in there so deeply buried

And indeed I am on the kinds of antibiotics you’d expect someone close to septic shock might be on. I am amazed to be doing as well as I am. But I am frankly furious.

I tried to be responsible with preventative care and was ignored. I just kept on going until the small lump became a large lump. Then it rapidly became so swollen and infected it couldn’t be ignored. What a metaphor for the American healthcare share. You try to be responsible and are shown the door till it’s a crisis. And then they can’t even fix the crisis.

On the bright side I’m in a lovely hotel next to the hospital receiving excellent care. I could afford to fly in and get it taken care of without any worries (for the curious this was $2,000 for surgery and follow up care). I was in a very space age room after being in surgery and all my intense antibiotics were hand delivered to me. Now we wait to see what the labs say.

A private recovery suite
Categories
Biohacking Chronic Disease Medical

Day 1650 and Trying to be Heard

I don’t think of myself as someone who struggles to be heard. I am loud, I speak up, I have a large social media platform and I don’t mind being impolite if I need to be heard.

And yet, the incidents where I am ignored, dismissed, or even outright insulted seem to be on the rise. I follow the rule of three assholes generally so I have to wonder if it’s me, but nothing makes you wonder more than getting really bad basic medical care.

I am attempting to get a cyst (or abscess or infected lymph node or whatever the heck it may be) diagnosed in a country where I don’t speak the language.

No one can agree what doctor is right. It was a gyno who sent me to a dermatologist who wanted me to go back to a gyno last month.

Now I’ve got a gynecologist who wants me to repeat the conservative management program I’ve been doing for months.

Which hasn’t worked, but she is implacable in her iron lady demeanor. Bactine and warm soaking. Maybe she does understand the immune suppression part? Thankfully I come with receipts.

I carry my patient charts, a synopsis of my diagnosis, the side effects of drug treatment and a short “why I am here and for what.”

A radical change in size & texture on a cyst with no response to antibiotics is exactly what the last four doctors told me to watch for as it signals a need for active management.

Now this shouldn’t need years of bloodwork (which I brought and charted for them) or a paragraph on high risk patient needs or a history of my main medical issues and the rationale for why I am requesting imaging. It’s an abscess that’s growing so figure out what kind, remove it and then we figured out why.

And yet it does require all of this to get anywhere. I spent 5 hours in a doctors office today and two hours in one yesterday.

I’ll waste another two days while they will run new bloods when I have a fresh set from a week ago. And still they fought me like hell on imaging.

Which is the only way to decide on the course of treatment. Instead I should do warm compresses and iodine for a month (sorry the first four months not count?) The temptation to unleash is overwhelming.

It was a fight. I got an ultrasound. And I did get a diagnosis and it needs to be carried out asap. Figuring out a doctor and a recovery plan I trust is going to be hard but that’s a tomorrow problem.

Abcess. Filled with bad shit. There is a hair in it acting the part of irksome pearl. 17×13 mm diameter. 3 mm from skin so it’s not small.
Categories
Biohacking Chronic Disease Medical

Day 1649 and Physician Heal Thyself

I’ve been having some side effects from my new biologic injection Bimzelx. Whenever I travel, I do a spate of doctors appointments before I leave so I can be adequately prepared for likely scenarios. Be prepared is my motto.

I had gone to a dermatologist a month ago to check on a cyst or swollen lymph node in an awkward spot. It’s on my pubic bikini area so I’ve been playing hot potato with dermatologists versus gynecologists.

The dermatologist appointment was so horrifying I’d recommend you stay away from Dr. Tara Oetken at SkincareMT as it was such a degrading and frankly useless experience. I do fully endorse their cosmetic practice and Nurse Addison.

I ended up at the dermatologist as the gynos were like “uhhh it’s on the outside and involves no reproductive organs so you need a dermatologist” and then dermatologist was a bit “its close to your vagina ewwww icky scary did you go to the gyno?”

Yes dear that’s how I got sent to you, this ain’t no picnic for me either.

I was embarrassed but the cyst/enflamed lymph node had been unchanging for a few months (not growing or differing in texture but malleable & squishy). So I checked in, was mostly embarrassed, got no direction that helped and left feeling degraded.

Given my previous issues with meiborn gland infections on my eyelids, I’d been instructed to keep a close eye any side effects common like folliculitis that is common Bimzelx. This was clearly a complex side effect that I’d had multiple issues with all year. The next step was imaging but I could get zero sense in the very short visit of whether or not the doctor felt it was warranted. “It’s up to you” sounds nice until you want a doctor to give you their professional advice.

Well now I’m in a foreign country and the almond sized squishy bit has ballooned in just four or five short days to thrice or quadruple its size, it’s now quite firm and not easy to move around or squish and I’ve got to do the same dance all over with doctors ago don’t speak English.

Thankfully I have artificial intelligence and an interpreter. I’ll get the imaging ultrasound done (AI says get it done immediately based on the differential it did) and then we can see if it’s a cyst or a lymph node that needs an I&D. I started antibiotics 3 days into this ballooning and it has done little to fix it so let’s find out. Hopefully I don’t need someone lancing and squeezing out stuff in a foreign country. But if I do need that I may pop a flight to Istanbul for that.

Categories
Politics

Day 1616 and All Hell Broke Loose

Well, I don’t even know how to begin explaining the public fight between Elon Musk and Donald Trump. I’ll say that it was the best afternoon on Twitter, maybe ever? But it was a sad day for America.

Group chats were popping off like it was holiday weekend and absolutely pandemonium reigned on every newsfeed. Major newspapers were maintaining timelines updated tweet by tweet. These are the WSJ and the New York Times late afternoon mountain time.

Today will take time to dissect and I’m sure the Wikipedia page for Thursday June 5th 2025 will be chaotic. So much ridiculous fighting and there was nothing anyone could do to stop it. It was an ugly spat and a public display of contempt for the millions of Americans who just want our government to function.

But holy shit is it funny to see grown men lose their absolute minds publicly when the stakes are literally our government and the most important currency in the world. Honestly I’m so disappointed I can’t even take comfort in being at the very edge of the empire.

Categories
Aesthetics Politics

Day 1612 and Netrunner Molotov Bang Bang Summer

Being a mere node in a large but influential network I transmit as much as I receive. I intake and reroute information as part of my own synthesis process and I appreciate that it benefits me and others. But it also does damage and today was a rough start to June by any measure.

I saw a lot today and I only pass some of it along with the thought it’s going to be netrunner bang bang Gibsonian “who respects the nation state” asymmetrical energy Summer of 2025.

Any utopian dreams of a human noosphere of higher collective intelligence must reflect upon quotidian horrors showing our baser impulses daily and summer is war season for good logistical reasons.

Ukraine appears to have blow up a number of Russian fighter jets with drones smuggled in with trucks. Let’s recall the below image from last year. Ukrainian Netrunners vaping while flying FPV drones stepped up their game hardcore today.

Ukrainian FPV drone operator smoking a vape circa summer of 2024

believe this is the first ever direct attack on any nation’s nuclear triad in history, and it succeeded – @antroyn

Twitter is awash in footage of this drone attack on Russian fighter planes being drone bombed

Operation Spider Web showed the power of asymmetrical warfare and scared the shit out of deterrence war planners as drones versus air superiority is a worry that has now become persistent reality. Nuclear triad theory needs an update.

In other closer to home news, an older white gentleman firebombed a protest along Boulder’s Pearl Street Mall in what appears to be a kind of Molotov cocktail incident over Hamas hostages. It’s my hometown so this is upsetting beyond the wider context of terrorism over the situation. I fear for further tensions in liberal college towns.

Aesthetically, because it’s going to be a high volatility volume time on Wall Street, I am enjoying to see this Twitter account picking beautiful brutalism and “80s cocaine design aesthetics” out of the ether.

If one is to survive a summer of netrunners and volatility, this look will appeal to the sorts who want hyper focus, class & glass. While no one would recommend uppers, it’s clearly part of the overall vibe of managing nervous system input for anyone looking to do violence.

Categories
Homesteading

Day 1610 and Tempting Fate

As I was going about doing “prepare for the worst so the best may come” set of chores I chose to brag about our travel pharmacy packing.

As Elon Musk leaves government service there has been a flurry of media hits. I don’t know anything about his personal medical situation nor is it my place to comment but I found it comical to suggest that 20 drugs in a daily medication box was nefarious.

New York Times “Musk Juggled Drugs and Family Drama”

Those are to put it mildly “rookie numbers” in the biohacking business. And it’s barely a dent if you practice the kind of global chaos preparedness that we do. So I bragged about it and showed one of our global travel kits.

Ray Kurzweil isn’t making it to the singularity on less than 40 supplements a day so I sure as heck ain’t setting out into emerging economies with anything less than a full set of bacterial, viral, and gastrointestinal remedies.

And as we care about things like being first responder trained and able to render aid to our community, we joke that you really can’t be a pro-social prepper if you don’t carry an AFAIK kit.

As I was being snide about our the value preparedness, outside in my own backyard we were being tested. And as soon as it happened I felt completely unprepared. Pride does indeed go before a fall.

We have a beautiful red fox that has for several seasons lurked around our property. We also keep laying hens. Alex has hardened the chicken coop to make sure they did not have a chance to get in. Nature and domestication co-exist uneasily.

We have never seen the fox out in day save in the dead of winter. In the spring we rarely ever see the fox.

So whenever we let the chickens roam generally we keep a keen watch on them. We’ve gone a few seasons with this working but letting your guard down can get you.

Alex was walking down our long drive to retrieve a trash can and let the roaming chickens out of his sight for less than five minutes. In that time the fox raced out from behind foliage and took one.

We caught it all on camera. Having taken one (we could not find her) the fox came back not more than ten minutes later and tried to grab another chicken which point Alex saw and intervened. The fox dropped her but she has a puncture wound.

I finally hear the ruckus and come outside. I see feathers everywhere and figure it out as soon as I see feathers. .

This chicken is alive

I’m pulling out my phone and asking the LLMs how do we care for an injured chicken. Turns out it’s not that different than human.

I run to find the supples for cleaning and disinfecting. I find the topical antibiotics. It all takes much longer than I think it should. Alex cleans her up and she seems fine. But wont know how she recovers for a bit. Now I will do a review of our supplies and their locations as I am reminded that there is no such thing as too prepared.

Categories
Internet Culture Media

Day 1605 and No Blackpilling

We get regular reminders of how chaotic things are in our new hypersphere networked world that we have entire memes categories and full influence campaigns dedicated to blackpilling people into nihilism.

No blackpilling meme

The fatalism and determinism expressed on the internet is the experiences reality for plenty of people and it’s probably not limited to a few radicals. The presumption that any of these pills are limited to incels misogynists racist cranks is comforting but incorrect.

I’ve written about blackpilling before as it’s a common theme in overcoming the exhaustion of an unsettled era. Chaos is emotionally and physically debilitating because of our biological experience of it.

She thought something had gone wrong with us physically too. “Endocrine systems get fried. There’s too much cortisol, you’ve been running on adrenaline, eventually you tap out. Everyone feels nuts right now,” she said, “because what on earth are we supposed to do with the fact that we’ve had this incredible rate of change for so long. We think we’re keeping up with it, but our bodies are like, ‘Oh, actually no. We have no idea what’s going on.’ ”

Dissident Fringe

I also believe it’s a deliberate strategy by virtually every player in the great games of power and influence to make us feel nuts. Everything is a conspiracy. Everyone is a villain except your in-group. Except it’s not.

It’s always crazy in Philadelphia
Categories
Chronic Disease

Day 1594 and The Creek Don’t Rise

I’m not sure where my mother picked up the slang “God willing and the creek don’t rise” but I had it regularly to suggest a thing shall come to pass a “if nature and God” are willing.

It’s it’s got a hint of Appalachia in its origin story and then tumbles over into a Johnny Cash cover of a Jerry Reed country tune (probably where my mother learned it as she loves Cash) before settling into a Spike Lee documentary about the water engineering challenges that have brought such misery to New Orleans.

It’s been pouring in Gallatin County all day. Our already high rivers are looking like they may cause troubles. Friends who fish were concerned the muddy headwaters weeks ago when I was caught in other unexpected spring showers in Colorado.

I am afraid the moisture is kicking up mold in our house. We’ve spent months remediating the problem so it weighs on me to consider the possibility. I woke up covered in hives and eczema.

I took antibiotics and Benadryl and it kept getting worse. I showered with nothing but unscented Castile soap hoping to mitigate the outbreak. That did more.

I have an event I’d like to attend this evening along with a houseguest who I very enjoy much enjoy so it frustrates me when the creek sees fit to rise against the banks that contain the river of my life.

Categories
Community Culture Politics

Day 1576 and Fight For The Future

I am saddened by the protective conservative ethos of some of our cathedral elites. I was filled with pride to hear multiple distinguished professor discuss their love of Boulder as emblematic of the kind often town we should all aspire to live in.

Boulder is a truly special town. Alas I have to question why it is that scholars with security and prestige can afford my hometown but their children’s generation couldn’t.

I am deeply saddened by the rising costs of my childhood town. We come back during the pandemic. When starting out my life twenty years ago I left my home as expenses rose.

My family didn’t own property. Regular people moved to other towns. Those who bought early fight to keep things. As they are. So only the wealthy, often conservative socially or economically, but generally institutionally secure elders own the town and no one else.

These preservation minded wealthy, either virtuous liberals or cultural conservatives want to preserve the values that created Boulder. The irony is not lost on me that the futurism of going back benefits the past entirely at the expense of the future.

But what moral or political good could there be in your perfect town and perfect conservation of certain mores if the children moved away.

You live in a garden made by weirdos and hippies and shined it into an expense that their own young cannot participate in it. Hippies and engineers produced a counter culture and turned it into a luxury good they did not uniformly pass down.

Boulder became a luxury good. I grant I could have a small piece of that. But would we flourish? Our elder elites keep their houses and smugly advocate against change to house even their own children. This change that necessary for the future their children will live in. We must be able to build for it.

I miss Boulder but I don’t miss this smug elitism of virtue. We chose to have a life where we could have a house and land and space for our lives and a regulatory climate where we could build the technology that will shape our future. I am sad it wasn’t going to be Boulder. We’ve lost Boulder to the security of the past and it’s expensive maintenance.

Bozeman is now the Boulder of the 90s. And I want to build up its future through the efforts of its industrious citizens and their ambition for building a future.

A forward thinking and growth focused governor introduced a future of building things with tools and technology and owning those benefits together. That the vision I want for Colorado and for Boulder.

Pairing his vision with two aesthetically conservative growth skeptical perspectives helps us realize the large gaps in values. And so I despair for the fact that I can never go home. So I must fight for my future. Which is I suppose what Renegade Futurism is all about.