Categories
Medical Travel

Day 1248 and DayQuil High

I got a bit of a viral thing going on as my time in Austin for the Consensus conference wraps up. I feel as if missed a lot of time with people I’d wanted to catch up with simply because I was sick. I made it to all the programming and a few gatherings.

I am not the only one who is being stricken by various forms of infection. It seems like a lot of folks even at the conference were struggling. So perhaps it’s just a case of conference crud but it’s still annoying as nothing is so awful as a DayQuil high.

If I missed hanging with you I am very sorry. I am available on other channels. And I hope my panels were ok! For now I’ll rest and appreciate that the DayQuil high is keeping the misery at bay

Categories
Biohacking Medical

Day 1229 and Hormones

I was pleased to wake up to a near perfect recovery score on my Whoop today. Because I manage a few chronic health issues I am a bit of a stereotypical biohacker type.

I happen to be rounding the corner into my best two weeks of the month and am seeing my biometrics improve.

While it’s fun to joke about moody women, I sometimes wonder if we’ve done ourselves a disservice by insisting that our hormonal rhythms be kept outside of polite conversation.

It’s not any fairer to men to keep discussions hormonal health quiet. Culture war nonsense aside, one of our major health systems surely deserves more public discussion and advancement.

As if the bounds of social propriety simply cannot accommodate anyone discussing say the follicular phase for women or what men can do to increase testosterone. Our fucked fertility deserves better than polite Victorian euphemisms.

If you aren’t sure about the state of your hormones and feel as if you could be in better health consider this permission to learn more about yourself. Your body deserves your self knowledge.

Categories
Chronic Disease Medical

Day 1221 and Migraines

I get really bad migraines. I do what o can to manage them but they are a frequent and challenging enough issue for me that I’ve got 45 separate entries on the topic.

I’d prefer not to discuss it at all as it’s not a very pleasant experience but it can be so overwhelming that it’s all I can think about on a given day. I probably should have seen it coming when I starters making jokes about Cardassians light torture yesterday.

I’ve taken about as much medication as I can (more than two Imitrex otherwise known as Sumatriptan it is a dynamite medicine but you don’t want to risk over doing it as overuse can make the migraines worse. It’s the 109th most prescribed drug in American with over five million prescriptions in 2021 so there is a lot of good data. Plus there is some fun asides.

Overdose of sumatriptan can cause sulfhemoglobinemia, a rare condition in which the blood changes from red to green, due to the integration of sulfur into the hemoglobinmolecule

Since I was making Star Trek jokes earlier this might be the closest I ever get to being a green blooded Vulcan.

Categories
Chronic Disease Medical

Day 1150 and Gut Biome

At the risk of being “TMI” (this is a gesture of self knowledge to readers not an actual concern of mine that I will ever include too much information), I did something stupid to my personal biome today.

I took an expired a probiotic. I fucked up my bacterial mix. In my defense, I didn’t know it was possible to have an expired Lactobacillus mix. Expired doesn’t seem to mean dead. It just is not doing what I’d hoped and I feel worse not better.

I honestly sort of believed that most probiotics on the self were bullshit. It’s hard to decide what’s medical woo anymore. But I acquired it from a German pharmacy last year and I guess GlaxoSmithKline supplies better shit in Frankfurt than it does in Bozeman.

I immediately nuked the new, supposedly friendly, bacteria from orbit with a one-two punch of doxycycline. I always carry some with me when I travel. Don’t tell my health insurance I’m so cavalier with my over-the -counter bacteria.

I’m joking, but only just. I’m sure artificial intelligence will be put out to nefarious purposes like denying health care coverage to random idiots who blog about their bodies any day now. I just doubt any lawyer will care what nonsense I got up to with yogurt when so many other forms of Medicare fraud are more accessible.

So in the spirit of my blogging forefathers and mothers, I’ve included you in the circle of trust as to the inner workings of my co-infections, symbionts, and other biological processes. Let’s hope, unlike in the case of Ripley, that nuking from orbit works. No need to be carrying aliens in my dark places.

Categories
Medical

Day 1146 and Quesy

I had kind of a weird night. I feel asleep feeling earlier than I wanted. I was tired in a way that suggests either manually dosing oneself into sleep or intense physical exhaustion. I’d experienced neither.

I woke up multiple times drenched in sweat and freezing. It’s unpleasant to feel salty and worked up from sleep rather than exercise. I finally gave up on it around 6am.

I’m on GMT+1 in Europe which put my wake time at late Monday evening on the West Coast and early Tuesday afternoon in Japan. I used the opportunity to connect in real time with a friend who lives in Tokyo and catch up on the end of the El Segundo hackathon attendees.

Now it’s evening for me and I’m drained and a bit sick to my stomach. I can’t tell if I’ve got some odd form of stomach bug or if I’m fighting off something else entirely.

Honestly with how frequently I nuke my own gut biome it’s unclear. It feels as if I’m on a course of antibiotics but I’ve not taken a dose of anything recently. The symptoms are not the full on gastrointestinal effect of food poisoning neither are they the unpleasant travel stomach one associates with new foods & water.

In an ideal world I’d use differential diagnostic artificial intelligence but that would clearly be unsafe so I’ll have to ride through it with over the counter medication, witchy self knowledge and a bit of suffering.

I suppose that’s no different than any other medical condition I’ve had to treat in the past on my own. I’ve had a host of irritating chronic conditions I’ve only pieces together with what feels like endless effort and consultation. I wonder if we will look back on the American Medical Association as a cartel in the not too distant future. It certainly doesn’t feel as if keeping me from healing myself benefits me.

Categories
Chronic Disease Medical

Day 1100 and New Symptoms

I am experiencing some ongoing nausea today alongside a number of odd side symptoms like body temperature disregulation. I am displeased with this development

It’s probably a cluster of symptoms related to a migraine. So I’ve taken an Imitrax. I had some sort of reaction to dinner last night (possibly allergic though to what I couldn’t say) that hasn’t quite subsided. I am in a dark room silent with an ice pack popping Zofran and praying.

I always hate when I have a new symptom as it’s scary. I don’t know if it’s a new problem or something a new spin on my existing autoimmune issues.

It’s easy for me to slip into fear as I run through a differential diagnosis. The idea that I might have a new dimension to deal with in my daily health routine triggers all my autonomic stress responses. I’ve got a handle on my existing health issues and I don’t have any desire for new ones.

There is a strange aspect of chronic disease where if you’ve reached any kind of stability or continuity you simply don’t want to mess with it. Adding in new treatments or medication is always a scary prospect. I’ve been doing bodywork that seems to have significant impact in a positive way but I’m terrified that as it improves things I’ll have down days as systems interact. I shall pray it improves soon.

Categories
Chronic Disease Medical

Day 1094 and Small Progress

I am clinging to the small progress in my physical condition. I feel numb and exhausted which is an improvement over being so much pain I can’t think while also breaking the variance ranges on my Whoop.

It would appear as if I missed Christmas and much of the week off even though I did enough doing some work when I had a few good hours.

I figure if I aggressively pursue a program of medication, rest and positive inputs I can make the small progress that should have been back if I just don’t rush it.

No one is looking for 2024 to get here and faster than necessary. Cling to the last moments of the year and cling to small progress. Who knows what happens next.

Categories
Chronic Disease Medical

Day 1092 and Responsible

Being responsible for your own life sounds like it should be a shared cultural goal. I was raised to view America as a place where we placed high cultural value on personal responsibility. Now I’m not so sure it’s a shared value for Americans at all.

I have been struggling this week with the responsibility I have to myself. I’ve been up and down with pain so excruciating I’ve struggled to think. And I’ve had a few glorious respites from the intensity. My afternoons have been a misery as my pain gets worse as the day goes on.

I don’t seem to have fully resolved what is causing my pain to be so much worse this week and I am praying it is just exacerbated by my end of year fatigue.

With that in mind I will be responsible for myself and keep this short. Hopefully I’ll be up for a year end review before the year is actually over.

Categories
Chronic Disease Medical

Day 1089 and Silencing Inputs

I am doing very poorly today. All inputs into my system are being read by my senses as pain.

I’ve spent the last two or three hours in a dark room without any systems inputs but background. I’d hoped to become unconscious but was unable to sleep. It was an extended period of consciousness doing battle with pain. I didn’t set a timer or I’d be able to tell you for sure how much time I spent in this state.

I couldn’t read text on paper or watch visuals on a screen, I couldn’t listen to audio or intake spoken word without difficulty and intense focusing, nor could I tolerate novel or new smells. You’d think this would be very boring except that the intensity of the nerve outputs clouded all thought.

My body seems to be reading all changes in systems inputs as painful. I am unsure where the proximate source of my pain might be as it’s both too intense to get outside of and too diffuse to respond to mindfulness.

Typical locations like my thoracic spine hurt but I feel it in every joint as I take inventory. My intercostal muscles across my rib cage and chest are so tight I’d swear I have several broken ribs if I didn’t know better.

I’ve taken several pain medications of varying strengths (anti inflammatory and analgesic) to little effect. I had to stop watching Christmas movies with my husband sometime in the afternoon as I simply couldn’t handle the noise and sound coming from the tablet.

I don’t know how coherent my writing is at the moment and I feared I wouldn’t be able to muster any focus. I am finding it hard to look at my mobile phone screen even at the minimum brightness setting. This usually indicates a migraine but that seems like a secondary issue.

I hope this passes as I do not have time to manage this kind of symptomatic intensity. Perhaps my body knows this and is simply allowing a breakdown on a day where it’s safest to do so. In which case I may need another holiday or two to actually find a break restorative instead of as emergency maintenance.

Categories
Biohacking Medical

Day 1084 and Tension

For the last week or two I’ve been getting tensions headaches. While I have migraines that manifest mostly around hormonal cycles, I can’t say I’ve had a tension headache before.

Migraines make me sensitive to light, sound, and smells but this new headache type was more like a pressure inside my cranium. Typical migraine medicine like Imitrax didn’t do much but neither did Advil or Tylenol. I tried caffeine to minimal effect. Exercise seemed to exacerbate the issue, especially if I was getting my heart rate up.

After discussing it with my physician I’ve got a suspicion that I’ve done something compensatory that has caused tension in my upper spine.

I have ankylosing spondylitis in my thoracic spine so it’s a decent hypothesis that to protect myself from the chronic pain there I’ve added additional pressure further up my spine. A inflammatory issue causing a complete different mechanical issue is a logical differential diagnosis.

I’ve got a couple of approaches to fixing the problem. I can get some body work done to relieve some of the pressure in my neck and shoulders with a massage, physical therapy or craniosacral therapy. I can take more magnesium as it is nature’s muscle relaxer. I also can take muscle relaxers.

I think this development is coming now as I’ve been really upping my intensity professionally this fall. I’ve traveled a lot, attended a number of conferences and meetups, and generally applied acceleration to everything in my world. It’s a good thing that Christmas is almost upon us as it seems like it could use some time away from the world. I will be turning within.