Categories
Emotional Work Medical

Day 1865 and Letting Things Fester

I let something fester for far too long. A family member had some health troubles that were not immediately threatening and I didn’t want to push them. They promised to see to it after a lengthy set of other issues were resolved.

Well, now the list was all finished or at least that is the rationalizing we are all doing around it, as it’s gone too far to be left alone. And it has to be seen to with a surgery.

Now they are healthy, young and the damage can be undone with a little science but I can’t help but feel I failed them. I knew they were leaving it to fester but the first rule of medical ethics is informed consent. The patient chooses even if you think you know better. This goes for doctors just as much as family.

And so here I am feeling guilty that I knew they were putting it off based on actions that I was partially responsible for resolving. They kept pushing it off citing this and that needing to be done first.

Now budget was an oft cited reason and I aid on that to some degree but it was really about a whole tangle of issues or managing till it was unendurable. And I don’t control their endurance or capacity to tolerate discomfort.

I know I couldn’t have done anything to force the issue, especially when the pride of an individual is concerned, but I still feel like shit about it.

Why couldn’t I have pushed forward the other issues and projects to rid the excuses? Why wasn’t I more forceful insisting they get it looked at sooner?

You know how guilt works when you have some responsibility but no ultimate say in the doing of the deed.

Not only did they let it fester but now it will fester with me as I try to forgive myself for something I couldn’t have changed. The body is sovereign and it wasn’t mine so I better let it go and help them recover.

Categories
Chronic Disease

Day 1863 and Head Above Water

Yesterday I wrote that I had no gas in the tank. Today is not much better. I am barely keeping my head above the proverbial water line. I finished a major purchase which I thought would give me respite for a few days.

Alas changes in destination, an emergency dental appointment for a family member, and the promise of rest was more like a promise of fretful semi-consciousness.

After days of rushing around seem to have swept me off my feet and into bed I still am not quite rested.

I thought I was mended yesterday but it seems as if I’m on the second day of exaggerated sleeping patterns with long arcs of sleep in the wrong places and times. Add in a bit of overheating on top of it and something feels off.

It’s not unusual for me to absorb major changes and shifts throughout their unfolding via some migraine induced osmotic pressure. I feel the animal spirits and global vibes push in past my physical limits and I shut down. I hope I’ll reboot soon.

Categories
Internet Culture Travel

Day 1860 and Some Technical Difficulties On The ISP Side Perhaps

I’m not anywhere particularly unusual (a European capital) but all of my end to end encryption applications, most crucially Signal and Twitter are not working.

Nothing will send and I’m not receiving messages now either. Why? Well, I’ve got conspiracy theories but I doubt it’s sinister and I’ll boot up a VPN in the meantime if it persists.

I am nearby several embassies (of the regions you might expect to be dicey including my own) and just uphill of city’s international school so maybe one of them is being a dick.

Or perhaps the Airbnb I am using has an ISP provider that is throttling end to end encryption for some reason. For what reason I couldn’t fathom but I am annoyed. YouTube is streaming in full glory on an enormous television but I can’t text in peace to my loved ones.

So this blog post will have to serve a test post to let folks know that I am fine and anyone who needs to know where I am does which is to be fair a pretty darn small list. I’ll move if the issue persists. I’m a mere 7 kilometers away from the center of the city where the internet was working fine earlier today so I’ve got no idea why I’m having issues now. If I’d known I’d have done my writing earlier. A part of me wonders and worries about what might eventually stop my writing experiment being a communication blackout. Though I never thought I’d have a problem in Europe. That is the stuff of authoritarians right?

I have got unpleasant notions about why a European city and its nearby embassies wouldn’t wish to let people communicate freely and privately on websites with end to end encryption. It’s just amusing they are happy to let me watch Netflix and Youtube. The New York Times has no problem getting through nor my other media applications on my phone.

Having been behind America’s first freedom to compute act, I suppose I’ll let my emotions run a bit wild here as a treat. It seems especially concerning that this sort of informational throttle by big European ISPs seems possible and even likely. That embassies might want to extend a little protection beyond their very high walls seems even more probable. Which is not very nice of them.

It makes my mind go straight to propaganda campaigns and not technical difficulties. In this day and age, we should never take for granted our right to express ourselves via compute freely and privately. Stay frosty and I hope this post makes it to you.

Categories
Biohacking Medical Travel

Day 1856 and Always Something So Always Trying Something

The world is a topsy turvy place and I am doing my best to meet it head on. Physically I’ve managed a surprisingly steady period from December through January, even though I spent a decent portion of that on the road.

I credit this mostly to using antibiotic and anti-fungal regimens prophylactically. The biologic immune suppressant I currently take for my ankylosing spondylitis is quite frankly too good at its job. And I’ve tried quite a few.

That means I am locked in a battle of constant vigilance in order to keep my inflammation numbers down while also not becoming a host to bacterial, fungal or other infections. It’s a balance that is anything but delicate.

In 2025 I had been unable to fight off skin, soft tissue and mucosal infections seemingly at all. Even with extensive protocols for decolonization (intranasal mupirocin, chlorhexidine washes, environmental decontamination) I had four major infections.

Of those infections, three required surgery and the fourth was the result of a very minor incision to insert testosterone and estradiol pellets. Those surgical interventions proved very trying and also very expensive.

The last one (testosterone) helped quite a bit with energy but being energetic doesn’t matter much if you can’t fight off infections.

So while I know there is an individual and social long‑term systemic risk in using antibiotic prophylaxis, I will say it does seem to be helpful in mediating say outbursts of allergens flaring into soft tissue infections from skin breakage or having exposure to molds and fungal growths that fester in old damp buildings and water systems creep their way into any opening available.

Since it is always something, I figure I need to always be trying something. Frankly I am over the push and pull of managing medical care in America. It’s a mess and mostly designed at risk mitigation for the health systems.

I have found going abroad to be much more useful and cost effective in many cases. I may even find that it would be useful to document the experience in a format beyond a blog as I doubt I’m the only person manage complex chronic disease.

Categories
Emotional Work

Day 1853 and American Boomer Betrayal

I wish I could shake some of the grief that has gripped me over the past few months. I grieve the revelation of human truths I wish I did not know. And underneath the grief, I feel betrayed.

I feel betrayed by my elders, my country, its institutions and the power structures that have bounded my life and its path. It feels dramatic when I write it down but I know it to be true.

I have kept a lid on these simmering feelings because I am too afraid to unearth more truth that has the potential to rewrite my life and the internal (and external) perceptions of who I believe myself to be. And yet it is only change that has the power to overcome the entropy that destroys life. And that includes mine.

My feelings of betrayal seem too too ugly to look at and shake any sense of security or belonging that I might once have had. Which was in precious little supply already.

I don’t wish to be histrionic about it, but I am not the only American millennial who feels this way. I know many American Zoomers feel it more deeply than I do.

And there is plenty of evidence to support these feelings, which makes it all the worse. Feelings are not facts but there are facts beneath these emotions that are hard look at.

I don’t know why I cannot seem to unearth or articulate enough of my emotions to help me let go. I feel I have forgiven so much and it hasn’t been enough to change things. They say that betrayal creates a “double wound” as there is the act itself, and then the shattering of our belief in the fidelity and values that had scaffolded our lives.

I don’t want to look at the grief and betrayal straight on for reasons I hope I can slowly reveal to myself and others. Whatever protection it offers my ego and inner child must have some value but keeping things hidden is not helping me

I going to try to articulate these feelings, even if I am afraid of putting such enormous vulnerability out for scrutiny. I’ve done it before and it has only ever helped so I must find some courage to go further.

It’s not that I think anyone reads, or even notices what I say here, but rather once something is written into our public networks it stays. There is a reason “the word” has had such resonance for creation in faith. By writing it into a record I will create something that is real and will have consequences.

The relief I felt at the passing of my father at the end of last summer embarrassed me at first. I wanted to feel sadness, loss, love, and absence but all I could see was relief that he was gone.

I wished for more change and endings before the hungers of the past’s needs would eat more of my present. And I knew it would not come unless I made it so. Saturn devours his son. The son must slay his father.

I loved my father so deeply that I shaped my whole early life around impressing him in the hopes that he would find reason to be more present.

No achievement or milestone was ever enough to change his orientation and availability to me. Still I forgave him. He gave me so much. At the end I do not know (and must contend with not ever knowing) if he forgave himself.

This personal tragedy has anchored my feelings on the generation above mine and how they have conducted themselves in the management of America and all of its institutions.

The trust and fidelity has been broken. From education and health to politics, cultural and monetary systems the harms have compounded and the healing is slow. Family forgive but society needs scapegoats. And that makes me fearful.

The only systems that I feel has not actively betrayed me remain market capitalism and the edifice of our informational technologies. Ironically there are huge swathes of my generation who feel those are the systems that have harmed them the most.

I do not believe that free association and information are harmful. Indeed I see them as entirely beneficial even when there are obviously individual harms that the abstractions do not reveal so easily.

Some believe humans were simply not meant to live at a scale that showed us a world beyond our roots. How can we remain true to any values when all ruptured and greed, disgust, treachery and disloyalty is laid so bare and in such a brazen manner? To err is human and seeing our sins at such scale is a grievous harm we must overcome.

I myself am unsure if paradise lost to wider wisdom is only harm. We eat the fruit of the tree of the knowledge of good and evil and now see sin. But we also reveal the sustenance of divine love and redemption. Malus is not the same as malum.

Perhaps it is precisely because it is the wider world that has nurtured me even as family, elders, and institutions have ravaged the basics of life that I can see this horrifying but beautiful whole.

For millennia we have grounded the rituals and meaning of human life at a smaller scale with fewer hidden truths. Now it is laid bare to us all.

I am a citizen of the world with wealth but not health. I have built a beautiful family and marriage but likely will have no children. I have an incredible community of friends but we are scattered to the winds.

The personal middle ground of my life doesn’t exist because of the hunger of a generation and a nation that cared more about themselves and their reach and power than the future that would obviously arrive.

As younger generations wait to take the reins of their future, it threatens to never arrive. The grip of the past refuses to let go. And I wish to pry open that grip so we may try and do better.

They did the best that they could. And it hurts so much that it was not enough. The fear remains our efforts won’t be either.

Categories
Travel

Day 1847 and Cardio versus Packing versus Ski Bunnies

I’ll be on the road for a portion of tomorrow. Other members of my traveling party have already pulled ahead to parts unknown, as shifting obligations and vehicle needs turned schedules this way and that. Nomads as we adapt to a new world.

Europe is in a tense state and the weather hasn’t helped much. As I’m writing, Davos is awaiting Trump speech in the Swiss mountain town.

I finished a workout in the hotel gym but my room wasn’t quite ready for me, so I went down to the lounge to take in the BBC having had my fill of Bloomberg commentary while in the gym.

Management must keep up with their bosses

You can probably spot the hotel brand and imagine easily my experience intaking the World Economic Forum by proxy as I attempt to manage my life and health in the unspooling of the order of things.

I packed up a slightly unusual range of things for my transit tomorrow, as I had been going by car but will hop a low cost carrier to recenter. Somehow this has my large luggage separated from me. I’m carrying a very fine leather duffle I recently acquired as a gift for my husband.

Will this work for my carry on and personal item?

I have gone from doing a bit of cardio bunny as I work to improve my V02 max to a pack rabbit, as I moved around this and that to be sure my cascade of items and medications were within reach and packed appropriately. And would make weight but I’ll get to it.

I’ll not end my travels as a snow bunny in Davos though I have seen rather a lot of snow in Southern Europe as far south as Greece.

Why are bunnies on my mind? Well I have to keep in mind some odd weights for the low cost carrier I’ll be using for a short hop. Just look at this guide to baggage.

3kg is a silly amount of weight for a bag. That’s the weight of a house pet like a bunmy

3kg (3 kilograms) is equivalent to approximately 6.6 pounds. While this weight is roughly the size of a medium-to-large house rabbit rather than a “small” one, it is a common weight for many everyday household items like a large bag of flour or three liters of milk. Via Perplexity and Weight of Stuff

For whatever odd reason, the carrier listed your personal item or under seat bag as needing to weigh 3kg. This is about the weight of a house rabbit.

Which is honestly not a lot. I doubt any purse I’ve ever carried is under 3kg when you account for laptop, shoes, cosmetics, wallet and other sundries. But we shall see if my backpack can do it. Nothing but pajamas and medications ought to keep it light.

Categories
Internet Culture Media

Day 1844 and Sorkin Syndrome

I have no idea how Netflix decides on its content deals but I enjoy popping into a new region and being shown classics from another intellectual property catalog than America’s list

Last year the entire Star Trek catalog from Captain Kirk to Deep Space 9 was available in Europe on Netflix. A content deal I knew wouldn’t last but enjoyed.

Who isn’t soothed watching a world where Captain Picard manages a crisis with a team of rational officers committed to collaboration and curiosity? Probably most people but I’m a nerd.

I am pleased that Gene Roddenberry gave us space cowboys and turned it into a camp art franchise for the ages. Paramount its owner is now owned by Larry and David Ellison. The IP being owned by someone made wealthy through computing seems on brand. But it also means it Star Trek isn’t going to show back up on Netflix anytime soon even in Europe.

As an owner of franchise television I understand their motives. But as a consumer it makes good sense to run your content through a VPN. As an American you tend to forget it’s necessary until a foreign government dings your social media. The United Kingdom amirite?

For normies who don’t tempt speech laws on Twitter for fun, I’d expect the benefits of a VPN would be getting to an old television show that isn’t shown in your region but maybe your average Netflix user isn’t that sophisticated. Or they want to be sure they don’t break the rules who knows where the ethics of intellectual property are anymore.

All this is to say with Star Trek gone I was curious what would replace it in my rotation of shows on Netflix but not owned by Netflix. And sure enough a new pile of content changed over in 2026 and I was given Aaron Sorkin’s West Wing on my Netflix as I moved into a new region.

That’s a fantastic world even less likely yo emerge than Gene Roddenberry’s space socialism. A world where American liberals run a coalition of competent and patriotic civil servants who are working for a patrician economics Nobel laureate who ran New Hampshire? Things really were different being the neoliberal consensus broke down.

Categories
Emotional Work Preparedness

Day 1842 and What If It Is Very Different

I am trying to imagine my life being very different. If I step away from some of the areas where I have visibility what changes. I am imagining a phase change of assumptions about not only my own life but life as it goes forward.

It’s the topic we’ve all been dancing around for years and years, with crescendos coming all the more frequent. The science fiction I love so very much has different ways of portraying a jump in material conditions.

The Expanse called it The Churn. William Gibson called it The Jackpot. I wonder what we will call this period in a hundred years.

I have so much curiosity. Maybe too much. an almost childish sense of imagination has never left me even as I go about very adult life. The wonder and “what if” sensibility haven’t been crushed under cynicism even if it would be rational.

I don’t know if I feel equipped to manage what’s coming. How much of the difference will be the choices I make to life my life and how much will be forced on me. It’s a twitchy and terrifying prospect to consider just how much freedom we have against a backdrop of limited information. Only action will illuminate.

Categories
Chronic Disease Emotional Work Travel

Day 1841 and Lapping It Up

As we do our yearly family planning retreat (such as startup couple cliche) I’ve been balancing the stress of the wider chaos of the moment and my body’s turmoil.

It’s contrasted with the calm and removed relaxation of a hotel with excellent hospitality. The soft attention to detail is a blessing on a body that is not quite up to factory standards.

As we go over goals, budgets, allocations and timelines the stress is buffered by being able to take breaks to walk alongside the waterfront or swim laps in the quiet infinity pool.

That might not seem like a triumph, if you don’t know me it sounds like a stupid humble brag about my very fine life. But I’ve spent years unable to wear a bathing suit at all because of the pain cause by Lycra’s pressure on inflamed tendons and tissues. Three years ago I wrote about the bathing suit I’d never work

And today I was able to dive in and do the butterfly and the backstroke as if it were the kind of workout I do all the time. The possibility of improvement is here.

One of the planning goals is to see how far we can take my health with nutrition, sleep, physical therapy and other modalities that rely on movement and self healing over the many intense drugs I’ve needed to calm the flares. I almost believe it’s possible. And I sure plan to try.

Categories
Politics Travel

Day 1838 and Tractor Protests of the Mercosur Free Trade Deal In Greece

As I continued my journey through southern Europe yesterday, I encountered one of the most striking protests I’ve ever seen. At every major intersection and city limit there were hundreds (if not thousands in instance) of tractors lining the streets.

From enormous modern combines to Jeremy Clarkson style esoteric speciality vehicles, I saw more tractors yesterday than I think I’ve seen in my entire life. It was majestic. And it continued for my entire drive through the country from border to port to border.

Mind you I drove a tractor before I drove a car, and I live in farm country so trips to the local John Deere dealership are a monthly ritual for us. And I’ve never seen such a variety of tractors. It made quite the spectacle and was deeply emotional seeing so many of them empty and lined up in a row in quiet dissent.

Crossing an intersection over Greek Farmers protesting the Mercosur trade deal

The tractors flew flags and banners indicating their disapproval of the signing of the EU-Mercosur Trade Deal. The European Union will be trading with the Mercosur bloc consisting of Argentina, Brazil, Uruguay and Paraguay. It is set to create the world’s largest free-trade area covering 700 million people. 

European farmers are not happy about it. Yet the protestors did not disrupt traffic at all. The roads were open and passable. A blessing given that in many areas it either snowing or had recently snowed and the temperatures were below zero.

Mediterranean olive land covered in snow on January 11th.

The snow is not a very common experience for an area that farms olives and grain. And yet on top of changing weather patterns, the Greek farmers I saw protesting (along with 27 other European countries who are signatories) must now contend with farmers in 4 Latin American countries that do not have their standards or rules.

Economic collaboration and global ties were touted in all the press from Brussels as they condemned America’s retreat from trade. And the part of me that is a committed free trader wanted to agree. But the part of me that struggles with illness and the American food system was on their side.

And yet Europe is saying damn their own farmer’s opinions, stick it to America and our government’s trade wars. Ursula von der Leyen will let in Brazilian fruit and glyphosate saturated grains come to Europe.

I am no stranger to protest movements from the Battle of Seattle to EarthFirst! I picked up Alinsky’s Rules for Radicals as a child. I remember the era where organizations like the WTO were criticized and concerns about trade and agriculture were front and center. We forgot along the way and the politics went horseshoe theory but the problems remained.

I don’t farm or ranch, merely keep chickens, garden and maintain our land in Montana, but my husband’s beloved electronic free Deere is practically a family member. We are sympathetic to farmers and care about topics like soil earth, permaculture and the endless glyphosate lawsuits.

I’d rather America be trading with Europe than Europe be trading with Latin American countries. The land some of them work is meant to be rainforest not grain fields.

I’d be furious too if I were a Greek, Irish or French farmer under restrictions my competitors didn’t face knowing that they produced a better product on land cared for under high standards and almost impossible conditions. They know what they yield is destined to move on their ports somewhere. Thats what their ports do. But protest they must.

The Thesolonikki Port as seen from a hotel

And yet here the farmers were, placing their precious equipment on the roads silently condemning the entire lot of politicians who care neither for the people or the land.

Seeing like a state means we are just numbers to them. I couldn’t count all the tractors I saw. There were too many. At every crossing I saw there were more. And that’s the point. It will affect all of us in the local and global balance of the land and the people it feeds.

The land and its stewards ultimately don’t matter where no matter what Brussels says. Neither does America’s politicians and their economic foibles. It’s all a numbers game.

So the farmers showed them their numbers every where I turned. I noticed them. And I hope others do too. What we can do is not for me to say. I see them and am sharing so you can too.

A gas station stop in the middle of nowhere