Categories
Chronic Disease

Day 472 and Missing Out

I never had headaches in my twenties. Migraines were a cultural phenomenon I was aware of it never experienced. After I did fertility treatments about four years ago my body went though a number of changes for the worse. I developed an inflammatory condition. And I became acquainted with migraines.

My migraines are the light and sound sensitive type. They leave me nauseous enough I have a prescription just for that. I’ve tried a number of treatments for the migraines prophylactically, but only Imitrax really helps once it starts. If I’m lucky I can turn one around in 3-4 hours with medication and a cold dark room.

Today wasn’t a day where I could turn it around fast enough. And I feel sad and alone and depressed about it. I was supposed to meet friends for a nice meal to celebrate with them and I’m missing it because I couldn’t control the migraine fast enough. Alex my husband made it to dinner with our friends but but alas at home in a dark room waiting for my Imitrax to kick in.

I debated if I could force myself into showing up but it was decided the amount of pharmaceuticals required wasn’t passing a cost benefit analysis. I tried to make a case for it saying if I just tossed enough pain medicine at the migraine maybe I could do it. But the rational vote from Alex was a veto. And he’s right if it takes an opioid to get me out the door that’s not something I can justify for a social event.

The irony is I actually dislike fancy dinners out. I find them to be exhausting. Having to sit on uncomfortable chairs and socialize for two hours is very expensive energetically for me. It probably takes a day to recover from the energy expenditure and I often have to up the doses of my stabilizing medications. I tend not to say yes to them as it’s expensive for me and I don’t enjoy them.

So I don’t know why I’m so upset that I’m missing this dinner. But I am so upset. Maybe it’s because I’ve had months of stability without any issue. When I said yes let’s go I expected to be fine. The last time I recall having a major crash was in early February. Since then I’ve flown internationally, lived on my own, and made it to a crypto conference in Miami with little incident. So maybe I was due for a bit of a crash. Maybe it’s just inevitable that if you push you need to rest.

But I feel miserable, inadequate and guilty about it. Like I should have tried harder. Should have taken more drugs. Or at very least been more upfront that sometimes my body is unpredictable and I find it challenging to have be “on” and in public for social things that aren’t strictly speaking crucial. But now do you tell beloved friends that they aren’t crucial? You can’t really. I just have to hope I can do it. And mostly I can. But not today. Today I couldn’t.

I feel like maybe I owed my friends a performance. I can perform in even dire circumstances. I never miss a dinner or event or appearance at which I’m required professionally. But I don’t hold myself to that stand personally. Sometimes things happen and I just can’t do it and I have to let my body dictate my schedule.

That reality makes me feel isolated and alone. Because I can’t make the same commitments as regular people to socialize and enjoy normal things. There is always the risk that I’ll have a bad day. And I save my energy for work because I have to. So that means I don’t get to have a normal social life like other people. I don’t usually mind but today I do. Today I’m missing out.

Categories
Internet Culture

Day 469 and the Discourse

On the one hand, the discourse today is horrible. Elon Musk threatening to buy Twitter is breaking people’s fucking minds. On the other hand, it’s the height of culture to be so singularly obsessed with a topic of such little consequence. The zeitgeist is full on psychotic.

This isn’t about free speech. Fuck that. No one gives that much of a shit about corporate governance that they’d super impose a civilizational problem like free speech onto securities law. This isn’t an episode of Billions. In except that both make me want to scream “that’s not how this works, not how any of it works” into the void.

This is all an elaborate publicity stunt to feed the narcissism driven logic of markets obsessed with celebrity and personality. Because everyone knows what everyone knows, pricing discovery is a function of lurching forward a narrative for the vox popli. Except everyone is convinced they are uniquely brilliant so they can’t possibly also be manipulated by the transparent agitprop. Yeah yeah sure I’m a galaxy brain too. We’re all playing 4D chess. Everyone is winning and the markets only go up.

Categories
Startups

Day 468 and Small Moves

One of my favorite movies as a kid was Carl Sagan’s Contact. It’s not a great movie but it’s heart is in the right place. It’s a beautiful story about human curiosity and the long timeline of history. In one of the closing sequences the protagonist is told by alien intelligence as embodied by a representation of her dead father that all next steps are “small moves Ellie.”

I never feel like I’m moving fast enough. Every day presses against me. I long to slog through them with speed and alacrity. It’s almost embarrassing how inadequate I find my progress. But then I remember that I move fast. I live ahead of the mainstream. I get to sit in the future that William Gibson said was not evenly distributed. Even if I don’t think I’m particularly good it’s hard to deny just how much of my life is lived in a tiny sliver of humanity.

Someone recently asked me how I moved so fast when I’m dealing with a chronic illness. I found it to be such a shocking question. I feel like I’m glacial compared to the reach of my desires and imagination. But then I’m reminded that even in shorter hours I’m forced to hone my crafts. I can’t afford to waste energy or focus so I simply do not. I imagine this focusing out of need is similar to what parents of young children operate in. The subtle art of not giving a fuck.

And so what if I am slow on a day to day basis. Rome wasn’t built in a day. I’m not a market trader. I invest in ten year cycles. Everything in venture is actually small moves. But as time adds up so do the aggregate of the moves. Compounding interest is up there with gravity as a force. So even when I yearn for more and for it to arrive faster I have to trust the numbers.

Categories
Internet Culture

Day 465 and One Step Closer

I often start solving my problems by posting them on Twitter. If I need to understand a subject I’ll just ask. If I am trying to get to someone I think I’m only a degree or two removed from I’ll just ask Twitter. There is some powerful magic in asking the group mind to come together for you.

I am an avid participant in this practice of using social media to get one step closer to your goals. When I see people asking questions I try to answer if it’s in my particular expertise. I have an almost reflexive need to check my Rolodex for people. If I think I’ve got a hookup with someone where a little social capital goes a long way I will absolutely ask for favors for other people.

I just think it’s the golden rule. Do unto others. And if you take that seriously (and as a Christian I do) then it’s your obligation to try to pitch in on the global game of making life reflect our values. I do genuinely think this is how luck gets made. If karma exists it’s part of the great game of seeing the human in each other. Empathy is the only true super power. Everything else is grasping to hold a fraction of its catalytic energy. Sometimes a little effort on your part can completely transform someone else’s life.

Categories
Internet Culture Preparedness Travel

Day 464 and Miami

Miami is a real American city. You know those criticisms lobbed by conservatives against New York, San Francisco and Los Angeles? It’s not a real American city. It’s bullshit in plenty of ways as our urban populations define America as much as rural, but it’s also true. Places like Miami maintain an essence, a kind of “here-ness” that reveals a thriving ecosystem of all classes, backgrounds and beliefs living in the same place.

It’s a thriving cosmopolitan city with an extremely wealth ruling class. It has welcomed it’s new leadership in the form of startup expats from “fake cities” moving in. The irony is that those are fake places and no one lives there. It’s transient wealth moving in and out for opportunities. Which is exactly what they are doing to Miami. The churn comes for us all. Before it was tech it was drug money and mortgages. It’s a free enterprise kind of place.

But it’s a relief to see mix of people. To see the shitty neighborhoods and the anxiety about crime, reminds you we have to do better for each other. To see the luxury houses and the amenity industry pop up to service everyone rich from yuppie to billionaire. It’s a vibrancy of hustle that isn’t everywhere. It’s a positive thing. For me it smells like America. A belief in the future where things could be better. A sense that capitalism is working.

As I write this my Uber driver is complaining about the local cops. How unfair their targeting is of everyone going too fast. A real class solidarity moment against the fuzz. Lambo owners and ride share drivers. I feel like that doesn’t happen in striated societies where the top use the police to torture their plebeian neighbors.

I didn’t really enjoy my time here. It’s way too hot. It’s facing intense pressures from climate change so I’d like to come more often before it’s too late. It it’s already too late maybe.

There really are issues related to inequality and the challenges it manifests via societal issues. It’s got crime and infrastructure issues and intense political culture war currents.

If I’m honest I’d rather be in a colder less populated state where some of the existential risks of the future are better mitigated. But I admire the optimism of people who do. They are the optimistic people we need for a better future.

Categories
Emotional Work

Day 462 and Action is Not Power

Action equals power in America. But at the risk of repeating some basic definitional shit, action is action. Power is power. They are not the same thing. I have a bias towards action as the famous Amazon aphorism goes. I think action is often a beneficial force. But I am learning that sometimes I need to be still in my power without turning to action.

It’s a challenging concept for me. I have more power by allowing it to flow through me. But I prefer taking action to acquire it. I’m in an industry and country where no one is ever satisfied. The need to acquire more is a looming mimetic desire. And the clearest path we see to acquiring more? Take action! Do a thing. Make a move. Be a player.

But sometimes power is found in stillness. The slow places. The quiet places. The interiors of our lives. We meditate and contemplate. All these practices can help us access the power we already have inside us. The capacity that existed all along and simply needed to be honed.

I wanted to beat myself for not seizing more power recently. Why wasn’t I being more aggressive? And then I realized I already had everything I needed in me. I don’t mean this as some bullshit thought leadering either. I slept till 1pm today because I was out late last night. I needed the stillness and rest so my own power can through. I could have been up and seizing the day but that would have only resulted in action and not power.

Categories
Internet Culture Startups

Day 461 and Remora

I saw a headline about how Trump’s social media site is failing. I’ve got no idea if that’s true but the media likes the story. This is playing out in the context of Elon Musk using corporate governance as a public relations stunt with his new Twitter board seat. Everyone wants to be an attention grabbing technology company even former presidents and aerospace billionaires. Because even the stupid stunt stuff in tech can be world changing.

I’m at the big Bitcoin conference in Miami. It’s a lot but it’s not fundamentally any gaudier than any other industry event I’ve attended in twenty years being adjacent to startups. Before my current stint as an investor I worked in fashion and beauty so I’ve seen a lot of excess. M I was raised in a boom time Web1 startup family. But also my family went bankrupt. I’ve seen the dark sides. I still work in tech. Like Trump and Elon I too just want a piece of the action.

It’s because startups change the world. Even stupid weird dopey absolutely cult adjacent shit can and does change the world. All these prestige television takes on frauds and crashes and the cult of personality nonsense miss that sometimes those freaks actually do it. Sometimes they change the world. Ok most of the time they don’t. See the current unraveling of Fast. 99% of the time shit goes bad. But to have even a little bit of the action of the 1%. It’s fucking dazzling. It’s worth being adjacent to all the bullshit.

I hold in high esteem the folks who work at the flameouts. Anyone who takes a chance and has it go bad has my admiration. I’ve been one of them. I’ve failed a lot. I’m lucky I don’t get punished for it. At least not much. I’ll never know how much shit like my gender or my ridiculous social media personality factor into that shit. Because I am always allowed to get right back into the action and make shit. Making shit is our currency.

I think this is why even the most powerful people gravitate towards startups. You actually get to make shit. At the earliest stages you get to be personally responsible for so much. Your actions have meaning. You contribute. You know how rare that feeling of community and camaraderie is in peacetime?

It’s a commodity so precious we let ourselves be led by girl bosses and fast talking celebrity thought leader venture capitalists. We tolerate a lot of assholes and psychopaths so we can be in a community of people that make things. It’s the American dream and the most basic human need all rolled up into one.

That ought to give you a sense of the cultural power and vitality of startups. That’s loyalty on par with religion. That’s move history big dick energy. And I think some people hate it I find the hate inscrutable but I’m sure it’s probably legible to those who feel left outside.

So yes boom time early energy big money hanger on remoras are part of any thriving ecosystem. And as far as I can tell Bitcoin has the manna to go the distance. Because everyone wants a piece of the action.

Categories
Travel

Day 458 and Jet-Set

I forgot what a pain in the ass it is to be on the road. I had three days back in Colorado after my trip to Frankfurt before I found myself repacking my suitcases to head to Miami. I probably shouldn’t have bothered unpacking in the first place.

I had a whirlwind of doctor appointments, injections, pharmacy runs and visits to various health care practitioners in the three days. Any kind of chronic health condition is a bit of a bad bed fellow with travel. Especially if you have medications that are controlled or require refrigeration. I’ve got both. So I timed my sojourn in Colorado to align with those pick ups and injections.

But that left me precious little time for other daily life type activities. I managed to sneak in a pedicure yesterday and it felt practically revelatory. But I’ve got so many other things to catch up that I’ve got no choice but to find a way to maintain normal life while on the road.

I have a round of blood work I need to get done before my next round of doctor appointments next week. Maybe I can get them down in Miami? They probably have quest labs. Doing a fasting lipid panel in the land of retirees seems kind of appropriate.

And while this may sound kind of stupid I really need a haircut. I just a point where it just can’t be put off any longer. It just started to look rough. So why not get it done in South Beach? It isn’t as if I’ve got a stylist in Boulder I love.

The muscles that come with life on the road are surely coming back if I’m considering things like blood work and haircuts. It isn’t the most glamorous part of being “jet set” but it sure as fuck is the most realistic. Travel has its own glamour and romance but you are never as far from the reality of your own life as you think. And maybe that’s a good thing.

Categories
Emotional Work

Day 457 and Pedicure

I did something today I haven’t done in two years. I got my nails done. And it felt so luxurious and yet also somehow normal. This regular act of grooming had once been a staple self care activity but today felt transformed into a ritual of joy.

I feel free and lucky in this moment. Getting a pedicure done means I have someplace to be where someone will see me. It means I am healthy enough to be going somewhere. It means I have a desire to be somewhere. All this cascading luck mixed to show me that my life was ok. I felt so much gratitude and self love in that moment. I am ok. The ok-ness of the universe in an act.

I know it sounds heady and existential and also a bit ridiculous as I elevate the act of a pedicure. But truly I feel so good about where I am in life that I can get my toes painted coral.

Also it’d worth noting that less glamorously cutting my toenails is hard for me to do on my own because of my spondylitis. So a necessity and a luxury in its own physical way. It is a quality of life improvement. So I’m grateful that this is where I am. May we all get little joys of normal in this chaotic world.

Categories
Aesthetics Media

Day 456 and Timing

I always get a kick out of my writing days with good numbers. I celebrate every hundred posts. I notice the palindromes even if I don’t log them in posts. I revel in the repetitions. So naturally today’s numerical sequence tickles at my limbic emotional responses. My conscience mind says “oh patterns” and I feel capable and intelligent.

Noticing shit is nominally my job. I was obsessed with William Gibson’s Cayce Pollard in Pattern Recognition. The trend spotting cosmopolitan consultant with an allergy to brands inspired my foray into fashion. I wanted to be her so much that I once bought a Pilates reformer because she practiced it. I remain dedicated to the craft of knowing what is coming around the bend.

There was a time when I wanted to be the sort of person who capitalized on each and every shift in mood, zeitgeist or vibe. I’d be sure I could be queen of a given wave. But in truth I’ve come to think I’m better at spotting “the thing” early than being the person that manifests it’s adoption. I prefer to notice early, place my bets, and watch “it” unfold now.