A long time ago, in a past life so foreign I can barely recall, I made some bad choices in the hopes that I was making good choices for the people I loved.
That day never came. And it’s unlikely to change. My health is what it is and I won’t ever be able to carry them. We’ve spent a small fortune trying to get me healthy enough just to go back to work and being healthy enough to carry just didn’t happen in time.
The high costs of surrogacy are daunting and the extra help I would require to raise them isn’t forthcoming. Being somewhat disabled means I’d need a lot of help and not the kind you can easily pay.
The extended family who does want to help and raise them (not blood family but nevertheless family) has never succeeded in getting a visa approved for so much as a vacation in America. So that route seems rather shut and has remained a small beacon of hope that seems ever less likely.
I could go abroad and raise children near them but that would be admitting defeat on a level on life in America that feels like dying.
My husband wouldn’t be able to come. We have a home and a life and careers in America. Funny how we don’t really have family in America that cares one way or another though all our existing blood relatives are American it’s the extended not quite family that seems to care most about family.
So a day after a socialist won the mayor’s race in New York City I have to ask myself how can we make the suffering of so many feel worthwhile? What did I achieve through my sacrifices? What did America achieve with our choices that can be seen as worthwhile? if those questions cannot be answered I don’t know where America goes from here.
I feel like I got quite a scare and yet you’d think I’d be used to it, as this is all downstream of the interleukin-17 inhibitor that I changed onto at the beginning of the year for my autoimmune condition.
Every single quarter, and in some cases every other month this year, I have had some bizarre skin infection resulting from otherwise pretty benign situations. An infected gland in my eye (twice!) an abscess that turned into a deep tissue infection, and a tiny incision that allowed in a subcutaneous infection all rocked my world.
As much as I am thrilled to see all of my inflammatory numbers rolling in to baseline normal, I just don’t know if I can sustain having a health crisis this frequently for a medication that is supposedly working. It’s working at an extremely high cost to my sanity and body.
And you might say, “Well, the numbers don’t lie.” And I’d agree. But there are many other factors I have to consider, not the least of which is that healthcare access in America is so bad that I have managed two of the four crisis points with medical tourism abroad.
I am going to give my IL-17 inhibitor a full year as dosing on and off biologics is no easy matter and the compounding effects are quite real. But I do very much wonder if in order to go forward I must turn back.
And then it seemed I took a turn six days further on. Perhaps some trauma from the lidocaine and epinephrine induced enough of altered window of immunity that some bacterial weaseled its way in the wound and viola a subcutaneous infection called cellulitis.
I was put on two different antibiotics and we figured it would clear quickly. That was incorrect And it has been a slow healing process
Barely improving day by day. And I had somehow made the decision the night before the procedure that I would just waltz into a new beauty shopping blog as the holiday season warmed up. So that was perhaps bad luck on my part. And has slowed me down on something I was doing for some joy so I hope I didn’t let anyone down. I am muddling through.
Today I got an ultrasound on the wound after a fever spike and did a number of blood tests to see where my white blood cells and inflammatory markers were at.
The local hospital was having computer troubles which meant trouble scheduling an ultrasound but we managed to find another imagining clinic this morning.
Back at the hospital for bloods (they do walk ins for blood draws) they still appeared to be having issues with computers. “Your insurance isn’t recognized” was the verdict thirty minutes after using it at other lab. That made for a chuckle but we got it done.
The results are already in and we seem to be looking at healthy epithelial tissues and my CRP and Sed Rates were not elevated. Of course, half the reason I am worried is I take an immune suppressant for chronic autoimmune inflammatory condition.
It seems to manifest frequently as skin infections. My old drug wasn’t nearly as effective but it also didn’t have side effects. S
Hopefully slowly and with lots of protein and rest I’ll be healed and can spend my time on work and my pet beauty blog.
And tomorrow I’ll cross my 30th HBOT treatment mark so maybe it can make progress on building me up instead of dealing with a flesh wound. Which is actually just damned good luck on our part.
They say you shouldn’t make any significant changes after a death in your family. Grieving is a process and allowing oneself to feel the range of emotions in loss is important.
You might not feel your grief if you jump into something new. Making a change could be hiding your grief from yourself. And so I am trying to sit with my grief.
I wondered about which parts of my history and my identity gave me my life. If I wanted to make changes in my future, or to broaden my horizons, what would it look like?
Somehow I am happy. I feel more love for myself as I see the ways I tried to love my father, and how he tried to love me as his child.
Being who we are, means seeing the child in ourselves who wanted to be loved for who they were, while learning as an adult that acceptance is up to us, not the generation who birthed us. The liberation of birth anew.
I hope the many experiments I’ve run with my biohacking over the last two months are helping me stay in my body during this process. I am on my 25th hyperbaric chamber oxygen therapy treatment today. Which is fortunate as I am healing yet another skin issue as I try to find ways to have the strength to be myself in my very challenging body.
And so I wonder, am I the same without my father as I was with him? I am always searching for ways to become better, stronger, more informed, more capable, more successful and ultimately I fear those are all synonymous with finding ways to be more lovable to him? I couldn’t always tell.
I’ve found myself wishing to indulge a past professional calling with a side project. I’ve been writing a beauty shopping column where I go deep on my autistic special interest in skincare and the business of appearances. It’s been making me happy.
And so I ask does this count as a change? Am I jumping into something new, even if it is small, too soon?
All I know is that it feels right and like a joyful offering, even if there are parts of me that hurt. Perhaps there is a good kind of change to be had in endings with new beginnings. A personal passion once put aside, reemerges to serve others.
I think that is something my father would have liked to see me do. I have pursued so many of the things I know he wanted for me in this life. I do have a future full of technical change and a portfolio focused on the future of computing.
And yet here I am feeling freed to show that some aspect of who I am as a woman does want to serve others. If it is in the cause of helping be comfortably in your own skin that seems rather a positive thing to become after this life change.
My inner child finds the idea asking if “you want to see something gross” to be funny. Of course, I want to see.
Gore and violence don’t get this reaction from me. I dislike it in movies and in the real world. But to see gross and the weird in the real world. I get it. Maybe lots of humans thinks seeing gross things are cool.
I think it is a bit sweet. It is as a very human reaction go “ewww cool” when faced with non lethal wounds. Maybe it’s truer with boys than girls, but if a kid said “do you want to see something gross?!” in Colorado when I was a tween the answer was a rousing yaah! Gross things are cool.
Maybe it’s a type of survival mechanisms where if we can learn more about what is lethal, and lethal injuries look like, it then improves our Darwinian fitness. We judge risk more accurately.
Flesh wounds need proper care and do turn out absolutely fine. And boy have we improved on the science of wound care since I was a kid. We have evolved past the bandaid.
But even in a hard situation like a fire burn or the dermis getting sliced open, I still had a bit of that bravery of a little girl. That is cool! The bravado of a human who believes we can fix it
If you enjoy a story of plucky Rocky Mountain woman learning to do emergency care for herself and her community I’m glad we shared this time together.
Hopefully you never need these emergency skills. We take learn the risks and practice for them so we may never experience them.
So if you don’t feel this way, I’m giving you your ticket out of here. Stop reading now. But if you want to see something gross stay on.
This is my wound on Wednesday morning after I had the procedure. It’s much bigger a slice than I’d expected but first time practitioners (I asked for the experiment) and while the treatment is safe across most vectors, I was a nervous immune compromised patient who prepared for the worse.
So this a real 10/10 “let’s see how it goes from here” experiment especially if the returns it delivers are real. I hope for the energy, pain tolerance and healing benefits the average patient sees
So I am using a 90 minute full 2 atmosphere protocol already as I go went this treatment. I had also begun testing the GLOW stack from a peptide spot where I trust the owner. I’m helping him test. And this is the recommended stack for recovery.
.01 of the GLOW stack which is a regenerative peptide therapy with three peptides—BPC‑157, TB‑500, and GHK‑Cu—it was made to promote healing, tissue regeneration, and collagen production,
So I am absolutely throwing the gold care package at this. I am taking collagen and biotin, we’ve got the local food and the lack of seed oils, we’ve got the best current standard for peptides on injury and surgical recovery.
And somehow I am still scared. I never heal well or easily. I bruise easily and badly. I was so slow this summer to heal from an abscess surgery. I took a risk and I worried.
But I woke up this morning and my open wound has closed and the bruising has retreated in just five days to this. I’ll be in the scar mitigation territory in no time, and soon it won’t even be visible to the naked eye.
Day 5 of recovery from testosterone pellets
Progressively, the wound has moved from acute bruising and erythema toward decreased inflammation and resorption of bruising, with steady wound closure. Monitoring should continue, but the pattern suggests healthy tissue repair
So I hope you enjoyed seeing something gross. As it is keeping less and less gross by the minute.
Many moons ago, when I was first attempting to get a diagnosis for why I was always in pain and exhausted, I got a battery of allergy tests. I did the “gold standard of allergy testing” called patch testing which is a form of pin prick testing designed to pick up responses that may be delayed.
It was an awful experience. I barely made it through the 5 day trial between the 100 allergen pin pricks and final measurements.
I remember begging the doctor for a way to measure early. I asked if I could take some Benadryl to take the edge off. Alas the only way it would be accurate and covered by my insurance is if I gutted it out.
You are not allowed to shower, sweat, be exposed to UV rays (no going outside) or take immune suppressants that might subdue your body’s response.
I was struggling to breathe, my entire body itched and ached, and I had a migraine so bad I couldn’t see for the stars & dizziness. It’s possible I wasn’t stable enough to have adequately consented to the test but I did get my final results.
Out of 100 common allergens tested it was confirmed I was extremely allergic to 10 of them with another moderate sensitivity set of twenty or so that I should merely try to avoid as opposed to my firm “no go” list.
The dermatologist gave me a sheet with 75 different chemical names and formats that I might encounter in the wild from these core allergens:
I instructed to search ingredient lists for these names any time I purchased a household product, personal care item, cosmetic or other item which might include these ingredients which ranged from nail care to vaccines.
It was honestly quite overwhelming. And some of the above ingredients are in basically everything. I dare you to avoid Limonene for a month.
So my husband and one of our best friends did what any practical minded engineer would do and they made me simple Google sheet where all 75 varietals could be checked if I plugged in the ingredients from any item.
I used it for years. I’d plug in the INCI from every brand I encountered into the sheet no matter what. I gave away a lot of products to friends.
Today it occurred to Alex that we should probably vibe code the thing into a proper web application using Replit so other people could check ingredient lists for their own allergies.
You can set your own allergens or click a few buttons for common allergens and “clean ingredient standards” and run a check for an all clear.
It isn’t super fancy but it doesn’t need to be. It just needed to keep your data safe, be easy to log into so you can securely check and access your personal list and generally functional enough to change and set allergens. We’ve put it on our own little domain just to see how much this will cost to run (and we’ve set up alerts so it doesn’t go bonkers) but we figured this should be accessible and simple.
And while there are other options on the market, most are bloated, overly paranoid and designed for scaring California moms rather than quickly helping people with clear preferences for avoidance and actual tested allergies. So hopefully our pain can help you breathe easier.
Some options for chemicals and irritants you can select on our app. My own settings of allergies and sensitivities
We may have some room for improvement technique with it so I am encouraged if the is as bad as it gets. I am not seeing any benefits from it yet and ugly bruising and a bit of an opening on an incision isn’t so bad.
A lot will depend on how well I recover and how much the hormone actually helps when I’m not healing. I’m also in the luteal horrors phase where my hormones are most ridiculous so I’m curious to see the curve.
The best part of this remains that I have a world class treatment for skin wounds on hand. Hyperbaric chamber oxygen therapy’s best research has been in wound management from burns to slow healing diabetics. So if I have to nurse a wound doing it with oxygen at pressure is actually pretty baller.
And to make it even more on theme, I spent most of my time in there writing out a column on skincare and the Great Male Renunciation of Appearances as part of my beauty shopping column and excuse to write about the secret history of appearance and its power.
I’m coming up on the 5-year mark of writing every single day. It doesn’t feel like I’ve been at it that long, if I’m honest with myself. When you commit to doing a basic task as a daily habit, you don’t expect it to change your life.
I’m not actually sure that writing every day has changed my life, though I think I’ve gotten better at the process of writing and the habit of finding space to think, organize, and get my thoughts together. That is a positive change.
When I first started, there were a number of goals I had in my life that seemed a lot more achievable than half a decade of writing.
Once you’ve achieved such consistency, you notice how little gets done in other areas when you regularly do things for yourself. One of my goals that I’ve had almost as long as this blog was a visa for family friends so they could travel freely to America to see me just as I see them. Pandemics and problematic presidents sure slowed that down and now I despair it will ever happy.
I honestly had no idea that the United States was so broken in its state capacity that granting a travel visas would consume more time than blogging and I’d achieve much less working to obtain a visa for years as its functionally impossible to get a legal visa.
Here I am with all of this writing (fantastic training date for an artificial intelligence) and yet I’d still have failed at obtaining a travel visa for family friends. We have so much power and yet not quite enough to get around America’s failures.
I know I can rely on my own skills, my capacity to use the hardware and software at my disposal, and that the currencies of the web will happily engage with me in trustless and transparent manners.
High trust people who display their commitment daily are worn down by this bitterly painful reality that what we put in doesn’t guarantee us all that much when the state is concerned. We move fast and keep at it. The American state department moves slow and failed at every step of the way.
I’m a bit beat down and experiencing some type of sundowner type pain so apologies that I don’t have a tidy synopsis or incisive commentary to add to the great Nick Land kerfuffle that has gripped right wing and Christian discourse over the last few days. I do however have some thoughts as an active participant & practitioner in futurism.
A gentleman named Auron MacIntyre caught strays with Berry insinuating some vaguely maybe “not a friend of the Jewish people” haze by associating Land and Auron.
Nick Land getting a brief mainstream moment because Robert Conrad’s grandson shared a numogram with Tucker prompting Joel Berry to defend Tucker from charges of anti-semitic Lemurian digital teleoplexy in order to smear Auron MacIntyre is exactly how this was always going to go
Now most people have to admit that they have not read Land. You need to have a firm grounding in critical theory and Marxist dialectical materialism to manage the language and a background that forces you through a lot of Kant and Heidegger. As the villain in Die Hard once said “benefits of a classical education.”
Before you go off the deep end, and take his accelerationist theory in any particular direction, he himself is involved with transhumanism only insofar as a network is a fundamentally alien thing compared to the human mind. As such we are in a transhumanism era arguably since the days of Adam Smith.
This body of theory escaping containment amongst academics had the pleasant side effect of getting the fundamentally alien artifact of old Kabbalah mathematics out front to distract the folks who skipped doing the homework. No jokes from the peanut gallery please.
While some of us (say myself and Lomez and Land) had a grand old time being absolute terrors on the timeline, the whole affair made it especially apparent how tense it is when the new right’s less informed sects clash with the renegade futurisms crowd. And as I’ve been discovering painful all year, it mostly ends in misunderstanding.
It has been a bit bumpy as let’s just say Patrick Deneen and I make for strange bedfellows but there are clout chasers with much less intellectual firepower who do far worse and they are active, preening, and willfully ignorant.
And yes it’s always a tad embarrassing when the Bannonites go on an Ulster Scot terror campaign against fellow Christians who have chosen to pursue work in technology. Insisting on a new Satanic panic by way of Land is a solution barely wrapped in a Machiavellian hidden truths play.
The sex rationalist doomers at Berkeley do themselves no favors by misunderstanding the deep currents of those who wish to fight against the future (and why) when they get involved. I’d be a better ally to Bannon than these useful idiots and I doubt Land wants to be dragged in to any of this either. It’s messy as all power plays can be.
Elizer Yudkowsky on Steve Bannon’s War Room
I rather think it makes everyone involved look a bit silly when we get tripped up on Lovecraftian horror. Yes I love Charles Stross too but if you believe in chaos magick don’t go around provoking magicians.
It’s unclear to me whether “the runes and sigils on microchips are harnessing demons” crowd is any less embarrassing to the public than we should sacrifice ourselves to the pagan old gods if we are to remain truly human advocates.
I’ll admit that having spent time with the Dark Aeons crowd myself and I rather prefer them to the Luddite machinic “end of the Anthropocene” peek oil Abbey types who are a tad too Malthusian for my taste. They seem like they actually would prefer Gaia exist without humans.
A post human world with new intelligence types is likely to contain a lot more humans than a fallen world where we’ve all died off.
The future arrives independent of our opinions and rushing in only expedites pretenders to the throne. To think otherwise is to usurp God’s power. Peter Thiel’s anti-Christ lectures are not reaching all the ears necessary.
And to save you some trouble; if you had done the reading, you’d know numograns were dropped in by Land as an example of somewhat alien notation practice as alien intelligences from markets to networks to numerical systems were all part of his body of theory.
Once set theory and decimal notation became standard practice numograms were abandoned. But Kabbalah still serves as a hilarious attention sink for celebrities, numerology fans and occasionally the anti-semetic. And this has been a Nick Land acknowledgment.
The only certain things in life are death and taxes. Death only happening once seems like the sort of thing that shouldn’t be taxed. Everything in-between is taxed? Or maybe it’s the ultimate tax. We disperse back into the system.
Taxes are not necessarily monetary (try saying that five times fast), rather we are always paying with something to stay alive.
To live amongst each other we pay bigger and bigger prices for the privilege of that life. Sometimes we wonder what is left of ourselves as we integrate further and further into civilization. Others times you wonder what you are getting back.
Taxes are what we pay to live amongst each other. You might ask what taxes did we pay on the Savanah or the steppe? You hunted to be in the tribe. To be honored by the tribe. To get laid by your bride. You gathered and cooked so you would not be hooked or hawked.
I’ll stop with the wordplay but you get the idea. It’s not just civilization that has a cost. It’s the whole damn enchilada. There ain’t no such thing as a free lunch. TANSTAAFL.
Humans adore fantasies of getting more for less. What a steal! But who are we stealing from? We know everyone ultimately pays. There are costs for everything in life.
Those damnable laws of thermodynamics seem impossible to get around. And we humans don’t have a clue about which systems we are nested within. Isolated systems? Pfft. We can only wish. At least within a tribe you knew the exchange rates. Within the planet or the galas or the universe who can say. Nobody wants to hear about the light cone.
Entropy feels as if it’s always increasing no matter how much energy we put back in. If entropy is measure of energy dispersal and we bring as much chaos as we do organization, really who is to say where and when we pay our energy tax for existence.
And so we pay the taxes when we must. Even if only in death. Even if it’s at the heat death of the universe that we find point of maximum entropy that still theoretically exists.
Can we out run it? Unclear. Thump thump. Big bang disperse. Thump thump. Condense. Expand. Contract. Expand. Contract.
Never horde what you have if paying a small price makes your civilization larger. If paying a price makes everything you have smaller, make a better civilization. In death you should feel the price you paid was worth it. If not well you can always blame the kids.
