Categories
Chronic Disease

Day 540 and No Pain

I’ve come to accept an ambient level of pain as part of my daily existence. I’ve logged over fourteen hundred discrete pain measurements over a three year period. It’s likely one been in pain for a bit longer but those are the documented years since I had a diagnosis and began working to overcome it.

I’ve only had a handful of days where I’ve logged below a three. The pain scale most of the medial industry uses is from 1-10 with 4-6 being moderate pain and 10 being unbearable give me the opioids pain.

I typically log somewhere between four on a good day and seven by it’s end. I’ll usually have an eight or a nine a few times a month. Those knock me flat and I won’t be able to get out of bed. I can work and do basics when I’m at a five or six but it’s very tiring. And frankly it took a lot of mindfulness work to learn to work through pain.

Pain is actually exhausting. It’s hard to even begin to describe how much it reduces your total capacity. Articulating pain has eluded much finer writers than I. Just because one can live through it doesn’t mean one should.

To have had a morning of relief felt truly miraculous. It was sadly short lived. Some stresses hit my day and my pain is back up to a four. I can live with a four. I have been for sometime. But to finally have seen the light of having a pain free day after years of struggling will sustain me for a while. To know that it’s possible. It felt like a miracle.

Categories
Travel

Day 539 and Hurry Up and Wait

As summer travel is turning into a source of horror stories and tears, I decided the best way to handle transiting across various borders is to pad every flight with extra time. To hurry up and wait as a strategy.

This has naturally lead to some significant mind numbing waiting issues. Two hours in an airport lounge isn’t as fun as I imagined or even remember. Lounges seemed nicer in the past. Sitting in the liminal with lots of other bored, stressed, and otherwise disengaged humans gives you plenty to watch but little of interest.

My lounge experience went as you’d expect. People giving each other a wide berth while they sip mediocre white wine. Teenagers trying to not to look at their parents in case someone cool passes by. All forms of athleisure and sweat pants swaddling the asses of women just hoping for a comfortable flight. The occasional child demanding a cookie from the two poorly stocked snack sections

When it’s time to board everyone simply mobs the doors. No one care about any system. It’s just a throng of desperation yearning to get on and claim overhead baggage space. I’d like to be irritated as I paid for business class but status is funny that way.

I can’t even find anyone to Karen at to say I’m supposed to be up front. So I wait at the back of the line. No one is following orders because no one is giving them. I packed compact & sensibly but everyone else is testing the limits. No wonder everyone wants to get on as fast as they can. Overpacking must be a stress response.

The entire experience is a war of all against all. If everyone is priority boarding than no one is a priority. It’s just pushing and shoving and giving no fucks. Sadly I give fucks about decorum and politeness so I didn’t have the balls to try to make a run around. I just said and wait and wait. Hurry up and wait.

Categories
Internet Culture

Day 536 and Keeping Tabs

I sometimes forget that other people read what I write. That makes me pretty comfortable just saying whatever I like in public. It’s not like anyone cares right? As someone skilled in the dark arts of marketing, I know getting anyone to pay attention to anything is a shit ton of work. Surely I am speaking into the void.

As I don’t actively promote my writing in any commercial way, my assumption is that the one Tweet I send daily with a link isn’t garnering a large audience. I know that I have a big presence on social media but I’m not a celebrity so I’ve never felt particularly scrutinized. No one is keeping tabs on me.

So I’m often surprised when someone has read what I’ve said. Not because it is a secret but because I know just how hard it is to get attention for anything in this world. And yet people do pay attention.

And since my husband loves to joke that I’m incapable of lying, I worry that I’ll get myself in trouble by saying so much of my truth online. If I’ve done something in my life the chances are good I’ll immediately discuss it. Which is a recipe for being main charactered.

Dissembling is not one of my talents. This isn’t to say that I’m not capable of crafting a narrative. I think facts exist in a context and I’ve got no problem articulating my worldview based on my own specific context. But telling an outright lie? There is a reason I don’t play poker. So I guess I might be stuck with saying my truth online as I’ve got neither the skills nor the talent to hide it. But if you are reading you are more than welcome to comment, email, @ Tweet me or find online.

Categories
Preparedness Travel

Day 528 and Oppressive

I would love to be writing about my impressions of the Consensus experience in Austin. I had a terrific time seeing friends & colleagues, the content was good, my talk was well attended (and well received) and I genuinely felt the experience was worthwhile. My general impression is winter is good for crypto as we will get back to building.

But as I wrap up my trip all I can really focus on is how oppressive the heat feels. How exhausting it is to consider it’s consuming nature at every step of your day. The heat is edging towards the point of being hostile to life. 29 million people live in Texas and there is no focused effort to harden infrastructure for climate extremes or drought. If you want to picture what life might be life here for your children read the Water Knife by Paolo Bacigulipa.

Last night I found myself literally sitting on top of an air conditioning vent in the attic of a private house to avoid the evening heat. I was hosting a little gathering with a few close friends (and new folks) on top of what eventually turned into a Burning Man reunion. As the older folks (otherwise known as anyone over the age of 35) and the square folks decided it was time to head out for dinner, we piled back into the night heat. The sound of revelers dancing and laughing in the 95 degree heat impressed me. Texas was showing life in the face of death.

In what I can only call a rookie move, we went to a community meet up in the backyard of some sort of coffee house and Eastern European bun shop. Even at 10pm it was too much for me. The adults decamped to a nice restaurant for air conditioning and steaks. It was bliss. Expensive privileged bliss. And yes I enjoyed consuming more than my share of resources. I’d contributed to the resource depletion that has changed our climate and made me suffer.

My period started this morning so I’m obviously tired, bloated and cranky. The last thing I want to do is cope with heat that’s supposed to get up to 109. I’m doing the dance where I rush as fast as I can into a waiting car. I try to avoid the natural world and it’s cruel requirements. We’ve not conquered nature, merely found ways to shield ourselves from its worst ravages. But those protections only intensified the natural patterns of our planet.

I idly thought to myself if I was ever to have a daughter I’d name her Cassandra. That could be quite a parental trauma to give a child. Imagine the anger she might feel dealing with a world where it’s either innovate your way to safety or accept a declining living standard with degrowth. It’s a horrifying choice. I want to be an optimistic natalist that thinks we can innovate a better future for our children. I want their confidence.

But it’s hard to be confident about a future where an enormous vibrant place like Texas will be forced to run the gauntlet of a chaotic age to a singularity not everyone will live to see. I wouldn’t place my fate in a place with drought, extreme heat and reactionary right wing populism. But I’m also not sure I’ll ever come back. But I hope I do.

Categories
Aesthetics Startups Travel

Day 526 and Out of Practice Yuppie

A well dressed, tall, friendly looking white gentleman tried to join me on an otherwise empty blue velvet couch that I had deliberately planted myself in the middle of to avoid socializing. All that was missing was a “closed for business” sign around my neck.

I had attempted to tell him “no actually this seat is taken.” I was confused he didn’t immediately pick up on my body language. I had spread my entire body across the couch and had intensely “don’t come here” body language. I had my purse down to take up more space. I laid my hand with my wedding ring on my knee so it’s instantly visible. He didn’t pick up a single visual cue. I tried verbal. I literally shouted at him that no he wasn’t welcome to join me. “This seat is taken!” Didn’t make a difference.

I don’t think he could hear me as he sat down and tried to strike up a conversation despite his obvious discomfort clinging to the edge of the couch with half a butt cheek in mid air. He tried a few lines of conversation as I doggedly ignored him. I started a tweet and angled my phone screen towards him so he could see me typing complaints. Didn’t help at all.

I really had done everything I could to claim this space as my own. The couch was directly beneath an air vent trying to push cooler air into the crowded house bar. It was as hot inside the bar as it was outside but this one area had modestly more airflow making the summer heat at least breathable.

Which is to say it was over 100 degrees inside the old house. The Rainey Street bars in Austin are all converted old historical houses with wide open full floor windows and open doors to allow people to enjoy backyards with twinkling lights and hipster backyard games. These bars are a cultural treasure in March for SXSW when everyone enjoys the mild 70 degree early spring. In June during a heatwave they are a hellscape for yuppies who have simply forgotten how to socialize like normal human beings.

I was engaging in some incredibly rude behavior yes, but the bar has no other visible seating near an air vent and even the 5 degrees of lowered temperature and the moving air helped a little. I was wearing loose comfortable clothing but it was still intolerable. I regretted not sourcing a wheelchair for the week but then again none of these houses are accessible anyway. It was the only spot in the entire bar where I could even attempt to mitigate the effects of my invisible disability.

I could feel my spine starting to swell within minutes. Ankylosis is a winter disease. Heat and humidity swell the spine and that pain will radiate out to a kind of ambient full body throbbing intensity that cannot easily be ignored.

Actually, pain is just like the heat in that way. It overtakes your willpower slowly but inexorably. Quietly it makes itself known like the stillness of Joseph Conrad’s Jungle.

“And this stillness of life did not in the least resemble a peace. It was the stillness of an implacable force brooding over an inscrutable intention. It looked at you with a vengeful aspect.”

Joseph Conrad “Heart of Darkness”

The amount of determination you have to play mind-over-matter games is simply a fight against time. Eventually you get tired from the effort. You pray you don’t let it take you to the dark places it took Kurtz. But you know one day it could take you too.

Eventually my husband came back. He’d been searching for a bathroom and our hosts for the evening. The yuppie next to me pretended to ignore him. He sat for another two minutes or so just to give the impression he’s weirdly close proximity to me was on purpose as a resting place and not at all an attempt to strike up a conversation with a woman who did not want to talk. A tactic we’ve all used once or twice to conceal a social faux we didn’t mean to commit.

Alex and I used to attend parties like this all the time. We were aggressively on the circuit for both tech and media events for well over a decade. He used to produce TechCrunch Disrupt in a long distant past before he transitioned into being an operator at early stage startups. Then those startups matured to established companies. And now it’s become clear we are established professionals.

We no longer need the social circuit. Networking has lost its payouts. More people want to meet us and ask for things than the other way around. We’ve made it. And it’s a good thing too as the social contract is breaking down all around us. Yuppies have forgotten their manners as we are all out of practice with the basic niceties of the social season. Everything from how we approach someone to begin a conversation to whom we may invite to a private event is now fraught. Hell I can’t even remember how to apply professional makeup anymore so I can’t look down on a man looking to chat. We’ve all lost some of our humanity over the pandemic.

And I find myself mumbling “the horror, the horror” as I walk myself back to the hotel because the streets won’t allow taxis in the downtown core. The transition from soft times to whatever comes next is full of unexpected surprises.

Categories
Travel

Day 524 and Low Recovery

I’m on my way to Austin Texas today. Most of yesterday got eaten up by various preparations to be on the road. I’m scared for this trip as Texas hasn’t made cannabis legal so a core part of my physical stability regimen from my physician can’t be brought with me if I want to stay on the right side of the law. I’m terrified of Paxton the incredibly corrupt attorney general.

I did a bit too much yesterday in preparation for travel and unsurprisingly my Whoop and Welltory are flashing red warning signs. I struggle to sleep before travel because of the anxiety and no amount of magnesium, melatonin, quiet reading and essential oils was going to get me down. Even Ambien was like yeah girl your heart rate is crazy.

A poor set of recovery metrics from Whoop

I’m hoping the flight is easy and I get a good night sleep once I’m in Texas. I’d like to be in the green for tomorrow as I’ve got a few little things to finish in preparation. But my basics biometrics are still so bad a 45 HRV is considered good as I think I’m still in a long post viral thing from May.

The Texas heat is going to quite extreme unfortunately. I’m skeptical all go outside for any longer than it takes to get a cab. I brought a bathing suit but I am not sure frying by the pool will do me any good.

A weather forecast for Austin Texas showing a string of over 100 degree highs for a week.

I’m much more concerned about Texas’ notoriously unstable power grids. What if it goes down while I’m there? Will my Texas prepper friends take me in? Will the hotel be on a generator? Is downtown Austin likely to be restored quickly? What if it’s a cascade event and nothing can be brought up for days like their last major grid event?

I’ve done my best to set the lowest possible expectations for being able to meet up with me socially. Which is a shame as conferences are for networking. My DMs are packed with excited DAO folks trying to get my attention. Meanwhile I’m not even confident I’ll leave the hotel room for anything but my own talk and one meet up with a long time friend whom I’ve not had the chance to be with IRL.

I’d like to do more but so many factors are combining to make me extra cautious about obligations. There are too many potentials for a cascade failure and I want to give a great talk so I’ve got to save my energy for that. I’m not worried about being good for the talk.

I’ve got an incredible gift where I can muster all my focus and energy even when extremely sick. I’ll use every last drop of it to meet my obligations. No one will be able to tell I’m sick. And then it’s entirely possible I’ll crater for days. My autonomic nervous system is very sensitive. It’s a blessing and a curse.

I’d you absolutely must find a way to meet with me (and sorry pitching me IRL might not be in the cards but DM and we will chat) I may try to host some folks at my hotel suite. If you are an actual friend of mine and can respect the disability situation maybe we can make it work. But no promises. Which of course my actual friends will understand so open invitation and such.

Categories
Internet Culture

Day 510 and Lifeline

Many people used social media as a lifeline to connect with others during the pandemic. The Zoom family dinners or the video hangout Happy Hours were a staple personally and professionally. We livestreamed religious gatherings and conversational societies. We set up Discord servers for our favorite topics and Telegram groups for group chats. As it turns out the metaverse is already here and we migrated there during the pandemic years.

The trouble with expanding your subjective reality to include virtual spaces, is that you have massively expanded the surface area of your life. Your world becomes much larger when it’s virtual. Living in the metaverse opens up your neighborhood to the global village.

When you are confined to physical reality as your living space, your subjective reality remains the people you encounter in your daily routine. At most this might be a cosmopolitan city, but for most of us it’s a parochial circle of work, children and basic goods and services. Dunbar’s number suggests we top out at about 150 people.

Most people are awkwardly straddling some middle ground these days. News media expands our subjective reality a bit, and we Americans almost all participate in some online virtual community. If you are creative class it is a professional obligation. But largely we live a real life in our physical communities. We know what is going on in the outside world but we mostly live insular lives.

That is until a tragedy occurs. And at the rate we are going these days that means once every week or so. Suddenly the entire world is focused on one singular horror. Even if it isn’t your own horror in your own physical community your subjective virtual reality feels as if it did.

And this can really suck if the metaverse is a big part of your life. Especially if the metaverse is where most of your social contact happens. The lifeline to virtual communities is no longer expanding your world but merely expanding the surface area of grief during a shared public tragedy.

I am skeptical there is a solution for this problem of shared surface area during a tragedy. Bearing witness is a human instinct deeply coded into our cultures. The desire to be bound together is for better or worse, our reality as social animals. Taking our communities online just takes our culture with us.

Categories
Preparedness

Day 506 and Walking The Talk

I had a spectacular two weeks of writing from the deepest places in my soul. We made significant and long lasting decisions for the family and the direction we want to take our lives and our investments. And yes I do mean that my husband and I are moving to Montana. One day I’ll be so proud to have captured that moment in our lives on paper.

So of course this past week I’ve done nothing but worry and fret and write about that worry as my physical body decided it was safe to be a bit sick now that we’ve done that hard work on making a big life decision. Even that mess of feverish writing ended up delivering some amusing written insights.

I’ve had to remind myself basically hourly that I’m alright. That all the uncertainty of the world is something I can live with. Indeed, it’s something I’ve planned for over the course of years. When I jokingly insisted we should name our family office chaotic.capital it seemed like an amusing and edgy piece of branding. Now I’m caught up in the reality of just how fast the thesis is playing out.

Frankly I am scared. I am scared because I can see just how hard things will be. Some days I feel like I’m beyond excited to actually be right. But then I remember the chaotic thesis sucks to live through even with the best resources and preparation. And all I can really do is walk the talk. Nothing is as terrifying as being prepared for hard times and then simply having to live all the shit you said would happen.

Because of course all of the macro big picture things that I’m planning to invest against are things that make my life harder too. I’m disabled with a chronic health condition that is annoying to manage in good times. My personal wealth is subject to the same market forces as yours. I have had to deal with the overheated housing market as a non-homeowner. I still have to act in the same face of the fears as everyone else. Am I modestly protected and buffered by privilege? Yes I’ve been sprinting to acquire it for year to get it. But here we all are and now is the time when a steady hand with a prepared mind can thrive.

Categories
Emotional Work

Day 500 and Halfway There

Five hundreds posts is a nice even number. In my heart I find myself fantasizing that I am halfway there. Halfway where? The emotion of a midway point is somehow powerful to me. That I could have known when I started that I’d make it even 100 days let alone 500 seems preposterous. And yet now that I am here I have the quiet confidence to say that yes I will make it to one thousand. That is what I’ve learned from writing every single day. I’ve learned I can do what I set out to achieve.

Writing every single day has transformed my life. I say this without guile or metaphor. I just drove back from Montana to Colorado today. I left Bozeman with the expectation that I’d be returning to spend my next decade in Montana. When I set off on this experiment to write something every single day I didn’t expect tangible impacts. I did it because I thought the exercise would be good for my thinking and my writing. And instead I found that the daily discipline pushed me to life my life more honestly.

It’s been good for my emotions. To have to bring some part of myself to every day and genuinely be present has quietly and slowly grown capacity to be present in the world. I’ve learned more about who I am as a person. I’ve learned more about my needs and wants and boundaries. I learned about how I love and who I love. By ruthlessly prioritizing one activity, I came to see what my actual priorities could be with some investment. Writing is the discipline that gave me the framework to become myself.

And so here I am picking a place to spend the next decade. It will be a huge transition. We are going to be rural people after decades of city living. Because finally we can.

I can’t tell you that all of this emotion about moving is about the pandemic and how much I’ve experienced it as profound sense of displacement. It’s all true. But also I’d been unsettled by illness and medical leave long before lockdown. I have felt like my life was unanchored for sometime. Previously I’d been a Manhattan woman through and through. And then an escape presented itself and I found myself longing to go through to see what else I could find.

We didn’t commit to rural living at first. We went to the Hudson Valley. The first foray out of the city after a decade didn’t stray too far afield. We’d seen friends of ours find farm houses nearby. But it wasn’t enough. It didn’t have the mountains we longed to see.

As our first summer wore down, we after an intense two weeks, decided on a townhouse sight unseen in Boulder. We’d discussed a move to Colorado for almost two years prior to that. We’d run scenarios on how we could pull it off. But it seemed like a fantasy. But then the pandemic made work remote possible. Plus telemedicine meant I could leave my doctors beyond a days drive. I was finally free to do what I wanted without it being a huge risk to my health.

And this is why I say the writing was so crucial. Doing it every day slowly focused my mind.

I’ve had five hundred careful days of assessing the life I was living. I had five hundred days where I thought about what I valued and what I wanted to invest in. And it paid off. Suddenly the things that I’d never quite seen clearly were manifesting themselves in our lives perfectly formed. And it was clear that we needed to make the leap to take these dreams and make them real.

After five hundred days of writing, I have a new sense of clarity on my desires. I am shedding the weak and thin desires. And I am honing in on where I want to build and with whom. And yes much of it centers on being in Montana and living a life of resilience.

I’m totally serious about the chaotic.capital thesis. I am preparing for a more volatile world and I plan to be as present and grounded as possible in it. I’m an American and I’m proud of what that used to mean. I’ll be building out there with everyone else who makes the choice to live a real life and make real things. It’s not going to be easy but I’m not going to live life on anyone’s terms but mine.

Categories
Preparedness

Day 498 and Safety

The reality is sinking in that my husband and I are actually moving to Montana. And it’s unleashing all kinds of powerful emotions and realizations.

Alex told me he’s much more willing to honestly look at unpleasant political realities in America. He’d been ignoring the news for fear it would distract him. But even if Trump wins another term, the populist wing of the GOP sweeps and Roe is overturned, at least we are safely in the demilitarized zone of the inter-mountain west. Want to fuck with us? You are armed. We are armed. Let’s keep it polite. Our libertarian preferences might still have a chance out here and if not it’s awfully hard to subdue gun toting mountain people.

That libertarian zone means business gets done. The important work of capitalism doesn’t stop because of conflict or silly culture wars. The companies that will do the best will be the ones that can get away with ignoring culture wars and focus on making stuff people need to keep their lives afloat.

We also feel safer about our personal resilience. We will be less reliant on failing electrical grids with backup power from both solar and fuel generators. Considering the warnings being issued for this summer’s black outs and I suspect we will be glad to be less dependent on the grid. I’ll be glad to be somewhere cool where my air conditioner won’t be going out. And in the winter I’ll have a wood burning stove. I’m excited for having a stream on the property along with a pond and a well that does 25 gallons a minute. I look forward to making it a home that has backups for any emergency.

I’m also a big believer in traditional skills. Having a close relationship to the land benefits our bodies and souls. Putting time into the natural rhythms of the planet keeps us healthier. I want my circadian cycle to be nurtured. And if I am ever so lucky to grow some of my own food not only is that good preparedness but it’s certainly next level wellness shit. I want that kind of power for me.

The kind of safety and sense of security we are accessing with a homestead will help us access our deep talents. There are no excuses anymore to ignore the instabilities in our dusky lives. The crumbles have arrived. And I’m so deeply relieved we are finally taking the right steps to live with them.