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Chronic Disease Emotional Work

Day 1506 and Breaking With Convention

I am in a challenging spot at the moment with our household mold issue and my attempts to accelerate changes in my care protocol for my autoimmune condition.

When things are challenging physically I find myself in tension. I want to share and be open in my experiment to write every single day. I am afraid that I’m doing nothing but share weakness by doing so.

I don’t want to telegraph only strain, illness, and struggle. Sure things are hard at the moment, but I am more than my current local minima conditions. Things are quite good.

Just because I feel too weak to articulate all the areas of strength doesn’t mean they don’t exist. I just can’t put them front and center right now.

This frustrates and even angers me. Large long term projects and investments are thriving and rather than focus on those I am curling into the fetal position and wishing I could disappear until I’m able to advocate loudly and proudly for my wins.

Categories
Culture Media

Day 1505 and Warping Reality

We are all avoiding reality to some measure. Be grateful that our egos can cushion the horrors of the world at all. I’m unsure how removed one can be from reality anymore but as an American I’ll probably one of the last to find out.

Rationalist and all-around Twitter in-group personality Aella went on a podcast called “whatever” which I’d wrongly believed was a marketing funnel for OnlyFans creators.

It turns out the host is some sort of debater Christian and this is a popular podcast for feeling better about the state of the gender wars. In some of the ensuing debate Kim Ono (I’ve lost the link) said something very insightful.

The whole business model is warping reality to comfort the fearful

Whether it is dim men dunking on sex workers, panicked liberal women on MSNBC, or Fox Blondes screaming at Boomers, our entire media environment is about making sure you can’t see what’s real while simultaneously pandering that your fear is justified. Nervous systems be damned!

I find reality to be plenty terrifying but I try to avoid needing my own version of reality to cope with it. Not to say I don’t have my own biases and priors (and I’ve written about them at left) but the world is such a jumble at the moment I very much need to confidently act in the face of warped realities.

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Chronic Disease Emotional Work

Day 1504 and Dead of Winter

For as exciting as the last few weeks have been it’s hard to feel like as it’s the dead of winter. I’ve not gone outside in several days as we are in -20 land which probably contributes to fatigue. Thankfully it’s bright and sunny.

I don’t have anything useful to say as being in the middle of multiple health projects is a time suck. Any excess energy goes to work as there really is no way of stopping progress. I wish I could keep up as it’s exciting.

Partially because things are so “out of bounds” I can feel more comfortable prioritizing long term gains and changes. I think I can achieve a health level up and fixing it now prepares me for strain later.

I take this approach on everything now. The short term has been set by decisions in the past and the medium term is highly uncertain. Steer correctly now so future you is set up to succeed.

Categories
Biohacking

Day 1503 and Project Managed Health

You have to work the problem in front of you. Fixating on past problems or potential future problems does not fix the problem in front of you.

Bottlenecks are such a useful construct as most humans have experienced their all of their progress being stymied by one single obstacle. Be it a fallen tree in the road, a bureaucracy or a health problem, the bottleneck stops you.

Alas I find myself with multiple health projects that have to be project managed with timelines, budgets, and externalities on each other.

We’d been planning to start a new care protocol with an updated biologic but the discovery of mold in the master bathroom is a bottleneck.

We need to decide if starting new immune suppressants is safe in the house before remediation. Mycotoxins at a load marked as unsafe for autoimmune conditions makes me nervous.

Sure we are staying upstairs but is it removed enough to be a sensible move? Can we isolate me and begin treatment? Do we wait the multiple weeks remediation will take? How an we run parallel paths. It’s crazy to project manage one’s personal life like this but it’s also necessary.

This excitement has also slowed down movement on acquiring a hyperbaric chamber. I’d love to offer it as a service locally as there isn’t a single available one for off label use in the entire state.

I really do think this would feel unmanageable if we didn’t have new tools at our disposable. In particular the new ChatGPT’s Deep Research has made it much easier to find different bits of information to reach an actionable conclusion. Because I want to clear these blockers.

Categories
Biohacking Emotional Work Medical

Day 1501 and Hazy Shade of Winter

I have a hazy memory of my mother introducing me to 80s girlfriend the Bangles when the played a concert at Disneyland.

We’d play the song in the car when I was little but it seemed improbable that this actually happened. But sure enough they did play at Disneyland so maybe the memory really did happen.

Reality is so tenuous when it comes against the frailties of memory. How can we be sure of anything even with meticulously kept records.

We are finding out some of the limits of record keeping and we can unearth the secrets of the universe by total recall these past two years of consumer artificial intelligence.

I have been taking a few weeks to reset some of my health protocols. Being empowered with better tools for finding opportunities makes me more inclined to take action. There are new pharmaceutical options. We can piece together

I had a round of bad bloodwork and within days I was able to take action. It’s only been a few weeks but got back a fresh set today and am feeling more optimistic that the hazy shades of winter are being well used on improvements.

Categories
Aesthetics Emotional Work

Day 1500 and Counting The Days

Somewhere in this blog there is a date error. It’s probably easy to find. I noticed the day I did it (I believe I was ill and got confused) and then time streamed on and now it barely matters.

Oddly I only care to mention it because I notice more when things are done in day by day format. We have 10 day retreats, month long sprints, quarterly focuses, if you are large enough to have yearly plans good luck to you.

We asked for acceleration and we got it. Timelines are so preposterously fast we can count them in shorter bursts. The Wall Street Journal has an administration day count for Trump. Today is day 21. Which is a light day involving golf with Tiger Woods and going to the Super Bowl.

I’m not inclined to dramatic pronouncements about the future (ok maybe a little). Humans don’t change too quickly their hard learned ways. But we are getting so much more information at such rapid pace right now that if you are inclined to count the days maybe set some goals for them.

Categories
Internet Culture Media Medical

Day 1499 and Not Up to Speed

I enjoy my daily writing as it forces me to put my sensory apparatus to work at summarizing the inputs on my systems for the day. Being a human, my processing is laggy.

I came across this graphic from Hinterland’s Twitter. They created it show compression of the our body’s sensory inputs. A lot hits our mind and very little of it gets to conscious thought.

The human body sends 11 million bits per second to the brain for processing, yet the conscious mind seems to be able to process only 50 bits per second. – Britannica “Information Theory”

It seems to me we are not prepared for this moment of unprecedented complexity given the hardware we are working with.

Some of us may have slightly different software so it’s not all hopeless. It just seems like as a species the complexity of our environment relative to our baseline physiology is looking a little iffy.

I have a kind of optimism that we will find a way to meet the moment. Right up until we can’t?

I’m am looking to do whatever upgrades I can to hear the signal in the noise. But maybe a booming voice from the sky is easy to hear than the endless chatter of our world. Or maybe we have to find another way to achieve resonance and hear.

Categories
Aesthetics Politics

Day 1481 and smh

When I got started with my daily writing project I knew there would be days when I did not want to write. Today is one of them.

I actually expected “ugh no want to write” days to be more frequent than turned out to be true. I’ve bitched about it 51 times which isn’t a lot in the grand scheme of things.

I knew I’d find a way to force the issue just as I had made other habits a part of my life. You really can make almost anything a habit if you are so inclined. But I rarely have to force habit. I just do the thing till it’s either a habit or it’s clear it’s not for me. They say it’s 21 days but I’d give it more like 100 to be safe.

Things I just do every day include applying facial moisturizer, brushing my teeth, squatting (no not just on the toilet I mean the full body compound exercise), taking my vitamins, Tweeting, playing a stupid pay to play Chinese mobile game, telling my husband I love him and opening up my mobile content management app to write this post.

And yet I am in a real “smh” place today with my attempts to find meaning in any of my habits. I’m disappointed in more than a few things. It’s all very Cthulhu and Antarctic cold vibes for me today. Sure it’s -20 in Montana but it’s very sunny so it’s cheery dread.

Anyways, the interregnum is over, we have a new President who is an old President and everything that is new is old and everything old is new again.

The entire Arnault family showed up for the inauguration so Dior’s New Look is back. Does that make this a post war moment? Did we live through a cultural revolution and not even notice? Smh.

Categories
Biohacking Chronic Disease Medical Uncategorized

Day 1476 and Don’t Stop Till You Get Enough

I’m thrilled to see that the very week I began my hyperbaric chamber oxygen therapy that we’ve had multiple experiments and data come in.

Bryan Johnson helped answer a few questions in my set up so I was delighted to see he himself was just wrapping up a major experiment with HBOT.

Step into my hyperbaric chamber courtesy of Bryan Johnson’s Twitter

Earlier in the week Harvard professor David Sinclair tweeted a thread on with links to the newest scientific literature on treatment. Stuff with names like Activation of SIRT1 by hyperbaric oxygenation promotes recovery of motor dysfunction in spinal cord injury rats

Esssays

A lovely meditation on what happens when you write 11,000 blog posts. In this case startup blogging. I’m written an order of magnitude less so hopefully I can avoid some of the negative consequences and enjoy the lessons.

Categories
Biohacking Chronic Disease

Day 1475 and Equalizing Pressure

I scared someone really badly today. As I was being locked into the hard shell for my eighth hyperbaric chamber oxygen therapy session, I realized I had forgotten my chewing gum.

At 2 atmospheres of pressure it can be a real challenge to keep your ears from getting painfully congested. Even with yawning and blowing oxygen out your nose, it’s like going into an airplane with a sinus trouble. It’s uncomfortable but it can also be dangerous.

Careful. Equalize the pressure in your ears. If you feel your ears stuffy, equalize the pressure in the following ways. 1. Yawn 2. Swallow saliva. 3. Close mouth, pinch the nose, out of breath, blow the nose (all spelling mistakes theirs)

I got a little panicked as I was trying to stop the clinic technician from finishing the sealing process as I wasn’t sure if they could stop it once it was sealed or if I would need a full decompression cycle.

I was texting frantically “I forgot my gum can this be stopped ASAP so I can get it?”

I was tapping the window on the hardshell with a worried look and showing the text. I kept trying to make the font bigger and be clearer. FORGOT GUM OPEN?!

But it was confusing enough that everyone in the room thought something was seriously wrong. Which it would have been without the gum as I can’t do a full hour at 2 atmosphere without the help of the chewing. All the yawning, blowing out through the nose and other techniques aren’t quite enough.

It wasn’t yet an emergency. If it was I would have hit the big red button. But everyone seemed to think it was. After 2-3 minutes of frantic miscommunication it turned out that it was fine to open it up but we’d need to restart the seal and pressurize it again. I got the gum. And look who was on the TV screen.

Just don’t die while inside the chamber