Categories
Chronic Disease

Day 591 and Normal Sunday

Having a modest disability like chronic pain (I have a form of arthritis in my spine) means I can’t always be physically active for an entire day. I need to lay down flat sometimes to relieve pressure on my spine and I can be fatigued from the persistent pain. It’s something I have to work around even if it’s not completely debilitating.

I’ve worked hard to control the disease. But it has meant a lot of days where normal activity had a poor return on the energy invested. If had a day where I was on my feet for hours at a time I’d probably pay for it the next day with extra time laying down. So I try to limit unnecessary activities.

I’m giving a lot of context that might not be necessary for regular readers of this daily chronicle that know me. But it’s not always easy for me to do what normal people take for granted. Imagine a day where you wake up, shower, cook and clean up after yourself, you go to work, you run some errands, you exercise, you come home to cook and clean some more, you care for your family and maybe you enjoy a hobby. A regular day.

I named ten activities you do without thinking. If I want to avoid hurting myself or using too much energy in one day, I have to pick two or three of those things. You might not be surprised to learn I pick showering, work and my health routines.

If I’m having a good day, I can add on additional activity or two. But it’s probably something I can do laying flat on my back. That’s how Twitter became a central nexus for socializing if you are curious.

So having given paragraphs of context I hope it allows you to understand my excitement about having an absolutely normal Sunday. This morning got up. I made food for myself. I went for a forty minute walk. I did my entire biohacking routine. I went to a nursery to see about some options for the orchard. Then I went to the grocery store with my husband and we did the shopping for the week. Then we did some chores on the new homestead. A truly astonishing about of activities for someone like me.

And even after all activity that I felt well enough for a long shower (often a painful activity as hot water swells my joints). It’s 5pm and I’ve been up and about since 8am and only laid down just now to write this post. And someone I feel totally fine.

Shortly I’ll be cooking mushroom risotto for Sunday dinner. My husband is the cook of the family but for some reason Arborio rice is his nemesis. He’s never made a decent risotto in all the time I’ve known him. Typically after a day with this much activity I’d never even consider cooking. But I’m having a normal Sunday and doesn’t it sound nice to make something a little more involved to eat?

Categories
Emotional Work

Day 589 and Mental Health

Trigger warning: discussing depression and oblique references to suicidal depression. If you are in crisis please call 988.

I had a scare this morning. Someone I love is going through some stuff. I didn’t know if they were safe for a short period and I found myself frightened by the prospect of losing them.

When I learned they were safe I was relieved but also angry because how dare they scare all of us like that? I scrambled to cope with my own feelings and a desire to engage in codependent behaviors. I called my therapist and pulled myself together.

While I don’t suffer from depression it’s not an entirely foreign concept to me. It has felt closer over the pandemic as I’ve seen others struggle. I have family members and friends who live with varying degrees of chronic depression and I have witnessed first hand how much strength it takes live with it. I have chronic pain and I don’t think it is even in the same ballpark of debilitating as depression.

I’m not any kind of expert and my advice is mostly me talking into the wind so please only take what serves you. But what I’ve learned is that people genuinely do care about mental health if you want to seek a connection. We want to help. We want to help those that want to help themselves. Your people do love you and you may have more of them than you realize.

Sometimes it feels impossible to ask for help. Maybe you cannot ask friends or family because of any number of reasons. But that doesn’t mean you are alone or no one is here to help. There are hotlines. There are 12 step meetings. There are apps and services. As one internet friendly to another you are not alone. If you need mental health care please take whatever step feels feasible even if it’s just a text message into the either. You can do it.

Categories
Emotional Work

Day 585 and Rip Off the Trauma Bandaid

I hope I can capture even a fragment of my emotions as I am on the other side of several hours of post-moving therapy. And I am drained but also armed with more wisdom than when I started the effort.

Moving is obviously a traumatic experience for most people. Anyone who moved as a child has some memories of how the change revealed new aspects of who they are and what makes them feel safe. Parents worry about it a lot about moving and for good reason. I know my mother certainly did and she did her best to protect me.

But we know that life is chaotic. Any type of change is already in a dance with accelerating entropy. Expect your unfinished shit to get drawn into the accretion belt surrounding the event horizon of your fears. Black holes are scary because we know they will kill us unless we commit enough energy to the fight to escape.

Sometimes some parts of us don’t make it. They become lost to the nothing. The dark impenetrable inversion point where we are forced to face the powers of destruction within us. Of course, it’s natural to sacrifice some part of yourself to banish the demon we know to be who we are.

It’s actually shocking to realize that inside of you might be some kind of personal Kali ready to rend the apocalypse at your weak side. But then you try not to think of it too much right? You’d rather ignore your demons right. Don’t feed the wolf right? Feed the good they say.

I am here to tell you that the shadow exist even if it scares you. It’s pulling you in just like that black whole. You can fight it your whole life. And maybe you win. Maybe you have that kind of fuel.

But if you ignore that shadow you will be pulled in it no matter what. Wouldn’t you rather run the calculation on how to achieve escape velocity? It’s going to be expensive. But it’s better to know the costs of living.

Categories
Travel

Day 581 and Lost

I still can’t locate a few basics that are part of my every day routine. My razor is AWOL, the box with my night time cosmetics routine hasn’t been located, and I’m not entirely sure where most of my tee-shirts are located. I don’t think they are lost but they sure aren’t found yet.

I keep making amazing progress on adjusting to the new house and unpacking, only to find that I’ve actually got no idea where something crucial might be located. My ambition to get into a routine? It’s bumping up against the reality that I’m still basically lost.

And in my case I got literally lost on the drive back from the airport. I had full on meltdown as my phone wouldn’t connect to the CarPlay and some urgently late California driver cut me off which forced me onto a right turn only lane. This ended up putting me on a highway for an additional 20 miles of transportation. I found myself lost and hollering into the phone “I have no idea where I am” as I couldn’t get myself turned around or in roads I recognized.

Categories
Biohacking

Day 580 and Feeling Normal

I had quite a case of insomnia last night. Eventually around 1am I caved and took a sleeping pill. I am so glad I did as I slept straight through till noon today. And I woke up feeling, dare I say it, almost normal. I felt better than normal. I actually felt good. Clearly I needed a long, comfortable, and uninterrupted night of sleep.

My Whoop has logged a lot of sleep disturbances since we arrived in Montana which has dragged down my recovery score. It always takes a few nights before I acclimate to a place’s natural sounds. The creaky stairs or the shifting of a building becomes something your unconscious mind recognizes over time. I think I’m finally starting to adjust and feel safe in our new house.

I’d been struggling to keep my routines and rhythms through the moving and unpacking. I had horrible digestive struggles from the excess amounts of processed we ate on the road. Then I found myself overheated and itchy as a heatwave smacked into a lack of air conditioning with a side of dusty boxes. I was physically a bit of a wreck.

Naturally I am relieved to feel like my body is adjusting positively. One of the many reasons we were excited to move to Montana is the cooler weather and ample space to be outdoors. My body is in less pain when I keep it cool and active. The optimism that wilted under the heatwave is now back.

Categories
Emotional Work

Day 579 and Restart

Starting over a routine is a harder than I remembered. I did my very best to be on my rhythms yesterday on the first Monday after our move to the new homestead in Montana. Which turned out to be a modestly stupid idea when we still haven’t unpacked fully.

Routines rely on being settled and we are not yet settled. Which to be fair is normal when we only arrived 72 hours ago. I still haven’t located basic items like the Dr Bromners or the box with all my tee-shirts and tank tops.

I could barely rouse myself today to eat and groom and attempt to say goodbye to my family this morning as everyone headed out. I absolutely ate some crappy processed food English Muffins for breakfast and then promptly threw it up as my body was like bitch eat a real meal. I don’t know how the average American eats a steady diet of hyper processed foods as I can barely tolerate something with dough softener after five days.

It’s early evening and I just showered. The lack of climate control is a subtle reminder that sweat stinks but showering feels pointless if you are just going to be getting gross again within the hour. Taking care of yourself is a fight against entropy. And I don’t like being reminded that it’s a losing battle some days. But I’m alive and my brain is only parboiled which is a victory.

Categories
Preparedness

Day 578 and Tactical Errors

I’ve moved somewhere in the area of forty times over my life. And you’d think this would make me excellent at it. But no matter how careful your planning, the execution will be filled with tactical errors. It’s the nature of the beast and you’ve just got to roll with it.

The first and most crucial tactical error we made was not buying backup air conditioning and fans. We’ve never lived in a house that was entirely without air conditioning. Apartments have been either small enough for a window unit or had central air. The town house has installed mini splits. But Montana has not traditionally required central air or mini-splits.

We arrived on the hottest day of the year. The upright air conditioner we bought simply died within five minutes of unboxing. We had multiple fans but those 2 fans are only enough to help with one room if it’s large. And of course, buying fans or air conditioning in a heatwave in a smaller town is impossible. So we are a bit stuck with it until they can arrive on Wednesday from Amazon.

Most of the other tactical errors are similarly environmental. Moving boxes are dusty. There is dust everywhere from everything including books, outerwear, crap you didn’t realize you were lax on cleaning regularly. We’ve got two air filters running full steam and my eyes are red and puffy despite that. I’ve got hives on my eyelids. Finding the appropriate antihistamines and attempting to fight the dust is a losing battle that nevertheless must be fought.

I am confident we will find plenty of other ways in which we’ve fucked up the basic tactics of the move. That it’s mostly dust and heat is a bit of a blessing in some ways. Murphy’s Law is strongly enforced during times of routine disruption.

What can go wrong will go wrong.

Moving is inherently a process of fighting entropy. A new place and a new house are ways humans fight against the decay of our lives. It is a losing battle. Physics is pretty clear on that one. But we fight on as overcoming tactical errors is just part of living.

Categories
Community

Day 577 and Whirlwind

The last few days have been a whirlwind. I probably owe at least a dozen “thank yous” to friends and family and neighbors. I hope my brain catches up to my body soon so I can appropriately express my gratitude to everyone that has come together to get Alex and I moved to Montana.

I woke up in my own bed in my own home today. We did laundry at 10pm last night so we could put sheets on a mattress and sleep at home instead of the Airbnb we had rented. Alex and I both had a moment where we just wanted to be home. And kindly my mother and her husband as well as our friend Austin took the Airbnb so we could enjoy our first night in our new forever home. Even if we hadn’t unpacked much more than a mattress and sheets after the long drive it was worth it.

At around 7am today folks showed up to help unload and unpack. Friends from Twitter arrived. I may have jumped onto a few folks in my enthusiasm to deliver hugs in gratitude. People’s teenagers came over (including the son of the previous owners). I am still somewhat astonished so many folks pitched in.

Everyone was good sports (somewhat less so me) about the heat wave hitting Montana and simply hauled ass to get everything out of the moving truck before noon. My mother and I were on errand duty as we ran across town to acquire food and sundries. And now as the temperature rises we are slowly coming down.

It is siesta time for the afternoon. It will be too hot to do much more and the single air conditioner we brought imploded on us. On its first use. You wouldn’t think you’d need air conditioning up in Montana but such is global warming. The stores here are all out of air conditioners as it’s such an intense heatwave. But that is a problem for another day.

Categories
Chronicle

Day 574 and Brain Fog

My mind is in such a haze today. We are in the middle of the final packing job for our move to Montana and I’ve been removed from the house as I’m just getting in the way at this point.

I am surprised at how mentally tired I am from the move. I assumed it would be physically and emotionally draining. But why would my mind not be sharp? I’m just bumbling though basic communication. I cannot even finish a Duolingo lesson. I am struggling to form sentences in any language.

It is days like this that I am grateful my rhythms hold together my life as even though I’m teetering on the edge of complete incompetence I am still here writing. It’s a forgettable three paragraph kind of day and that is alright.

Categories
Community Preparedness

Day 572 and Internet Barn Raising

About twenty four hours ago the first “crisis” of the move to Montana appeared on the horizon. The very expensive, and corporate, moving company we’d hired called to cancel on our move to Montana. Three days before the move date. Which we cannot change as new tenants are moving into our soon to be former townhouse.

At first they claimed it was a lack of trucks and then it was a lack of labor. It was some series of issues you hear more and more of during these crumbling times. It was messy and chaotic. I’m not entirely sure on the full timeline or set of excuses as my husband Alex is “king” of the move as he’s the operational talent in the family. I’m just here to follow his edicts. The details are not completely crucial to the wider lesson.

We put out the bat signal that we were in trouble. We tweeted and put questions out in Discord. What do we do? What our options? Our extended community sprang into action. People called with truck rentals suggestions. People sent over recommendations for labor and talent. People called in favors to locate what we needed on both ends. And the truly incredible part is that people physically showed up. Like get on an airplane level. And more than one of them offered to physically come out.

I don’t want to put any identities on blast as not everyone is quite as social on social media as I am. But our internet community is all very much active and close in our lives. And it just showed. In ways that I don’t know I fully appreciated until we were in the lurch.

A dear fellow traveler friend who has been an “internet friend” for sometime, but because of the pandemic hasn’t been able to IRL with us, offered to get on an airplane and help us drive up the truck. We bought them a ticket. Locked it in. Let’s finally do the bonding. The perfect synchronicity of social capital and actual capital solving a problem money alone couldn’t fix. Because there are some things money can’t buy and you almost always learn what in a crisis.

Members of our preparedness community (some of whom will soon be our actual physical neighbors in Montana) stepped in as well. They also offered to fly down and help on our Colorado front end. A truly astonishing gesture of friendship and community. Alex coordinated on our end to meet them on arrival. A veritable barnstorming of new neighbors is set to welcome us. And we aren’t even their actual physical neighbors yet. The trust and humility one must have to welcome people in like this.

My heart must have grown a size in one day. It was a balm for any kind of civilization cynicism I might have harbored. Our people showed up. I’ve got tears in my eyes just thinking about it. I will say that our special interest in resilience and connection has been key in this whole beautiful experience.

Our people are those who feel the concerns of modernity and atomization, but who rather than blame our technical tools like social medics for decay simply leverage them to bring us all back to our humanity. If America is in for harder times, I’ve never been more optimistic about the people that will survive them together with me.