Tag: Health

Categories
Travel

Day 1637 and Day Tripping

It’s positively verdant in the Rocky Mountain west. This far into June it doesn’t seem as if it should be Irish countryside green heading into Wyoming.

Both because I was driving, and an iPhone picture can’t ever do a landscape of such texture and vastness any amount of justice, I have few pictures.

Some portion of I-90 in Montana

We’ve got a little camp out with some of our oddest friends. As befits the oddity of the open road we made a pit stop on our day trip at one of the centers of interstate commerce Loves.

The various locations of Loves in America

If you’ve not encountered a Loves, I don’t quite know what America you live in but it’s quite the experience. It ain’t no Bucc-ees but it’s a vibe. The smooth loyalty driven core business of truckers bumps up against the families headed to parts elsewhere. And its merchandise reflects this intersection of oddities.

Keep on rolling with two or we upcharge a whole buck for these meat sticks
Cover those meats with a push of a button.

All I acquired was a half tank of gas, a king size Starbursts for Alex, and a Pina Colda Bai. I made it about a third of the way through the drink before calling uncle.

There was other similarly faux foods we encountered on the road. An equally loyalty driven chain whose signature simulacrum only exists because of a Ray Dalio arbitrage. I wonder what Baudrillard would make of American food in 2025.

Categories
Aesthetics Biohacking

Day 1636 and Bounce Your Boobies

Somewhere along the way I leaned into my hippie heritage and stopped wearing bras. Don’t fret, I didn’t burn them. Nor do I view it as any sort of political or fashion statement. It was the pain that did me in.

Sure, the pandemic’s homebound nature gave me the freedom to let loose. But it was the pain in my middle thoracic spine that sealed the deal. It’s at its worst right at my bra line.

I simply could not tolerate the pain from the pressure of even the most forgiving fabric bralette. No bra fitter in the world (not even the famed Orchard Corset of the lower east side) could get around the physics of an inflamed spinal and intercostal condition. My breasts would have go free.

I do have some sense of propriety about the situation. I lock the girls up firmly for business and conservative occasions, but even then if I can find a way to style myself such that I can hide the lack of brazier I do it.

It’s long been hippie lore that the pressure of the straps and clasps of lingerie prevent lymphatic drainage, which can lead to any number of problems. The most feared outcome was breast cancer. Though I do not have any family history of the disease, I did not care to increase my chances as my health waned.

And as I pack for a summer camp out in which I will be socializing with some very conservative people indeed, I found myself humming a crass tune from my maternal grandmother’s third husband’s family.

It was a 4th of July tradition in the raucous La Flair clan (a flavor of French Canadians who oddly settled on Long Island) to host a talent show. The well endowed Boomer women of the clan, who wonderfully possess no shame, had a chorus line dance they called “Bounce Your Boobies!”

I won’t be dressing or dancing in the manner of this fantastic clan but it’s quite likely my boobs will be doing a bit of bouncing for the rest of my life.

Categories
Biohacking Chronic Disease Medical

Day 1629 and IL-17 Changeover Results

I need to do a better job at tying up loose ends. I’ll bring up a change and then forget to do updates until I’ve concluded the experiment.

My January health reboot included changing my IL-17 biologic injection (moving from Cosentyx to Bimzlex) in the hopes of reducing my soaring inflammation markers has its last loading dose today. I take it for my psoriatic arthritis and ankylosing spondylitis.

I got a fresh round of bloodwork done last week and am pleased to have seen my CRP & my sed rate at the best point in some years. Subjective metrics like pain and energy are usually leading indicators for my erythrocyte sedimentation rate and C-reactive protein coming down. And that is my priority with pharmaceutical choices and holistic ones.

I have had a lot of negative side effects that were new to me that did show up during my Bimzelx transition. I got a meiborn gland infection on my eyelid twice. I had to get it sliced and lanced TWICE! And I took two rounds of antibiotics (which I love as I feel terrific when I’m on doxycycline or amoxicillin).

You’d think needing that down while in Istanbul would have been scary but no it was informative and fun. And I was able to learn more about hyperbaric chamber oxygen therapy which is the next big adventure coming up.

So it’s looking good for Bimzelx even though I’m not wild about how my immune system has reacted. The eyelid stuff is scary. I’ve had folliculitis in odd places so I’ll need more topic antibiotic washes presumably. My scalp has not taken it well.

Other oddities of note. Bimzelx also hurts way more than any other injection I’ve ever gotten in my entire life. I’ve done methotrexate, all the hormones for egg retrieval, multiple biologics (Coesyntx and Humira) and nothing comes close to this kind of pain. It’s a big vial and an auto-injector so you have no control so you must muster up the willpower to hurt yourself for 45 seconds of burning pain. Because you can’t restart you’ve got to do it. I scream. It’s bad.

It does appear to be working so we shall see how the change from loading dose to regular every two month maintenance dosing goes. I don’t know if I have multiple weird infections a year in me but I do like being able to exercise and have more work capacity. I’d say on balance it’s worth it for me.

Categories
Chronic Disease

Day 1627 and 12 Hours

I went to bed yesterday around 3:30 or so. Oops. I could barely write a post as I was struggling to stay awake at all. I did three short paragraphs and tagged it and said good enough.

A long night of poor sleep

My sleep was not peaceful or restorative but at least it was long. The night before I was up late (ok 10:30pm or so) and I struggled to fall asleep.

Alex’s birthday party on Saturday was enough to wipe me out so badly that on Sunday I couldn’t stay up past mid-afternoon. Pathetic yes but not surprising.

I recently did a big round of bloodwork and was thrilled to see my inflammation is down significantly but I have something called inflammatory anemia. So maybe a contributing factor to my exhaustion. There are a number of odd areas that need some attention especially in my endocrine system.

The Bimzelx switch is in its 4th month so almost through the loading dosing. I have had awful side effects but the code biomarkers of CRP and Erythrocyte Sedimentation Rate (ESR) are significantly improved.

I still have all kinds of weird pains and compensatory biomechanical problems but I’m feeling moderately optimistic. The next steps are around the corner. And hopefully I get more deep sleep and REM sleep before I tackle it.

Categories
Biohacking Chronic Disease

Day 1625 and Hot and Cold

I am older than my husband but only by enough (a year and change) to let me land middle aged jokes. We celebrated his birthday at Costco. We are spending Saturday grilling. We own a Subaru. I think the jig is up.

I’ve been fighting to restore my body to “factory settings” since we made the mistake of messing around with fertility treatment hormones. Sadly why our middle aged jokes don’t involve children. Our civic contributions and investments in founders tie us to our future for now

And in our ambitions to be prepared for giving that future everything we’ve got, we are doing more and more for our health.

I started an earlier as my body gave out earlier but we are both doing more biohacking. We are slowly building out a collection of treatments and devices that we hope will end as a medical spa serving our region.

The hyperbaric chamber for oxygen therapy we purchased in January l has finally reached American shores. More sauna and ice cycling might be in our future too. On a “in the red” day I’ve been known to hit my recovery with everything I’ve got. Heat, cold, and pressure can fix almost anything. Add in oxygen and we might just survive whatever the future throws at us.

Categories
Biohacking Chronic Disease

Day 1622 and Pulsed Electromagnetic Field

On a bit of a whim, Alex bought “on the go” PEMF Infrared Mat from HigherDOSE.

This is the year of acquiring mechanical intervention medical equipment for us.

Yes as biohackers we trial a lot and some of it is less woo-woo than others. Treatments like hyperbaric chamber oxygen therapy have significantly more clinical data than say pulsed electromagnetic field treatments.

It seems easier to send electromagnetic waves at different frequencies than create a sealed oxygen chamber but consumer is weird and the military and elite athletics tested HBOT whereas mere hippies played around with PEMF.

A temperature setting swaps for 4 separate vibration settings Delta Waves, Theta Waves (Schaumann Reponse, Alpha and Beta Waves

So it’s qualia only here on the good vibrations but I am excited to try it out. I can’t exactly feel the vibrations unlike in other clinical settings where I’ve experienced much more intense (it’s measured in gauss or Tesla) but infrared warmth is a nice experience even if the vibrations don’t do much. But I will report on it.

Categories
Biohacking

Day 1621 and My Hyperstimulation Fixes

Not so long ago the idea of dopamine fasts became quite the topic of discussion. A Twitter mutual of mine first brought it to my attention and it seems it is his coinage.

The concept originated with California psychologist Dr. Cameron Sepah as a cognitive behavioral therapy (CBT) tool to help people cope with behavioral addictions and reset their relationship with instant gratification. Via perplexity

I won’t get into the details but the premise is to reduce stimulus so as to calm your dopaminergic responses.

As social media hyperstimulation rears its ugly head, I don’t think you need theory and angst or full cut off from stimulus. You ideally change a little at a time and sustain a practice.

Sure we are working against automated algorithms designed for maximum impact but we all still know how to be human. Breathe, feel your body, and relax into focus on whatever you see first.

I have a mix of high tech and simple body routines I rely on. I put on over the ear noise canceling headphones like Bose and I turn on my Endel app to play Solfreggio tones or let an autogenerated audio soundscape play. I dim the lights if it’s daytime. I love my ApolloNeuro for its vagus nerve tuning vibes as a supplement here.

I have also carried forward a nervous system regulation practice from Jonny Miller. Breathing techniques (especially box breathing), somatic feeling or interoception exercises, and non sleep deep relaxation all make up a part of my mindfulness practice.

At night I follow as best I can Bryan Johnson’s red lighting routine for circadian rhythm support though I remain a highly variable sleeper. I wear re-usable earplugs and an no pressure bubble eye mask.

If I need to come down from the day I’ll do a 3 in-5 out breath and settle into some fiction. I like to read on e-ink at night with either my Kindle or sometimes my Daylight though that is generally my reading instrument for the research. Once I start nodding off I’ll pull down my eye mask.

Categories
Biohacking Chronic Disease Medical

Day 1619 and What A Headache

It’s a gorgeous breeze June Sunday in Montana. It’s the sort of day where you go to your favorite bakery for an exotic little pastry, maybe get lunch from a favorite restaurant and then go for a hike or a bike ride to marvel at the majesty in wonder.

As I am working through a new physio routine to improve compensatory pain in my trapezius muscles I was a little nervous. I wanted to adequately test that I’d found new corrective instincts without overdoing things.

I walked a favorite two mile circuit with a stead inclined of hills that eases back out into the flat valley. I felt terrific. The sun was shining but the breeze kept it cool. Truly paradise on earth.

And then within an hour or so I got an awful headache. Had I failed at reworking my compensation so badly? I checked fascia and muscle points and found my shoulders relaxed.

Then I checked my upper cervical spike and yelped. I had swapped one compensation for another and gave myself a killer headache in the process. But I didn’t have the same pain pattern or headache type and that is a win.

Categories
Biohacking Medical

Day 1617 and Trap Queen

I am struggling with some biomechanical issues in my upper body that are intersecting poorly with the inflammation of my ankylosing spondylitis and psoriatic arthritis.

The upper fibers of my trapezius muscles are killing me. I presume I have some soreness and pain as I’ve been incorporating a new slow progressive full body workout program. But a little digging is making me reassess that conclusion.

Via Physio-Pedia

I’ve been patiently working the problem of my inflammatory issues for literally half a decade and yet I am regularly finding new information thanks to the wonders of deep research products.

Somehow I had never really researched enthesitis despite it being a fairly core symptom in my case presentation of spondyloarthropathies.

It is an inflammation where tendons and ligaments attach to the bone and I have it something fierce in my intercostals and trapezius muscles.

There are many other areas where enthesitis can occur, he says, including the area where the ribs meet the breastbone, the back of the head where it meets the neck, and in the spine in the area closest to the skin. Creaky Joints

It’s possible current pain not delayed onset muscle soreness at all. It’s enthesitis. I don’t know if my new IL-17 inhibitor is working as it should but the strain of my new workout regimen is just a part of a wider issue in my condition. I’ve got a deep dive running on exercises but right now I’m going to take a muscle relaxer (magnesium) and lay down.

Categories
Medical

Day 1615 and Ounce of Prevention

I had a preventative care appointment at the doctor today and I came away from the experience wondering why I bothered.

I felt like a fool for checking on something before it had become a problem. It was merely a concern and no answers could be found without a substantial escalation in investment and time. Which I chose not to dod.

I will still get a bill whether it’s 90 seconds or 90 minutes which I do understand. But does it have to be so “escalate to maximum” or “just ignore it” as the poles of preventative care? Can’t it be more of a spectrum of options? And because “fuck you that’s why” I have no more certainty on the problem than when I started.

And that’s not how I want to experience the care and maintenance of anything under my care in my life let alone my body. Our house, our relationships, our business, our car, heck our chickens deserve better than “don’t know why you bother” care. I bother because I care.

We have a home maintenance sheet excel, a seasonal rotation system for disaster supplies, and an inventory management system for key household goods.

Yeah, we are that kind of family. My husband has opinions on label makers. I have strong opinions on sweater brushes and leather are.

An ounce of prevention is worth a pound of cure.

Sure that’s a very Mary Poppins kind of approach to life but I think it’s a worthy one. I want to live a life where I am responsible to my own life.