Tag: Lies

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Culture Reading

Day 795 and Fabulous Fabulists

If you’ve got the gift of gab, and I do, you are probably also familiar the entire family tree of talking. And like any family, gabbers have their share of black sheep. Weaving a a yarn or telling a tall tale both come to mind.

But in order to tell a story, it’s almost impossible to avoid every form of sensationalism and embellishment. Fabulists are fabulous company. And depending on your own history with inherent knowability of truth (and it’s many sparkling facets) you may find varying degrees of fanciful details either deeply offensive or absolutely necessary. It probably boils down to your relationship with your parents honestly.

I’ve had to sing for my supper my whole life and I don’t particularly mind it’s burdens. My father was once a champion story teller and his relationship to reality was always tenuous simply because he was an eternal optimist. I’ve chosen to view this as a positive.

It is however hard to live in a culture of sensationalism. When every piece of media from memes to the paper of record is bombarding us with every angle of every story, deciding on the truth feels impossible. It’s sensational because our senses simply cannot possibly glean every facet of a situation. If you’ve ever been close to a news story I’m sure you can intuit the issue.

We’ve got an entire culture of fabulous fabulists ranging from Fox News opinion hosts to Kim Kardashian to the New York Times Editorial Board. Who you find most trustworthy in that bunch doesn’t really say much about you anymore but we sure like to pretend it does. Just remember if someone is telling you a tall tale you don’t have to believe it. But it probably helps to enjoy listening to them. And the truth is we all do.

Categories
Chronic Disease Travel

Day 791 and Bathing Suits I’ve Never Worn

I’m on maybe my third or fourth trip to a warmer climate where I’ve brought a Norma Kamali bathing suit. I bought it on sale from Net-Porter as I’d always wanted one of her classic one pieces. I’ve never worn it.

For the casual reader, I have a chronic autoimmune disease called ankylosing spondylitis. It’s an inflammation condition that affects my spine and is aggravated by heat & humidity. Any temperature above above room temperature, give or take 72 depending on the humidity, starts to swell my tissues.

It’s well controlled with drugs but environmental factors can quickly spin up a bevy of symptoms including pain so debilitating I can’t walk. It’s one of the reasons we moved to Montana. I can live a semi-normal life so long as it’s cold. I spend most of my days laying flat in bed or in a zero gravity chair. My disability has become one of the super powers I use to propel my investing alpha. Because what else do you do with your time if you can’t leave bed except monitor financial indicators and chat with founders?

But back to the bathing suit. The black halter swimsuit has turned out to be entirely an aspirational garment. It’s still got the sanitary sticker for the crotch on it that says remove before wearing. I left it in and it’s become the not so subtle reminder that I may never enjoy a beach vacation again. It’s simply beyond my grasp unless I want to pay an obscenely high cost in pain and immobility.

I dutifully pack the Norma Kamali suit on each trip with a warmer climate. I’ve taken it to Miami, Texas, the Mediterranean and Mexico now. For this trip to Puerto Vallarta I packed a second bathing suit. It’s a striped bikini.

I had a fantasy that maybe I’d need a second swim suit as the other would need to dry if I swam every day. Oh what self deception we humans are capable of when it involves something we cannot have but want. I’ve never put the second suit on either. It also has the sanitary sticker still on it. It’s beginning to feel like they taunt me. Isn’t it funny that Julie still yearns to participate in the simple pleasures of life. “That dumb cunt” I imagine them murmuring as I pack.

My father loves tropical vacations. An adults only resort on a beach is his idea of a good time. And for his birthday, my brother and I very much wanted to give him what he wanted. Part of this is self protection as he often forgets to ask after other people’s preferences even if they are for something serious like a disease or disability. Better to avoid disappointment than know for sure. But also if we can give him what he wants why not make the sacrifice? It’s expensive for me energetically but I wanted to spend.

But it’s become clear I can’t make the sacrifices desired for the perfect fantasy family vacation. The bathing suit gets tossed in the suitcase with the knowledge that I can only manage one event outside each day. It’s usually a dinner or a chat.

Then I must sleep it off and work to recover. There is no space for pleasant relaxation on the beach in my body. The compressed Lycra slowly battling the expansion of my tissues as they swell overlapping with stuck lymphatic liquids would be torture. There is no joy to be found and no extra capacity to be eked out that might make the experience mimic the pleasure in a healthy body.

The fantasy is just that. A delusion I have about a life a lost and unlikely to be regained. The after effects of fertility treatments, IVF and living hard to outrun the vicissitudes of capitalism. I’ve accepted it as my lot in life. But it’s much harder to get it across to the rest of the world. And my fear that I’ll be left out and forgotten, that if I don’t fit myself into someone else’s life I’ll be abandoned. And so I rationalize that I’d be abandoned if I don’t at least try to bring the bathing suit. Even though going to the beach is a fantasy.

I hope my friends and family are able to meet me half way but I remain afraid that they don’t know how, or are unable to imagine what it’s like to live in my body. And it would be nice to be met halfway.

Categories
Emotional Work

Day 788 and Duty

I wrote about six thousand words this morning at 5am about seeing your family for who they are and asking that they see you in return. I don’t think I can publish any of it even though it is a very raw piece of writing.

Today is my father’s 80th Birthday. He’s a rare early Boomer from the Silent Generation and he had me later in life with his second wife my mother.

I’ve got a lot of feelings about our relationship. I love my father. Like all of us, he has committed many sins, some of them against me. I have committed many sins against him. We are bound by an elaborate set piece of inter-generational trauma that has shaped us for good and ill.

I am bound by my familial duty to respect and honor the sacrifices he made. I am here to celebrate his life. But my feelings on it are more than I could articulate today and believe me I have tried.

It is my most solemn wish for his birthday that he finds forgiveness for himself as he did absolutely everything he could and I’ll forever be grateful that I was given these rare gifts.

Categories
Politics Travel

Day 787 and Feeling Rich

I accidentally shattered the glass on a social phenomenon that my husband hadn’t consciously noticed till I brought it up. There is a fondness among rich white wealthy countries for taking vacations in places where they feel richer. It’s not good enough to be middle class in a wealthy country, the goal is feeling wealthier in a poorer one.

The British have Thailand, the Americans have Mexico, and apparently the Germans have Mallorca but you could probably spend half an hour naming places in which first world white populations like to go on vacation to feel richer than they actually are in their home country.

It’s just particularly acute with Americans, especially our Boomer class elders. The American middle class loves to feel rich. And we are rich comparatively. We are in the global 10% every last one of us. The poorest American is almost astonishingly better off.

It’s a part of the God given inherent manifest destiny of our mythos that all Americans are rich and it checks out when you compare us to other economies. But what happens when you don’t feel rich at home?

Apparently you go abroad because being rich and living in luxury aren’t the same thing. Plenty of Americans don’t feel rich. It’s a source of intense insecurity and much of our national politics reflects the desire of Americans wanting “being rich” to mean living in luxury in comparison to someone else.

I don’t fully understand it or even like it but I’m experiencing it in Mexico right now and it’s not an entirely comfortable existential experience.

Categories
Emotional Work

Day 777 and Filter

I like to say I’ve got no filter. It sounds cool to just casually admit you’ve got the balls to say whatever you like. I’m a prolific shitposter. Heck, I’m a prolific poster. Just look at the beautiful seven hundred and seventy seven day marker on this post. I write a lot.

But it’s a bit of an obfuscation to say I’ve got no filter. It’s true that I don’t self censor. I do however sift through what I’m going to say and make sure it’s appropriate for the the audience. I don’t edit necessarily (long time readers have probably noticed the numerous typos and grammatical errors), but I do think about who I am talking to when I write.

I am a big believer in meeting people where they are. Maybe it’s a function of how much time I’ve put into therapy, but I’ve become much more aware of how sometimes a person simply cannot see your point of view. Trust is fragile and we’ve not always earned a right to discuss topics that make a person upset. Through empathy you can get closer though.

Perhaps you’ve been the one with the overly emotional reaction. I’m sure you can relate to the kind of irrational reactionary feeling that comes out of nowhere. You aren’t sure why but certain people or topics or phrasings set you off. Maybe you know why. “Oh that reminds me of my overbearing mother or absent father” you might think. But as feelings are not facts, being rational can only help so much.

So I will do what I can to address the person, or in the case of social media the audience, with language and framings that work for who they are and where they are at emotionally. But I always hold onto my truth and my boundaries. Showing empathy means you can be present for someone you disagree with. And I hope everyone can see the value in that.

Categories
Culture Internet Culture

Day 771 and The Chaos In You

I’m a high school drop out. But in a sort of non-traditional sense. My first encounter with disability happened in the wake of living abroad as a sophomore. I found myself simply not attending my junior and senior years of high school. It was a complex situation.

My mother battled against teachers and administrators using the ADA and standardized tests as her weapons. The College Board as a series of 34 tests called the CLEP that gives you credit for having college level knowledge. It’s a very good short cut for self learners & autodidacts to get credit for what they know. And it’s way cheaper.

Between CLEP and AP exams I was able to provide a pretty convincing portrait of competence to both colleges and my shitty college preparatory school. It was enough to get me into university and to extract a high school diploma despite a record of non-attendance. Reasonable accommodation wasn’t really a thing at the time but you could bury the fuckers in paperwork. A tactic less ethical parents than my mother have surely realized by now.

I was a bit of an orphan in my class as I was quite frankly never there. What teacher could possibly vouch for knowing me? It’s because of this lack of attendance that don’t really consider myself a graduate since the diploma is merely function of testing out. A fancier version of getting one’s GED as it were. So when it came time for various teachers to do things like writing quotes for graduating seniors nobody wanted me.

My French teacher from my sophomore year (otherwise known as the year abroad) must have grabbed the short end of some straw as she ended up having to say some shit about me and opted for the Nietzsche dancing star pablum.

One must still have chaos in oneself to be able to give birth to a dancing star

I felt terrible for her. She had to find a suitable quote for a troublemaker of the worst sort. I was institutionally non compliant. We hate when people have too much chaos in themselves. Sure culture is mostly made from outliers but don’t be too weird.

Sure dancing stars sound poetic but these days Nietzsche is just another coded message board signal for Leopold and Loeb Part 2 Ubermensch Trad Rad Cath Boogaloo. Naturally some of his current fans are fuck ups because institutional power is always going to push back against chaos until it proves profitable to absorb it. But it’s not always clear who will become absorbed into the mainstream as acceptable.

I’m a careful watcher of who is considered dissident as I’ve been that chaotic kid basically since I was born. I was protected from so much of the sanding off that comes from social acculturation thanks to my parents.

But it’s almost impossible to protect oneself entirely. Much of the work of going to therapy as been about recovering the soul of that chaotic child. I hope I’ve gained the skills to protect her from being beaten down any further.

Categories
Emotional Work

Day 770 and Worst Month

I beginning understand why February is considered the worst month. I don’t want to be misconstrued here as I love winter. I’ve been absolutely loving my snowy, sunny Montana winter. But a bunch of shit is going absolutely tits up wrong for people I love.

But like the viral video says, February is an honest month. Grandmothers end up in the hospital every day. Dogs get old and get put dow. The the circle of life happens every day. Jobs are lost and bills go unpaid every day. If they happen in July or over Christmas, we bemoan the bad timing. Layoffs at Christmas we say with horror! I guess February is better in some minds for bad news.

Maybe we need to come to terms with the fact that bad shit happens all the time. When it overlaps with something happy, like a holiday, we’d be upset that our holidays are ruined. And yet if they don’t overlap with anything nice we are sad that life is too bleak. What moments of cheer have we to enjoy in February but candy hearts and the Super Bowl?

The part of me in therapy is reminded that it’s me who decides when I’m a victim of a circumstance. Bad things are as common as good. It’s cold truth of life has always been that it’s filled with the greatest joy and love and the price for those things is the deepest pain. Nothing in this life is free.

Categories
Emotional Work Politics

Day 768 and Memory

I’ve not ever read Proust in its entirety, because what am I, an eternal being who exists outside of linear time? But, thanks to Wikipedia and university survey courses, I am familiar with its basic themes of memory and it’s frustrating insufficiency.

Anyways, when not pondering madeleines, I am often confronted by how resilient the mind is in protecting us from the horrors of the world. Memory is a very funny thing. As good a reason as any to maintain diaries or engage in hagiography, is that you’d be surprised at what you forget if you don’t write it down.

A doctor asked me to get a pelvic ultrasound. I surprised myself by saying absolutely not unless it’s an emergency life or death situation, I am not doing that. And she, in sincere surprise, asked me why not.

And, because I guess therapy works, I recalled a pelvic ultrasound from maybe 10-12 years ago. I’d been referred in to a specialist as there was concern about a uterine cyst. This doctor, a gentleman over 50 in the kindly white patrician archetype, who I did not know know, proceeds to tell me this won’t hurt a bit.

But it does hurt. I am screaming bloody murder. It hurts so much I cannot stop. He tells me he will call security unless I quiet down. I cannot and I am in tears hysterically trying to convey the pain to him. I pass out.

I had utterly suppressed the memory till today. It happened to coincide with my husband mentioning a think piece in New York Magazine about women who empathized with the Clare Danes character from Fleishman Is In Trouble. There is a profoundly violating scene around reproductive health and consent that culminates in dark emotional trauma.

And of course, because it’s happening to a striving insecure aspirant white bitch, it totally doesn’t count right? The internet is not sympathetic to whining Clare Danes types. Fucking Karens. It’s super cringe to consider where the system hurts you, because, you dumb bitch, you benefit more than anyone else except the men.

So I guess I am not surprised I had banished the experience of something bad happening to me at a doctors office, but you know, it was not so bad that I am allowed to complain about it. And that is how the patriarchy perpetuates itself. Shut up you are rich. Look at the skulls upon which your empire is built you witch.

What I’m saying is that maybe you need to remember who it is that benefits from you not remembering the pain. Who benefits from forgetting? And trust me they are very scared when you realize that you remember. Even the rich striving white bitches have scares from this system.

Categories
Politics

Day 740 and Immigration Failed Us Again

My second attempt at a securing a tourist visa for a friend failed this morning. If you’d have asked me a few years ago if I thought the American immigration basically worked, I would have agreed that, sure I thought it probably worked ok. No reason to think otherwise right? Phew I was wrong.

But after years of being humiliated over and over again by the state department for “the crime” of wanting a family friend to come visit us for vacation, I’ve never felt more ashamed of myself and my country.

I’m ashamed I was such a sucker. I thought we would still do the basic work of being a functional state. I’m ashamed that America treats people who want to visit us this badly.

We have well off, interesting, curious guests that want to explore our culture and spend their time & money seeing our land. We spit on our guests by turning away anyone who isn’t on a Schengen or ESTA waiver. You probably think that includes most people. I did. But we are wrong.

Only 40 of the 195 countries on the planet are granted travel visas without going through the visa embassy approval process. Most people have bad passports. Latin America, Africa, the Balkans, the former Soviet blocks and most of Asia have “bad passports” that require a tourist visa that requires years of waiting for appointments and almost assured disapproval at the Embassy.

I’ve never met a system so broken I couldn’t find a workaround. But here I am at the of my workarounds in tears at how I’ve let down my family and friends. The visa I’ve been helping with was denied a second time today after waiting since March for a second chance to re-apply. That first meeting at which we were also denied also took years of waiting.

And it is getting better. This round after flying to Prague, we got two minutes instead of thirty seconds in Frankfurt. In those minutes they still didn’t look at any of the materials prepared. Just a generic we don’t like the look of your people rejection. We got some boilerplate language about strong ties or weak ties and no we won’t read the 200 pages of supporting documents you brought.

I was a mess yesterday about how afraid I was we’d get down turned down again. But I thought surely I was being too paranoid. The lawyers we paid thought we had a good chance. We’ve brought everything possible for paperwork from mortgages to W2 forms. I’d taken personal financial liability for our friend. I let the government have an invasive look at our finances. I gave the consular offices the deed to my house. I worked for months to get a Congressional letter asking for a fair review of the application. None of it was reviewed.

Now in the aftermath, I’m not even sure if it’s possible to get a consular officer to do a fair review. Our congressional representatives wrote the consular office and they send back boilerplate with no details. No one reads the applications I guess. We can apply again. And again. But would good would it do?

Categories
Uncategorized

Day 739 and Immigration Anxiety

My family has been working on a visa for a friend to come visit us in the United States. It’s felt like the longest 2 years of everyone’s lives. I had no idea how broken our visa and immigration system ones until we tried to invite a family friend with a bad passport on vacation to America.

Sure the pandemic distended wait times into bulging impossible monstrosities, we pushed simple state department work into an impossible task. But it’s not just the broken bureaucracy at play. It’s a system so broken by it’s own disdain and lack of resourcing, your only hope is the grace of God.

If you tried to arrange a tourist visa for someone from the global south you’d find the next available appointment for a tourist visa was three years down the road. And this was after the borders opened up after the pandemic got to be too much trouble. It only got worse from there. I quickly become shocked at how impossible it is to travel to America if you aren’t on a Schengen passport from Europe.

I’ve been working on this seemingly intractable problem for well over two years. We are on our second embassy appointment. The first visit was in Frankfurt in March where it was immediately turned down without the officer even looking at the paperwork. Thousands of dollars and endless time lost to a random bureaucrat in thirty seconds.

And you aren’t even allowed to ask them to take another look as they could ban you on the spot. I cried I was so humiliated after seeing that first refusal. How could America be so broken? We did everything right and it didn’t matter. Kafkaesque doesn’t begin to describe it.

Apparently the American state department treats a visa like a Rabbi handling a conversion. It took another 10 months to schedule a follow up appointment in Prague. Our friend’s home embassy has a three year wait so we’ve been going to European embassies to avoid needing to pay a bribe for an appointment in his home country. Legal immigration is much harder than illegal immigration.

So we planned a trip to Prague. And now the appointment is tomorrow. And I’m terrified. I’m despondent. I’ve done everything right and I have no idea if we will succeed. And it’s not even a visa for me. I can’t imagine how they feel. To be treated as if you are a criminal when all you want to do is visit friends and spend money in a other country.

I’m almost embarrassed how invested I’ve become in making this work but I will not allow myself to be beaten by this system. Guests do not deserve this humiliation and America is my house.

Mind you this is for a tourist visa not a work visa or a green card. This is just for coming to enjoy tourism and spend time with friends and family. Tourism is an important part of the American economy. Especially where I live in Montana. The whole world wants to see Yellowstone.

The entire process has been so humiliating for everyone involved. As the sponsor of the visa I filled out a form called an I-134 where I had to prove my net worth, my home ownership, my income, my job and compensation. I accepted personal financial responsibility for them.

This after being instructed that our guest must show strong ties to their home country and a minimum financial independence of their own. They had to show their home ownership, car deeds, work pay stubs & tenure at the company, not to mention guardianship and primary care responsibilities for their grandmother among many other invasive questions. The paranoia of visa overstays has made it so no one can get a tourist visa at all.

All this humiliation be granted the privilege of spending wealth in America as a tourist. It’s beyond insulting. It only gets worse for each step down the line if you want to work or live in America.

If you’ve ever wondered why we don’t have more legal immigrants this is why. Insofar as I can tell there are two ways to get to America. Illegal crossing and you pray. Or tens of thousands of dollars and years of waiting and you pray. Oh and you probably only get to come if you do it illegally. It is a crisis in every sense of the word.

We’ve spent tens of thousands of dollars, weeks of time on the ground in foreign countries and it has gotten us no where.

We’ve also called in everyone type of favor and access we could find. A privilege most lack. Our constituent services office at our Congressional office has been amazing. They submitted a letter asking for a fair review.

If the hundreds of pages of professionally prepared paperwork, the millions of dollars of financial assets and a congressional letter of fair treatment simply aren’t enough, I wouldn’t be too proud to go crying hat in hand to the ambassador to please consider our case. All we want to do is have a family friend granted the freedom to travel. I’ve got no idea where to turn if it isn’t granted.

I’m so anxious and depressed now that the culmination of so many years of work is coming down to one short interview tomorrow, over which we had no control. I’m mess. I’ve let it get to me.

I cannot fathom what else we could do. If millions of dollars of assets, a by the book legal case, multiple political appointees vouching for us and a good faith effort to show our personal responsibility aren’t enough, than what is enough for America?

My fear is nothing will be good enough and I will be despondent in tears tomorrow by 11am. And I pray I have the strength to fight on if it happens. Because I believe in America and I will go to the mat to bring more people to see it’s splendor. Empire’s end won’t happen on my watch without a fight.