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Medical Preparedness

Day 630 and Sympathetic Nervous Response

One of the downsides of having any kind of medical bullshit is having to keep an eye on yourself. If you over do shit you’ve got no one to blame but yourself.

I’ve been doing a wilderness medical incident first responder course this week. I initially went into it slightly concerned with my ability to physically keep up given my ankylosis. I was easily the odd duck out in a group of former military folks, paramedics and wild land firefighters. If I’m honest I didn’t want to embarrass myself by showing too much frailty. I was already the only woman in the class. I didn’t need to be the cripple on top of that.

But over four days I’ve managed just fine. I did wound packing and splints. I did a number of incident scenario responses ranging from anaphylactic shock to heart attacks. I even did multiple mass casualty response drills. Today I managed one as a triage incident deputy and comported myself quite well.

I was feeling pretty cocky about how well I’d managed through the week. I was enjoying that sense of accomplishment right up until 5pm or so today when we had our last assignment of the day. We’d just finished up a drill with five patients who had been caught in a tornado. It was an hour of field work and triage outside. I was thinking alright maybe I’m getting the hang of thing. But no I was about to embarrass myself on one of the easiest tasks in the course.

It was time to pack up our own medical kits. We got a big baggie with all the supplies we could possibly need for our our first aid kits and dumped it out on the desk. Our instructor began going over all the items and how to pack them up into the bright orange brick that serves as your kit bag. I was doing my best to follow along but my brain was just not having it. I kept trying to figure out what items went where and how it was meant to go. And I was not remotely keeping up with the class or the instructions.

I’m starting to feel overheated and I’m struggling to concentrate. And it’s then I realize “oh shit I’m in a bunch of pain” and I realize I haven’t taken my pain medication for hours and it is starting to show. I just ran around in a big field doing triage for an hour. So I think to myself well I’m having a sympathetic nervous system spazz out. The pain and fatigue is sending me into fight or flight and I’m losing decent coordination and fine motor skills. I am becoming one of my own patients.

I didn’t finish packing out my kit. I had to excuse myself. I briefly considered if it would be funny to have a medical incident in a first responder course. But I was fully capable of treating my own acute stress response. I was getting worked up by an inflammatory response from my ankylosis and low and behold the pain in my spine was going to spike.

The end of the story is that I’m in bed and the non-steroidal anti-inflammatory drugs have kicked in. My pulse and respiration are fine. I’m no longer in fight or flight. And yes I’m a little embarrassed that packing a bag is what did me in. But on the other hand, that’s a very “Julie” way to learn a lesson.

Categories
Medical

Day 625 and Shitty Day

I had a shitty day today. Not as in I had a bad day. Although it wasn’t great. I literally had a shitty day. I’m on a combination of medications that just do not agree with my gastrointestinal tract.

I am supposed to avoid fatty foods and also somewhat inexplicably dairy. One of the antibiotics I am on says do not take within an hour of any dairy product or something with a lot of iron.

Maybe it was the croissant. Perhaps it has too much butter. Maybe it was the splash of milk in my coffee. Or more likely maybe getting Chipotle for dinner last night sealed my fate.

Either way I spent the day getting close with porcelain. A lot of time was spent over heated and miserable on nice cool bathroom tiles. I prayed for it to let up but I had maybe six hours of misery

My tongue feels so dry it’s got the texture of a kitchen sponge. I am trying to rehydrate myself but I am still modestly afraid to do more than a few sips of a rehydration solution. What I wouldn’t give for an IV bag of saline salts and Zofran. But since I don’t I’m just going to curl myself around a coconut water and my rehydration fluids and tap out for the day.

Categories
Emotional Work Uncategorized

Day 623 and Pausing

I am feeling a bit anxious about back to work season. I’ve traditionally had a terrible relationship with work. I’m a workaholic and struggle to pace myself effectively. I particularly love riding on the zeitgeist of a season like the fall as “everyone” is back at the grind and I like to ride the energy of the moment.

But I also need more frequent and shorter pauses than the American work week or season has ever allowed. I’ve always been afraid to take them because I fear being seen as lazy. “Only the morally weak rest” is a truism of English and Germanic lineage well prior to the Reformation. Though that’s kind of an aristocracy needs the serfs working thing.

But Protestant Work Ethic aside, I’m not really cut out for hustle culture. Being disabled, even modestly with something my spondylitis, is like the double whammy of being weak and lazy. I need to maintain a different schedule because I cannot overcome the foibles of my own body? That’s an affront! I’ve got a lot of self talk that basically goes like this

You soft feminine pathetic weak bitch get your ass back to work.

Me to myself. Sadly.

Does someone have internalized issues with feminine cycles? Oh yes she does! I guess it’s not just being lazy but it’s being female and a waste of productive worker all in one body. Super fun! And yet here I am a libertarian and I work in finance. Square that circle my friends.

Capitalism has enjoyed patriarchal structuring because it allows us to categorize the inconveniences of bodies that are harder to regulate. Women in the workforce was a pain in the ass until we figured out chemical birth control I’ve got to assume.

But all these legacies of who is worthy and who is strong and who is valued are kind of bullshit constructs. I can take what serves me. I don’t need to get all up in my head about having a less productive body because who even set the damn standard right?

So I am reminded I can pause without crashing. I choose to pause at my own leisure. I can choose to self nurture so I operate from my own point of maximum strength. I have to chose to pause. A pause is not is weakness.

A pause is like the ocean cresting before the wave breaks. And I can choose to ride that momentum. This is all a part of my own work on not just surviving the current moment but thriving with optimism. It’s peace from strength. While I recognize and even ride the chaos outside, I do not feel chaotic inside.

Categories
Aesthetics

Day 619 and Indoor Clothes

I have one issue on which I am a little obsessive compulsive. I hate when someone wears dirty clothes on a clean bed. It just drives me absolutely up the wall.

I suspect this is born of some totally rational preferences. I am very outdoorsy and always have been. As a child I spent as much time as I could negotiate at the barn. I worked as a stable hand as part of keeping my own horse’s board and feed paid. If you’ve ever kept animals or worked on a farm you know how barn clothes smell at the end of a long day. You don’t wear your barn clothes except when you are choring. It’s rude.

Then when I left Colorado for New York City I found another reason that your work clothes should be taken off at the door. Instead of smelling like manure, urine and stale sweat after a long day mucking stales you’d smell like shit, piss, the subway and traffic exhaust. City smells are no more polite to bring inside than barn smells. Getting splashed by a cab or sitting too close to someone who hasn’t showered in a while on the subway is just normal life in a city.

You can probably imagine now a routine in which I take off my outdoor clothes and swap them for my clean indoor clothing. I try to do this as fast as is possible. I can’t fully relax unless I know I’m in my indoor clothing. Because unless I’m clean I cannot get into bed. And there can be no dirty clothes on clean beds.

I simply will not let myself even get on top of the comforter of my bed with outdoor clothing on. If I want to get under the covers and fully relax at home, I better be in clean designated “indoor clothing.”

It still upsets my brain when I see a teenager on television lounging on their bed with shoes and jeans on. Maybe suburban sitcoms neighborhood are a cleaner environment than the one I grew up in?

Or when an adult couple is about to get it on and then tumble into bed with their coats and jackets and high heels. I just hate that. I shudder. I don’t want to bring dirt and shit into my love making. Sorry it’s just my preference no shame if that’s your kink. But absolutely not in my house.

I’ve finally fully trained my husband on this quirk. He keeps a clean set of pajamas to change into and is careful to keep barn clothes to the barn. As for me, I like this quirk. I keep a cleaner house because of it. Sure it’s a little weird but I love a nice clean safe place.

Categories
Culture Politics

Day 610 and Labor Day Weekend

America isn’t much for holidays compared to say Europe. The Chinese outwork us with 996 but by and large Americans are a people that work. Paid time off isn’t really our thing. Well, it’s not something that capital is keen on allowing labor to have as a thing.

But you can rely on Memorial Day and Labor Day to act as the basic bookends of summer and as days you should have off from work. I find it a bit comical that we have a holiday celebrating the labor movement. You’d think we would have rolled it back with the Reagan Revolution. But Labor Day is the summer ending day off we all know and love even if we killed most of the unions.

Ive got labor on my mind as I’ve taken all of August to move my family to Montana this summer. Most of my energy went into getting us here and settled. The month flew by. It still feels like I have so much left to do. And not just because we still don’t have a dining room table or a mirror in the bathroom suitable for doing makeup. Getting unpacked is a process.

I’m slowly readjusting my mindset back to a workflow that includes labor outside the home. Well, I still work from home. But labor with other people beyond my family. Calling it labor is a bit funny in the context of Labor Day as my labor is working with capital I suppose I’m allowed to celebrate Labor Day as the spiritual placeholder for back to work season even if I am technically “the man.”

Categories
Biohacking

Day 606 and Recovery

As you might know, biohacking is more than just a hobby for me. It’s the way I keep on top of any remaining chronic health challenges. In particular, I love how my Whoop helps me pinpoint where I am between strain and recovery.

I had absolutely stellar recovery scores last week even as I pushed my strain significantly. I was “in the green” which meant I was getting enough rest to recover from all my activity. But I’ve had a few days of yellow “warning” recovery scores that suggest I may need extra sleep and less activity strain.

I felt it this morning when I had some anxiety hit me hard as made a run to the grocery store. If I am feeling particularly tired I can easily let myself get anxious and overwhelmed if I don’t feel I’ve got the space and time to recover myself physically. I was racing against the clock to get lunch for everyone (both Alex and our house guest) hoping I’d be home within enough time for making meal and taking shower before my usual Monday therapy power hours.

I was thus quite relieved to find that therapy was canceled. A little end of summer reprieve. All the rushing to get things done went poof as did any remaining anxiety. I didn’t need to push. I could pay attention to my recovery. I was now free to heed the edicts of the Whoop. I hope this bit of good luck puts me into the green tomorrow.

Categories
Aesthetics

Day 603 and Summer Vacation

It feels like I’ve always disliked summer. I suspect people like it because of it’s association with vacations. But I find neither summer nor vacations to be that appealing individually or in conjunction. What is there to like about heat, ozone pollution, and fire season? And then you want me to add travel and disruptions to my routine? I’m skeptical.

This is probably more a reflection of how much I’ve come to hate the intense heat associated with climate change in the west. Heat domes that keep the temperature over 40 C for weeks and their associated forest fires are the stuff of nightmares. But I don’t recall looking really forward to summer breaks as a kid except for the ones that were spent at an ashram. I enjoyed all of the meditation and yoga. But otherwise summer was just a weird time when I was mostly alone.

So it’s a bit of a surprise to feel like I’m having a summer vacation and I like it. I promised myself I’d take off all of August so we could really settle into our new homestead in Montana. I didn’t expect it to feel particularly relaxing as we have a chore list a mile long. It was meant as a different kind of working summer.

But I feel like I’m having the best summer vacation of my life. The weather is lovely and cool at the moment. The food is spectacular. All cherries and steaks. I’m spending a lot of time outdoors just by walking around the neighborhood. I’ve got time to workout. We installed a full lifting cage in the barn. I’m getting plenty of sleep. My Whoop is entirely green except when I push because I want too. My time is entirely spent on personal projects. Maybe this is what people have been raving about?

Categories
Biohacking Chronic Disease

Day 601 and New Limits

The past couple of days have been super intense. Heck, the past month has been a lot. I passed out last night with my phone in my hand a bit after 9pm and woke up well after 8am this morning. My Whoop indicated I had high strain for the past two days and needed more recovery.

Still I went about my usual routines but soon found myself yawning and struggling to keep my eyes open after eating lunch. I felt lucky I hadn’t scheduled much today. I got back into bed figuring I would read a little bit. I kept drifting off. So much for being productive this afternoon.

One of my biggest fears is doing too much. Because I’ve been a workaholic in the past, I have a lingering sense of unease anytime I can tell I’ve been pushing myself for a few days. It used to be that my body would simply crash if I applied too much pressure, but as my health is at about 80% improved from my initial diagnosis I can no longer rely on such direct feedback.

I say that like it’s a bad thing but it’s a huge relief that I can modestly over do things and not immediately find my body crashing into a rest period. But it also means I have to be much more conscious of my own needs for rest and recovery as it’s no longer quite so obvious when I’ve done too much. This represents both a huge achievement for me and also a transitional moment in which I must find new boundaries.

Categories
Aesthetics Travel

Day 600 and High Season

A lot of folks seem to be coming through Montana over the next two weeks. Maybe it’s the nature of high season that people flock to Montana at the end of the summer?

But it’s been quite fun to have all kinds of friends, mutuals and acquaintances reach out to make plans. Visibility on Twitter has played a large role in this, as anyone passing through Montana might be inclined to grab a meal or a drink if they scroll their local mutuals. I like to think I am top of mind because I am a good hang but it’s probably because I’m just quite visible.

All these tourists has got a bit of a “center of the universe” feel to it. It’s like a mountain summer town version of Manhattan during fashion week. Or Los Angeles during the Oscars. I’ve got to say it feels like I’m Monaco and it’s F1 racing season. Every city of note has an event that brings all of the jet set to their hometown.

I’m usually mixed on doing too much social activity but I’ve been feeling like socializing more. I’ve even been eating out with much more frequency. And what’s amazing about it is that in the past I didn’t want to do more than a couple events a month. But this end of summer in Montana thing has me looking forward to more deck cocktails, eating cold cherries on the marble kitchen slab, going to pubs and ale houses, and maybe even a few steak houses too.

Categories
Chronic Disease

Day 591 and Normal Sunday

Having a modest disability like chronic pain (I have a form of arthritis in my spine) means I can’t always be physically active for an entire day. I need to lay down flat sometimes to relieve pressure on my spine and I can be fatigued from the persistent pain. It’s something I have to work around even if it’s not completely debilitating.

I’ve worked hard to control the disease. But it has meant a lot of days where normal activity had a poor return on the energy invested. If had a day where I was on my feet for hours at a time I’d probably pay for it the next day with extra time laying down. So I try to limit unnecessary activities.

I’m giving a lot of context that might not be necessary for regular readers of this daily chronicle that know me. But it’s not always easy for me to do what normal people take for granted. Imagine a day where you wake up, shower, cook and clean up after yourself, you go to work, you run some errands, you exercise, you come home to cook and clean some more, you care for your family and maybe you enjoy a hobby. A regular day.

I named ten activities you do without thinking. If I want to avoid hurting myself or using too much energy in one day, I have to pick two or three of those things. You might not be surprised to learn I pick showering, work and my health routines.

If I’m having a good day, I can add on additional activity or two. But it’s probably something I can do laying flat on my back. That’s how Twitter became a central nexus for socializing if you are curious.

So having given paragraphs of context I hope it allows you to understand my excitement about having an absolutely normal Sunday. This morning got up. I made food for myself. I went for a forty minute walk. I did my entire biohacking routine. I went to a nursery to see about some options for the orchard. Then I went to the grocery store with my husband and we did the shopping for the week. Then we did some chores on the new homestead. A truly astonishing about of activities for someone like me.

And even after all activity that I felt well enough for a long shower (often a painful activity as hot water swells my joints). It’s 5pm and I’ve been up and about since 8am and only laid down just now to write this post. And someone I feel totally fine.

Shortly I’ll be cooking mushroom risotto for Sunday dinner. My husband is the cook of the family but for some reason Arborio rice is his nemesis. He’s never made a decent risotto in all the time I’ve known him. Typically after a day with this much activity I’d never even consider cooking. But I’m having a normal Sunday and doesn’t it sound nice to make something a little more involved to eat?