Categories
Chronic Disease

Day 621 and Pain’s Anxiety

Before I was diagnosed with my spinal condition ankylosing spondylitis, I didn’t really understand that I was in pain. I know that sounds weird, but I just knows I felt like shit. I hadn’t yet pinpoint the origins of the crisis in my own body. I was a stranger to myself.

Back then getting a diagnosis involved a lot of questions about my mental health. Are you anxious? Would you consider taking an anxiety medication just to see if it help? Are you sure it’s not all in your head? No doctor I’m not sure of anything that’s why I’m asking you.

The thing is I did feel anxious. My central nervous system was in a perpetual state of fight or flight from the pain. I had tachycardia. I was twitchy. I wasn’t a sleeping well. I didn’t want to be touched. It hurt too much. I was exhausted all the time and felt overwhelmed that no one seemed to know what was wrong with me. I’m lucky no one asked me if I was depressed or I might have been put on Prozac.

I’m one of the lucky ones. My chronic disease has a simple blood panel and physical exam to diagnose it. It only took me a few specialists to get to a rheumatologist.

I fear I would have been given an anxiety diagnosis and told it was all in my head if I’d had something more complex. But thankfully we untangled that any anxiety or depression I felt was simply a function of being in an inflammatory condition so acute every movement was painful. You’d have a racing heart and a fear of movement or touch too if everything was painful to the touch

The thing is I am scared of my pain. I do regularly get caught in fight or flight fear responses if the pain appears and I’m not prepared for it. I am militant about certain aspects of self care and my biohacking as I fear flares. I fear the drugs that are required when it isn’t controlled. It makes me anxious to need drugs at all to control my symptoms. Especially in America where a war on drugs has made it hard to need anything stronger than Advil.

Everything about pain and it’s treatment is anxiety inducing in America. And that’s a hard comorbidity to live with in a disease. As if pain wasn’t enough, the latent fear that you might not be believed lingers.

Categories
Aesthetics

Day 619 and Indoor Clothes

I have one issue on which I am a little obsessive compulsive. I hate when someone wears dirty clothes on a clean bed. It just drives me absolutely up the wall.

I suspect this is born of some totally rational preferences. I am very outdoorsy and always have been. As a child I spent as much time as I could negotiate at the barn. I worked as a stable hand as part of keeping my own horse’s board and feed paid. If you’ve ever kept animals or worked on a farm you know how barn clothes smell at the end of a long day. You don’t wear your barn clothes except when you are choring. It’s rude.

Then when I left Colorado for New York City I found another reason that your work clothes should be taken off at the door. Instead of smelling like manure, urine and stale sweat after a long day mucking stales you’d smell like shit, piss, the subway and traffic exhaust. City smells are no more polite to bring inside than barn smells. Getting splashed by a cab or sitting too close to someone who hasn’t showered in a while on the subway is just normal life in a city.

You can probably imagine now a routine in which I take off my outdoor clothes and swap them for my clean indoor clothing. I try to do this as fast as is possible. I can’t fully relax unless I know I’m in my indoor clothing. Because unless I’m clean I cannot get into bed. And there can be no dirty clothes on clean beds.

I simply will not let myself even get on top of the comforter of my bed with outdoor clothing on. If I want to get under the covers and fully relax at home, I better be in clean designated “indoor clothing.”

It still upsets my brain when I see a teenager on television lounging on their bed with shoes and jeans on. Maybe suburban sitcoms neighborhood are a cleaner environment than the one I grew up in?

Or when an adult couple is about to get it on and then tumble into bed with their coats and jackets and high heels. I just hate that. I shudder. I don’t want to bring dirt and shit into my love making. Sorry it’s just my preference no shame if that’s your kink. But absolutely not in my house.

I’ve finally fully trained my husband on this quirk. He keeps a clean set of pajamas to change into and is careful to keep barn clothes to the barn. As for me, I like this quirk. I keep a cleaner house because of it. Sure it’s a little weird but I love a nice clean safe place.

Categories
Politics

Day 617 and Overnight

I plowed through a bunch of choring yesterday. Which apparently tuckered me out. I took maybe an hour nap before dinner. I had a little extra CBD beforehand and found myself drowsy as hell. I passed out sometime around 8:30pm.

Alas the napping and the early bedtime, if you can call just utterly losing consciousness “bedtime,” had consequences. I came to around 1am and found myself wide awake. Oops.

At first I wasn’t quite sure how to approach this unexpected moment of being lucid and energetic in the middle of the night. I toddled over to the bathroom to pee. I crawled back into bed. I debated if I should try to force the issue with an Ambien. But I didn’t have anything in the morning so I thought maybe I should take those sleep hygiene folks seriously and just do something till I get tired.

Of course, the thing I decided to do was read on my phone. I cleared a few back logged essays from my collections on my favorite reader app Matter. I logged into Bloomberg to check pre-market sentiment. I opened up the New York Times and read Queen Elizabeth’s obituary.

Around 2am it seemed clear I wasn’t sleepy at all. Whether from the back lighting of my phone or the five hours of sleep I’d logged earlier. So I said fuck it and opened Twitter. I dig deep into the feuding discourses of “God Save the Queen” versus the survivors of British empire. Monarchists loved their kindly grandmother and the Irish did their best to be polite about the genocide of it all.

If the sun never sets on the British Empire the doom scrolling through the celebration of the end of the longest reigning monarch seemed like the way to go out. But unsurprisingly there was a lot of darkness to be found in the pre-dawn sentiment. I tweeted a reminder to myself to explore how enclosure movements and anti-colonial “fuck the federales this is our land” historical context plays into the American political moment.

Eventually I got drowsy. I feel asleep around 5am just as the rest of the country was waking up. I slept till 9am or so.

Categories
Internet Culture

Day 615 and Look Back

I recommend having habits from which one doesn’t deviate. I’ve come to appreciate how much the daily exercise of writing has come to provide a kind of scaffolding on which I hang the rest of my day.

But it can be easy to get lost in a habit too. I had originally started the act of daily writing as the habit. But I sometimes forget that there is more I can do on top of the foundation I have laid over these past eighteen months. I could integrate more of my past writing into the daily writing. I could do more to make it visible. I could do more to make it accessible. I could do more to make it durable. Perhaps now that writing every day is a firm habit I can expand on it.

In that spirit I am doing a little link round up on what might warrant a look back. A few posts that I thought were particularly good. A few posts that reflect some of the zeitgeist that I am digesting. And a throwback that some of my internet friends reminded were worth while.

The Thursday Styles Problem is probably one of my favorite essays. It’s about who knows what when and how that power flows.

I did a few write ups about masculinity and the internet. Two are about groypers. One is about cucking in the imagination of the American conservative. Or be careful as you can absolutely get brain worms from the internet.

I also had an essay on doing errands and the reality of living your daily life in a time of collapse. It pairs well with this bit about shrinkflation and consumer packaged goods.

Categories
Emotional Work Preparedness

Day 613 and Timing

It’s hard to look straight on at your desires. Why is it that some of your life arises from your priorities and focus, but others are just chances and circumstances?

The hardest part about looking face first at being responsible for yourself is that you are both in total control and not in any control. We want to live with willpower. We want to be people of purpose. And yet life is happy to show us how much it’s all just dumb fucking luck.

Because we are what we make time for in our lives. And if we don’t make honest time for ourselves how the fuck will we ever know what we actually want. If you let life idle past you that’s fine. Because that is the path of fulfillment all along. And in letting ourselves just be maybe we find entirely new reservoirs of resources.

I’m considering taking a wilderness first responder course. I’ve got other priorities for the fall but I also made a commitment to a resilient rural life. Somewhere in my own desires I may find that what I want can and does align with the rest of my life. That by opening up to something new I also see who I am more clearly. I believe they call it getting perspective.

Categories
Politics

Day 609 and Dark Brandon Rising

I really don’t know why I’m commenting at all on it except that capturing some of immediate sentiment of the moment has some value. But I watched Joe Biden’s Soul of America speech.

I wasn’t planning to but the siren call of the Twitter feed sucked me in. Like the rest of America, I feel the call of the discourse. And I have to say I’m surprised yet again at how divergent it feels.

I saw Dark Brandon Rising memes come to life. Our usually stumbling gaff prone president was on fire. Literally as the background was red. I want to know what they pumped him up with. And I don’t think it was a playlist. But he seemed passionate and he made as decent a play for the values of democratic norms as I’ve ever heard. But he also did it on a red lit stage with marines and the imagery of the presidency and norms means pearl clutching from all sides.

I don’t think it’s bad to call out that Trumpism involves election denialism. January 6th has a clear message even if it lacked finesse. It’s not like we are seeing Americans at their best after two years of pandemic. I suppose I recognize that it’s insulting and maybe insidious to say that some people are worse than others. But differences of opinions become a bit less valid when one wants representative democracy and one acts like brute power is fine if it serves their interests.

I felt like it came across decently and relatively unifying and I’m sad that this is a position that is contrarian or in dispute. I’m no fan of the man but I also don’t want to become Argentina or Albania. America is supposed to be better.

Categories
Biohacking

Day 606 and Recovery

As you might know, biohacking is more than just a hobby for me. It’s the way I keep on top of any remaining chronic health challenges. In particular, I love how my Whoop helps me pinpoint where I am between strain and recovery.

I had absolutely stellar recovery scores last week even as I pushed my strain significantly. I was “in the green” which meant I was getting enough rest to recover from all my activity. But I’ve had a few days of yellow “warning” recovery scores that suggest I may need extra sleep and less activity strain.

I felt it this morning when I had some anxiety hit me hard as made a run to the grocery store. If I am feeling particularly tired I can easily let myself get anxious and overwhelmed if I don’t feel I’ve got the space and time to recover myself physically. I was racing against the clock to get lunch for everyone (both Alex and our house guest) hoping I’d be home within enough time for making meal and taking shower before my usual Monday therapy power hours.

I was thus quite relieved to find that therapy was canceled. A little end of summer reprieve. All the rushing to get things done went poof as did any remaining anxiety. I didn’t need to push. I could pay attention to my recovery. I was now free to heed the edicts of the Whoop. I hope this bit of good luck puts me into the green tomorrow.

Categories
Aesthetics

Day 603 and Summer Vacation

It feels like I’ve always disliked summer. I suspect people like it because of it’s association with vacations. But I find neither summer nor vacations to be that appealing individually or in conjunction. What is there to like about heat, ozone pollution, and fire season? And then you want me to add travel and disruptions to my routine? I’m skeptical.

This is probably more a reflection of how much I’ve come to hate the intense heat associated with climate change in the west. Heat domes that keep the temperature over 40 C for weeks and their associated forest fires are the stuff of nightmares. But I don’t recall looking really forward to summer breaks as a kid except for the ones that were spent at an ashram. I enjoyed all of the meditation and yoga. But otherwise summer was just a weird time when I was mostly alone.

So it’s a bit of a surprise to feel like I’m having a summer vacation and I like it. I promised myself I’d take off all of August so we could really settle into our new homestead in Montana. I didn’t expect it to feel particularly relaxing as we have a chore list a mile long. It was meant as a different kind of working summer.

But I feel like I’m having the best summer vacation of my life. The weather is lovely and cool at the moment. The food is spectacular. All cherries and steaks. I’m spending a lot of time outdoors just by walking around the neighborhood. I’ve got time to workout. We installed a full lifting cage in the barn. I’m getting plenty of sleep. My Whoop is entirely green except when I push because I want too. My time is entirely spent on personal projects. Maybe this is what people have been raving about?

Categories
Preparedness

Day 602 and Doing It

I never had a wedding so I missed out entirely on “you did a big thing” gifts. City hall weddings don’t inspire Boomers to open their wallets as it turns out. But buying our first home seems to have triggered a celebratory mood amongst our nearest and dearest. People are happy for us.

While we don’t have a gift registry (though maybe we should), I’ve been impressed by the thoughtfulness with which our friends have approached our house warming.

One of our friends sent a card that perfectly captured the intensity and joy of the situation.

“There is no better feeling in the world than than going from ‘wondering if you can do it’ to realizing you’ve just done it.”

I assume this was some kind of Hallmark graduation card but it really did capture some of the awe of the moment. Having spent 18 month searching for a homestead I’ll admit I wasn’t entirely sure when we’d actually graduate to the “just done it” phase. It sort of happened all at once when we stumbled onto a property that met every single one of our criteria.

We took a very research intensive approach to deciding on where to live and what to invest. Maybe it was the founder mindset that plagues both my husband and, I but we just couldn’t help but do an aggressive deep dive into all the variables. Some people move on vibes but we needed the numbers to back up the feeling. Checking the math is probably a good habit.

It’s a relief to get to the “we just did it” phase though as with any long play you find yourself wondering if it’s all just an elaborate fantasy. In an age of quick fixes and instant gratification, the slow roll isn’t that glamorous. Trusting that your preparedness will positive yield action is hard. Trusting that you will act when your preparation are needed feels even harder. But here I am. Having done the thing.

Categories
Aesthetics Travel

Day 600 and High Season

A lot of folks seem to be coming through Montana over the next two weeks. Maybe it’s the nature of high season that people flock to Montana at the end of the summer?

But it’s been quite fun to have all kinds of friends, mutuals and acquaintances reach out to make plans. Visibility on Twitter has played a large role in this, as anyone passing through Montana might be inclined to grab a meal or a drink if they scroll their local mutuals. I like to think I am top of mind because I am a good hang but it’s probably because I’m just quite visible.

All these tourists has got a bit of a “center of the universe” feel to it. It’s like a mountain summer town version of Manhattan during fashion week. Or Los Angeles during the Oscars. I’ve got to say it feels like I’m Monaco and it’s F1 racing season. Every city of note has an event that brings all of the jet set to their hometown.

I’m usually mixed on doing too much social activity but I’ve been feeling like socializing more. I’ve even been eating out with much more frequency. And what’s amazing about it is that in the past I didn’t want to do more than a couple events a month. But this end of summer in Montana thing has me looking forward to more deck cocktails, eating cold cherries on the marble kitchen slab, going to pubs and ale houses, and maybe even a few steak houses too.