Categories
Emotional Work

Day 515 and Rules

I’d never really thought of myself as a rules follower. I wasn’t a particularly troublesome kid but I had a healthy disdain for authority. I made a lot of teachers really miserable and confused the fuck out of my parents with some fairly radical choices.

And to my parent’s credit they just absolutely rolled with the punches. My mother was a champion at the sport of coping with teenage girl shit. Which lets be real should absolutely be an Olympic sport.

But I do think I give way more deference to social mores than I fully appreciated. I’ve got plenty of shame about how I’m not doing things right and that I’ll be judged by everyone for utterly failing. So I try to abide by certain expectations so that I won’t be judged.

I’m sure this is wild to plenty of people that know me who don’t see any of this shame or fear. I’ve got a big loud public persona. Im a shitposter. I’m not exactly going along with a lot of popular opinions.

But I am still strangely really worried about being seen as too radical, too much, too angry, too crazy, too weird. I don’t want to follow all the rules but I am afraid I’d I deviate too far something bad will happen. Though what I am not entirely sure. And that’s probably an assumption worth questioning for all of us.

Categories
Emotional Work

Day 514 and Get Your Mind Right

Back when I was in my twenties Gawker was at the height of its power to anoint local stars in New York City. There was one personality I just thought was the funniest and most incisive judge of the human condition. She was woman whose slogan was “Girl, Get Your Mind Right!”

Tiona Smalls had a column on Gawker and eventually turned it into a burgeoning self help empire with tv shows and books. It looks like she is now a realtor so maybe internet game is fickle. I didn’t see any of her later pop culture work. But I did read her Gawker column religiously. I liked her no nonsense attitude.

The premise of her first book, which landed her the Gawker column, was that you’ve got to stop doing shit that isn’t getting you what you want. Hence “girl, get your mind right.” It was nominally a dating advice book. I mostly took it as a basic kind of self help.

I feel like I could use Tionna right now. I’m just emotionally so fucked by the last month. Granted I’ve made some pretty major life decisions in the last thirty days but it doesn’t feel like I should be so wrecked. I am absolutely blaming the flu for kicking up chronic inflammatory shit. Watch out for long Covid folks! Viruses have a weird tendency to go latent. But like really being sick isn’t an excuse to have a bad mental state. I’m practically professionally sick so this shouldn’t phase me.

I’m thinking of maybe going to Europe for a bit. Enjoy that the turmoil in the markets means things are a bit slow for work. While everyone figures out how much to freak out about a recession I might as well reset my central nervous system with some down time. But whatever happens I’ve got to get my mind right.

Categories
Chronic Disease

Day 513 and Pain Myopia

It’s a testament to how excellent my health has been for the past five months that I’m absolutely indignant about feeling shitty today. Last year feeling shitty wouldn’t have been a surprise. It was more like my default to be in constant pain.

Today my brain was fogged, my energy was low and much of that is tied to my pain being just unrelenting. I’ve been riding between seven and ten on a ten pain scale for the past two weeks. Infections tends to set off all of my chronic issues. My pain is tied to the legacy of old illness. If you think long Covid is bullshit, I can assure you that many significant infections leaves behind post-viral bullshit that can fuck your long term quality of life.

Pain is a steady companion in my life. In five hundreds blog posts I’ve mentioned pain ninety four times. Even I’m a little astonished looking at that number. Twenty percent of my life has the dark overhang of pain. I’m in pain more than that, I’d wager it’s about half of my life if my logs are correct. But 20% is about right for when pain is so present it’s at the forefront of my consciousness.

And that’s with assiduously managing it through medications, lifestyle and nutrition. But to realize that pain on the forefront of my mind 20% of the time feels a little bleak. It seems like a miracle I’m as functional as I am. It’s a miracle anyone is every functional with pain at if I’m honest. Pain is a myopic master.

Categories
Chronic Disease

Day 511 and Respite

I didn’t feel like shit today. One of my doctors made a suggestion for how to spend up the post-viral malaise of this flu. I woke up feeling at least a little bit more human this morning.

I knocked out the first draft of my talk for Consensus. A task that has felt so overwhelming I’ve now blogged about it three times in one week. I am never prone to procrastination when it comes to writing so I know I must have been super sick if I felt I couldn’t write. That’s literally the one activity I’ve completely taken the fear out of through daily repetition.

I was able to do all the various “living” activities today too. Basic tasks like showering weren’t overwhelming. I was able to make progress on odds and ends for moving life forward. Making decisions about stuff like what to eat wasn’t hard. Basically I felt normal.

I am not sure if this is a respite from the flu and it’s aftermath or if it has fully broken. But I’m going to enjoy it with an early evening watching television and fucking off. All my downtime doesn’t have to be sick leave.

Categories
Internet Culture

Day 510 and Lifeline

Many people used social media as a lifeline to connect with others during the pandemic. The Zoom family dinners or the video hangout Happy Hours were a staple personally and professionally. We livestreamed religious gatherings and conversational societies. We set up Discord servers for our favorite topics and Telegram groups for group chats. As it turns out the metaverse is already here and we migrated there during the pandemic years.

The trouble with expanding your subjective reality to include virtual spaces, is that you have massively expanded the surface area of your life. Your world becomes much larger when it’s virtual. Living in the metaverse opens up your neighborhood to the global village.

When you are confined to physical reality as your living space, your subjective reality remains the people you encounter in your daily routine. At most this might be a cosmopolitan city, but for most of us it’s a parochial circle of work, children and basic goods and services. Dunbar’s number suggests we top out at about 150 people.

Most people are awkwardly straddling some middle ground these days. News media expands our subjective reality a bit, and we Americans almost all participate in some online virtual community. If you are creative class it is a professional obligation. But largely we live a real life in our physical communities. We know what is going on in the outside world but we mostly live insular lives.

That is until a tragedy occurs. And at the rate we are going these days that means once every week or so. Suddenly the entire world is focused on one singular horror. Even if it isn’t your own horror in your own physical community your subjective virtual reality feels as if it did.

And this can really suck if the metaverse is a big part of your life. Especially if the metaverse is where most of your social contact happens. The lifeline to virtual communities is no longer expanding your world but merely expanding the surface area of grief during a shared public tragedy.

I am skeptical there is a solution for this problem of shared surface area during a tragedy. Bearing witness is a human instinct deeply coded into our cultures. The desire to be bound together is for better or worse, our reality as social animals. Taking our communities online just takes our culture with us.

Categories
Chronic Disease Startups

Day 508 and Deficit

I woke up feeling reasonably ok today. I slept well but checking my trackers I learned my recovery scores were pretty low. My HRV was dipping into 30% recovery territory and I had a low blood oxygen count. I’ve been recovering from Influenza A so it’s not a surprise my lungs are struggling. But I tried not to let some bad data psyche me out. Maybe I was ok. I told myself I just needed to stick to my routine as I can’t let myself get into a physical deficit.

So I went about my morning routine with some optimism. I got some coffee and made breakfast. I took several rounds of supplements. I did some basic grooming. I felt basically human. I was all excited to dive into work from the second I woke up. I was so excited I’ve been dreaming about the presentation I’m giving at Consensus. I literally woke up with talking points.

And then at around 10am I realized I’d used up all my functional hours taking care of myself. Fucking figures. I am already in a physical deficit from this flu. It’s scary for me to be in a deficit as my favorite coping mechanism is to engage in workaholism. I over prepare and over work and I make demands of myself that only sabotage the end result. It’s entirely counter productive. It just looks socially acceptable because of the Protestant Work ethic.

So I need to calm the fuck down and accept where I am and that it will still be good enough. I know my shit. It’s worth it. And I’ll deliver on better than the average midwit. Honestly even acting like this is kind of midwit. The real galaxy brains would just be vibing it anyway. But it really is amazing how easy it is to fall into midwit fear based patterns. Believing in the bigger broader math of your own life is really hard because so much of our own ego is rooting for us to indulge in our worst impulses. So I’m going to calm down, not worry about my energy deficit and continue to do the work. It’s not glamorous work. It’s mostly making good decisions day in and day out. But then compounding kicks in.

Categories
Chronic Disease

Day 507 and Better is Not Binary

A close friend of my husband and I sent me a sweet check in text message today saying he hoped I was feeling better. Our friend is a sincere and empathetic person. Because I know know he does care for me sincerely I said how I was actually feeling to him. I was feeling confused.

lol I never know how to respond to this sort of thing as occasionally I get regular person sick but I’ll never not be disabled 😂😭

“Better” is a bit of a loaded term for me. It suggests so much. Absolute improvement like my flu is over suggests better. Or perhaps improvement that will stay put forever is better. Or maybe it’s a good day in a string of bad ones and that’s better. Better can be though of in both binary and scale terms.

Default healthy people think of better as binary because once they’re good enough they are “better”. The flu passes. They get back to normal. But if you’re chronically ill or disabled then better is on a scale and you never get fully “better” but rather ebbs and flows. I don’t always know how to articulate this to abled well people.

If you have someone in your life who you think of as not being very social, I’d like to ask you to discover if it is because of a physical disability or ongoing chronic disease. Maybe they aren’t social as they can’t accommodate your pace but they would love to spend time together with you if you accommodated their pace. A lot of folks are chronically ill. And we like to be friends with you. We just need you to recognize we require some accommodations from you.

Categories
Preparedness

Day 506 and Walking The Talk

I had a spectacular two weeks of writing from the deepest places in my soul. We made significant and long lasting decisions for the family and the direction we want to take our lives and our investments. And yes I do mean that my husband and I are moving to Montana. One day I’ll be so proud to have captured that moment in our lives on paper.

So of course this past week I’ve done nothing but worry and fret and write about that worry as my physical body decided it was safe to be a bit sick now that we’ve done that hard work on making a big life decision. Even that mess of feverish writing ended up delivering some amusing written insights.

I’ve had to remind myself basically hourly that I’m alright. That all the uncertainty of the world is something I can live with. Indeed, it’s something I’ve planned for over the course of years. When I jokingly insisted we should name our family office chaotic.capital it seemed like an amusing and edgy piece of branding. Now I’m caught up in the reality of just how fast the thesis is playing out.

Frankly I am scared. I am scared because I can see just how hard things will be. Some days I feel like I’m beyond excited to actually be right. But then I remember the chaotic thesis sucks to live through even with the best resources and preparation. And all I can really do is walk the talk. Nothing is as terrifying as being prepared for hard times and then simply having to live all the shit you said would happen.

Because of course all of the macro big picture things that I’m planning to invest against are things that make my life harder too. I’m disabled with a chronic health condition that is annoying to manage in good times. My personal wealth is subject to the same market forces as yours. I have had to deal with the overheated housing market as a non-homeowner. I still have to act in the same face of the fears as everyone else. Am I modestly protected and buffered by privilege? Yes I’ve been sprinting to acquire it for year to get it. But here we all are and now is the time when a steady hand with a prepared mind can thrive.

Categories
Emotional Work Startups

Day 505 and Deadlines

I’m trying to stave off a cortisol spike that my body simply does not need. I’ve got a talk coming up for Consensus in June and I owe an editorial with my main thesis along with any visuals I may need for the talk due next week.

I know the area I plan to speak about quite well. It is titled the InDAOstrial Revolution and I plan to cover some far future possibilities for what the new organizational structure can bring. And I do mean far as I’ll talk about some radical ideas like data collectives for rare diseases and networked nation states. I’m really excited as I think decentralized autonomous organizations offer us a new path for how we can pool different kinds of resources. I think DAOs give humans a chance to build better bigger weirder things on totally radical timelines just like the advent of the corporation did before in the industrial revolution.

I’ve been watching Gilded Age as I’m a sucker for set pieces but also because I love stories of wealth and power and cultural mores being pushed. I think DAOs have the chance to do that for society and the family in a way that is just as unsettling and ultimately wealth creating as anything we saw in the Gilded Age. And the changes we see to cultural norms will be every bit as revolutionary as the ones we see with inventions or investments. When times change, we push all of the ideas we have about how to properly organize individuals and citizens with it.

What I’m saying is I’m obviously passionate about the topic and even when I’m home with the flu I’m thinking about ways to knit together different worlds and metaphors. I might not be the best expert on DAOs nor am I remotely close to being one of the earlier people to get into them, but I’m absolutely an informed and enthusiastic professional with the training to think about this holistically. So I’d listen to me if I had the chance.

Nevertheless I’m worried I’ll botch the talk. My mind wants to worry I’ve run out of time to do a good job (I obviously haven’t) and that even if I put in a lot of hours it could have been more. I could have started sooner.

But honestly I’ve got to let that self defeating talk go. What I bring will be enough. And a deadline looming even with a sickness is no reason to worry when you know and love a topic well. So I’ll trust myself to bring you something good.

Categories
Emotional Work

Day 504 and Write Down

I woke up coughing so hard I couldn’t catch a breath. I’ve forgotten how exhausting being sick feels. I legitimately completely forgot how it felt to be tired and in pain. And what a fucking luxury that is to realize.

I was in a miserable mood this morning. Why was I losing an entire week when I’ve been functional and dare I say normal since the new year? I haven’t had any issues since I got Covid over Christmas break with the exception of a couple nasty migraines and a few modestly shitty days. But today was Thursday and I haven’t felt even modestly human since Monday. It looks like I just have to accept in having a bad streak.

My husband very sensibly pointed out that I didn’t need to act like this was a catastrophe. I’m always looking over my shoulder in fear that I’ll have a relapse and be reminded of he limits of chronic disease. And truth be told I will have them. But I’ve been making the choices that shorten those bad days. I’ll be living a life in the country in support of keeping a strong body. It’s almost comical to type that as it feels a bit like tuberculosis and moving to the west. But then again I’ve always been a mountain woman at heart. It was only a matter of time till I returned to the terrain of my family. Maybe I’m a bit of a traditionalist after all.

Nevertheless this week is a write down. It won’t matter in the grand scheme of things. I’ve made the good long term choices. I’ve accepted that the fight is long and the odds aren’t great but this is America so you’ve got to fight like you might be one of the lucky few that win. I can only hope I am treading a path that gives me the chance to make a better life. And that I’m being reasonable clever and reasonably hard working and that’s often enough.

It’s actually quite hard to trust the math. You want to give in to all sorts of silly biases. Like that every second counts. When no it’s mostly just how your habits add up over time. The mind really strains against basic math like compounding. But I’ll try not to get my fear get in the way and trust that the figures probably add up and I’ve generally done the homework to trust my inputs.