Tag: Commitment

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Emotional Work

Day 772 and Spoiled

For as much as I write about pain, both emotional and physical, so much of my life is saturated with joy.

I was asked this week “when will you accept that you are happy” and I was thrilled to find myself blurting out in agreement “It’s true I am so happy.”

Crawling your way back from a life event that gave you ego death is no easy journey. You either accept that you are responsible for yourself or you don’t. And really bad shit happening to us like illness or divorce or death loss tend to be deeply clarifying.

I feel so spoiled by the life that my choices have given me. For all the mistakes I made, and they are numerous, I on balance made the right calls. I have never felt more loved in life than I do right now. I’ve got what I need and I felt brave enough to go after what I wanted.

I’m surrounded by people who care about me for me. And it’s such a luxurious feeling to be given the space to be yourself. It’s even better when being yourself is the thing that everyone loves.

A Friday night surf and turf feast with filet and crab.

I spent so much of my life fitting myself to my circumstances. And now here I am stretching out to become more of myself and I find myself rewarded for it. Last night my husband and a dear girlfriend made a magnificent surf and turf dinner. Just a restaurant quality meal made by my loved ones at my own home in Montana. And then we all watched one of my favorite movies Margin Call

Crab with lemon & parsley
Categories
Emotional Work

Day 769 and Behind

I feel behind on everything. It’s a source of anxiety that I cannot seem to shake. If you’ve been following along you’ve seen some interesting and intense types of emotions play out.

I want to beat myself for being behind. The need for guilt and flagellation is ever present. Then I remind myself that the pressure is self inflicted and my time horizons are long. If something was due this week or next, the relevant parties either got their deliverables from me or can wait.

I will allow myself the space to be scared to be behind. I’ll allow myself the space to be ashamed I am behind. And then I’m going to allow myself the space to just be behind. Sometimes we cannot see the bumps in the road till we’ve come upon the pothole. And I feel like I found a couple expectedly deep divots in the road of my life.

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Emotional Work

Day 766 and Friends

The worst part of getting back on Instagram has been the number of people who said welcome back. Now you might say that sounds kinda nice. And for the extended universe of people with whom I casually socialize, yes it was nice. But for the people I considered to be friends it was fucking insulting.

I left Instagram before my health troubles but the overlap on the timing on the two isn’t wide. Its mostly concurrent. It’s hard to post the kind of aspirational lifestyle bullshit that the algorithm prioritizes from bed rest. There is a reason Twitter and long form blogging on WordPress are where I spend my social media time.

A significant portion of people in my bucket of friends simply disappeared from my life when I disappeared from their lives. When I stopped reaching out they stopped reaching out. My timing certainly wasn’t great as my health imploded around the time a lot of my peers got married and had children. Totally acceptable reasons to be busy.

But I also I learned the hard lesson that most people are so busy keeping themselves afloat they don’t give a fuck if you are dying. Because they are struggling too. Yet it’s hard not to have a sense of abandonment when people don’t reach out across any medium except what’s proximate and convenient for them.

I went to so much trouble putting myself and my entire journey online. I knew I was harder to reach as I couldn’t leave the glide let alone my own bed. So I reached out from the pit of my own despair and hoped someone would see my hands reaching. And a whole world of people did. I made a lot of new friends that way.

I’ve literally written hundreds of thousands of words about my journey. And all of it is conveniently tagged and linked and is searchable. If you wanted to read about pain management or biohacking or my medicine regiment it’s all here. I’ve even written an FAQ on how to reach me. I am one of the most accessible people you will ever reach. I made this this space because I knew I had to reach out lest I be abandoned.

So when a bunch of socially networked acquaintances said “welcome back” on Instagram, what I really heard was you were never my friends in the first place. And that felt sad in a way I wasn’t expecting. I’m sure was true that most people were not my friends. I always knew was true for the vast majority of people. But it was sad to learn it was true for people I’d felt close to in the past.

For the handful that were actually friends, it was a bit disappointing to see what distance, time and sickness has yielded for my expectations. I hadn’t heard from them in years but they still think we are friends. And I don’t know how to break to them that no actually we aren’t. I have come to expect more from people.

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Internet Culture Politics

Day 764 and Natalism

There are a number of cultural streams in American life that have all aligned around being natalist. You want your country to have babies because it’s good for the economy. And presumably also good for national security.

This fairly basic insight means everyone from techno-libertarians to Catholic homesteaders believes that Americans should be having more babies. It is not just the Quiver-full types having six babies anymore, so are our wealthiest aristocratic titans of industry.

But this alliance is missing some crucial basics. Like for instance the fundamental civilization level things we need to do to make it desirable and affordable to have children. It’s expensive to be pregnant, it’s expensive to raise children, it’s expensive all around to be parents. I spent $40,000 on IVF and it ruined my health. If I counted lost wages and being forced to sell my startup I’m the total costs is seven figures.

I don’t know if you’ve looked at just the costs around having a baby but it will shock you every time you turn a new corner in the fertility space. I learned today you will spend between $100,000 to $200,000 to hire a surrogate. It’s a person’s salary and a lot of medical care so sure that seems right but damn.

I guess I am interested in the math of Natalism to see if I could afford it. I am one of those “tech elites” that thinks we have to have children to drive the innovation of tomorrow. Our future is based on an optimistic hope that maybe we can push for a better future. Humanity won’t continue without children.

But I don’t have a body that is all that healthy without medical intervention. I live a normal life now and can work full time again because I take some exceptional medicine.

But it’s not medicinal regime that can be combined with pregnancy. So if I want to carry a child I have to go off what amounts to life saving medicine. Without it I’d be on bed rest. You can imagine the math I’m doing in my head? Do I want to pour another million into having a family?

So what’s a girl like me to do? Surrogacy right? But I’ve got 10 eggs and 2 embryos so assuming a third of them make it, that’s nearly half a million dollars in surrogacy fees. To get three kids. That’s a heavy price tag on the future. If more of them take it gets even wilder.

Now ok sure I’d rather we encourage a world where younger healthy folks do things naturally but don’t we want everyone going at maximum effort for a better tomorrow? Shouldn’t we want technology to solve this? Where are my artificial wombs at?

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Internet Culture

Day 760 and Beginner’s Mindset

I recently decided to boot back up my Instagram account. I’d let it lay dormant for almost five years. A lot has changed since I stopped using it. I’ll withhold judgement on whether it is for the worse or not. Right now it’s mostly just modestly confusing. I feel like a beginner again.

Amusingly one of the first genres of advertisements I got was for Instagram editing tools. There is a whole cottage industry of paid applications that help you put together Reels and Stories.

Many of them are relatively sophisticated with templates that help you overlay text, audio, music and advanced video techniques. Being a creator these days requires a fair amount of sophistication so I’m not surprised to find $10 a month editing applications.

I am struggling to find to find the joy in the experience. It feels like like a lot more work to make visual content than written. Now, I grant that it didn’t feel easy writing at first either. Twitter was stop and go for me for years.

But Instagram is a more natural place for some of my interests like cosmetics and shopping. I want to give it a fair shake. And maybe I’ll find joy in the space with some time. But becoming fluent in the language of Instagram’s visual literacy makes me feel stupid. But I guess that’s what it feels like to be a beginner again.

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Internet Culture

Day 759 and All Dressed

Social media has given us so many ways to become fans. We have ever more content thanks the streaming wars. Give content a chance to live everywhere online and it will develop a fanbase beyond its intended audience. The internet gives small shows outsized impact.

I’m a fan of a Canadian comedy called a Letterkenny. It’s about a small town in Canada. It’s got people and their problems. It’s a very funny character study and has fundamentally warm and loving humor. I’ve watched every episode and the spin-off. I’ve taken a lot of solace in the very human nature of the show, particularly during the pandemic years when everyone felt far away from each other.

There is a phenomenon that is particularly prominent online called parasocial relationships. Someone creates art or a personality and it develops a fandom. Over time, the fans, through repeated exposure to a character or show, believe they know them like a friend. It is fun to be in the fandom. Enjoying art is a universal experience. I am a stan for Letterkenny. I’m in a parasocial relationship with the Letterkenny crew and it’s universe.

How deep is it? Well my husband and I recently ordered some Canadian chip flavor called all dressed featured on an episode of Letterkenny. The chip is, as the name suggests, every single type of flavor. It is salt and vinegar, bbq, ketchup (weird but crucial), and sour cream & onion. And it is absolutely delicious. As a Twitter friend said to me, it is the Dr Pepper of chips. It’s not for everyone but it’s spectacular.

All dressed ruffle potato chips

Because it is Sunday, I am taking a medically necessary amount of THC. I’ve had a gummy. And I thought this was a perfect moment to try the Letterkenny chip.

And it was indeed glorious. All dresseds is a chip made for the munchies. It’s got bite and taste and texture and it all rolls up into an experience. It’s a chip worthy of the extra attention of weed focus.

And because I am extremely online I shared my appreciation for it on Twitter.

Now on Letterkenny there is a clique called the Skids. They are the weird kids. They are the hipster ones. They are the nerds. They are small town weed dealers. Asking me to pick a favorite on Letterkenny is like asking me to pick a favorite child. One of the Skids is Roald. He is a loyal friend but his own man. He definitely likes weed. I love Roaldie.

And I’m delighted to learn through my all dressed munchies Tweet, that the actor who plays him, Evan Stern, is following me. He likes the tweet. What a perfect way to enjoy a very specific kind of fandom. A parasocial relationship’s individual manifestation through social media. Now that I’ve made a big deal out of all this I should probably say hi to Evan. It’s going to be weird no matter what but it brought me a lot of joy. It’s good to be a fan.

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Emotional Work Travel

Day 744 and Nothing

It’s always a toss up as to whether I am going to write beautiful missives showcasing my deepest emotions when traveling or just shit out whatever I can manage. I’ve discovered I’ve got quite a range over the years. And I can almost never predict it.

I assume everyone can relate to this. You can never really predict when your best efforts will yield great results. This is, of course, why I prattle on and on about about practice and habits. If you aren’t forcing yourself to hone a skill set even when you don’t feel like it you won’t ever improve it. If you don’t let yourself fail you never win. You miss all the shots you don’t take.

I totally get why people are obsessed with sports metaphors. I often wonder if athletes use business or war metaphors because otherwise they are stuck with the literalism of being descriptive.

I’ve always hated when business people use war metaphors as it feels a bit offensive (don’t elevate your work to life or death unless it actually is life or death) so I default to sports metaphors.

But mergers, term sheets and deals aren’t as sexy as goals, shots or points so if you are an athlete maybe sticking to literalism is fine? I mean, they are to me, but of course I’m inclined to think my work is hot. You’d be worried if didn’t.

So today I’ll accept that we use the metaphors we have on hand as sometimes we do t have anything else. We’ve got nothing. And you’ve got to work with what you’ve got to make something from nothing.

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Politics

Day 740 and Immigration Failed Us Again

My second attempt at a securing a tourist visa for a friend failed this morning. If you’d have asked me a few years ago if I thought the American immigration basically worked, I would have agreed that, sure I thought it probably worked ok. No reason to think otherwise right? Phew I was wrong.

But after years of being humiliated over and over again by the state department for “the crime” of wanting a family friend to come visit us for vacation, I’ve never felt more ashamed of myself and my country.

I’m ashamed I was such a sucker. I thought we would still do the basic work of being a functional state. I’m ashamed that America treats people who want to visit us this badly.

We have well off, interesting, curious guests that want to explore our culture and spend their time & money seeing our land. We spit on our guests by turning away anyone who isn’t on a Schengen or ESTA waiver. You probably think that includes most people. I did. But we are wrong.

Only 40 of the 195 countries on the planet are granted travel visas without going through the visa embassy approval process. Most people have bad passports. Latin America, Africa, the Balkans, the former Soviet blocks and most of Asia have “bad passports” that require a tourist visa that requires years of waiting for appointments and almost assured disapproval at the Embassy.

I’ve never met a system so broken I couldn’t find a workaround. But here I am at the of my workarounds in tears at how I’ve let down my family and friends. The visa I’ve been helping with was denied a second time today after waiting since March for a second chance to re-apply. That first meeting at which we were also denied also took years of waiting.

And it is getting better. This round after flying to Prague, we got two minutes instead of thirty seconds in Frankfurt. In those minutes they still didn’t look at any of the materials prepared. Just a generic we don’t like the look of your people rejection. We got some boilerplate language about strong ties or weak ties and no we won’t read the 200 pages of supporting documents you brought.

I was a mess yesterday about how afraid I was we’d get down turned down again. But I thought surely I was being too paranoid. The lawyers we paid thought we had a good chance. We’ve brought everything possible for paperwork from mortgages to W2 forms. I’d taken personal financial liability for our friend. I let the government have an invasive look at our finances. I gave the consular offices the deed to my house. I worked for months to get a Congressional letter asking for a fair review of the application. None of it was reviewed.

Now in the aftermath, I’m not even sure if it’s possible to get a consular officer to do a fair review. Our congressional representatives wrote the consular office and they send back boilerplate with no details. No one reads the applications I guess. We can apply again. And again. But would good would it do?

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Uncategorized

Day 739 and Immigration Anxiety

My family has been working on a visa for a friend to come visit us in the United States. It’s felt like the longest 2 years of everyone’s lives. I had no idea how broken our visa and immigration system ones until we tried to invite a family friend with a bad passport on vacation to America.

Sure the pandemic distended wait times into bulging impossible monstrosities, we pushed simple state department work into an impossible task. But it’s not just the broken bureaucracy at play. It’s a system so broken by it’s own disdain and lack of resourcing, your only hope is the grace of God.

If you tried to arrange a tourist visa for someone from the global south you’d find the next available appointment for a tourist visa was three years down the road. And this was after the borders opened up after the pandemic got to be too much trouble. It only got worse from there. I quickly become shocked at how impossible it is to travel to America if you aren’t on a Schengen passport from Europe.

I’ve been working on this seemingly intractable problem for well over two years. We are on our second embassy appointment. The first visit was in Frankfurt in March where it was immediately turned down without the officer even looking at the paperwork. Thousands of dollars and endless time lost to a random bureaucrat in thirty seconds.

And you aren’t even allowed to ask them to take another look as they could ban you on the spot. I cried I was so humiliated after seeing that first refusal. How could America be so broken? We did everything right and it didn’t matter. Kafkaesque doesn’t begin to describe it.

Apparently the American state department treats a visa like a Rabbi handling a conversion. It took another 10 months to schedule a follow up appointment in Prague. Our friend’s home embassy has a three year wait so we’ve been going to European embassies to avoid needing to pay a bribe for an appointment in his home country. Legal immigration is much harder than illegal immigration.

So we planned a trip to Prague. And now the appointment is tomorrow. And I’m terrified. I’m despondent. I’ve done everything right and I have no idea if we will succeed. And it’s not even a visa for me. I can’t imagine how they feel. To be treated as if you are a criminal when all you want to do is visit friends and spend money in a other country.

I’m almost embarrassed how invested I’ve become in making this work but I will not allow myself to be beaten by this system. Guests do not deserve this humiliation and America is my house.

Mind you this is for a tourist visa not a work visa or a green card. This is just for coming to enjoy tourism and spend time with friends and family. Tourism is an important part of the American economy. Especially where I live in Montana. The whole world wants to see Yellowstone.

The entire process has been so humiliating for everyone involved. As the sponsor of the visa I filled out a form called an I-134 where I had to prove my net worth, my home ownership, my income, my job and compensation. I accepted personal financial responsibility for them.

This after being instructed that our guest must show strong ties to their home country and a minimum financial independence of their own. They had to show their home ownership, car deeds, work pay stubs & tenure at the company, not to mention guardianship and primary care responsibilities for their grandmother among many other invasive questions. The paranoia of visa overstays has made it so no one can get a tourist visa at all.

All this humiliation be granted the privilege of spending wealth in America as a tourist. It’s beyond insulting. It only gets worse for each step down the line if you want to work or live in America.

If you’ve ever wondered why we don’t have more legal immigrants this is why. Insofar as I can tell there are two ways to get to America. Illegal crossing and you pray. Or tens of thousands of dollars and years of waiting and you pray. Oh and you probably only get to come if you do it illegally. It is a crisis in every sense of the word.

We’ve spent tens of thousands of dollars, weeks of time on the ground in foreign countries and it has gotten us no where.

We’ve also called in everyone type of favor and access we could find. A privilege most lack. Our constituent services office at our Congressional office has been amazing. They submitted a letter asking for a fair review.

If the hundreds of pages of professionally prepared paperwork, the millions of dollars of financial assets and a congressional letter of fair treatment simply aren’t enough, I wouldn’t be too proud to go crying hat in hand to the ambassador to please consider our case. All we want to do is have a family friend granted the freedom to travel. I’ve got no idea where to turn if it isn’t granted.

I’m so anxious and depressed now that the culmination of so many years of work is coming down to one short interview tomorrow, over which we had no control. I’m mess. I’ve let it get to me.

I cannot fathom what else we could do. If millions of dollars of assets, a by the book legal case, multiple political appointees vouching for us and a good faith effort to show our personal responsibility aren’t enough, than what is enough for America?

My fear is nothing will be good enough and I will be despondent in tears tomorrow by 11am. And I pray I have the strength to fight on if it happens. Because I believe in America and I will go to the mat to bring more people to see it’s splendor. Empire’s end won’t happen on my watch without a fight.

Categories
Biohacking

Day 734 and Personal Maintenance

The culture of planned obsolescence in Silicon Valley is a pernicious mentality.

A policy of producing consumer goods that rapidly become obsolete and so require replacing, achieved by frequent changes in design, termination of the supply of spare parts, and the use of nondurable materials

If you’ve ever bought an Apple product you are familiar with the term. Show me someone who hasn’t cursed an Apple charger change and I’ll show you someone who has accepted the lower standards of American consumer goods. And this includes almost all of us. I’m packing for a trip which requires a laptop charger, an Apple Watch charger, and an iPad charger so it’s in my mind.

I would much prefer we engage in a culture of maintenance and repair. If you aren’t familiar with the right to repair movement I’d encourage you to do so. We may never fully return to an era of simple machines and regular repairs but it’s worth a shot.

My bigger fear is that we’ve come to accept planned obsolescence for our own bodies. If you are older than thirty, I bet you’ve been told by a doctor “that’s just aging” about minor complaints from fatigue to aches. It feels incredibly dismissive and also potentially downright stupid in the age of post-viral illness.

But what if we didn’t have to accept inevitable breakdown? It might not be as simple as a pill and a ten minute appointment to fix some of your more typical bodily degradation, but it’s not impossible either.

I try to incorporate as much personal maintenance into a given day as is feasible. I took a battery of supplements today. I went outside for a leisurely forty five minute walk in the sunshine with my husband. We multi-tasked and ran through our to-do list. I stretched and used a Theragun to work out tension aches. I meditated. I used two devices I’ve got that are kinda woo-woo but the academic literature is promising. I did cold therapy.

Doing personal maintenance every day on your body is how you avoid having a doctor tell you that your issues are planned obsolescence. Don’t accept a lower standards of living. We may age and diseases will continue to ravage us but you can promote better health with simple habits.

And if you want to make an excuse for how time consuming it is, ask yourself how time consuming is it to have a health crisis. How time consuming is a chronic disease manifesting after years of neglect. An ounce of prevention equals a pound of cure. So go drink a full glass of water and stretch before you move onto your next activity.