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Culture Internet Culture

Day 771 and The Chaos In You

I’m a high school drop out. But in a sort of non-traditional sense. My first encounter with disability happened in the wake of living abroad as a sophomore. I found myself simply not attending my junior and senior years of high school. It was a complex situation.

My mother battled against teachers and administrators using the ADA and standardized tests as her weapons. The College Board as a series of 34 tests called the CLEP that gives you credit for having college level knowledge. It’s a very good short cut for self learners & autodidacts to get credit for what they know. And it’s way cheaper.

Between CLEP and AP exams I was able to provide a pretty convincing portrait of competence to both colleges and my shitty college preparatory school. It was enough to get me into university and to extract a high school diploma despite a record of non-attendance. Reasonable accommodation wasn’t really a thing at the time but you could bury the fuckers in paperwork. A tactic less ethical parents than my mother have surely realized by now.

I was a bit of an orphan in my class as I was quite frankly never there. What teacher could possibly vouch for knowing me? It’s because of this lack of attendance that don’t really consider myself a graduate since the diploma is merely function of testing out. A fancier version of getting one’s GED as it were. So when it came time for various teachers to do things like writing quotes for graduating seniors nobody wanted me.

My French teacher from my sophomore year (otherwise known as the year abroad) must have grabbed the short end of some straw as she ended up having to say some shit about me and opted for the Nietzsche dancing star pablum.

One must still have chaos in oneself to be able to give birth to a dancing star

I felt terrible for her. She had to find a suitable quote for a troublemaker of the worst sort. I was institutionally non compliant. We hate when people have too much chaos in themselves. Sure culture is mostly made from outliers but don’t be too weird.

Sure dancing stars sound poetic but these days Nietzsche is just another coded message board signal for Leopold and Loeb Part 2 Ubermensch Trad Rad Cath Boogaloo. Naturally some of his current fans are fuck ups because institutional power is always going to push back against chaos until it proves profitable to absorb it. But it’s not always clear who will become absorbed into the mainstream as acceptable.

I’m a careful watcher of who is considered dissident as I’ve been that chaotic kid basically since I was born. I was protected from so much of the sanding off that comes from social acculturation thanks to my parents.

But it’s almost impossible to protect oneself entirely. Much of the work of going to therapy as been about recovering the soul of that chaotic child. I hope I’ve gained the skills to protect her from being beaten down any further.

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Emotional Work Politics

Day 768 and Memory

I’ve not ever read Proust in its entirety, because what am I, an eternal being who exists outside of linear time? But, thanks to Wikipedia and university survey courses, I am familiar with its basic themes of memory and it’s frustrating insufficiency.

Anyways, when not pondering madeleines, I am often confronted by how resilient the mind is in protecting us from the horrors of the world. Memory is a very funny thing. As good a reason as any to maintain diaries or engage in hagiography, is that you’d be surprised at what you forget if you don’t write it down.

A doctor asked me to get a pelvic ultrasound. I surprised myself by saying absolutely not unless it’s an emergency life or death situation, I am not doing that. And she, in sincere surprise, asked me why not.

And, because I guess therapy works, I recalled a pelvic ultrasound from maybe 10-12 years ago. I’d been referred in to a specialist as there was concern about a uterine cyst. This doctor, a gentleman over 50 in the kindly white patrician archetype, who I did not know know, proceeds to tell me this won’t hurt a bit.

But it does hurt. I am screaming bloody murder. It hurts so much I cannot stop. He tells me he will call security unless I quiet down. I cannot and I am in tears hysterically trying to convey the pain to him. I pass out.

I had utterly suppressed the memory till today. It happened to coincide with my husband mentioning a think piece in New York Magazine about women who empathized with the Clare Danes character from Fleishman Is In Trouble. There is a profoundly violating scene around reproductive health and consent that culminates in dark emotional trauma.

And of course, because it’s happening to a striving insecure aspirant white bitch, it totally doesn’t count right? The internet is not sympathetic to whining Clare Danes types. Fucking Karens. It’s super cringe to consider where the system hurts you, because, you dumb bitch, you benefit more than anyone else except the men.

So I guess I am not surprised I had banished the experience of something bad happening to me at a doctors office, but you know, it was not so bad that I am allowed to complain about it. And that is how the patriarchy perpetuates itself. Shut up you are rich. Look at the skulls upon which your empire is built you witch.

What I’m saying is that maybe you need to remember who it is that benefits from you not remembering the pain. Who benefits from forgetting? And trust me they are very scared when you realize that you remember. Even the rich striving white bitches have scares from this system.

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Internet Culture Politics

Day 764 and Natalism

There are a number of cultural streams in American life that have all aligned around being natalist. You want your country to have babies because it’s good for the economy. And presumably also good for national security.

This fairly basic insight means everyone from techno-libertarians to Catholic homesteaders believes that Americans should be having more babies. It is not just the Quiver-full types having six babies anymore, so are our wealthiest aristocratic titans of industry.

But this alliance is missing some crucial basics. Like for instance the fundamental civilization level things we need to do to make it desirable and affordable to have children. It’s expensive to be pregnant, it’s expensive to raise children, it’s expensive all around to be parents. I spent $40,000 on IVF and it ruined my health. If I counted lost wages and being forced to sell my startup I’m the total costs is seven figures.

I don’t know if you’ve looked at just the costs around having a baby but it will shock you every time you turn a new corner in the fertility space. I learned today you will spend between $100,000 to $200,000 to hire a surrogate. It’s a person’s salary and a lot of medical care so sure that seems right but damn.

I guess I am interested in the math of Natalism to see if I could afford it. I am one of those “tech elites” that thinks we have to have children to drive the innovation of tomorrow. Our future is based on an optimistic hope that maybe we can push for a better future. Humanity won’t continue without children.

But I don’t have a body that is all that healthy without medical intervention. I live a normal life now and can work full time again because I take some exceptional medicine.

But it’s not medicinal regime that can be combined with pregnancy. So if I want to carry a child I have to go off what amounts to life saving medicine. Without it I’d be on bed rest. You can imagine the math I’m doing in my head? Do I want to pour another million into having a family?

So what’s a girl like me to do? Surrogacy right? But I’ve got 10 eggs and 2 embryos so assuming a third of them make it, that’s nearly half a million dollars in surrogacy fees. To get three kids. That’s a heavy price tag on the future. If more of them take it gets even wilder.

Now ok sure I’d rather we encourage a world where younger healthy folks do things naturally but don’t we want everyone going at maximum effort for a better tomorrow? Shouldn’t we want technology to solve this? Where are my artificial wombs at?

Categories
Emotional Work Travel

Day 746 and Control

When I feel afraid I seek control. I have rituals and rhythms that help sooth the fears of my inner child.

This morning I was in my least favorite fear control pattern. I had to leave a temporary hotel for a new Airbnb as a mold issue destabilized my first week. Hives and prednisone and such. I hate packing and I hate the logistics of it. It reminds me of my childhood nightmares.

I set my alarm early enough to get breakfast and packing in before the slightly too early checkout. I was racked with anxiety I couldn’t repack everything as I’d acquired new items meant for an apartment stay and my suitcase overflowed.

I had vitamins and medicine to take but I couldn’t do more than choke down a croissant. I ordered fruit and cheese and than was too worked up to eat it. I hate wasting food so I wasn’t thrilled. I beat myself up for being a bad person who can’t take care of herself.

As soon as realized how had it was getting I took an Ativan. Joke all you want about benzodiazepines but occasionally they are the barrier between a traumatized woman and the history of her fears. Probably why it’s such a cliche. Just the sort of thing you learn as you are alone in a foreign country where you don’t speak the language.

I felt so rushed by the need to be out at a certain time. Each knock on the door a reminder of my failures. Each internal call to calm down a criticism I recalled from my father, my coaches, my bosses and my lovers. A hysterical woman is a shameful thing.

Each “hurry up” a reminder that I am someone who is policed and polite and controlled for other people’s convenience. I am not allowed to be scared or cry or reactive. A hysterical woman woman is, again, a shameful thing.

Finally after the tension and anger and shame bubbled up, I threw the first thing I could get my hands on to release the tension. Better than hurting myself a dim quiet voice said. I cracked my watch face. And immediately felt better. And so embarrassed I’d boiled over.

I’d only needed five more minutes to get myself together. Just a moment. Give me a second. Please just let me be. And each time my preferences had to accommodate someone else I lost more of myself.

I was able to exert the seamless self control over my emotions eventually. I checked out. I tipped. I’m swanned over to my new digs. I executed exactly what I needed and got on with my workday. But the shame stung and the control soothed it like a cold aloe gel.

Categories
Travel

Day 745 and Restless Travelers Scrolling

Coming of age in the golden era of digital hospitality had an enormous effect on my expectations for flexibility on the road. I rarely book ahead, I never worry about finding a place to stay, I overpack luxuries and I am always uncomfortably on the hunt for my personal totemic signifiers of safety. You need things on the road to keep your rituals intact so you don’t drift.

I know how to search for a place to rest and I restlessly pursue it on the road. Singles browse dating apps like I browse Airbnb. I spot red flags on apartment listings like a woman who has been on one too many bad dates.

I spent much of my childhood traveling. My most potent recurring nightmare is packing for a trip that never arrives. I have lived in a perpetual state of readiness to get up and leave. I bring endless tiny compacts and one singular pair of high heeled shoes for a night out I never go on. I am ready for glamour on the road but all I find is the anxiety of instability.

It’s this perpetual readiness to flee that has made me an exceptionally good picker of hotels, rental units, vacation homes and other short term stays. I couldn’t afford a deposit for an apartment in New York for so long that I could find an under-market illegal sublet on Craigslist on a moment’s notice. It’s a handy skill set.

Naturally I’ve come to take this talent for granted as I’ve cultivated it. I’m confident that I’ll pick a decent rental because I can spot issues from miles away. I admit I’ve looked down on complaints about how bad Airbnb has become. I thought I’d avoid the quality control issues. It’s no longer a better value than hotels generally speaking but the real crime is that it’s troubles are not worth the hassle for many. It’s not seamless like a branded hotel.

I felt the hassle was worth it for the comforts of home on the road. But I think I’ve crossed my personal Rubicon on Airbnb in Prague. I won’t default to it any longer. The costs are now basically identical. You’ve got to weigh the costs of friction against having your life a bit disturbed. Hotels specialize in hospitality. It’s probably worth remembering.

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Uncategorized

Day 739 and Immigration Anxiety

My family has been working on a visa for a friend to come visit us in the United States. It’s felt like the longest 2 years of everyone’s lives. I had no idea how broken our visa and immigration system ones until we tried to invite a family friend with a bad passport on vacation to America.

Sure the pandemic distended wait times into bulging impossible monstrosities, we pushed simple state department work into an impossible task. But it’s not just the broken bureaucracy at play. It’s a system so broken by it’s own disdain and lack of resourcing, your only hope is the grace of God.

If you tried to arrange a tourist visa for someone from the global south you’d find the next available appointment for a tourist visa was three years down the road. And this was after the borders opened up after the pandemic got to be too much trouble. It only got worse from there. I quickly become shocked at how impossible it is to travel to America if you aren’t on a Schengen passport from Europe.

I’ve been working on this seemingly intractable problem for well over two years. We are on our second embassy appointment. The first visit was in Frankfurt in March where it was immediately turned down without the officer even looking at the paperwork. Thousands of dollars and endless time lost to a random bureaucrat in thirty seconds.

And you aren’t even allowed to ask them to take another look as they could ban you on the spot. I cried I was so humiliated after seeing that first refusal. How could America be so broken? We did everything right and it didn’t matter. Kafkaesque doesn’t begin to describe it.

Apparently the American state department treats a visa like a Rabbi handling a conversion. It took another 10 months to schedule a follow up appointment in Prague. Our friend’s home embassy has a three year wait so we’ve been going to European embassies to avoid needing to pay a bribe for an appointment in his home country. Legal immigration is much harder than illegal immigration.

So we planned a trip to Prague. And now the appointment is tomorrow. And I’m terrified. I’m despondent. I’ve done everything right and I have no idea if we will succeed. And it’s not even a visa for me. I can’t imagine how they feel. To be treated as if you are a criminal when all you want to do is visit friends and spend money in a other country.

I’m almost embarrassed how invested I’ve become in making this work but I will not allow myself to be beaten by this system. Guests do not deserve this humiliation and America is my house.

Mind you this is for a tourist visa not a work visa or a green card. This is just for coming to enjoy tourism and spend time with friends and family. Tourism is an important part of the American economy. Especially where I live in Montana. The whole world wants to see Yellowstone.

The entire process has been so humiliating for everyone involved. As the sponsor of the visa I filled out a form called an I-134 where I had to prove my net worth, my home ownership, my income, my job and compensation. I accepted personal financial responsibility for them.

This after being instructed that our guest must show strong ties to their home country and a minimum financial independence of their own. They had to show their home ownership, car deeds, work pay stubs & tenure at the company, not to mention guardianship and primary care responsibilities for their grandmother among many other invasive questions. The paranoia of visa overstays has made it so no one can get a tourist visa at all.

All this humiliation be granted the privilege of spending wealth in America as a tourist. It’s beyond insulting. It only gets worse for each step down the line if you want to work or live in America.

If you’ve ever wondered why we don’t have more legal immigrants this is why. Insofar as I can tell there are two ways to get to America. Illegal crossing and you pray. Or tens of thousands of dollars and years of waiting and you pray. Oh and you probably only get to come if you do it illegally. It is a crisis in every sense of the word.

We’ve spent tens of thousands of dollars, weeks of time on the ground in foreign countries and it has gotten us no where.

We’ve also called in everyone type of favor and access we could find. A privilege most lack. Our constituent services office at our Congressional office has been amazing. They submitted a letter asking for a fair review.

If the hundreds of pages of professionally prepared paperwork, the millions of dollars of financial assets and a congressional letter of fair treatment simply aren’t enough, I wouldn’t be too proud to go crying hat in hand to the ambassador to please consider our case. All we want to do is have a family friend granted the freedom to travel. I’ve got no idea where to turn if it isn’t granted.

I’m so anxious and depressed now that the culmination of so many years of work is coming down to one short interview tomorrow, over which we had no control. I’m mess. I’ve let it get to me.

I cannot fathom what else we could do. If millions of dollars of assets, a by the book legal case, multiple political appointees vouching for us and a good faith effort to show our personal responsibility aren’t enough, than what is enough for America?

My fear is nothing will be good enough and I will be despondent in tears tomorrow by 11am. And I pray I have the strength to fight on if it happens. Because I believe in America and I will go to the mat to bring more people to see it’s splendor. Empire’s end won’t happen on my watch without a fight.

Categories
Preparedness

Day 738 and Little Things

I’ve come to appreciate the little luxuries in life in the aftermath of the pandemic. The Great Weirdening was in full bloom just as the world shut down into a global viral pandemic. The things I took for granted from 2015 are now treasured joys to be relished privately and also on social media. Dooming for the clout.

We are all performing elaborate acts about how we are flourishing, but in reality we’ve all had a number of rebirths and realizations. A lot of people suddenly stopped giving as many fucks and the downstream effects have been a calamity.

Everyone knows this has happened but pet theories as to why and it’s implications are rampant. We’ve fractured into conspiracies depending on what media ecosystem we spend the most time in. I know a lot of extremely online shit because I spend time on Twitter. We all have different scapegoats.

This is also all colliding with the great Jankening. All those people giving fewer fucks. Well, it shows up in what we make. And a lot of products and services got worse. Sometimes subtly. It tugs at your mind that so many little things don’t work like they used to work.

I am happy to fight for what’s mine. But I am fighting harder to get the experience I want. So I notice it when something goes right. When a meal is a bit better than you expected. And quality of service was better than it has a right to be. When maybe something is a throwback to a simpler time. When shit worked. I cherish the things that are genuinely good. I don’t want to lose them.

Categories
Travel

Day 735 and Detail Oriented

Packing is one of my most consistent niche subtopics on this experimental “write every single day” habit. I’m fact, I’ve written 23 times about packing over the last seven hundred and some days. It would have been more but the pandemic kept me at home more which also eroded my packing skills.

I’ve written about my recurring packing nightmare in which the anxiety my inner child feels about travel & packing in my childhood looms large. I’ll be trying to locate a key item as a countdown clock ticks down. I never find the item & I miss the trip.

We moved every two years from house to house. We also traveled constantly for my father’s work. The dream so clearly represents abandonment it’s barely worth invoking psychology.

Now as an an adult I loathe packing. It brings back all my childhood memories of never feeling stable. Boxes and suitcases take me back.

Day 222 and Recurring Nightmares

To overcome this lingering childhood fear, I am a very detail oriented packed. I’ve got lists. I’ve got a whole triage program to be sure I have all of my medicine and vitamins in their original prescription bottles so the security folks don’t fuck me. I do doubles so if I get separated from a bag I can manage 24-48 hours without it. And I never let my core prescriptions leave my backpack which never leaves my sight line.

A grey Muji overhead suitcase and an Aer backpack

I’m a very light packer when it comes to clothing. I’m a two shirts, two pants, one dress and six undergarments type for a two week trip. With some winter sweaters taking too much space. I do them in cubes that zip down for less space and then I label them.

Packing cubes with labels

I try to label everything in my packing cubes and match them back against my master Notion document for packing necessities. I think do another hand written list in my notebook as well.

I have to take a number of medicines and vitamins with me to manage my ankylosis which takes up a third of my suitcase. I could be a much lighter packer if the TSA and other security institutions didn’t insist on me carrying drugs in their original prescription bottle and a file with my prescriptions printed out. I’m not a detail oriented person without focus but nothing forced focused quite like the prospect of falling ill overseas.

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Biohacking Emotional Work

Day 733 and Rollercoasters

I felt amazing last night coming out of my weekly therapy block. I was emotionally present. I was kind to myself. I felt like I was making progress. What a way to kick off the New Year I said to myself. I was riding a high.

I went to bed at my usual time feeling relaxed. I definitely thought I was doing the moisturized, thriving, in my lane meme perfectly. But then I woke up at 1am completely alert. Fuck.

I usually have more trouble falling asleep than staying asleep. Coming down from an emotional high like therapy can often take me a few hours. But every once in a while, I will wake up in the middle of the night and find myself unable to fall back asleep.

I felt like I was on a roller coaster. I was up then I was down and then I was up again. I was energized and completely awake for three hours in the middle of the night.

The sleep hygiene folks tell you it’s best to get up and do some sort of activity if you find yourself awake during your normal circadian sleep cycle. I decided to read a book.

I’m in the middle of Tomorrow and Tomorrow and Tomorrow. It has been recommended on numerous “best of” lists. I am enjoying it quite a bit as it’s about friendship, a gaming startup, disability and creativity.

Eventually I felt myself getting drowsy around 4am. According to my sleep tracker I was in and out of light sleep until around 6am when I finally transitioned into deep sleep. The rollercoaster had ended its ride.

Categories
Internet Culture

Day 717 and Walled Garden

The walled garden debate is back in Silicon Valley. What is a walled garden you ask? It’s a closed ecosystem in which your entry, exit and experience in the garden are controlled by a central entity. While modern social media has very centralized ownership structures, we’ve basically aligned on allowing sharing of content and interactions across and between platforms. We’ve homestead the modern social internet by tilling our profiles and tending our communities.

But people are straining at the compromises we’ve made over the years. Elon Musk is attempting a rather heavy handed walled garden strategy on Twitter by banning linking and promotion of competing websites.

It’s unclear if it will last at the moment as within hours Elon apologized for making a massive change without a vote. Whatever that means. It’s been six hours of chaos as people reactively extremely negative to being told you cannot link to your Instagram or Facebook accounts. A few dickriders attempted to defend it by saying it was freeloading but it isn’t really tragedy of the commons that Twitter can’t make money off my hard work.

I’m old enough to remember the sheer indignation of Linux dorks had for the all encompassing closed systems that is Apple. Jailbreaking was a pastime for a whole generation of nerds. Sure the money folks kept trying to contain their ecosystems giving us nonsense like America Online, but information wanted to be free right? Well Stewart Brand fans know that isn’t the whole quote

Information Wants To Be Free. Information also wants to be expensive. Information wants to be free because it has become so cheap to distribute, copy, and recombine—too cheap to meter. It wants to be expensive because it can be immeasurably valuable to the recipient. That tension will not go away. It leads to endless wrenching debate about price, copyright, ‘intellectual property’, the moral rightness of casual distribution, because each round of new devices makes the tension worse, not better.

Stewart Brand Whole Earth Catalog

Whatever is going on inside Twitter and Elon Musk’s mind is unclear. But the basic tension of the internet has not changed. We built tools to network together whole worlds and that has been fucking with ideas of ownership and who gets paid since day one. Capitalism usually finds a way to ride on top of these issues of ownership and value but the technological progress came out space old norms quite quickly.

And we are in a moment where skepticism of these norms is being challenged. Why shouldn’t we get to chose how we engage with our own property online? Maybe we don’t own the land but we definitely homestead our little plots of internet land.

Because the nature of the internet is wild and untamed. It takes work to make it usable. And most of us don’t mind paying a fee to keep the grass trimmed. A few of us might even prefer a country club experience. But the trouble with any commons starts when enclosure starts.

And Elon seems to be going for something that’s more heavy handed HOA than parcel of land outside of county lines. And like your average president of the homeowners association, he seems to be taking concerns and criticisms quite personally.