Tag: Life

Categories
Culture Emotional Work

Day 893 and Somebody to Love

Today is my husband’s birthday. We aren’t doing anything specific to celebrate the occasion as that is his preference. But I want to mark the day personally by sharing my love for his dislike of making a “thing” out of traditional celebrations. I feel it is one of his finest qualities.

I respect that Alex doesn’t like to make a big deal about his birthday. He doesn’t really care for making a big thing out anyone else’s birthday for that matter either.

He will celebrate an occasion if someone else wants to do so but I’ve only ever seen him enjoy celebrating daily life. He’s loyal to the people but disinclined to mere symbolism.

Alex’s approach to marking an occasion has always shown me constancy and loyalty. He shows up for each day. Perhaps this approach isn’t a conscious effort. He shows up for the moment when asked. Over and over again. Which is quite a bit harder than buying a good gift even if it looks less glamorous.

My birthday celebration with Alex involved a 2 hour delayed cold pizza at 1 in the morning while staying in shitty hotel in London. That’s more of my speed than parties, gifts, or elaborate gatherings and more of his speed as well.

Maybe it’s that Alex doesn’t wish ask us to perform rituals that have no meaning to him. I perceive this inclination as gracious and masculine and steady.

This isn’t to say that there isn’t a shadow version of this preference. My suspicion is that birthdays require too much social pressure for it to be enjoyable. It’s burdensome for the return on emotional investment and a waste when one can celebrate at any moment one chooses.

In the spirit I’d like to wish Alex a happy birthday and a lyric from Queen. May you all find somebody to love.

Ooh, each morning I get up I die a little
Can barely stand on my feet
(Take a look at yourself)
Take a look in the mirror and cry (and cry)
Lord, what you’re doing to me? (Yeah, yeah)
I have spent all my years in believing you
But I just can’t get no relief, Lord
Somebody (somebody), ooh, somebody (somebody)
Can anybody find me somebody to love?

Queen’s Somebody to Love
Categories
Chronic Disease Travel

Day 889 and Soul Delay

A girlfriend asked me if it felt good to be home in Montana. I said I wasn’t sure as my soul hasn’t landed home yet. I think it might be somewhere over the Arctic at the moment.

She knows, now, absolutely, hearing the white noise that is London, that Damien’s theory of jet lag is correct: that her mortal soul is leagues behind her, being reeled in on some ghostly umbilical down the vanished wake of the plane that brought her here, hundreds of thousands of feet above the Atlantic. Souls can’t move that quickly, and are left behind, and must be awaited, upon arrival, like lost luggage.

William Gibson – Pattern Recognition

I don’t feel like I’ve really landed yet even though I’ve been home for a full day. My body is going through various forms of blowback and regression as I resorted to Prednisone while in Europe.

I’m itchy and in pain and simply going about my routines despite it all. Rhythms and processes run my life because I’m a traditionalist. What you do every day is what you become.

Everything physical I do has a cost and nothing is higher cost than travel. I am bearing those costs at the moment. Blessedly the costs feel removed and remote as I am a perhaps disassociated as my soul may or may not be somewhere over Greenland.

So if you’ve not heard from me it’s because I’ve got a bit of soul delay with my jet lag. Or a bit of jet lag with my soul delay. You can expect reintegration soon.

Categories
Startups

Day 887 and Twenty Twenty Four Hours To Go

And I wanna be sedated. Alas I do have something to do and places to go. Namely home. So I better hurry hurry hurry before I go insane.

As I’ve covered at enormous length, I do not care for travel. My reoccurring nightmare is packing for a trip that never comes. A liminal state of impermanence, in which I must be prepared at any moment to grab all my belongings and leave.

My month in Europe flew by. I hardly noticed the time. Some of that is due to tie up and down nature of travel stresses. Most of it flew by because I was having fun.

I learned a lot on this trip. I learned about racism and pluralism and the ever present dangers of populism. I learned about green energy policy failures. I learned that freedom to travel and transact is a privilege reserved for the select few who have good passports. Colonial legacies and festering wounds from resource wars and genocides still keep borders closed. We are not yet one human species and it will get worse before it gets better.

As much as I am looking forward to being home in Montana for our glorious summers, I am leaving behind some pieces of my heart in Europe. I’ll be back soon. But only once the weather has cooled down again. Climate change and chronic illness are not good bedfellows. But in twenty four hours or so I’ll be home. And I hope to recover quickly from the stress of travel.

Categories
Biohacking Emotional Work

Day 885 and Grieving Your Many Deaths

The most soothing statistic I’ve ever hoped was true is that your body turns over all of its cells every seven years. It seems to be functionally close to true. Every cell, except those in our brain, our heart and our eyes, does indeed participate in some form of cellular renewal.

Our bodies replace many of their nearly 30 trillion human cells regularly. About 330 billion of those cells are replaced every day — that’s about 1 percent of all our body’s cells. Other cells, like the tiny ones in our gut, renew within a week.

How Stuff Works

I’m not much for dreams of eternal life. Chronic disease tends to give you a bit of appreciation for Sisyphus and the torture of daily physical embodied indignities. But give me the hope for constant change and you’ve got my attention. And yes I moved a lot as a kid who do you ask?

Doesn’t 1% renewal day seem both manageable and swift at the same time? It’s one of the recommendations I give to folks who are interested in biohacking. Change one variable by a small percentage every single day. Big changes come from compounding over time.

It does make me wonder if I’ve taken adequate time to grieve the many versions of myself that have died. The ghosts of old versions of Julie haunt me. Every time Scotty beamed you up, imagine the last version of you that was killed on the transporter pad. Ghost stories right?

I’m not the same person I was yesterday. I’m not the same person I was a month ago. If I look at how much change I’ve undergone in just the last year it feels dizzying. If I consider how different June of 2023 Julie is from June 2022, I’m barely the same person.

I take solace in the 1% renewal. That even if this version of myself is suffering, I am building a future version of myself that compounds into better versions. Seems like we should be grieving a little every day doesn’t it?

Categories
Culture Preparedness

Day 883 and Ride the Edge

If you aren’t comfortably with the current standards of living on average, I’d consider shoring up your resources now. As our planetary resource situation doesn’t appear to be getting better.

As more first world countries come to terms with slowing growth (perhaps even degrowth), resource scarcity is going to affect daily life in uncomfortable and visible ways we can’t smooth over with shrinkflation. If you aren’t prepared to live life on a harder setting, you should begin as soon as you are able to prepare for that reality.

I’d like to think about this problem with a bit of distance. What if we have a coercive state and social consensus for something you’d consider a personal preference or choice, but civil society views as as deviant? You will need to find ways to look like you are conforming even if in private, you are not. So how do you do so?

You may find it helpful to not stick out. In that situation there are two ways to survive an attack. Being protected and in the middle of the herd. Or be as far away from the herd as you can be.

Anyone on the edges of the herd of social consensus, but still within the second or third standard deviation from the norm may get hurt. Forced metaphor of the brutal blue curve but you get what I mean. Better to be a true outlier, as the secondary standard deviation will be forced by a brutal bell curve to fit in better.

If we add in artificial intelligence to the equation, we’ve got even more effective tools for monitoring and surveillance of out-group behavior and even easier mechanisms to deploy social shaming force at scale to insure social adherence. The panopticon is us. An army of Karens armed with the probability you will deviate waiting to pounce.

See for instance a social shaming quote tweet campaign. Now imagine it’s state sponsored propaganda but organized, through the seemingly spontaneous egregores of populism, add a dash of rule by authoritarianism and you’ve got yourself quite a problem. The wisdom of crowds can look like mania.

I got a small taste of being shamed yesterday by my neighbors in a Frankfurt Airbnb. Air conditioning use is frowned on in Germany now for both social reasons and also failing energy policy. Shutting down the nuclear power was a bad idea.

I’ve been suffering from an autoimmune issue, exacerbated by allergies and pollen, so I’ve used the air conditioning on 80 degree days. This was enough to get my neighbors to complain to me twice. I attempted to comply by going to a hotel but quickly found that no hotel would let me turn the thermostat below 72 degrees.

I decided to brave the noisy neighbors and run the air conditioning at the Airbnb in the end, but I didn’t appreciate having to lay our personal health problems to justify a private decision. Now extrapolate this out to genuinely serious situations. The disability issues are often an early lens into wider social attitudes on freedom, choice, value and worth.

You have to decide now if you want to hide in the middle of the herd. Can you pass? Are you able to fit in or do you have some deviance in your life? If you aren’t sure you can pull off average, you must ride the edges. Be as far outside the herd as you can. Maybe on the edge you can find a pack that will defend you.

Categories
Chronic Disease Travel

Day 882 and Disability & Energy Policy

I hate when I am made to feel embarrassed and ashamed by my disability. And the German’s current energy policy has me feeling like my medical needs are something of which I should be ashamed. And that’s bullshit. It’s a policy failure.

I have ankylosing spondylitis (an inflammatory condition in my spine) along with a cluster of other autoimmune issues like allergies, migraines and dermatitis. If my symptoms flare I can’t walk and the treatments are unpleasant. Methotrexate, steroids, specialty biologics injections.

I live in chilly dry Montana as the cold is better for my condition than the heat. But when I travel I am confronted with heat, humidity and pollution which exacerbate my symptoms. Sometimes significantly. It has caused great anguish through its impact on family gatherings.

I find myself in Frankfurt for a mix of personal and professional reasons. The Airbnb I rented for the month was one of only a handful that offered aid conditioning at all. And one of only three that was a personal apartment and not a hotel service using Airbnb.

So I booked it even though I noticed it was on a main road in the neighborhood of Sachsenhausen. The host assured me it was quiet and most of the apartments looked out on a garden in the back.

Alas the bedroom was on the main road so I was unable to ventilate the apartment by keeping the bedroom windows open as the exhaust and debris from the roadway left my eyes red, itchy and I woke up with hives several times.

I bought a small fan at the local store and kept the bedroom door open and had the fan blow cooler air from the back windows overlooking the garden. I was still struggling with ventilation as the car exhaust and fumes meant the bedroom had to be sealed. Even then I paid $50 for a cleaner weekly to clean up the pollen, debris and dust that would get in from leaving open the window

I’d leave all the windows open on the good side, keep the apartment sealed and dark during the day, and have three weeks of extremely shitty sleep on my Whoop to prove it. But overall this worked well until it got hot enough to warrant air conditioning usage.

Sadly summer is rounding the corner and a few days in the low 80s (or 27-28 C for you Europeans) was too hot for my spine to tolerate comfortably. I was struggling enough with keeping the bedroom cool with the fan and back open window so I decided to run the air conditioner. It was old, noisy and hadn’t had its filters changed in a while. I made do.

The neighbors complained. Twice. Once through the Airbnb owner and the second time by knocking multiple times on my door. I had to explain to them embarrassing levels of medical detail to assure them this wasn’t preferred temperature or taste but a medical necessity. I hadn’t expected to show off my vials of injectables to be taken seriously but thanks guys. They wouldn’t back off till I showed my records and medications insinuating I was both a bad person and that authorities could be involved.

This weekend it is expected to be in the mid eighties so I thought rather than fight off my neighbors and get another bad night of sleep with a dirty air conditioner and noisy roadway I’d check myself into a hotel. I’d been having a significant flare of all my symptoms which had required emergency doses of steroids, two unexpected infections (I take immunosuppressants) with two different antibiotics, and quite a bit of other remedies.

I woke up with strain and in a sweat. Antibiotics & steroids are fun

Well I guess the final boss of Europe’s poor energy policy was about to land it’s final blow on me. The hotel I checked into for some relief won’t turn its air conditioning below 72 or 22 C. It has to be much warmer to get it to my preferred temperature of 17 while I was experiencing this flared fever state. That apparently wasn’t an option.

So I guess I’m going to check one more hotel to see if they will allow me to cool my prior to my preferred temperature or I’ll prepare for another fight with my neighbors over running the air conditioning overnight again. Wish me luck. Build more nuclear power. Install solar arrays.

Categories
Biohacking

Day 881 and Set a Timer

I’ve always been the type of thinker who enjoy playing with differences and similarities. I find it pleasing to see common attributes of humanity. I’m soothed seeing we are more alike than not even across vast genetic & cultural distances.

I equally enjoy spotting games of “one thing is not like the other” as part of the general pattern recognition that evolutionary Darwinism implies. The freaks and mutants are who push us forward. Recognizing the value of positive differentiation is the basis for every job I’ve ever loved from fashion to finance.

This might be why I enjoy tools like timers, trackers, spreadsheets and other measurements of inputs and outputs. I like inferred knowledge and probability. Those goofy old standard test questions “this is to that: as that is to this” were my favorite.

I understand how totalizing using these tools can be. I’m currently experiencing the intense urge to smash my Apple Watch as I am asking it to “set a timer for 45” minutes several times a day. I’m setting shorter timers too.

I am spreading out a biohacking regimen while my body goes through an ugly symptom flare that suggests both allergy issues and a general immune response to what I believe is an infection from some scratching that opened my dermatitis. Fun huh?

The expectation that one’s body is unique and an N of 1 pairs poorly with averages, reversion to the mean, and the persistent beeping tinging ringing reminders of a timer going off telling you to follow the routine. So here I am wishing to some spreadsheet brained hope that my inputs and outputs will balance and I will be fine if we got the dosing right.

Which is the prayer of everyone who has ever experienced a medical malady. Set a timer, wait, and pray to an actual God as the ones in our phones aren’t up to the task of being deities just yet. More like having a troublesome djinn that promises the pain will go away if you do exactly ask it asks.

Categories
Culture

Day 874 and Steady Hand

All the science fiction I read as a kid has been a great trial run for the current reality. We have synthetic selves, AI chatbots, embedded intelligence, and money run by a consortium of your peers.

That’s not too shabby considering that my favorite utopian science fiction Star Trek depicted San Francisco as a crime ridden dystopia with a vast chasm of financial inequality. Oh wait.

I didn’t expect future shock to be so tiring. I expected a bit more fun and optimism and a little less doom, fascism and reactionaries. But I guess like all humans, we forget that our history is just repetitive series of discovering that power corrupts but human ingenuity prevails at solving the problems we bring in ourselves.

How long that luck holds is now in our hands. I sure hope we don’t fuck it up too much as we fuck around and find out. And if I’m going to survive future shock I need to take care of myself, stay one step ahead and make sure I have a little fun along the way. A steady hand and a calm nervous system is necessary for a chaotic world.

Categories
Biohacking Emotional Work

Day 873 and Commitments

I have two conflicting commitments at the moment. Both are with people who I’d consider intimate relationships with as much access to my inner life as my closest confidants.

I made the decision to show up for both parties last week and this week. And while I don’t regret my decision at all, the choice has had consequences. I am accepting them right now. I’m in bed and in a fun spiral of inflammation. I’m in pain, and even more annoying, I’m fucking itchy as hell. My biometrics are screaming red across every dashboard from Whoop to Welltory.

The irony, of course, is that in being so committed to showing up for others I failed to show up for myself. I didn’t know what I wanted so I did everything I’d obligated myself to do.

I can’t blame it on anyone even though it’s so easy to consider the ways I can rationalize my choices. I’m committed to good and useful things that improve my emotional fluidity and contribute to my personal growth.

Being committed to others means being committed to yourself first. The better I maintain my boundaries, the more I can show up for someone else. Knowing what we want, asking for it clearly, and being accountable for the actions you took is the whole ball game. Everything else is details. And I bet you can manage that.

I am committed to myself as I’ve got to rest and get myself under control or else I’m not being accountable. And I’m not a victim to my circumstances. I chose this.

Categories
Emotional Work

Day 870 and Keep on Slipping

They say time flies when you are having fun. Some internal sick sadness combined with external geopolitical confusion, during what I’ve come to call “my sick years,” were in hindsight timeless years.

I am now past the worst of it. Time had no meaning when I was struggling to get diagnosed and treated during those years. Then we collectively ran headlong into the pandemic. Time had been a flat circle for a while and I wasn’t coming or going. My time was out of reach.

But those days of sad, static immobile time have given way to vim, vigor, verve (and fuck it, why not) even vivaciousness. I must be having fun again, as now time is absolutely flying.

I still carry my health challenges with me (ankylosis spondylitis like all inflammatory conditions comes and goes with the reliability of the fey), and the world is just as fucked up as ever.

And yet on the other side of many hard fights, I am happy again. The miseries are my choices and worth the fight. It’s many pleasures are fleeting, often, and luxurious beyond what my former self thought I deserved.

I hope time keeps on slipping like this for a while. The joy of my struggles now makes me eager to take care of myself. I take every day as slow as I can and still they go by so quickly.