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Chronic Disease Startups

476 and Temptation

When I am feeling healthy I love to over do it. Most days I feel basically fine. Which is a significant improvement over even two years ago. I was living a little low. But maybe once or twice a week now I will just feel terrific.

Today is one of those days. I woke up early after a restorative night of sleep. I didn’t miss anything on my extensive wellness regimen. I was just nailing the day.

The sad part about doing wellness because you have to for a chronic disease is that you aren’t even ever hotter for it. Healthy women be doing yoga & taking supplements and practicing wellness and it’s a fucking Instagram campaign. I do all that shit and at the end I’m “ok.” It’s actually pretty demoralizing. I engage in flawless yuppie next generation wellness because it’s actually keeping me alive.

With this context it’s clear that I resent having to take good care of myself. It feels like a burden. So when I have a really good day. When I’m just energetic and focused and, yes moisturized and thriving, I’m also plotting how to undermine myself.

Because I felt terrific I just hand to indulge in it I took a bunch of calls and did a bunch of portfolio work. I went for an hour long creekside walk to discuss some communication strategy with Alex. I was vibing. Until I wasn’t. I crossed some little threshold and realized I needed to pull back the energy expenditure. I recognized I have given into temptation this time.

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Preparedness Startups

Day 474 and Unsettled

I don’t own a home. It was never a financial reality before the pandemic. But then the world accelerated and suddenly we had options and money. But still it seemed impossible to commit to another asset with a long time horizon even recently. We were startup people so every other asset was a long hold.

I don’t feel that way anymore. I have written about how I would like to buy a home now. I feel like it’s time to find a place where we can build some stability. But of course the chaotic thesis haunts me.

The chaotic thesis is the one that undergirds all of my investing. The world is getting more complex. That breeds chaos. The biggest macro-level mega trend of the next decade will be adapting to the chaos.

And as it turns out adapting to chaos is really hard. Everything that allows you to cope with the chaos in high demand. A safe place to call your own? Sorry, it’s never been harder to become a homeowner.

I wish I could say that knowing this is our reality makes it easier to adapt. Knowing isn’t the battle as it turns out. Acting on the knowledge is the hard part. Making good decisions under pressure is what will separate out who thrives and who merely survives.

I don’t think it’s going to be pretty and I’m genuinely worried it’s either hit the singularity or a new dark age. There is a reason we think we need the metaverse and it’s not because reality is getting better. It’s because it’s getting worse. I allowed all the web3 kids working out there working on Plan B.

Categories
Chronic Disease

Day 472 and Missing Out

I never had headaches in my twenties. Migraines were a cultural phenomenon I was aware of it never experienced. After I did fertility treatments about four years ago my body went though a number of changes for the worse. I developed an inflammatory condition. And I became acquainted with migraines.

My migraines are the light and sound sensitive type. They leave me nauseous enough I have a prescription just for that. I’ve tried a number of treatments for the migraines prophylactically, but only Imitrax really helps once it starts. If I’m lucky I can turn one around in 3-4 hours with medication and a cold dark room.

Today wasn’t a day where I could turn it around fast enough. And I feel sad and alone and depressed about it. I was supposed to meet friends for a nice meal to celebrate with them and I’m missing it because I couldn’t control the migraine fast enough. Alex my husband made it to dinner with our friends but but alas at home in a dark room waiting for my Imitrax to kick in.

I debated if I could force myself into showing up but it was decided the amount of pharmaceuticals required wasn’t passing a cost benefit analysis. I tried to make a case for it saying if I just tossed enough pain medicine at the migraine maybe I could do it. But the rational vote from Alex was a veto. And he’s right if it takes an opioid to get me out the door that’s not something I can justify for a social event.

The irony is I actually dislike fancy dinners out. I find them to be exhausting. Having to sit on uncomfortable chairs and socialize for two hours is very expensive energetically for me. It probably takes a day to recover from the energy expenditure and I often have to up the doses of my stabilizing medications. I tend not to say yes to them as it’s expensive for me and I don’t enjoy them.

So I don’t know why I’m so upset that I’m missing this dinner. But I am so upset. Maybe it’s because I’ve had months of stability without any issue. When I said yes let’s go I expected to be fine. The last time I recall having a major crash was in early February. Since then I’ve flown internationally, lived on my own, and made it to a crypto conference in Miami with little incident. So maybe I was due for a bit of a crash. Maybe it’s just inevitable that if you push you need to rest.

But I feel miserable, inadequate and guilty about it. Like I should have tried harder. Should have taken more drugs. Or at very least been more upfront that sometimes my body is unpredictable and I find it challenging to have be “on” and in public for social things that aren’t strictly speaking crucial. But now do you tell beloved friends that they aren’t crucial? You can’t really. I just have to hope I can do it. And mostly I can. But not today. Today I couldn’t.

I feel like maybe I owed my friends a performance. I can perform in even dire circumstances. I never miss a dinner or event or appearance at which I’m required professionally. But I don’t hold myself to that stand personally. Sometimes things happen and I just can’t do it and I have to let my body dictate my schedule.

That reality makes me feel isolated and alone. Because I can’t make the same commitments as regular people to socialize and enjoy normal things. There is always the risk that I’ll have a bad day. And I save my energy for work because I have to. So that means I don’t get to have a normal social life like other people. I don’t usually mind but today I do. Today I’m missing out.

Categories
Internet Culture

Day 469 and the Discourse

On the one hand, the discourse today is horrible. Elon Musk threatening to buy Twitter is breaking people’s fucking minds. On the other hand, it’s the height of culture to be so singularly obsessed with a topic of such little consequence. The zeitgeist is full on psychotic.

This isn’t about free speech. Fuck that. No one gives that much of a shit about corporate governance that they’d super impose a civilizational problem like free speech onto securities law. This isn’t an episode of Billions. In except that both make me want to scream “that’s not how this works, not how any of it works” into the void.

This is all an elaborate publicity stunt to feed the narcissism driven logic of markets obsessed with celebrity and personality. Because everyone knows what everyone knows, pricing discovery is a function of lurching forward a narrative for the vox popli. Except everyone is convinced they are uniquely brilliant so they can’t possibly also be manipulated by the transparent agitprop. Yeah yeah sure I’m a galaxy brain too. We’re all playing 4D chess. Everyone is winning and the markets only go up.

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Startups

Day 468 and Small Moves

One of my favorite movies as a kid was Carl Sagan’s Contact. It’s not a great movie but it’s heart is in the right place. It’s a beautiful story about human curiosity and the long timeline of history. In one of the closing sequences the protagonist is told by alien intelligence as embodied by a representation of her dead father that all next steps are “small moves Ellie.”

I never feel like I’m moving fast enough. Every day presses against me. I long to slog through them with speed and alacrity. It’s almost embarrassing how inadequate I find my progress. But then I remember that I move fast. I live ahead of the mainstream. I get to sit in the future that William Gibson said was not evenly distributed. Even if I don’t think I’m particularly good it’s hard to deny just how much of my life is lived in a tiny sliver of humanity.

Someone recently asked me how I moved so fast when I’m dealing with a chronic illness. I found it to be such a shocking question. I feel like I’m glacial compared to the reach of my desires and imagination. But then I’m reminded that even in shorter hours I’m forced to hone my crafts. I can’t afford to waste energy or focus so I simply do not. I imagine this focusing out of need is similar to what parents of young children operate in. The subtle art of not giving a fuck.

And so what if I am slow on a day to day basis. Rome wasn’t built in a day. I’m not a market trader. I invest in ten year cycles. Everything in venture is actually small moves. But as time adds up so do the aggregate of the moves. Compounding interest is up there with gravity as a force. So even when I yearn for more and for it to arrive faster I have to trust the numbers.

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Preparedness

Day 467 and Taking Inventory

I’ve got the urge to do some spring cleaning. But not in the typical “the house is messy” way so much as I want to take inventory of my shit. I’ve got just a little bit of an unsettled feeling watching food prices creep up over the last few months. I was insulated in many ways because I buy local and I buy upfront in farm shares. But a new season means new prices and reasonably so as everything is more expensive.

If I’m totally candid even a tripling of food prices wouldn’t really hurt us. We’d absorb it and have been absorbing it in our expensive takeout habit. Our local BBQ joint has been slowly upping the prices on our favorites. Even the burger has gone from a fancy $14 affair to $17 over the last six months.

It’s not that I haven’t encountered the dreaded $20 burger plenty in Manhattan but there is something surreal about having ground chuck basics be that expensive in Colorado. It’s just so clear that life is getting more expensive and it’s doing so rapidly.

I’m not a total doomer about rising fertilizer costs and the knock on effects of the war in Ukraine. I’m not anticipating famine in America. But I also feel like I need to take stock and do better planning around my food supply.

Categories
Biohacking Chronic Disease

Day 463 and Caretaking

My husband has a a weak immune system. He used to get colds once a month or whenever he would travel. I, on the other hand, have a wildly overactive immune system. I never get colds.

His immune system doesn’t fight shit off well, whereas mine seemingly never ever stops reacting. I have an auto-immune disorder which is marginally worse than getting colds so on balance Alex does more caretaking of me than I do of him. But it wasn’t always that way.

I used to take care of his regular colds when we first got together. When he married me and we lived together, he slowly absorbed my overly active immune system, eventually cutting down on his colds to a couple times a year. And yes this is weirdly a thing that happens. Your partner affects your gut biome. My health sadly got kinda worse over the course of our relationship. I doubt Alex’s shitty immune response made my life any worse (if anything I would be thrilled for mine to chill out and I take drugs to subdue it) but arguably him getting my overly active immune system has done wonders for him.

I stopped being a caretaker for him. He became a caretaker for me. It was an interesting transition I didn’t really clock at the time. Alex was used to constantly being sick for years but through exposure to me he kinda forgot how much it sucks. This was further exacerbated when the pandemic hit and we stopped being exposed basically any infections.

Alex went two years without a cold. It was miraculous! Alex really enjoys his identity as a health person. Hell he thrived as an active Colorado outdoorsman in a way he never did as an indoor New Yorker. But travel and life is rebooting and it would seem Alex’s old weak immune system is so out of practice it doesn’t do well with crowds and travel and public appearances. We’ve been in Miami less than a week and he’s sick as a dog. Thankfully it’s not Covid. But guess who got to remember what it was like to be a caretaker again? Yeah, I’m responsible for Theraflu and nose spray. I didn’t do any of the conference I’d planned for the day and had to cancel on a bunch of plans but honestly it’s not so bad. Caretaking is an act of love after all.

Categories
Emotional Work

Day 462 and Action is Not Power

Action equals power in America. But at the risk of repeating some basic definitional shit, action is action. Power is power. They are not the same thing. I have a bias towards action as the famous Amazon aphorism goes. I think action is often a beneficial force. But I am learning that sometimes I need to be still in my power without turning to action.

It’s a challenging concept for me. I have more power by allowing it to flow through me. But I prefer taking action to acquire it. I’m in an industry and country where no one is ever satisfied. The need to acquire more is a looming mimetic desire. And the clearest path we see to acquiring more? Take action! Do a thing. Make a move. Be a player.

But sometimes power is found in stillness. The slow places. The quiet places. The interiors of our lives. We meditate and contemplate. All these practices can help us access the power we already have inside us. The capacity that existed all along and simply needed to be honed.

I wanted to beat myself for not seizing more power recently. Why wasn’t I being more aggressive? And then I realized I already had everything I needed in me. I don’t mean this as some bullshit thought leadering either. I slept till 1pm today because I was out late last night. I needed the stillness and rest so my own power can through. I could have been up and seizing the day but that would have only resulted in action and not power.

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Preparedness Travel

Day 460 and The Tropics

When I was a New Yorker, the flight to Miami was the preferred winter escape for everyone from Upper West Side Jews to Lower East Side hipsters. New Yorkers love Miami. We’d all decamp from the grey for long weekend’s beginning in December with Art Basel and ending in February as the various winter equestrian circuits wrapped.

Every restaurant that was popular in New York had its own branch tucked away in some form of boutique luxury hotel. The clothing stores had branches down here too. Even our preferred gyms like Equinox had their Miami outposts. Miami was in my mind the “Winter Borough” of New York City.

So I’ve been a little tickled by it’s adoption in the pandemic years as the New “New York” because it’s still the old New York for me. But it’s never been a particularly viable replacement as an all year respite as it’s the fucking tropics.

Even though it’s only April the muggy sticky soul sapping humidity is out in full force. I was awake at 7am and went outside to forage for coffee and breakfast. I could barely make it a block before I was perspiring. It was 79 degrees and 86% humidity.

Maybe I’m just a wuss. I fully admit that I’ve never liked the heat. I can barely tolerate Colorado’s dry heat. So I feel like I’m wilting in the Miami heat. I’m just not built for the tropics. And I’m not sure society is either if you have to run air conditioning year round.

I don’t think I’ve got the stamina to survive a power outage in Miami. The preppers and doomers that can make it through hurricane season impress me. Imagine going without power for several weeks after a hurricane. Days of a 72 degree dew point and 86% humidity are survivable but just barely. Hot weather doomers are nuts in my book.

Categories
Travel

Day 459 and Humiliated

I am inviting a friend with a “bad visa” to spend a vacation with my family over the summer. We’ve got a road trip to national parks as well as a family reunion with full on Boston lobster boating as options for a great trip. It’s a big to do and a pretty quintessential American summer vacation. After the pandemic those kind of tourist dollars are clearly much needed.

However the American government doesn’t seem as keen as I am to show off the majesty of our nation. It’s really hard to get a tourist visa granted if you are not from a desirable nation like Sweden or the United Kingdom. Basically as the American if you invite someone who requires a tourist visa it involves something called a Form I-134. And it is extremely noisy. The goal of the form is to show the Feds your guest won’t become a ward of the state.

They want to know the balance of all my savings and checking accounts, the value of my personal property, my annual income, a list of stocks and bonds, my life insurance policy and it’s cash surrender policy, and any mortgage or real estate. The immigration lawyer said they look for about 10K in assets as a safety net in case something happens so maybe this is easier for people with normal jobs and salaries. I haven’t taken a salary in quite sometime.

But no joke they make you swear on perjury you have these assets and put in a number of scary paragraphs about how the Feds will garnish your wages if your guest applies for any kind of benefit program like food stamps or Medicare. I find it a little comical as it’s practically impossible to qualify for anything but sure guys let’s scare people into reconsidering inviting tourists to spend money here.

It all has the effect of being a bit humiliating. I’m ashamed I can’t figure out the paperwork without hep. The federal bureaucracy has easily felled better minds than mine but also shit I’m pretty smart. How does an average person manage? I feel ashamed that American is so unwelcoming. I’m ashamed my friend is being treated like some kind of potential mooching criminal.

If America is to even pretend it’s making an effort at being a shining city on a hill, we should start by being more welcoming. Treating guests as welcome seems like a good first step.