Categories
Biohacking Chronic Disease Emotional Work

Day 1708 and Calendaring Pareto Optimal Care on a Worsening Trajectory of Biometrics

I like to manage my days with buffers around my routines and obligations. I find tight schedules to be tiring and unhelpful as I manage my energy, pain, and workload. A packed calendar raises my cortisol.

I believe I am easily stressed by shouldering too much, but I also fear I am on a downward health trajectory which will require more time, energy and effort. I am beginning to contemplate reworking my style of effort management as conditions on the ground change. Can I schedule my way out of this spiral down?

My 2025 has been significantly worse than my 2024 and an almost entirely different realm of issues than I faced prior to that. As I compare, 2022 and 2023 were entirely different worlds than my 2025. I thought I was pretty sick then but improving my inflammatory markers has nuked my HRV & stamina.

I’m back to the bleak bottom quartile biometrics I had when I was first diagnosed with my complex chronic inflammatory diseases case.

I fear I never recovered from my two Covid cases including the one which eventually turned into a brutal pneumonia.

The stress of a permanently lowered baseline of biometrics makes me feel despair even as I have new tools at my disposal to mitigate them.

Will my whole life be dedicated to the care and feeding of my broken body? Is that something I can live for instead of simply living with?

I just don’t know how much effort will be put into managing this new baseline and what the effort to reward ratio looks.

Is there a Pareto principle I can apply to permanent disability which I can and maybe even should accept? Or do I soldier on hoping that my middle aged body may repair itself if I do absolutely everything right? And what am I doing all of that for?

It just seems as if no matter the time management, advanced medical care, constant research and daily effort I only get worse. I’ve been under a scalpel three times this year.

Each time I think I have found a new drug or treatment modality I am quickly slapped with second order side effects. And then those side effects have new side effects as I treat them.

It’s the pimp my ride recursion of biohacking, but instead of liking a thing and adding it to my car, I’m adding more and more mitigation measures to manage the results of the biohacking.

Pimp my biohacking

Now I have a new load of emotional stress and grief weighing on me as father died this weekend. I don’t even know what that process will look like, especially given the challenging modern family situation I have.

Any positive aspects of my year (passing the right to compute bill into law, progress in my startup portfolio) seems pale in contrast to emergency surgery, slow burdensome recovery and the arrival of mortality. I’m only at the halfway point of life (and a little bit past that for the year) and I feel done in completely.

Categories
Biohacking Internet Culture

Day 1702 and One Shot Positive Results

I feel occasionally silly about how much I discuss the comings and goings of the internet and in particular Twitter.

And yet there is so much signal within the noise. It’s a fount of useful information that can rapidly transform your life if you pay attention to it.

One of the memes that I’ve enjoyed is the “one shotting” conversations both positive and negative. Recently the meta (as TPOT calls it) has been about the good things that have removed obstacles in their life.

Lots of good suggestions made up the conversation and I’ve tried all of them. Supplements like magnesium and Oxytocin. Theories of mind like the pathless path, jhanna meditation, somatic release, nervous system work, Alexander Technique, and even coaches like Joe Hudson. So many other modalities that I also use were there.

One of the one-shots mentioned was “unclenching” which has been doing numbers. I myself am trying to “do less” and even “no effort” as part of the minimum coercion effort as let’s be real my HRV (also a one shot) has been a little low.

Isn’t it delightful to be inside a set of good and positively reinforcing memes that make your obstacles disappear. I guess we should all be one-shotting so we can speed run reduced suffering.

If none of that is legible then consider poking about as it has made my life better and maybe it will make yours better too.

Categories
Emotional Work

Day 1700 and The Passage Become Who You Are

I have been writing every single day for seventeen hundred days. 1700 days is approximately 4.66 years or 4 years and 7ish months. Not bad right?

This is quite a bit longer than I anticipated when I first began writing daily with the relatively modest ambition to write once a day for a month.

I had done daily journaling in private for ten days and was interested in seeing if I could write in public every day for some period.

I wanted to create to synthesize what I consumed across the media landscape as I tried to make sense of a world deep in the throes of Covid.

This experiment was my second sustained blogging project as I had kept a WordPress blog in the glory years of 2005-2008 or so. Other social media was easier but I’d always liked the format of public long form writing.

I had a secret silent ambition to take the daily habit to one year. It seemed doable. I fantasized about making it to 1000 days, even from the start, but that seemed bigger and more likely to fail. But if Scheherazade could make it to One Thousand and One Nights maybe I could as well?

I set out with realistic expectations but big ambitions. And now here on a random August Wednesday I am deep into the depths of a daily habit that shows no sign of stopping.

I nurtured my early ambition by saying I’d take it one day at a time, while never pressuring myself into achieving it. A journey of a thousand miles (or in my case days) starts with a single step.

I don’t care for pressure. I never have. I believe those who are truly ambitious about themselves set their own standards. You make your own life.

I will do things in my own time and at my own pace. I have never been a quitter so it’s never been a problem that I go at my own pace. Life is about results not effort.

My tenacity remains a force in my life because I am comfortable tending to my will daily. We only make progress by nurturing the seed of a thing.

Not every day is a good day. We don’t always win. I have many days where I lose. But as Allen Iverson said “it’s practice” and you never miss practice. And practice adds up. I’ve done amazing things in the last almost half decade.

I hope that this aspect of my character is as clear to others as it is to me. If I sent out on a journey I will do what I can to make it. If I fail (and I might) it is because I couldn’t.

Maybe the timing isn’t always right or my mind or body isn’t right or the market isn’t right or I am not right. Full stop. But I’ll never let myself fail because I didn’t make an honest effort. And you make the effort every single day.

Categories
Chronic Disease Medical

Day 1692 and Your Wellness Isn’t A Demonstration of Moral Integrity

I am enjoying the adaptive training program prompt managed by an artificial intelligence which I’ve amended around my chronic health conditions as well as my considerable slate of biometrics.

I’ve been using it for a week now as I needed a recovery plan for the fitness losses that came with a month of bed rest recovery after my surgery in July.

Not to suggest I was in terrific shape before the surgery as it discovered a deep tissue infection that went so deep and so rogue I’d likely been suffering from it for sometime despite my attempts at preventative care.

It’s upsetting seeing your resting heart rate go from mid 80s to mid 60s. Realizing your high resting heart rate isn’t because you are a lazy fattybombalatty who doesn’t do enough cardio (real thing a physical therapist has said to me) but because you have a chronic deep tissue antibiotic resistant bacterial infection. Ain’t chronic disease a trip?

Anyways, I’m healing and trying not to overdo things in the process as I’m a bit stupid when it comes to wellness. More is always better has been my mental orientation for much of my life and it’s a hard habit to kick.

Workaholics Anonymous needs a subgroup for those of us who can find ways to over do literally everything. And I do mean everything. I did a stretching and mobility routine last night that had my heart rate at 150BPM doing seated spinal twists. Did I stop? Nope. I finished the 30 minute program. My adaptive training programs response?

Complete rest – no negotiations

And who am I to negotiate with an AI who has no emotions involved in the process of putting together a recovery training regimen. It’s not going to moralize at me.

Categories
Travel

Day 1675 and Running to Stand Still

The accelerationist types must be feeling smug as the disorientation caused by so much of the world speeding up is a persistent feature of life now.

I’m trying to organize a fairly elaborate vacation that I should have nailed down the details on at least a month ago. I am alas doing it what is functionally last minute and I’m panting at the effort of coordinating preferences, availability, timing and the thousand other logistical details.

We have a range of preferences to accommodate and it’s driving me a little bit nuts and I have no one but myself to blame. I cant manage more than three hours in a sitting position in a car or airplane without hurting. Standing helps but it’s really laying down and relaxing my spine that helps.

The other preferences are more of the one person likes fine dining and Michelin caliber restaurants and another likes delivery and Netflix.

We have to balance intensive activities in hot weather like hiking and sightseeing against the desire to lay out in the sun near a body of water. Really all the classics of different strokes for different folks.

I don’t want to be too ambitious about any of this as I am really just barely out of the woods from July. And I’m being vague about when and where, as I’ll like pretend like we have some amount of operational security. Writing is all about the specific but the best I can do is say it will involve driving and water.

Categories
Travel

Day 1643 and Like A Shark

The travel is the kind of stint that requires the logistics of being in perpetual movement across climates and time zones.

I’ve been moving for what feels like 24 hours straight as I did the dance of managing feelings, working to get across to other people, unloading and unpacking and then promptly repacking again as I’ll be on the road for a stint.

I had a shark phase as a child and the lore says the perpetual movement of this ancient predator is required lest it perish. I’d love to know how rest and sleep works in that sort of murky depth as I’d loved to know how we might incorporate it.

As it turns out of the 540 species of sharks only a handful have what’s called Obligate Ram Ventilation which means the faster they swim the more oxygen flows through their gills. If the strop meaning the oxygen drops and they literally die. Great white sharks are the canonical example.

When I am angry I consider the question of whether humans are indeed the apex predators of our environment and if it is in my nature to flow the oxygen and predate upon the wide world who crosses my hungry wrath. My own Christian faith asks for a very different answer and I obey. But the hunger is in all of us.

Categories
Chronic Disease

Day 1627 and 12 Hours

I went to bed yesterday around 3:30 or so. Oops. I could barely write a post as I was struggling to stay awake at all. I did three short paragraphs and tagged it and said good enough.

A long night of poor sleep

My sleep was not peaceful or restorative but at least it was long. The night before I was up late (ok 10:30pm or so) and I struggled to fall asleep.

Alex’s birthday party on Saturday was enough to wipe me out so badly that on Sunday I couldn’t stay up past mid-afternoon. Pathetic yes but not surprising.

I recently did a big round of bloodwork and was thrilled to see my inflammation is down significantly but I have something called inflammatory anemia. So maybe a contributing factor to my exhaustion. There are a number of odd areas that need some attention especially in my endocrine system.

The Bimzelx switch is in its 4th month so almost through the loading dosing. I have had awful side effects but the code biomarkers of CRP and Erythrocyte Sedimentation Rate (ESR) are significantly improved.

I still have all kinds of weird pains and compensatory biomechanical problems but I’m feeling moderately optimistic. The next steps are around the corner. And hopefully I get more deep sleep and REM sleep before I tackle it.

Categories
Biohacking Chronic Disease

Day 1598 and Routine in Chaos

I have been contemplating “an ideal routine” as soon as I felt the pressure of showing up for first grade. How to manage the energy the outside world requires from you while making sure you have done everything possible to manage your body to produce adequate energy.

Morning routines, what’s in her bag, every day carry, and optimal packing strategies all derive from a need to see how others are coping with the demands of life. You can aspire to various ideals of fitness, nutrition, style and parenting if you could just get the right routine with the right tools. Right?

I’m aspiring to restart learning new toolsets for building …everything. From design to marketing software to muscles to my hormonal profile. Building the life you want is deceptively close if you can manage yourself.

Life feels malleable at the moment. And who is going to stop me? Maybe I accidentally fix a problem for myself and find I’ve got a tool or insight that might benefit you. The chaos of old ways fall apart means new routines and folkways must be built.

I don’t want to betray myself by overreaching and pushing as I am so often finding hard limits the hard way. I like to go hard and rest. But reality has become so much less reliable that I wonder if I must compensate even more for the chaos with steadying flows of my own.

Categories
Community

Day 1595 and Overflow

Bozeman is host to The Montana Festival this week. Alex and I are small donors to the festival as we are neighbors of one of the organizers Padden Guy Murphy. It’s a celebration of Montana’s many industries and people as we work together to build a better future.

Montana Festival is an annual celebration bringing together the top entrepreneurs, architects, business leaders, startup operators, innovators, artists, investors, culture creators, designers, community builders, movers, shakers and policymakers from across Montana and around the world to forge new friendships and catalyze Made in Montana ideas, projects, companies, and policy solutions to positively shape our shared future.

It has alas been raining to beat the band since the event started. At the welcome party last night literally the sound of the rain beat the sound of the band. This didn’t stop the band or anyone else from having a lovely time. Just raise your voice and have a good time.

Thankfully I’d taken Benadryl and some mold kickers as I’d been concerned I wouldn’t make the party with the weather as it was. I hope it clears further for Friday and Saturday as the intellectual and business events wrap up and it’s time for our outdoor events to kick off. If you are around consider registering and coming out.

Categories
Biohacking Travel

Day 1587 and Wellderly

My husband’s expert testimony before Congress yesterday was a particularly exciting day even by my standards. I felt so drained today.

My bar for excitement was set pretty high this spring. It has so far included impromptu drives to Istanbul, seeing our right to compute bill get signed into law, watching a founder we backed unveil a nuclear reactor design and discussing futurism at my hometown’s university.

When I list it out I almost forget how much during this time I was battling side effects from a mold infestation and working through changing my medication for my autoimmune condition. I got my right eyelid slit open twice!

When Alex made it home to Montana after midnight I felt like I could finally sleep. I never sleep well alone and much as I tried to sleep as he was flying back I could not. I’m exhausted today and needed a nap to stave off a migraine.

As we get older I am sure we will continue to be called upon to show up. So much of my energy is drawn into improving my health so I can participate in civic and economic life.

I want to improve my health so I can continue to discuss, learn, advocate and invest for this very confusing transition to our future.

I can scoff at catchy neologisms like “wellderly” as marketing campaigns for famous doctors in an especially challenging era for medical trust. But I am also concerned about sleeping better, gaining muscle mass, and improving my meager health. A man has many concerns but a sick man has only one remains true.