Categories
Emotional Work

Day 557 and Fixation

I’ve got a gift for generating momentum. If I can summon the energy and the willpower, I’ll put my total focus on unlocking whatever blocking issues hinder my goal.

The trouble is that this process doesn’t allow for multitasking. Once I turn my eye on a blocker, I’ll fixate on it until it is solved. I’m incredibly prone to tunnel vision.

I’m usually quite competent at prioritizing and ordering priorities correctly to take advantage of the is tendency toward focus. But sometimes I’ll get fixated on the wrong thing and I’ll stay stuck on a problem that shouldn’t be my first priority.

And it’s really hard for me to pull away from a problem if it’s an emotionally charged issue. Those typically involve my personal life. Problems with my friends, my family and my husband can easily hold my energy hostage. Even if it’s not a top priority, if it feels emotionally like it should be a top priority I’ll struggle to let it go.

Over the spring, one of my fixations was finding a stable living situation. In May when Alex and I went scouting for our second time in Montana I poured all my willpower and focus into removing blockers to purchasing a home. It was a grinding emotional process as where to live and when to make a major investment are hard questions.

Now that I’m less than a month out from the move, I can feel my focus shifting. The creative generative driving energy that secured us a homestead is now searching for its next home. It makes me shiver a little bit. Like I’ve got my own personal Eye of Sauron probing my reality for it’s next target. I know what it should be. But sometimes my focus isn’t well behaved.

Categories
Aesthetics Travel

Day 546 and Evil Empire

Sometimes it pays to get a little distance. Sometimes a little distance makes you feel crazy and alone. I am not entirely sure where my mind and body will find themselves this week. But it will be distant.

I’m a bit off the beaten path of my usual life. I’m on a Mediterranean Sea I haven’t considered since I was studying Attic Greek. It’s hot and humid and the air conditioning can barely push back the natural heat. Fuck linen weather.

The car uses natural gas and some gas stations without underground tanks are struggling to fuel as it’s too hot to pump. The gas expands. You think you are pumping but it’s actually just air. That’s a first for me. A little bit of climate dystopia today.

I push off into rolling hills. There is probably some ancient tribe with greater claims to democracy than a thousand generations of my ancestors. It’s like driving though a Maxfield Parrish painting. It’s misty and ancient and old country all while I listen to eighties tunes. It’s Evil Empire somewhere sometime somehow. The sun never sets on Bakersfield California or under the Tuscan Sun. It’s enough to make you miss Reagan.

Categories
Medical

Day 545 and Stretched Time

Time has never acted like it is linear in my observation. It extends and stretches when you wish it could speed by. And it slows and circles back when you would most prefer it go quickly. Time is relative is a good joke, but also might be more related to a curse.

As I was waiting for a food delivery order today I could feel time unspooling. It stretched on into two episodes of some engaging but fundamentally disinteresting Netflix show. My head began to hurt. I remember taking an aspirin and getting a snack. I recall a phone call made to the delivery service order. And then my sense of linearity starts to fray. I’m not sure what happened next or in what order.

I think it was clear a migraine was coming on in the middle of this first act of swollen stretching time. But I couldn’t tell you for sure. Once pain hooks up with time it requires a Buddha or someone enlightened on the ways of Jhana. Still I tried to push myself out of the path of this time. Why not ordered a pizza as a replacement meal. That might be quick? I blamed the blooming migraine and it’s sister nausea on a lack of food. But in reality I was past the point of being helped. I was simply trying to avoid the oncoming path of the migraine.

I recall a pizza arriving but not the original delivery order. I made an attempt to eat. But I was in the grips of the time expanding migraine now. I took an Imitrax. I had some CBD. Perhaps terrapins and triptans could convince my mind that the moments of pain were short and fleeting. That was my best hope for experiencing the migraine in a positive way.

I put on a face mask. I sunk into a mindfulness practice. I noticed and turned over the kinds of discomforts I found myself in one by one. The emotional fears that I wanted distance rose up. The pain that bubbled around my body tightened, giving me a rationale for not wanting to being touched. A mind that wanted to drift far from others overlapped with my normal mind, this mind wasn’t forced to endure the noisy input from the world. All those experiences rose and burst forth and dissipated. Pain, distance, and fear came and went.

Consciousness seemed possible again. I had the sense that I could articulate some of what happened to me over the past three hours. That perhaps I could codify it in writing. It wouldn’t be as vivid but it would be there. The fear and failure and disprovals still existed but less acutely. The pressure on my mind had become less swollen. Time wasn’t threatening to extend out any other direction but forward. And maybe I could finally enjoy a bite to eat again. It has been five hours total since the migraine began.

Categories
Chronic Disease Emotional Work

Day 542 and Energy Budgets

I’m not much for active time off. Or being active at all really. I have a limited energy budget so I watch my energy expenditure carefully. Other people budget their money. I budget my energy.

I’ll often find myself jealous of other people who enjoy active hobbies. My husband plays tennis and shoots competitively. Every weekend he is off doing fun shit outside. He could easily play a sport, socialize afterwards and still have the energy to go out for dinner.

Meanwhile I’m probably in bed. I have plenty of fun, lower energy usage hobbies. I read a ton of fiction. I play games. I am working on my foreign language skills (be my friend in Duolingo), and of course I’m a notoriously active Twitter shitposter. All things that can be done while laying down!

And while I love all of those activities I wish that I didn’t have to run the math on how much a coffee with friends would set back my energy budget. I long for the opportunity to simply throw on clothing and head out the door without fear of how that might impact the rest of my day or even my week. But I run on the spoon theory just like your average disabled person.

My fear is that my energy poverty is isolating me. I struggle to explain that I’d love to spend more time with people but I need them to commit to cheaper energy expenditure options. But even the energy required to explain how friends and family can accommodate me is a challenge. It embarrasses me there I need everyone to work around my needs. And I’m often too scared to be demanding about what would work for me. So instead I just spend my time and energy alone.

If you are interested in learning how to make the effort to spend time with someone with energy poverty I hope this post helps. For instance instead of playing a round of tennis, perhaps you could come visit me at home and we could quietly chat on the couch. Instead of going out to dinner we could order in takeout. And no I don’t mean cook at home because then I’d need to plan, shop, cook and clean up afterwards. I very much mean order food on disposable plates so it’s minimal energy outlay. Disability accommodations are not very eco-friendly. It’s a different calculus of resources.

You may have to do a lot more work to be friends with someone managing a disability or a medical condition. If they don’t respond it’s not because they don’t want to see you necessarily. It could just be that you messaged on a bad day and it slipped through the cracks. We need you to actively work to be present for us. It’s a big ask but it is appreciated.

Categories
Chronic Disease

Day 540 and No Pain

I’ve come to accept an ambient level of pain as part of my daily existence. I’ve logged over fourteen hundred discrete pain measurements over a three year period. It’s likely one been in pain for a bit longer but those are the documented years since I had a diagnosis and began working to overcome it.

I’ve only had a handful of days where I’ve logged below a three. The pain scale most of the medial industry uses is from 1-10 with 4-6 being moderate pain and 10 being unbearable give me the opioids pain.

I typically log somewhere between four on a good day and seven by it’s end. I’ll usually have an eight or a nine a few times a month. Those knock me flat and I won’t be able to get out of bed. I can work and do basics when I’m at a five or six but it’s very tiring. And frankly it took a lot of mindfulness work to learn to work through pain.

Pain is actually exhausting. It’s hard to even begin to describe how much it reduces your total capacity. Articulating pain has eluded much finer writers than I. Just because one can live through it doesn’t mean one should.

To have had a morning of relief felt truly miraculous. It was sadly short lived. Some stresses hit my day and my pain is back up to a four. I can live with a four. I have been for sometime. But to finally have seen the light of having a pain free day after years of struggling will sustain me for a while. To know that it’s possible. It felt like a miracle.

Categories
Travel

Day 539 and Hurry Up and Wait

As summer travel is turning into a source of horror stories and tears, I decided the best way to handle transiting across various borders is to pad every flight with extra time. To hurry up and wait as a strategy.

This has naturally lead to some significant mind numbing waiting issues. Two hours in an airport lounge isn’t as fun as I imagined or even remember. Lounges seemed nicer in the past. Sitting in the liminal with lots of other bored, stressed, and otherwise disengaged humans gives you plenty to watch but little of interest.

My lounge experience went as you’d expect. People giving each other a wide berth while they sip mediocre white wine. Teenagers trying to not to look at their parents in case someone cool passes by. All forms of athleisure and sweat pants swaddling the asses of women just hoping for a comfortable flight. The occasional child demanding a cookie from the two poorly stocked snack sections

When it’s time to board everyone simply mobs the doors. No one care about any system. It’s just a throng of desperation yearning to get on and claim overhead baggage space. I’d like to be irritated as I paid for business class but status is funny that way.

I can’t even find anyone to Karen at to say I’m supposed to be up front. So I wait at the back of the line. No one is following orders because no one is giving them. I packed compact & sensibly but everyone else is testing the limits. No wonder everyone wants to get on as fast as they can. Overpacking must be a stress response.

The entire experience is a war of all against all. If everyone is priority boarding than no one is a priority. It’s just pushing and shoving and giving no fucks. Sadly I give fucks about decorum and politeness so I didn’t have the balls to try to make a run around. I just said and wait and wait. Hurry up and wait.

Categories
Aesthetics

Day 534 and Never Go Home

They say you can never go home. I never took the saying to heart as I didn’t have a consistent childhood home for more than a few years at a time. We moved once every two years till I went off to college. And it only got worse from there as I wandered from dorm rooms to illegal sublets over a decade or so of instability. Probably why I’m so excited to be buying a house. For me there was no childhood home where I could return.

But the one place I considered home was Boulder Colorado. I lived in three separate houses in Boulder across five separate moves. The math involved my parents divorce and going off to boarding school for a bit. Yes it’s complicated.

But Boulder as a place has felt more like home to me than any other place. Even New York City where I lived the longest (over fifteen years if you don’t count the occasional breaks to San Francisco) never laid claim to being my hometown.

So I’m feeling a bit bittersweet about the prospect of leaving Boulder. I was running errands today and kept coming across Deadheads at every stop. Dead & Co, the name of the current not Phish, but not not the Grateful Dead, is doing two nights at Folsom Field this weekend. The town is filled with happy hippies. And also John Meyer.

A blonde woman walked into my coffee shop this morning without shoes and no one blinked an eye. Camper vans with Dead decals are parked all across town. I saw a man brushing his teeth in the Target parking lot wearing a tie-dyed shirt. The dispensary was completely out of my particular edibles. The concert crowds had cleaned them out.

It makes me feel a bit nostalgic for how I remember the town as a kid. Boulder was a town filled with folk music and weirdos. We were a hippie town and proud of the heritage. As I came over the hill into town coming back from my raw milk pickup I felt like I could never leave. Look at me doing hippie shit like being in a dairy cooperative. Boulder is still weird I said to myself. But I’m sure I’ll come to feel the same way about Bozeman in time.

Categories
Emotional Work Travel

Day 533 and On My Own

It’s funny how marriage shapes your routines. Before the pandemic, and before my health struggles, my husband and I were apart regularly. We traveled and socialized on our own often.

Now it’s quite rare for us to be apart. With work from home and our new adventures awaiting us in Montana, our lives will remain close. We even tend to speak at the same conferences. Our work travel since the pandemic has coincided almost entirely. It’s a good thing we really like each other’s company as we’ve very much opted into a life together. It’s good advice to marry your best friend.

We have to deliberately take time apart. I even took a trip to Europe in March so we could remember what it was like to have a bit more space. We can’t let ourselves give in to little habits that encourage codependency. A little independence goes a long way. Absence makes the heart grow fonder. Whatever aphorism you prefer really.

The only downside the our attempts to regain a little space is that it’s easy to forget how much the other person does in your life. I will neglect entirely to to eat lunch without Alex. I have been known to mix a bunch of protein powder and supplements into a glass of water. By the time dinner rolls in I’ll be starving and not entirely lucid. It turns out it takes a bit of remembering to bring back ones old skills and capacity. Marriage allows you find new independence and competence together. But it’s nice to remember you were whole and capable on your own before as well.

Categories
Emotional Work Travel

Day 523 and Logistics of Appearing Professional As A Woman

I’ve never liked packing. It brings back childhood memories of moving which I did once every two years until college. And even then it was only a three year reprieve. I’ve moved thirty eight times in my life and I’m about to do my thirty-ninth to Montana soon.

I’m headed to Texas for Coindesk’s Consensus conference. I’m giving a talk called InDAOstrial Revolution about the history of corporate governance and recent large scale macroeconomic innovation cycles. I swear it will have some memes and it’s a pretty degen talk overall (why how do you do my fellow kids). But no seriously one of the arguments I make is that American government arose out of fascism so it’s pretty lit.

Unfortunately Austin is literally pretty lit. The predicted high for the entire week is over 100 with a couple days over 105. I’m moving from Colorado to Montana as I find the weather to be too hot in Colorado with global warming. So that gives you some idea of how I tolerate heat. I really don’t have a wardrobe for this kind of shit. I have a couple items I bought for Miami for the last crypto conference I went too but it feels a bit flashy for Austin.

I spent a couple hours in my closet trying to figure out what the fuck might be tolerable and basically ended up with exactly what I packed for Miami. I brought a more professional navy wrap dress for my talk as I figured I should look the part. Though I did seriously just consider wearing an Obi gown just for fun. If my body cooperates maybe I’ll wear it out to a party.

Then I had to contend with what kind of skincare and makeup was going to work on the surface of the fucking sun. I rummaged through quite a bit of sunscreens. Then I pulled out all my favorite skin oils and replaced them water creams and essences. Because I’ll be on a stage I also had to find my power foundations. I rarely used powder anything on my face. I’m totally a cream woman. But being under lights meant I needed to consider some melt-proof polished options. I typically wear very little makeup these days as I’ve got great skin so I may as well show it off. But that reads poorly on a stage and on camera so it requires a bit of planning.

Honestly the logistics of being a professional woman in public are extensive and it’s a set of obligations no formal education ever covers. It’s not like there is a class in 10th grade about applying professional looking makeup. But there should be! I say bring back home economics and add in the feminine arts. I want manners and grooming and styling so everyone has the chance to do the right social signaling that puts you on a track for upward mobility. It’s every bit as a crucial a skill as being numerate. If I ran a school I’d include it in my curriculum and I’d be sure to pass it in to my daughters. If only because you need to know the rules to break them well.

Categories
Internet Culture

Day 521 and Lots of Words

Today is the second day in #1000WordsofSummer. If you haven’t heard of it, it’s a program run by Jami Attenberg. I am not using my daily writing exercise to “count” for it as they are separate experiences in my mind. So now I suppose I’ve really opted myself into a very prolific two weeks of writing.

I wanted to begin on my story when I first woke up. I had ideas for plot points and details running through my head. But I had some other work that is due on Monday so I put my head down and pushed through everything else so I could get to my science fiction.

I considered writing the thousand words first but I don’t like the idea of using writing to procrastinate for some reason. I’d prefer to get the main tasks down and out of the way. Then my fun writing gets it be a treat and serve as a carrot to get other deliverables done.

So I got my power point done and then I went straight into my short story. I did an edit pass and that somehow added in an additional 700 or so words as different parts got more fully realized. I sketched out some plot points and areas I wanted to explore. That was another 300. It was much easier going for second try than the first. W

hich is a very good argument for just doing something and not judging it. By the time you come round for the second try, you will have learned some tiny sliver of something. And that little something slowly over time makes it all easier. The struggle is the work.