I am hanging onto my sanity by a thread as I round the corner of a surgery I did not expect. Well, I’m eight days out from it, so slightly more than a week.
I’m hoping I start to feel gets better soon. It’s my first day without antibiotics and I am already certain I shouldn’t be off them. As horrific as the side effects of Cipro may be, my immune suppression on Bimzelx is leaving me shockingly open to skin infections.
I’m terrified of MRSA at this point. I was taking doxycycline for another skin infection when the cyst went around the bend to “septic fears” on me so I’m a bit twitchy about the entire situation.
The prior IL-17 seemed to strike a fine balance on suppression and capacity to fight off infections. Now my biometrics are better but I’m constantly fighting off chaos with the meiborn gland nonsense and now buried cysts from sideways hairs fracking my dermis.
Maybe I’ll turn a corner and have some better writing ahead of me soon. Until that happens please forgive my poor blogging and missed emails. At this point the singularity could arrive and I’d miss it like a character in Left Behind. I’ll probably miss the rapture at this rate.
Fifteen hours of sleep and a spa day does fix a week of disrupted sleep. I may need some more downtime of resting and recovery and maybe more water drinking before I have a cogent thought.
After seeing my sadly “in the red” recovery scores from my Whoop, I felt a bit of a cortisol mitigation effort was in effect. In other words, I took a little spa day.
When I was younger and living in Chinatown , my apartment was above an acupuncture and massage joint that specialized in pressure point work. Going once a week probably saved my life. It was affordable and close and good.
It was always packed with the working class of the area. The prison complex wasn’t too far away, we had a police precinct two blocks down, and the courts buildings system was a block away and enormous warren of humans. A lot of very intense people in tough, sometimes very physical situations needed to have it worked out of their. Kids.
By comparison, my body was easy work for a man who worked on hurt cops and stressed out prosecutors. White girl problems are easy.
So I’ve done a run of sauna and cold work. I’ve had a massage. I have stretched and done breath work and moved around to feel things reset their flow.
I should really remember that heat, cold, oxygen, movement and pressure really do solve most problems. Don’t forget to eat and drink.
I’ve had several day’s worth of poor sleep. My sleep debt had reached a good full night’s of rest at over 9 hours. And boy did I make it up and then some last night.
A screenshot of my Whoop’s recovery page
I wasn’t asleep all of those 15 hours according to both Whoop and Apple but it sure felt like I was in deep slumber.
With earplugs and an eye mask in, I felt dead to the world. And what’s worse is I’ve had an entire month of pooor recovery and sleep
The 4th of July is now my independence from a month of poor biometrics
Now on July 4th I have been liberated from a long month of poor biometrics and awful recovery scores. And it only took 15 hours of being in a dark cold hotel room and a build up stress, exhaustion, mistreatment and other sundry social frustrations.
Mixing more strain than recovery into my Whoop cocktail for maximum life
Today really does feel like Independence Day for me. I’ve been freed from a body weighed down by physical realities and I am now free from it.
His writing captures something in my imagination with turns of phrase like “the longest stride of soul we ever took” evoking a crossing to the harsh wakefulness of reality. And as he says “it takes so many years to wake, but will you wake for pity’s sake?”
I have been slumbering in both reality and in the metaphorical ties that bound me to others. And today is the day where all Americans ponder how our founding fathers contemplated the reality of waking to the dawn of a new experiment. The American experiment continues and we must remain awake to our role within it. I have many thoughts on this which may now soon flow having awoken from quite a sleep indeed.
I’ve got a comically large sleep debt to work off. My Whoop is screaming at me as it’s been 3 days of not quite getting in an adequate of sleep.
And it’s not as if I was enjoying great sleep for June. It’s possible my new Whoop hardware just has bee algorithm and set of standards as June was mostly dead.
First it was emotional “really in it feelings” that gave me a half night as I woke early as the upset remained.
Then the anxiety of preparing for a long trip while the aforementioned emotional impact hung unresolved (though I had cried it out) which made deep rest out of reach. Four hours is half of my usual needs.
The middle night between issues and my packing day didn’t get me much better sleep. It was a long day of logistics and I never quite came down.
Airplane sleep doesn’t lend itself to dreams
And then I was on an airplane and trying to catch some Zzzzzs but barely managed under three hours. I feel great as I’ve just kept on swimming great white shark style, but I know I’ve got almost a full night of sleep dent built up.
Still it’s hard to feel too badly about things when you look down on the beauty of the world below.
I really spent some time in my feelings today which isn’t exactly how I wanted to spend my day. Though I couldn’t exactly tell you why I don’t expect to feel my way through the day. All real works requires you to balance the intuition of working from one’s gut.
The world is tense and our place in it doesn’t feel assured. Every time we experience a norm change or unsettles the balance of our social order.
It sounds so dramatic but we balance trust with the boundaries necessary to make choices that work for each of our own consciences. Some things are more the basic math of a situation. We need are feeling precarious.
As I do this writing exercise tonight there is a raging Rocky Mountain thunderstorm. They come on with such fury it can take your breath away. These storms are intense and rapid and blow in and out with inn half an hour. The atmosphere after has an uneasy calm. Rage is nature’s game not man’s.
They do drive you inside which is good as I have packing to do. I am venturing off and I’ll be feeling my way through that too. I’ll blow out myself soon and let the world show me where to go.
It’s always a pleasure to spend offline time with real people. Especially when they disagree with you. Which happened a lot as it was a fractious group of eccentrics from all walks of life.
Technologists, theologians, farmers, military men, musicians, mothers, writers and even a journalist or two. We were missing a trucker friend and a former hobo (his wife is due to deliver a baby any minute now) but it was full in spirit.
We drove home through golden time with a sunset so brilliant it made me wish I could capture even a fraction of its beauty with paintbrush or camera. Alas it will remain a memory that is impossible to share.
It’s positively verdant in the Rocky Mountain west. This far into June it doesn’t seem as if it should be Irish countryside green heading into Wyoming.
Both because I was driving, and an iPhone picture can’t ever do a landscape of such texture and vastness any amount of justice, I have few pictures.
Some portion of I-90 in Montana
We’ve got a little camp out with some of our oddest friends. As befits the oddity of the open road we made a pit stop on our day trip at one of the centers of interstate commerce Loves.
If you’ve not encountered a Loves, I don’t quite know what America you live in but it’s quite the experience. It ain’t no Bucc-ees but it’s a vibe. The smooth loyalty driven core business of truckers bumps up against the families headed to parts elsewhere. And its merchandise reflects this intersection of oddities.
Keep on rolling with two or we upcharge a whole buck for these meat sticks Cover those meats with a push of a button.
All I acquired was a half tank of gas, a king size Starbursts for Alex, and a Pina Colda Bai. I made it about a third of the way through the drink before calling uncle.
Dagmar was an old aristocratic type Swedish woman who really lived. She gave me the courage to seize my own life even when my most dearest wish was for life to keep on slipping.
As one might expect of an eccentric Central Park South she had a fiercely protective absolutely tiny Yorkshire Terrier named Stina.
As I went about my day, the date lay heavy on me. I missed Dagmar. Willful woman that she was the solstice had felt deliberate.
Being the longest day I had a lot planned. I had a haircut scheduled at a salon and who did I meet but a Yorkshire Terrier with a little patriotic bow. As I waited she came up to me.
A Yorkie with a bow
Call me crazy but maybe the Yorkie collective consciousness knew that through a Stina memory I’d see Dagmar. And as I’m still here, doing my best to live the amazing life I’ve been given, I am glad the longest day belongs to Dagmar (and Stina) so I may consider her memory in the light of the solstice.
I went to bed yesterday around 3:30 or so. Oops. I could barely write a post as I was struggling to stay awake at all. I did three short paragraphs and tagged it and said good enough.
A long night of poor sleep
My sleep was not peaceful or restorative but at least it was long. The night before I was up late (ok 10:30pm or so) and I struggled to fall asleep.
Alex’s birthday party on Saturday was enough to wipe me out so badly that on Sunday I couldn’t stay up past mid-afternoon. Pathetic yes but not surprising.
I recently did a big round of bloodwork and was thrilled to see my inflammation is down significantly but I have something called inflammatory anemia. So maybe a contributing factor to my exhaustion. There are a number of odd areas that need some attention especially in my endocrine system.
The Bimzelx switch is in its 4th month so almost through the loading dosing. I have had awful side effects but the code biomarkers of CRP and Erythrocyte Sedimentation Rate (ESR) are significantly improved.
I still have all kinds of weird pains and compensatory biomechanical problems but I’m feeling moderately optimistic. The next steps are around the corner. And hopefully I get more deep sleep and REM sleep before I tackle it.
