Categories
Aesthetics Travel

Day 548 and Shame

I’ve got a pit in my stomach. My throat has the constricted feeling of embarrassment that gets trapped in your gullet. I failed and lost money on something stupid. I tried to do a pleasant vacation sort of choice over a long weekend. A “nearby” Riviera town was supposedly within driving distance. I thought what could go wrong. Let’s go to the Ionian Sea! I briefly thought I could enjoy something like a regular person.

I said yes as everyone was so excited by the fresh air and the beaches. It will be healthy and fun! I was worried it would be without the basics I need to keep standing upright but I wanted to try anyway. Consistent air conditioning is really important to keeping the rest of my bodily system’s functioning. It’s a very Marie Antoinette need, but once my spine swells it can go very wrong very fast. Summers are hard for me.

My system begins to cascade within a pretty short window. About half a day. Eight hours without being able to lay flat for a break ended up fucking me up badly in this case. The “oh it’s close, just a three hour drive” ended up being a ten hour ordeal over badly maintained roads. I was sick to my stomach and in pain as we took hairpin turns and popped over potholes. I was in so much pain it was over a 10. It was “lose consciousness” levels of pain as my body knew I shouldn’t be awake for it. I was afraid it would get so bad I’d need a hospital. Instead I settled for opioids. Keeping out of the hospital was probably wise.

I hate needing those kind of drugs. The “your pain is a 10” drugs push me off the plane of reality by a few ecliptic degrees, and suddenly I can tolerate the pain and discomfort again. I understand how addicts get made now. It’s not real comfort. It’s synthetic but most people can’t tell just by watching. The fake relief looks real.

I’ve never felt tempted to take pain medicine recreationally. It’s usually only when a pain is too big for my reality that I tap out in defeat and take an opioid. It’s when reality crushes my soul as one variable starts to degrade the whole machine. I only use it to stave off collapse. And I was very close to collapse.

What is fucked up is that people like me off the axis of reality. The hazy hyper vibe’d unreal “reality” of encroaching nihilism is bop. Dystopia seems cool and consumable.

But it’s not an adventure for me. Living when sick is a daily dance with the devil who could use any chance encounter to end it all for you. The kind thing might be to stop fighting. But I rarely give up so I must enjoy the sticky Sisyphean crawl towards towards reality and the search for my own dignity.

I’m ashamed because I couldn’t make good decisions in that kind of pain. When the first hotel turned out to be a scam I happily laid down a card to stay till Monday at another hotel. Anything to get me relief. I just needed a safe cold place to heal.

It was a bad decision. The air conditioner didn’t work. I couldn’t get comfortable. I was sleeping in a dark sort of cold room as I couldn’t work up energy to go to the beach or even see the rest of the hotel. Not that it mattered as none of it was air conditioned anyway. I decided to go home after I had built up energy reserves back from sleeping for hours. I couldn’t tell you how long I passed out for but it might have been close to a whole day.

Alas I was again scammed for my efforts. The hotel clerk says no you paid for four days so you cannot get a refund even if you leave early. No refunds ever. No early checkout. No one cares if you are sick. Fuck her but I said hotel California for me. I was sick and needed safety.

I made some efforts to get receipts and documentation. I asked a receipt attesting that they wouldn’t let you cancel for any circumstance and that I was sick but it made no difference. Maybe I can take to the credit card or even the health insurance to show that I crashed. I’ll work it out on the backend.

I often wonder why I need special care. Surely I can try to do regular things like drive to the beach. But I couldn’t. I lost 48 hours to driving and bad air conditioning and pain. I didn’t have the health to stay at the beach. I needed to go back to the city with air conditioning.

I felt so stupid. I tried to fight to hold space that maybe I was a person that could do a vacation. That I was normal. And it was firmly corrected by reality. And then you think this is why I don’t go on vacation. The additional friction makes it a hell. It’s not a joy it’s a visit to hell.

I cut bait quickly this time.I’m ashamed at now much I must firmly maintain the no. No I don’t want to go to the beach. No I don’t have the energy got a full day road-trip. And definitely no on an empty stomach.

I feel like I’m not fun. That being friends with me is joyless because I can’t agree to fun things like a weekend at a beach. I find myself in tears having failed again at trying to do a nice normal fun thing. I ruined the weekend for myself and everyone around me.

Fun with me is being in a dark room. We watch television. Or maybe a movie. We make fun of a plot hole or bad casting. We sleep a lot. If we are at my home we do the chores. We keep up with the farm. There is no reason to turn consumption of recreation into a thing. It just hurts me. No cheap facsimile of an American vacation in a resort in a cheaper country.

That hideous example of colonial expectations of western domestic standards turn out to be required for a disabled woman. Air conditioning and short trips keep me alive. And at quite a cost. Since no one will refund me any of these damned scam hotels. I should have known better. It will probably take me a week or so to recover. And I’m so ashamed.

Categories
Chronic Disease Emotional Work

Day 544 and Want of A Nail

I let something cascade over the past thirty six hours. I knew it would have an expensive energy budget but I wanted to try it anyway. I feel basically fine having made it through the entire experience, but now all I want is to sleep. And thank goodness as the consequences could have been worse than just needing more sleep. And I am reminded of the grief that comes from small consequences.

For want of a nail the shoe was lost.

For want of a shoe the horse was lost.

For want of a horse the rider was lost.

For want of a rider the message was lost.

For want of a message the battle was lost.

For want of a battle the kingdom was lost.

And all for the want of a horseshoe nail.

For want of a nail

I had a bout of perhaps food poisoning yesterday. It was unclear what the source might have been. Bad dairy seems likely. My whole body cascaded into responses. I was itchy and in pain and a range of histamine and emotional responses as the stress cleared through my system.

It’s always an exercise in frustration finding what little mistake or miscalculation sets off a disaster. Something so small can have massive consequences. I suspect it’s more about the power of the compounding effect. Or maybe it’s that giant domino meme. Sourcing backing to one silly little catalyst always shows you the fragility of your own life and circumstances.

I can’t tell if I find this reassuring and devastating. If the biggest life events always come from something small how can we event expect to impact an outcome. Or perhaps that is freeing. If everything comes from some unknown small then of events then we can simply life our lives unbothered by preparations and foresight. Something random is bound to knock life off track.

I think I’ll take the sanguine view. How could I possibly let myself worry when a little detail like a boot of nausea can set off a whole day. It’s a Franz Ferdinand approach to life. Sometimes a spot of political trouble in the Balkans sets off the whole world. It’s always going to be something.

Categories
Politics

Day 543 and Complicated Country

America has always been a complicated country. We’ve perpetrated some of history’s great evils. And at the same time we’ve achieved the greatest set of freedom ever known. Dickins didn’t fucking know best and worst of times. That’s always been the great American novel’s thing. The remix is better sometimes.

And I am feeling this tension in my body this week. To have always believed in the forward progress of this nation. Even when one grew up, perhaps most uniquely among generations, aware of the sins. We had Adbuster’s and Zinn’s People’s History and every politically aware piece of Hollywood awards bait.

You know how weird it feels to be optimistic about capitalism and the mess of democracy when you know it’s fucking blood magic that bought its riches? Everything has a cost. But who am I to know the cost. And would I bear it myself if I thought I could enjoy it’s fruits only? I doubt it. Everyone loves a fucking deal. And white people love the meritocracy. Because it means we’ve got merit by being winners. Whatever your ego needs.

It’s no wonder we love horror movies in America. We like a nightmare on Elm Street. And we love our monsters. What if racism was the monster all along we laugh. Our art has always recognized the victims in the system. It was only very occasionally that our laws did anything to protect anyone though. Amendments were hard fought and fiercely opposed. Reconstruction of what exactly? Did we even try?

So I’m not surprised that my body is on the line. Because someone in my lineage knew the cost. They came to America willingly. The freedoms we bought for ourselves as immigrants. We knew they weren’t free. But maybe we misunderstood the cost. Didn’t pay the bill in full.

But if the promise isn’t worth it. If the dream cannot be attained? Then what happens. Who pulls back from contributing our best. Who gives up a little on working harder. And how do we slowly decay just a little bit over time. Slowly at first. And how does that compound. What little failures add up to the final cynical calculation that anyone who has lived under an authoritarian can smell.

It dawns on me that we should have been fighting my entire lifetime to secure every inch of freedoms we could. That every single instance would matter because we’d be losing ground the moment we stopped. Because shame is unrelenting. And we must hold our ground against it every day. Ever vigilant.

Categories
Internet Culture Uncategorized

Day 541 and Doomscrolling

I love internet culture. While I’m an American, if there were citizenship for the internet I’d consider myself fully naturalized. Millennials aren’t natives like Gen Z, but we definitely moved online when we were kids. I’m a proud immigrant to the internet.

I engaged in one of the internet’s proudest exports yesterday. After the news about Roe v. Wade hit I was glued to my phone watching for tractions. I spent easily five or six hours Doomscrolling. I’m not proud of it but what else are you going to do when American implodes around a topic as emotional as abortion? Do something sensible like go for a walk. Nah.

Doomscrolling probably doesn’t have a an exact IRL analog. If town squares were still a thing that existed, maybe we’d crowd in and listen to people scream and heckle the town criers. Maybe it’s more like going to the mall and chatting up your peers.

Though I can’t really imagine anyone engaging in the kind of brawling that goes on when Doomscrolling turns reactive. And boy was it reactive when this mess hit America. People were feeling a kind of way. I saw various colors of shock. That surprised me as all I had felt for years was cynicism curdled into disgust. It has been clear where some demographics wanted the issue to land. We had taken too much for granted.

I’ve got an ambition to stay off the internet for a bit. But I know that my reflexive habits will put me back on Twitter if I don’t monitor my usage constantly. When I am anxious I like to surf sentiment. Taking a gauge gives me some sense of false control. That if I can just read the tea leaves right that maybe I’ll protect myself.

But it isn’t really that is it? You know at any minute you could be treated like a second class citizen. That unbearable cruelty could be casualty meted out on your body. And that so many people simply do not care about that pain. And fuck me if that doesn’t shatter your faith in humanity a little.

Categories
Travel

Day 538 and Anticipated Anxiety

For someone that dedicated years of my life to making travel better, I sure do hate it. I’m a country mouse, and a homebody, these days. The prospect of having to travel is making me nauseous today. It’s the anticipation that is getting to me.

I’ve been having nightmares for days. It’s probably the Melatonin I started taking to improve my sleep quality but it ironically appears to have has the opposite effect. I think I’ll stick to Magnesium.

I’ve never be a good traveler. I get terrible anxiety about all of it. The packing, the waiting, the transit that isn’t flying, the flying that isn’t the part of the final route; all of it makes me anxious. I only really relax once I’ve made it though customs on the other side.

You can see it in my biometrics. My average heart rate goes up. My respiratory rate ticks up. I get sick to my stomach. My body clearly keeps the score. I was prescribed Ativan for long haul flights but I’m just as anxious to take it as I know the dangers of benzodiazepines.

The irony is of course not lost on me. My doctors and my husband try to remind me that elevated cortisol levels for extended periods are just as bad for me as the occasional Ativan. The impact of being stressed is not great long term.

My upcoming trip seems like it might be a bit worse than usual as I’ve been reading news story after news story about how bad flying is this summer. A flight attendant did a remarkable job laying out all the ways you can survive the tumultuous times.

I’m doing everything she suggested and then some. I’m not taking any chances. I under-packed. I have long layovers. In one instance, I opted for an overnight stay on the return so as not to struggle with a late evening connection that could easily be canceled.

But I still suspect I’ll find new and exciting ways to learn how travel is a mess this summer. But isn’t that just the theme of the moment. Everything is a bit of a mess. And we are all a bit anxious about what any of it means and how we are meant to cope with the crumbles.

Categories
Emotional Work

Day 535 and Daddy’s Girl

I hate Father’s Day. I find myself debating if I can get away with a text or an email marking the occasion. I do this as I’d like to make it through the day without crying. I almost never can. Sometimes I just ignore it entirely.

I’ll reach out to my brother and ask how he is doing. He’s the only one that seems to have a better grip on the “our father” feelings. They are complex for me and untangling them is always painful.

I am a Daddy’s Girl. Everything that’s good (and some of what is bad) about me is a refraction of my father’s ambitions, interests, desires and personality.

I got my love of technology from him. I got my career in startups from him. I learned to socialize and leave a good impression from him. I got my optimism from him. I also got my need for distance from him. My preference for keeping my loved ones a little further away is from him. My struggles with intimacy and emotional availability are his too. I am my father’s daughter. I suspect I’ve also acted as a proxy for what he wanted in a son as well.

Even after years of therapy, unpacking how I feel about my father has not made the tender feelings any less acute when I touch them. I merely understand that my trauma is my father’s trauma and his trauma is his father’s and so on stretching back to who knows when. We carry our heritage.

I tell my father I’ve forgiven him for his mistakes. That I understand he did his best. I don’t think he believes me. I hope he does one day. He done what he could.

I am the absolute best of my father’s good traits. I am also the absolute worst of them too. Most of the good I have is because of him and most of the bad too.

Which makes me so angry. The steam rising up that my mother did all of the emotional work, gave me all of the love, and yet here I am a reflection of him and not her.

I’ll never understand how divorced parents can live with that kind of betrayal. To have done all the emotional work of parenting and yet see their child as a reflection of the other one. Anger is usually just hurt. And I do hurt. Not on my mother’s behalf. She is fine. I hurt because I wanted my father to be there too.

My father tried so hard to be a good father. My dad paid the bills. My dad was funny and well liked by everyone but his immediate family. My brother and I love him, but for a long time I don’t think we liked him. Maybe I’m wrong as my brother has been working through his feelings longer than me. Maybe he always liked him. I know we always loved him. I still love him.

I like my dad now. I can see him as a human as I get more distance from my childhood. He can be an old man now and not the father figure that let me down. Which is a relief when I can hold that thought. I see all his good and how he passed it on to me. And I can see how even the bad, perhaps especially the bad, what made me into the woman I am.

He is smart and loves technology. He has never missed a Comdex or eventually a CES. He always has the newest gadgets. His enthusiasm for new things has never waned.

Like other Boomers, his belief in the future and in youth, let him retain a kind of enthusiasm for what’s next even in hard times. And that inspired my entire life’s trajectory.

There will never be a time in my life when I don’t seek his approval. He loves the future and I want to create the future for him. The new and the next will always be for him as much as it is for me.

Which is impressive as the “new” hasn’t always been kind to him. He suffered for his optimism. I have no fear going into this recession because I saw him be broken by one and come out the other side. He is still the same enthusiast he was before the markets crashed and bankruptcy hollowed out his American dream. He got it all back and more. And that belief that we can build back always stuck with me. I’ve never been afraid of hard times because of him.

I’m moving to Montana soon. He moved there first. He’s like that. Always seeing one step ahead. I fought against the idea of Montana for a bit as I wasn’t sure I could make the same decisions he did. Even though I often do.

But I do believe he is right about the last best place on earth. And true to our preferences for distance he will be a comfortable five or six hour drive away. Neighbors in the end but with plenty of space.

Fathers and daughters have it tough these days. Sexism and expectations for how to live are in flux. My father did his absolute best to never let me see myself as anything less than equal. Which isn’t always an unqualified good but I’m still grateful for all of it.

If you’ve ever felt let down by your father even as you know he’s buoyed you up your entire life, then this post might make perfect sense. If not then it may seem offensive to codify the complexities of a familial relationship in public. How could she write something like this? To which I say sometimes the only way to love someone is to say your truth out loud.

Happy Father’s Day Dad. I love you. And I know that to be true because love is having someone betray you, utterly let you down, or even do the unforgivable, and yet you still love them all the same. I forgive you. I am still Daddy’s Girl.

Categories
Emotional Work Travel

Day 530 and Social Burnout

The week or two before I attended Consensus in Austin I could barely talk about anything else I was so excited. But I’ve barely said anything about the actual experience after the fact I feel so burnt out from the social exertion.

A friend of mine was a little hurt I didn’t tell them anything about my experience. They pointed out that it was a bit like watching a movie as it built up to the narrative climatic scenes and having it cut straight to credits. They were invested in my trip and then I didn’t do anything to tie up the story.

And boy did I have a negative reaction to that. I felt like absolute shit. How dare they feel like they were entitled to hearing about my life on a timeline that would make sense to them. I waffled between anger and shame. I apologized. I thought I’d made them feel shitty by not sharing. Maybe I did owe them a narrative as it was happening.

I went into some of my core childhood fears. Was I actually being withholding and deliberately creating distance because I felt I had violated my boundaries by over socializing? Probably! But also my friend kindly realized I was freaking out said “chill bitch I’m kidding tell me when you are up to it.” And then the relief flooded my body. I could just say no and my loved ones would understand.

I am feeling so burnt out being being around people I spent the morning debating if I should use my energy on a shower or save it up for a doctors appointment. Which is clearly a stupid and chaotic other/or agenda I shouldn’t engage in. If driving to an appointment that is supposed to be restorative for my health is so overwhelming energetically that I am not showering I probably should go.

I suspect I’m going to need a few days with substantially lower social engagement to recover. If I’m ignoring you it’s because I quite simply can’t be productive in a conversation with you without compromising my own boundaries. I appreciate everyone’s understanding.

Categories
Medical Travel

Day 529 and Close My Body Now

Menstruation is mostly an exercise in pressure changes. Cramping and bloating make for a good reminder that we are ugly bags of mostly water. Or if you prefer meet popsicles. But I don’t recommend flying while menstruating as the pressure changes, aka jet belly, that wreck havoc on your lower intestines don’t really need the extra help.

I’ve got a theory that shorter flights are worse for jet belly because all the fluids and gases that are rumbling about inside you have less time to adjust. If you’ve never noticed that your lower half is bloated and rumbling after a flight, well, lucky for you. But I’m pretty sure you are also lying.

Our flight got put in a holding pattern over Denver as we waited for a thunderstorm to clear out. I could not have asked for a better metaphor as my cramps kicked into high gear. My chatty seat mate kept trying to engage in conversation and all I could think was I’ve got to shut my body down.

And then as if being crampy and bloody wasn’t embarrassing enough I started humming a twenty year old techno tune from Madonna. Yes, I remember the lyrics to her James Bond song.

I’m gonna destroy my ego

I’m gonna close my body now

This turned into a mantra as the pain and discomfort threatened to kick my stress responses into a cortisol spiral. I began a series of breathing exercises and kicked myself into a meditation so deep my poor husband couldn’t reach me. Madonna might have had a point. Ego destruction and closing down your body has a place during intense pain and discomfort. It only has to hurt if you let it.

Categories
Preparedness Travel

Day 528 and Oppressive

I would love to be writing about my impressions of the Consensus experience in Austin. I had a terrific time seeing friends & colleagues, the content was good, my talk was well attended (and well received) and I genuinely felt the experience was worthwhile. My general impression is winter is good for crypto as we will get back to building.

But as I wrap up my trip all I can really focus on is how oppressive the heat feels. How exhausting it is to consider it’s consuming nature at every step of your day. The heat is edging towards the point of being hostile to life. 29 million people live in Texas and there is no focused effort to harden infrastructure for climate extremes or drought. If you want to picture what life might be life here for your children read the Water Knife by Paolo Bacigulipa.

Last night I found myself literally sitting on top of an air conditioning vent in the attic of a private house to avoid the evening heat. I was hosting a little gathering with a few close friends (and new folks) on top of what eventually turned into a Burning Man reunion. As the older folks (otherwise known as anyone over the age of 35) and the square folks decided it was time to head out for dinner, we piled back into the night heat. The sound of revelers dancing and laughing in the 95 degree heat impressed me. Texas was showing life in the face of death.

In what I can only call a rookie move, we went to a community meet up in the backyard of some sort of coffee house and Eastern European bun shop. Even at 10pm it was too much for me. The adults decamped to a nice restaurant for air conditioning and steaks. It was bliss. Expensive privileged bliss. And yes I enjoyed consuming more than my share of resources. I’d contributed to the resource depletion that has changed our climate and made me suffer.

My period started this morning so I’m obviously tired, bloated and cranky. The last thing I want to do is cope with heat that’s supposed to get up to 109. I’m doing the dance where I rush as fast as I can into a waiting car. I try to avoid the natural world and it’s cruel requirements. We’ve not conquered nature, merely found ways to shield ourselves from its worst ravages. But those protections only intensified the natural patterns of our planet.

I idly thought to myself if I was ever to have a daughter I’d name her Cassandra. That could be quite a parental trauma to give a child. Imagine the anger she might feel dealing with a world where it’s either innovate your way to safety or accept a declining living standard with degrowth. It’s a horrifying choice. I want to be an optimistic natalist that thinks we can innovate a better future for our children. I want their confidence.

But it’s hard to be confident about a future where an enormous vibrant place like Texas will be forced to run the gauntlet of a chaotic age to a singularity not everyone will live to see. I wouldn’t place my fate in a place with drought, extreme heat and reactionary right wing populism. But I’m also not sure I’ll ever come back. But I hope I do.

Categories
Emotional Work

Day 515 and Rules

I’d never really thought of myself as a rules follower. I wasn’t a particularly troublesome kid but I had a healthy disdain for authority. I made a lot of teachers really miserable and confused the fuck out of my parents with some fairly radical choices.

And to my parent’s credit they just absolutely rolled with the punches. My mother was a champion at the sport of coping with teenage girl shit. Which lets be real should absolutely be an Olympic sport.

But I do think I give way more deference to social mores than I fully appreciated. I’ve got plenty of shame about how I’m not doing things right and that I’ll be judged by everyone for utterly failing. So I try to abide by certain expectations so that I won’t be judged.

I’m sure this is wild to plenty of people that know me who don’t see any of this shame or fear. I’ve got a big loud public persona. Im a shitposter. I’m not exactly going along with a lot of popular opinions.

But I am still strangely really worried about being seen as too radical, too much, too angry, too crazy, too weird. I don’t want to follow all the rules but I am afraid I’d I deviate too far something bad will happen. Though what I am not entirely sure. And that’s probably an assumption worth questioning for all of us.