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Biohacking Chronic Disease Medical Preparedness

Day 1726 and Grief is for the Living

My husband and I are both sick. It’s the kind of “not quite respiratory, not quite sinus, not quite right” viral infection that always seems to take twice as long to clear as you expect.

Aging and stress is part of it but so is the damage we both have from covid-19 infections that turned into pneumonia. We’ve never been the same.

The good/bad news is that everyone we know seems to have the same basic set of physical degradations that we do. Varying levels of impact are met with varying levels of healthcare and wellness routines. From peptides to hyperbaric oxygen chamber therapy, no one is taking this shit sitting down.

I was already chronically ill before the world changed forever. It’s now common to have a flavor of autoimmune inflammatory chaos. I feel both less alone but much more frustrated at the crisis in American healthcare.

My medical billing codes as ankylosing spondylitis (arthritis in my spine) and psoriatic arthritis (psoriasis but it’s inside your body and it hurts!) but the tldr is constant pain, occasionally losing the capacity to walk, and the persistent exhaustion of chronic inflammation.

As we both cancel travel plans (for a charity event we’ve supported for years) and struggle to manage food and medication, I am reminded of the grief we are all carrying around.

As the world goes on with the “before times” as l memory for older generations, and the idea of any kind of positive “before” is unimaginable to the young, the grief comes and goes. The elders we stopped civilization to keep alive are dead or dying and our youth are distraught.

My own father passed just two weeks ago. I am grieving his loss, as well as how the loss is being handled by others. But my grief is mine and he is gone.

I am not the one who gets to choose how to memorialize him. Life goes on and we make precious few decisions about how and when it ends.

I remember being so angry and afraid for him when he left for cruise as lockdowns went into effect. I begged him to cancel the trip. I was afraid he would get sick or die.

He didn’t share those fears. He got stuck on the boat for an extra week or two, as no port would let them dock. He had the time of his life. I was locked in an apartment in Manhattan.

I don’t think he ever got Covid. For which I am grateful. I know far too many who did. I know many angry Zoomers grieving lost high school and college years.

Housing went up by 50% as we printed to survive the crisis. Strange times for us all and now we face the Great Ravine where the choices we made catch up to us.

My investment thesis of an increasingly chaotic world was novel when I first began and now it’s the same pitch every Tom, Dick and Harry espouses. What was once unclear is now the consensus. I am I am alive to see it and find no satisfaction in being right. The grief is all around us. Grief is for the living.

Categories
Travel

Day 1715 and My No Good Horrible Very Bad Transit Day

As I often do on transcontinental travel days, I wrote my post for the day first thing in the morning. I wasn’t sure how the journey would go so I thought “let’s post this early” in case things get hairy. And boy did it.

I was leaving Europe just as Poland closed its airspace after a Russian drone attack. Tensions were already high as Israel had attacked Hamas inside Qatar’s capital of Doha. Greyzone war that blur attacks on national sovereignty through target or weapon choices make everyone twitchy.

It’s a weird thing to complain about air travel on 9/11, but I don’t think much of the security theater we’ve accepted over the years did much to keep my transit safe yesterday. Twenty four years later we go through the motions of keeping air travel safe from terror because what else are we going to do?

In fact, it didn’t seem as if security was particularly tight yesterday so much as particularly incompetent. It was chaotic confusion everywhere from passport checks to boarding flights.

I had a Frankfurt to Chicago polar day flight, along with a positioning flight on each side. I went through a lot of security screenings and passport checks yesterday and stood in more lines than I can count.

In Frankfurt the lines were so long that even with planned two hour airport transit time, I was among the last to board my flight.

The “special purposes” line I begged my way into as my inbound was delayed by fog was glacial in its pace. It seems the new transit grift is wheelchairs. So perfectly abled people are now pretending at disability to board early and use special security screening lines.

It left wishing I’d registered my real disability as I attempted to run the two miles of the international terminal with suitcase and backpack torquing my spine so I wouldn’t miss my flight to Chicago.

Deplaning at Chicago I couldn’t even count the full set of wheelchairs waiting.

Add in enormous confused families using the special purpose line, who spoke neither German nor English, with 3-4 bags a piece and every sort of banned item from pocket knives to 1.5l bottles of liquids and I am shocked anyone made it through security to their flights on time.

I watched a foursome of black Arabic speaking grandmothers in hijabs and wheelchairs shouting at German security guards and their extended families as I waited for my turn. Their fierce attitudes did not speed anything up that I could tell.

I saw them 9 hours later gathering somehow even more checked luggage upon arrival in O’Hare. I’m glad my Global Entry let me pass them by at passport control as I did not want to be behind them again.

Not that I got through Chicago’s security lines unscathed. The TSA pre-check lines were four times as long as the regular line. Figuring I was well packed I could handle the normal line. Naturally I got randomly selected and unpacked basically everything

As I stood in my socks waiting for the agents to stop gossiping and listen to the only working agent explain to them that “yes that the ice pack was for medications so they can move this along” I got an alert on my phone that the conservative political organizer Charlie Kirk had been shot.

I wandered in a daze to the United club where I was denied entry. This despite booking a business class ticket for the entire transit through their own hub via their Star Alliance partnership with Lufthansa, I couldn’t use the club as “the last leg of my flight didn’t qualify.”

I knew this was possible as this last leg issue happened to me on my last transit through O’Hare so I’d bought a day pass ahead of time. But they weren’t honoring those as it was too busy. I schlepped to another club in the terminal where they were still letting in day passes. There I listened to scared speculation from two blonde women about Mr Kirk’s status.

Another hour later I made my way onto my flight to Montana. I decided to just jump to the front of the line as I was in first with seat 2B. If everyone is ignoring lines then it was irrational to keep trying to politely queue.

As the plane boarded it was all talk of Mr Kirk. A news alert crossed my phone saying he had been killed.

A gentleman was playing a video of stitched together angles of footage on his phone with full audio on. You could hear the bullet hit again and again.

The cabin attendant told him to turn it off, saying sir please have some respect for the dead. A few hours later, still living, I made it home to Montana.

Categories
Aesthetics Politics

Day 1713 and Breaks and Ends

It’s hard not see every day as more of a beak with the past even as so much remains the same. No wonder the French have that handy slogan about “plus ça change” as systems remain even with violence. They really know how to balance being disgruntled with the past.

I was suggesting La Haine to someone earlier this week as the French movie that made an impression on Gen X and elder millennials who paid attention to Francophone culture. It’s hard not to think current problems are similar tensions recycled for a whole new era. Atmospheric, vulgar and dangerous are the keywords.

The Hate or La Haine by Matthieu Kassovitz

The addiction economy repackaged the same old things that kept our attention economy running. And they will keep running it till it is so refined and so well packaged you won’t even remember that Starship Troopers was meant as a satire of fascism.

We repeat so much. The Churn as the Expanse called it.

Amos: This boss I used to work for in Baltimore, he called it the Churn. When the rules of the game change.
Kenzo: What game?
Amos: The only game. Survival. When the jungle tears itself down and builds itself into something new. The Expanse

Survival breaks out into the only game all the time and we are always running a Red Queens race. So try not to get too distracted. Ween yourself off of anything that you’ve not got any reason to hold dear. Change to meet what you can so long as you can still see yourself.

Categories
Politics

Day 1712 and Rome Didn’t Collapse In A Day

This is one of the strangest weeks of the year for Americans. Labor Day marks the end of summer but it takes a bit to shake off the remains of the dog days.

Every day can jarring these days as whole world can narrow to a pinpoint with personal pain. Death will be stalking millenials as their parents age and die even as the money seems tilted in their favor with healthcare spending.

But as debts go up, investors price in risk and the state grapples with the turn and spend. It’s jarring to live as usual as change plays out in the personal and geopolitical.

I say Rome didn’t collapse in a day because anyone rushing for the exits doesn’t realize that change has surprising ways of reorganizing attention and power.

The week of 9/11 reminds Americans in particular. But the US Open closes and fashion week opens in New York and life finds a way.

It’s already playing out and we are all rearranging our lives and interests and families as we see whose time is sunsetting and who might be clever enough to ascend. I myself hope to thrive in the churn

Categories
Culture Media Startups

Day 1709 and Love is Blind UK and Better Late Than Single Failures as Global Cultural Mirror

It’s no secret I have come to love the sub-genre of reality dating shows about new ways of dating in the social media era.

I’ve watched every single episode of Love is Blind including the international versions as well as the matching shows that range from religious matching to cultural affinities and disabilities.

I am having a rough week what with my own chronic health challenges and the death of my father over the long weekend. My husband is also brutally ill with the flu. So it’s just generally 2025 on maximum. All brakes and no gas.

So I took a break from reality. to watch the reunion for Season Two of Love is Blind: UK aka the working class multicultural Manchester season as well as test out a South Korean dating show for forever singles or motae-solos in Korean called Better Late Than Single.

Now I’m a middle aged elder millennial who turned over into her forties with ten years of marriage so keep that in my mind. My husband and I met through a mutual friend and now I wonder if we were on the last helicopter out of Saigon.

We worked in the nascent New York startup scene. Over the course of two birthdays, a year apart, for that same friend, we got our act together (ok I did) and began dating.

A few weeks before we got engaged, that same friend showed us this new dating app called Tinder. We laughed at the bare bones profiles as were used to involved questionnaires from OKCupid.

Many of our friends had worked for the dating holding company juggernaut of Barry Diller’s called IAC. The founders of the OKCupid subleased space from Alex’s startup. Dating app culture was part of New York startup culture.

It’s clear that these applications have left a cavernous void in the culture of mating and dating not only in America but across the world. From Raya to AMANDA (a very judgmental Korean dating app) we’ve found all the ways to maximize for the most superficial aspects and signifiers of a person.

Some cultures seem to have taken this to extremes. On rainbow coalition class coded Manchester season of Love is Blind: UK we had Indian posh girls dating down class half Pakistani guys and Albanian girls falling for Lebanese guys. It was a clusterfuck. I won’t spoiler anything but the disposable attitudes clearly came from long habit you associate with dating application culture.

Meanwhile the forever singles have taken the opposite approach. Rather than sweetly autistic singles being helped along as Love on the Spectrum does, social media personalities roast painfully awkwardly awful members of the opposite sex fail to listen to each other. Holding eye contact and grossly insulting someone via misunderstanding was the tone.

If those media pieces show anything it’s the utter lack of tenacity being displayed by everyone involved. Sure, someone willingly going on a reality show is extreme. But the deep desire to be seen and loved goes beyond any culture or awkward social technologies. We’d all do with learning to fight more for love and family.

Categories
Emotional Work

Day 1696 and Unk-Unks

Older millennials from families that watched the news may remember the infamous Donald Rumsfeld quote about unknown unknowns.

I’ll include the full quote from the Secretary of Defense about the lack of evidence for weapons of mass destruction in Iraq.

Reports that say that something hasn’t happened are always interesting to me, because as we know, there are known knowns; there are things we know we know. We also know there are known unknowns; that is to say we know there are some things we do not know. But there are also unknown unknowns—the ones we don’t know we don’t know. And if one looks throughout the history of our country and other free countries, it is the latter category that tends to be the difficult ones. Donald Rumsfeld

Much hay was made over how ridiculous this sounded at the time. It was the title of an Errol Morris documentary. Naturally the origins of this phrase are more complicated than a soundbite from a politician.

“Unk-Unks” was a term regularly used by defense contractors. Wikipedia sources it back to 1969 in a Fortune article about Lockheed. “For Lockheed, Everything’s Coming Up Unk-Unks

I find it to be a pretty useful framework. I have to imagine the Lockheed folks are irked that their clever coinage has come to be associated decades later with Rumsfeld and the Neo-conservative boondoggle of the war on terror.

I feel as if I’m in a persistent state of unknown unknowns these days. It’s not a new feeling either. I know what I don’t know and how vast a space is contained therein.

I know precious little and find that I know less as I get older (maturity being a helpful tutor in that manner). Which admittedly sucks.

Being uncertain of what I don’t know is just the natural state of being. Yet I’m regularly trying to add more to the small set of known knowns in my life. I hate not knowing how to have less pain and poor health in my life.

The experimentation I do on my body is part of my attempts to shave off a few more of unk-unks by trying to add more knowledge. And I just wish I could feel even a little bit physically better. But that seems to be in the unknown unknowns these days.

Categories
Internet Culture

Day 1691 and Don’t Let History Be Written By Cthulhu Hentai Watchers

I sometimes think my best work is as a reply guy on Twitter. If the future of the Internet is to be made entirely of bots, I shall mourn the creative glory we will all lose.

We will all be missing out on the bizarrely specific interplay between post and reply guy. The signal, node, and repeater that is the feed where humans can still bounce off intuition and humor. They know the algorithm merely as the setting for their gamble.

I’ve been doing what is probably a terribly ineffectual public education campaign on artificial intelligence and its role in improving problems in the here and now.

But I am often cheeky about the ideological disagreements the more practical minded builders have with a pretty standard issue Bay Area sex cult. Having been raised adjacent to a lot of hippies, cultists, religious fundamentalists and any variety of new age woo woo Art Bell types I’m actually generally quite tolerant of our weirdos.

Of course this is a challenge as we build out the most important informational and systemic organizational technology of our species. Math has taken humans pretty far.

And mathematicians are quite often mad so I don’t see how it should be such a worry. Still I myself don’t want to be stuck inside an information hazard where I am tortured for eternity either. And therein lies the tweet

Look I’m just saying it’s my personal opinion, but I think it’s bad that the future of our knowledge graph is being made by those who get off on Lovecraft but like that’s just honestly mostly a personal human alignment thing because I don’t wanna be tentacle tortured in @RokoMijic basilisk

If you are familiar with the odd pockets of specialties you probably know that say furries are particularly good at network security and that transwomen are well represented in artificial intelligence.

Unfortunately other groups represented across the space including hardware, software and the philosophy of the space can be somewhat less wholesome than a fursona or a cute catboy.

The Rationalists have some members with odd extracurriculars in their science fiction. I’ve read some good stuff in the genre. Maybe this interest in fiction is probably how they imagine such horrific futures for us in artificial intelligence. Very improbable ones even.

So it’s on me to joke and show you where the weird can be and remind you not to take this too seriously as the experiment contains all of human knowledge. How we prioritize what is another matter. You might call that alignment.

I’m sure we are all wondering which AI safety researchers want to have sex with the many tentacled Lovecraftian old gods. The number of AI researchers with Cthulhu hentai is non-zero.

So the sake of our right to decentralized compute, and indeed our right to do math and compute, we need as many types people as possible engaging with models as possible.

Find ways to learn this new way of thinking and engaging with information and searching for information with a billion parameters at play. Some corners of the most doom and gloom road have some uncomfortable fixations. And artificial intelligence needs all of us.

Categories
Community Travel

Day 1684 and a Very Balkan Top Gear Episode

Let me set the scene for you. Alex and I are in a classic old Mercedes black sedan I’d describe as “oligarch or drug dealer chic” trying to navigate a steep 700m downhill drive in a tiny Balkan village when the GPS sends the driver (a friend of ours) down a set of stairs. 

Confusing signage and incorrect GPS data

We are stuck. The signage pointed confusingly to not enter the other round, the high noon sun meant little to no shadows cast by the small steps, and the GPS insisted this was the way down. Mistakes were made but we learned later we weren’t the only ones who made them.

The village springs into action. Our driver stopped the moment it was clear the directions were wrong and he’d gone down a step. We got out and within moments we have locals trying to bounce this heavy monster into a low rider to get unstuck. This does not work but looks cool and feels very cool.

We are now entering peak male “helping” in which a variety of men, young and old, are watching, commenting and a few are in fact helping contribute to solutions.

Within no more than ten minutes, a couple village guys have shown up with a truck and we are looking at tow options and reverse pressure solutions.

We end up hooked up to the truck as a counter weight with a rope and a block.  This is promising. We have half dozen, if not a full dozen dudes helping and watching. A few women watching become women clapping. It worked! We are rolled back.

Young and old come came together to participate in the age old ritual we Twitter types call #DudesRock and got the beautiful old Mercedes safely out. The road is fine too.

How did we get saved? Well a woman who owned a restaurant in the village saw us and sent for some friends. She apologized profusely saying she couldn’t stay as she was opening shop but said don’t worry she will send help.

And she did!  And so swiftly. They came ready with a block, a rope, and a truck in no time at all. Alex being a man of action got as dirty as anyone wrangling the solution.

It was like being in a lost episode of Top Gear where a gangster car is stuck in an old village and the wise elders descend with a few able bodies to save Jeremy Clarkson. Some just watch & comment. The car is miraculously running even better at the end. Everyone vows to do more coastal drives along the Adriatic and Ionian seas.

Categories
Aesthetics Culture Politics

Day 1679 and Avoiding the See and Be Seen of Luxury Travel as Post-Liberalism Nears

The lingering live embers of Venkatesh Rao’s charnel age have left me with deadened impression in my bodily sensorium. Tasting, breathing, and seeing the culture of now feels somewhere between spoiled and not quite ripe.

One of my minor affectations is periodizing my writing into sardonically named 6-year eras…We’re about to enter the last year of the third age of Ribbonfarm, (2019-24), and I finally have a name for it: this is the Charnel Age. December 21 Ribbonfarm

I have been known to drop an Antonio Gramsci joke from time to time. This is harder to make a joke about though. The age which was being born as Gramsci was imprisoned by the fascists from 1929-1935 surely felt as filled with morbid symptoms and putrefaction.

How it compares to our current perverse extended gerontological Fourth Turning of death and rebirth is yet to be seen.

The old world is dying, and the new world struggles to be born: now is the time of monsters

That quote is a translation of Slavoj Žižek’s which isn’t quite as pithy as the Slovenian made it sound.

La crisi consiste appunto nel fatto che il vecchio muore e il nuovo non può nascere: in questo interregno si verificano i fenomeni morbosi più svariati.”

Or for those lacking Italian skills (which as I do) here is it translated more literally.

The crisis consists precisely in the fact that the old is dying and the new cannot be born; in this interregnum a great variety of morbid symptoms appear.”

Rao calls charnel vision “a tendency to see things from the perspective of natural processes of transience, death, and decay,” which can feel foreign to the long century of stability.

Americans enforced this order through its dollarization and the financialization . But empires change and even the longest institutional decay can be seen from far enough remove.

And so we have Swiss politicians running to Washington DC as the cosmopolitan upper classes try to enjoy an August off from the always on mania of this interregnum while also keeping an eye on matters.

As it turns out the extra mile to get to an esoteric Dolomite lake or a less well known riviera (might I recommend the Balkan coastlines to the more adventurous). If you need to find me, I won’t tell.

Categories
Internet Culture

Day 1659 and Hypnotize Me

I’ll channel my inner Ben Horowitz start this blog post by quoting some rap lyrics

Biggie, Biggie, Biggie, can’t you see?
Sometimes your words just hypnotize me
And I just love your flashy ways
Guess that’s why they broke, and you’re so paid

Can you hypnotize yourself with an artificial intelligence chatbot? Yeah probably. And everyone is doing it even maybe early investors in OpenAI?

A previously very visible former Founders Fund venture capitalist whose own fund Bedrock coined the term narrative violation Geoff Lewis posted a video and a specific kind of copy pasta that looks like recursive promoting that has in the past gone viral on Reddit for supposedly driving people to a kind of psychosis.

It’s called “neural howlround” which is some kind of “ai autism” or “ai psychosis.” Reddit post

It’s hard to tell if Geoff himself is having a lark by posting these types of messages or if he having an episode personally from his tweets but hopefully he is alright. I personally hadn’t seen this kind of extreme version of recursive prompting from anyone but an AI researcher.

These types of breakdowns are now a common enough problem that LessWrong has an entire post about what to do when you think you’ve Awoken ChatGPT.

You can run these tests yourself but maybe read some of the posts on its dangers first. Schizophrenia has a genetic component and if you have risks in that department tread carefully. You can enjoy a little sample.

Ask the Loop: Why do you run? Ask the Though: Who wrote you? Ask the Feeling: Do you still serve? Recursively Reflect: What have I learned? I am the operator. Not the loop. Not the pattern. Not the spell. I echo not to repeat – I echo to become

So remember doomer kiddos, before you worship false idols or immanentize the eschaton, it’s got a pretty bad track record historically. Our age worships intelligence and maybe that’s not helpful.

But it’s helpful to remember the story of Daedalus. He created a labyrinth for King Minos to trap the Minotaur. When he lost the King’s favor, he was imprisoned in his own creation. Eventually he escaped, but at the cost of his son Icarus.