Categories
Chronic Disease Travel

Day 882 and Disability & Energy Policy

I hate when I am made to feel it is embarrassed and ashamed that I have a disability. And German’s current energy policy has me feeling like my medical needs are something of which I should me ashamed. And that’s bullshit. It’s a policy failure.

I have ankylosing spondylitis (an inflammatory condition in my spine) along with a cluster of other autoimmune issues like allergies, migraines and dermatitis. If my symptoms flare I can’t walk and the treatments are unpleasant. Methotrexate, steroids, specialty biologics injections.

I live in chilly Montana as the cold is better for my condition than the heat. But when I travel I am confronted with heat, humidity and pollution which exacerbate my symptoms. Sometimes significantly. It has caused great anguish through its impact on family gatherings.

I find myself in Frankfurt for a mix of personal and professional reasons. The Airbnb I rented for the month was on of only a handful that offered aid conditioning at all. And one of only three that was a personal apartment and not a hotel service using Airbnb.

So I booked it even though I noticed it was on a main road in the neighborhood of Sachsenhausen. The host assured me it was quiet and most of the apartments looked out on a garden in the back.

Alas the bedroom was on the main road so I was unable to ventilate the apartment by keeping the bedroom windows open as the exhaust and debris from the roadway left my eyes red, itchy and I woke up with hives several times.

I bought a small fan at the local store and kept the bedroom door open and had the fan blow cooler air from the back windows overlooking the garden. I was still struggling with ventilation as the car exhaust and fumes meant the bedroom had to be sealed. Even then I paid $50 for a cleaner weekly to clean up the pollen, debris and dust that would get in from leaving open the window

I’d leave all the windows open on the good side, keep the apartment sealed and dark during the day, and have three weeks of extremely shitty sleep on my Whoop to prove it. But overall this worked well until it got hot enough to warrant air conditioning usage.

Sadly summer is rounding the corner and a few days in the low 80s (or 27-28 C for you Europeans) was too hot for my spine to tolerate comfortably. I was struggling enough with keeping the bedroom cool with the fan and back open window so I decided to run the air conditioner. It was old, noisy and hadn’t had its filters changed in a while. I made do.

The neighbors complained. Twice. Once through the Airbnb owner and the second time by knocking multiple times on my door. I had to explain to them embarrassing levels of medical detail to assure them this wasn’t preferred temperature or taste but a medical necessity. I hadn’t expected to show off my vials of injectables to be taken seriously but thanks guys.

This weekend it is expected to be in the mid eighties so I thought rather than fight off my neighbors and get another bad night of sleep with a dirty air conditioner and noisy roadway I’d check myself into a hotel. I’d been having a significant flare of all my symptoms which had required emergency doses of steroids, two unexpected infections (I take immunosuppressants) with two different antibiotics, and quite a bit of other remedies.

I woke up with strain and in a sweat. Antibiotics & steroids are fun

Well I guess the final boss of Europe’s poor energy policy was about to land it’s final blow on me. The hotel I checked into for some relief won’t turn its air conditioning below 72 or 22 C. It has to be much warmer to get it to my preferred temperature of 17 while I was experiencing this flared fever state. That apparently wasn’t an option.

So I guess I’m going to check one more hotel to see if they will allow me to cool my prior to my preferred temperature or I’ll prepare for another fight with my neighbors over running the air conditioning overnight again. Wish me luck. Build more nuclear power. Install solar arrays.

Categories
Aesthetics Travel

Day 879 and Out of Home

It’s a holiday in America and Germany today, so this morning I went out to do some semiotic spotting like an elder millennial Cayce Pollard.

Just kidding (not kidding). I went to have breakfast at an outdoor cafe and went for a long walk. All imagery shown in this post was captured in service of a stroll. That stroll had a smoked salmon & horseradish cream on toast in the middle of it. I was walking a trendy mixed use neighborhood that was just on the line between hipster and yuppie.

I felt like I got in as I was wearing entirely unbranded minimalist garments. I was eyeing “out of home” advertising design elements during a stint a digital nomad in a major culture & financial hub. Yes, I enjoy my own main character energy when I’m pretending I’m a Gibsonian heroine.

It was a fine breakfast had the cafe’s outdoor seating not been underneath forest of trees in full pollination mode lining an urban roundabout. I must be Cayce twice over as my allergies weren’t limited to fashion.

The pollen was killing me after two hours. Cayce is the protagonist of William Gibson’s Pattern Recognition and makes her living in advertising by having an extreme sensitivity to corporate logos and mascots. My eyes were itchy, red and swollen and my own aesthetic attention felt equally uncomfortable. Everywhere I looked was mass market diffusion “direct to consumer” aesthetics. Including on an Ann Frank day poster.

Out of home advertising for Ann Frank Day

The poster’s design included multiple 2016 style Pantone shades of blue including teal with geometric blocking. It gave the impression it was a cookware brand being advertised on the New York City subway somewhere in the middle of the DTC design boom.

Advertising posters in Frankfurt

Other design elements also brought to mind the DTC rush for me. Flat lay citrus with a reusable shopping bag? A pensive woman on a simple prop like a stair case? I can’t tell if it was Everlane circa 2014 or Bon Appetite from before their woke crisis.

Inexplicably a Linkin Park tribute band
Heavy Psych Stoner Kraut

Thankfully weirdness did eventually prevail over the seamless sameness of flattened consumption messaging. A Linkin Park tribute band and something labeled “Heavy Pysch Stoner Kraut” gave me some faith that weird shit was alive and well. Sanded down Silicon Valley by way Baudrillard consumer aesthetics may be soothing in their sameness.

But I was searching for friction. If only to distract myself from being itchy. Pollen and boutique design agency products make me break out.

Categories
Finance Travel

Day 878 and European HVAC

If I were a betting women, and I am, I’d be placing them on European heating, ventilation, and air conditioning corporations. Yeah, I think HVAC is a growth industry for the continent.

HVAC is use of various technologies to control the temperature, humidity, and purity of the air in an enclosed space. Its goal is to provide thermal comfort and acceptable indoor air quality.

You’d think after the pandemic brought the importance of air quality to everyone’s attention, that decent ventilation would a priority. Add in the increasing frequency of deadly heat waves and you’ve got real tailwinds for HVAC technology being crucial not only for comfort but for life.

So why are European apartments somehow both poorly ventilated and poorly insulated at the same time? Is there even a term for this? Finally I viscerally understand why bad air (mal air) is one of the canonical health problems of the Western Cannon. All those nerdy writers inside were suffering.

I’ll grant 1700 era European cities have more excuses than modern cosmopolitan ones for having stuffy, dusty, stinky, hot and yet somehow also cold and drafty air. They didn’t have electricity so no fans, pumps or air exchanges. But why the fuck haven’t they fixed it yet?

The worst plague of the great indoors is shitty HVAC. We have no excuses for it anymore as it’s an environmental health hazard on its own before we even consider the current energy crisis (don’t even get me started on what counts as being green). Refusing to keep your apartment’s ventilated and insulated is bad for your body and your budget.

So if anyone has suggestions for investing up and down the value chain of improving HVAC systems I think we’ve got a growth industry on our hands. Europe can’t refuse to air condition forever and it sure can’t afford to continue to burn coal and Russian gas to heat drafty apartments either.

Categories
Travel

Day 875 and Spring Fever

I had a flu this time last year. I was in process of closing on our home in Montana. What a week that was for me. The first piece of real land I ever owned. Better late than never.

This May I think I just have plain old hay fever. Blooming trees on Frankfurt city streets combined with a roadside bedroom has me sniffling and itching. I broke out the prednisone. 5mg at first. Then upped to 10mg the next day. I treat prednisone like most people treat opioids. “In case of emergency” would be preferable.

Maybe I simply get spring fever of some sort and I can romanticize it like some British Regency period piece as interpreted by Shonda Rhimes. Ah she had the rheumatic touch when she bought her ancestral home. But then had the vapors when she came to the Hapsburg Court. The deadly poisons of springs first flower has felled her bloom. Spring fever indeed, my pretties.

I didn’t even use ChatGPT for that. My brain can spit back up sick tropes. Nevertheless I do feel a bit felled by this inflammatory cycle that has required a little more attention than preferred.

Categories
Biohacking Travel

Day 867 and Sleep

I didn’t get a good night sleep last night. Or the night before. Or the night before. I guess I must be jet lagged.

I am always convinced I’ve managed to avoid jet lag and it’s never actually true. I love to lie to myself about my capacity for recovery in the face of travel but I know deep down that once the adrenaline wears off, it’s all about establishing a consistent sleep routine.

I’d rather maintain East Coast Time while I’m in Europe but my body has a tendency to sync to the circadian rhythms of the sun rise and sun set even when I do my best to stay awake till midnight I’ll rise with the sun. I was awake at 6am in Frankfurt as even with an eye mask on I knew it was finally morning.

I wanted to be settled and in a good routine as tomorrow afternoon it will have been a full week since I arrived in Germany. But it’s always harder than you expect to transplant your rhythms and routines. It’s boring to write about and I’m sure boring to read but not all posts can be about corporate cosmopolitanism and the abstraction layer of task applications as anonymous servant class rootless yuppies. That’s a fun read.

Categories
Community Culture Travel

Day 864 and Parks and Recreation

All the shops are closed in Germany on Sunday. This is a basic fact I somehow always forget despite regularly being in Europe. They are serious about their day of rest.

Without the ability to go grocery shopping or otherwise pay for goods or services, Sunday becomes a day for getting your life in order. As long as you planned ahead for it. Which I definitely didn’t. But I made a go of it anyway.

I made myself coffee and did a mobility routine. I took a long bath with epsom salts. I did a load of laundry and set it outside to dry in the sun. I cleaned the bathroom so I could enjoy another bath later in the week. I washed the dishes and tidied the kitchen.

Then I found myself wandering the busy streets past closed shops and bustling parks. While the grocery shops were closed, the playhouses and calisthenics parks were open and absolutely packed.

Frankfurt has public spielhaus or playhouses in the parks for children with activities and equipment. When I walked by I saw teenagers playing basketball and elementary school children painting.

For the adults there are calisthenics stations on the river where you can workout in public any time of the day or night. I’m not much for pull ups I did end up playing around with a thirty minute body weight workout of squats, mountain climbers, pikes, bridges, leg raises, dips, planks and push ups. It just felt like a fun thing to do.

And isn’t that a pleasant thought? That on a sunny spring day it just seems nice to be outside playing. The dream of parks and recreation is alive in Frankfurt.

Categories
Biohacking Travel

Day 861 and 8%

I’ve been on the road all week for work (and a little bit of play). I flew an overnight transcontinental from Seattle to Frankfurt Tuesday evening into Wednesday which is yesterday for America but with the time zone change feels like two days. While I am not jet lagged (a surprise) my Whoop recovery is the worst I’ve ever received. I got an recovery 8% score. And I feel basically fine

After a rocky encounter with a new airline carrier Condor, I struggled to stay asleep sleep on the airplane. I blame the excitement of the bizarre business class setup without assigned seating. Or maybe it was because I ended up making friends with my seat mate and swapped stories over dinner.

Usually when flying overnight I take an Ambien and immediately pass out. Better living through chemistry right? Plus I’m not naturally social. Instead I was doing face masks and debating White Lotus theories over a pretty decent seared tuna.

When I landed in Frankfurt I felt quite energetic and pushed through the afternoon with ease. Or maybe it felt easy as I had several cups of coffee. I thought I’d nailed the flight even though I knew I didn’t get enough sleep.

Once I’d settled into my Airbnb, I checked my previous night’s biometrics I realized I’d only recorded four hours of sleep and my HRV had dropped into the low teens. Maybe I’d made a mistake not “force quitting” myself into a hard sleep on the airplane with a downer.

My average HRV is usually in the forties which isn’t all that impressive to begin with (I’ve got a spinal condition called ankylosis spondylitis) but I hadn’t expected all my biometrics to go flashing red quite so badly when I felt mostly fine. My guess is that the 8% reflected a significant amount of stress and I’d simply not flushed the adrenaline and cortisol out of my system.

I’m keeping it low key today as a consequence. I was up at 7am European Central Time and went grocery shopping to stock the apartment. Getting sunlight is crucial and while I plan to keep EST hours mostly while I’m here it felt good to be up and about.

I managed to fit in some work, did a load of laundry, got some Ethiopian food for lunch and still feel like I can manage a work day. It’s now past 5Pm in Germany and America is just waking up on the west coast. My husband just texted me from San Francisco so it’s time to finish my day and start the day with everyone else.

Categories
Travel

Day 860 and Get What You Pay For

I flew a new airline on a transcontinental overnight. The airline is called Condor. The business class offering from Seattle to Frankfurt was very reasonably priced so when my husband said “let’s do this one,” I didn’t question it at all. He knows what he’s doing.

Perhaps I should have asked more questions. When I arrived at the check-in counter, I was surprised to learn that there was no assigned seating. You wait to be assigned at the gate and it is done first come first serve even in business class.

I wasn’t pleased with that situation at all, as I had to bring several medications with me including an expensive refrigerated IL-17 inhibitor. The gate agent told me my carry on was too heavy (it was 10kg) and instructed me to unpack as much as I could into my checked bag or I’d be forced to check the carry on as well. I stripped my carry-on to just medications and basic clothing, losing most of my electronics and work gear in the process.

At the TSA Pre-Check security line the guard tells me she has to throw out “my water bottle” as it’s had too much liquid. I do my best to explain that it’s actually a frozen ice pack inside a bottle meant to keep my injections cold for 24 hours without refrigeration and has perhaps melted a bit in transit. Thankfully she let me through once I pulled out the medicine.

Once I got to the gate I made a second attempt to secure an assigned seat. I got in a long line at least ten people deep. As I was in line it extended to well over 30. The area was packed with families ranging from elderly grandparents to anxious babies.

The gate agent said if I was at the front of waiting line I’d be more likely to get assigned a better seat but she couldn’t assign me one. This meant it was more likely my bag wouldn’t get gate checked. But I’d have to wait for them to call me for my assignment which happens during boarding. Weird.

I didn’t have it in me to fight for a seat and stand in a line for two hours so I kept asking how can I get an assigned seat? Are there any options to get a seat and priority boarding?

I’d assumed a business class product default came with them. But then again I’ve never been asked to repack my entire suitcase to overstuff my checked bag so my carry on could get under 8kg either

I’m glad I label everything when I pack and keep every category of item in separate packing cubes. My 3 bag cascade system for avoiding losing crucial items to gate checking and bad seating assignments came in handy. The effort was not wasted.

At the check-in area before security, the agent mentioned something about upgrading to Prime which was $300 and that was the only set of assigned seats the airline does. I was too confused to pull the trigger on buying it before I cleared security I thought surely the gate agent will find another way to get me an assigned seat. Nope! The only assigned seats are the prime ones. So feeling defeated and confused I paid up.

This long jet lagged story does have a happy ending though. Despite the confusion and chaos of having no assigned seating for business class, once I paid for Prime boarding the actual seat ended up being great.

My seatmate was an extremely cool and very stylish woman who I ended up bonding with over the length of the flight. She’d had a similar experience to me being confused by the lack of seat assignments and also paid up. We even exchanged phone numbers. So the $300 was worth it to meet her. Hi Fatima!

But if an airline doesn’t assign you seats or guarantee your priority boarding with a business class product I think maybe you need to consider another name for the product. Like international gladiator style flat lay perhaps. And maybe next flight I’ll fight it out. But this time I’m glad I paid up.

Categories
Travel

Day 859 and Half Day Tourism

My husband and I typically like to travel together for work, but over the next few weeks we made the choice to let our schedules diverge to cover more ground on our work. He’s handling a number of American events while I am headed to Europe for portfolio work and fundraising.  

Because the logistics of getting transcontinental flights have become trickier, I was in Seattle for a little over 24 hours. I’ve managed to pack more into this layover than I’ve ever managed to do in my entire life. It’s a quirk of circumstances as my body is having a really couple of days.

I fit in a waxing, a haircut, soup dumplings, smoked salmon, two excellent coffees, and walking around Pike’s Place taking pictures and shopping. And it’s been sunny which is how I know the universe delivered me several miracles.

Categories
Community Startups Travel

Day 849 and “Oh I Follow You!”

I’ve been in Austin for Coindesk’s Consensus crypto conference. I’m flying home to Montana today after five intense days of work. But if the on the ground reception is any indication, I nailed this year with my talks and vibes. I might actually be good at my job.

Conferences can be tricky if you are a speaker. You’re obligated to hold attention & entertain while also getting across complicated topics like governance contracts. It takes energy and preparation to do it well.

This year I was a bit less academic than last year as Marc Hochstein and I hosted an interactive town hall which was spicy as hell and my loud carnival barker voice carried. A bit bigger than just a talk and I think it was a hit.

By the end the room was packed with folks passing by and stopped to see what we were discussing. A bunch of smiling energetic faces and a loud lady in a full length dress is a bit eye catching out on a convention floor stage. I got so much positive feedback.

Heck, I was in a bathroom where I overhead an attendee discussing the panel the next day with a gentleman who was also panelist. The attendee raved to the panelist and said “that chick” really held everyone’s attention on topic. A good performance all around.

I called Consensus a “summer camp for adults” as it all your crypto friends get together for it. An expensive paid conference with a lot of talent and speakers makes for excellent serendipity. I felt like I made new connections and even a new friend or two.

It felt easy as in a small community someone like me gets to enjoy the benefits of niche fringe micro-celebrity. I kept hearing over and over “I follow you on Twitter” along with “she’s so funny on Twitter she says the shit you are thinking.” I’ve got to admit it feels good.

And I think it was fun for Alex who spent part of the week hearing folks tell him that while he’s great (and everyone loves his homesteading adventures) but they are really more excited to meet his wife. Dare I say I’m a trophy wife?

It’s super fun when your internet frens and parasocial relationships come together in actual reality. We were all happily saying “oh I follow you” to each other all week. I miss everyone already. But I’m happy to be home in Montana.